Re: OT: Removing autism diagnosis?

[Guest guest]

> Does anyone know what are the advantages, if any, of having the autism

> diagnosis removed? and what's the process?

You can take him back to an MD and see if you can have the dx removed.

Not sure this will affect things tho, because it will still be there

in his medical record. But maybe it will allow you to buy health

insurance again. I am doubtful for my son tho, because even if his dx

is removed, his former of dx of " classic Kanner's autism " , by two

separate pedneuros, will still be in his file, and all the insurance

companies denied him several years ago.

I would love to see the look on the faces of those two docs tho,

especially the one who told me to put him into an institution, because

he would " never talk or even acknowledge my existence " , and today he

no longer qualifies as autistic.

> My son is not eligible for special services, he has no special needs.

> He is doing fantastic. He is almost seven and in first grade.

Congrats!

Dana

[Guest guest]

Very inspiring, thank you both for sharing. I needed to read this

now. Congratulations!

> > Does anyone know what are the advantages, if any, of having the

autism

> > diagnosis removed? and what's the process?

>

>

> You can take him back to an MD and see if you can have the dx

removed.

> Not sure this will affect things tho, because it will still be

there

> in his medical record. But maybe it will allow you to buy health

> insurance again. I am doubtful for my son tho, because even if

his dx

> is removed, his former of dx of " classic Kanner's autism " , by two

> separate pedneuros, will still be in his file, and all the

insurance

> companies denied him several years ago.

>

> I would love to see the look on the faces of those two docs tho,

> especially the one who told me to put him into an institution,

because

> he would " never talk or even acknowledge my existence " , and today

he

> no longer qualifies as autistic.

>

>

> > My son is not eligible for special services, he has no special

needs.

> > He is doing fantastic. He is almost seven and in first grade.

>

>

> Congrats!

>

> Dana

>

[Guest guest]

HOORAY DANA!! Thanks for sharing this great story.

, BS.HT

www.ZeoliteExpert.com

www.ShareTheCause.com/gold

> > Does anyone know what are the advantages, if any, of having the

autism

> > diagnosis removed? and what's the process?

>

>

> You can take him back to an MD and see if you can have the dx

removed.

> Not sure this will affect things tho, because it will still be

there

> in his medical record. But maybe it will allow you to buy health

> insurance again. I am doubtful for my son tho, because even if his

dx

> is removed, his former of dx of " classic Kanner's autism " , by two

> separate pedneuros, will still be in his file, and all the insurance

> companies denied him several years ago.

>

> I would love to see the look on the faces of those two docs tho,

> especially the one who told me to put him into an institution,

because

> he would " never talk or even acknowledge my existence " , and today he

> no longer qualifies as autistic.

>

>

> > My son is not eligible for special services, he has no special

needs.

> > He is doing fantastic. He is almost seven and in first grade.

>

>

> Congrats!

>

> Dana

>

[Guest guest]

One reason would be to have in writing that a professional diagnosed him with

autism and the same or another diagnosed him as recovered. Some people still

don't believe recovery is possible, and crazy as it sounds, will take a

professional's word over the word of a parent. Sad that it's that way. Some

time in the future some teacher may read over his old files before meeting him

and treat him differently if he/she sees a autism dx.

S S

OT: Removing autism diagnosis?

Posted by: " ferdeson " ferdeson@... ferdeson

Tue Mar 18, 2008 10:13 pm (PDT)

Hi,

Does anyone know what are the advantages, if any, of having the autism

diagnosis removed? and what's the process?

My son is not eligible for special services, he has no special needs.

He is doing fantastic. He is almost seven and in first grade.

I would never be able to thank enough Andy and lots of other people on

the . I started chelation when he was so little, 23 lbs

and not even two year old. I was so scared, but today I am so thankful.

Thanks,

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

's right about teachers treating him different if he still has

the diagnosis. I homeschooled during second and third grade and my

son's kindergarten/first records never made it to his school in 4th

grade (oops I was able to explain 's quirks to his teacher

without labeling him with PDD (his previous diagnosis). He mainly

has auditory processing problems which can easily be dealt with by a

nice teacher. One time my younger son's teacher asked whether

had been evaluated for services. I said " there is no need, he is

doing fine now. " I can just imagine how far behind he would be if I

agreed to that and it makes my skin crawl. I can't really say my son

recovered, he just grew out of it. Too bad my younger one can't just

grow out of it.

>

>

> One reason would be to have in writing that a professional

diagnosed him with autism and the same or another diagnosed him as

recovered. Some people still don't believe recovery is possible, and

crazy as it sounds, will take a professional's word over the word of

a parent. Sad that it's that way. Some time in the future some

teacher may read over his old files before meeting him and treat him

differently if he/she sees a autism dx.

> S S

>

> OT: Removing autism diagnosis?

> Posted by: " ferdeson " ferdeson@... ferdeson

> Tue Mar 18, 2008 10:13 pm (PDT)

>

> Hi,

>

> Does anyone know what are the advantages, if any, of having the

autism

> diagnosis removed? and what's the process?

>

> My son is not eligible for special services, he has no special

needs.

> He is doing fantastic. He is almost seven and in first grade.

>

> I would never be able to thank enough Andy and lots of other people

on

> the . I started chelation when he was so little, 23 lbs

> and not even two year old. I was so scared, but today I am so

thankful.

>

> Thanks,

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

Thank you all for your replies.

If it still stays in his medical record and his school file, then I

really don't understand what's the purpose of removing a diagnosis.

I just hope I won't have to lie one day that and say that he was

mis-diagnosed when he was 20 months old... After so many years of hard

work and interventions, that would be a shame.

My pediatrician, the one who referred us to a developmental ped for

the diagnosis, knows about his recovery. She was very closed minded at

first, but she witnessed him recover and I found out recently that she

now is a DAN doctor... Don't give up educating mainstreamed doctors!

>

> Hi,

>

> Does anyone know what are the advantages, if any, of having the autism

> diagnosis removed? and what's the process?

>

> My son is not eligible for special services, he has no special needs.

> He is doing fantastic. He is almost seven and in first grade.

>

> I would never be able to thank enough Andy and lots of other people on

> the . I started chelation when he was so little, 23 lbs

> and not even two year old. I was so scared, but today I am so thankful.

>

> Thanks,

>

>

[Guest guest]

,

What type of chelation did you use? What was the product. Just

curious.....since he was so young.

@...: ferdeson@...: Thu, 20 Mar 2008

05:14:18 +0000Subject: [ ] Re: OT: Removing autism diagnosis?

Thank you all for your replies.If it still stays in his medical record and his

school file, then Ireally don't understand what's the purpose of removing a

diagnosis.I just hope I won't have to lie one day that and say that he

wasmis-diagnosed when he was 20 months old... After so many years of hardwork

and interventions, that would be a shame.My pediatrician, the one who referred

us to a developmental ped forthe diagnosis, knows about his recovery. She was

very closed minded atfirst, but she witnessed him recover and I found out

recently that shenow is a DAN doctor... Don't give up educating mainstreamed

doctors!>> Hi,> > Does anyone know what are the advantages, if any, of having the

autism> diagnosis removed? and what's the process?> > My son is not eligible for

special services, he has no special needs.> He is doing fantastic. He is almost

seven and in first grade. > > I would never be able to thank enough Andy and

lots of other people on> the . I started chelation when he was so

little, 23 lbs> and not even two year old. I was so scared, but today I am so

thankful.> > Thanks,> >

_________________________________________________________________

Shed those extra pounds with MSN and The Biggest Loser!

http://biggestloser.msn.com/

[Guest guest]

,

How cool is that?! We have left two pediatricians now because of not getting

the help we needed for our two boys with autism. The first one was so extremely

closed minded - a man- and old school. I just could not feel comfortable

talking with him anymore because of the way he approached my boys delays and

telling me there was " nothing " that could be done.

That is wonderful that you have been able to educate your son's doctor! I

hope to one day go back and share that there are many things you can do to help

a child with autism, but it is too soon yet. My boys still have a long way to

go, but they are slowly on their way.

Dana

Garrett and

ferdeson <ferdeson@...> wrote:

Thank you all for your replies.

If it still stays in his medical record and his school file, then I

really don't understand what's the purpose of removing a diagnosis.

I just hope I won't have to lie one day that and say that he was

mis-diagnosed when he was 20 months old... After so many years of hard

work and interventions, that would be a shame.

My pediatrician, the one who referred us to a developmental ped for

the diagnosis, knows about his recovery. She was very closed minded at

first, but she witnessed him recover and I found out recently that she

now is a DAN doctor... Don't give up educating mainstreamed doctors!

>

> Hi,

>

> Does anyone know what are the advantages, if any, of having the autism

> diagnosis removed? and what's the process?

>

> My son is not eligible for special services, he has no special needs.

> He is doing fantastic. He is almost seven and in first grade.

>

> I would never be able to thank enough Andy and lots of other people on

> the . I started chelation when he was so little, 23 lbs

> and not even two year old. I was so scared, but today I am so thankful.

>

> Thanks,

>

>

Dana

and Garrett, 3 years old SCD 1 1/2 years!!!!!

Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

>

>

> ,

>

> What type of chelation did you use? What was the product. Just

curious.....since he was so young.

Andy's protocol.

Oral DMSA for three months, then oral DMSA and oral ALA for two years

or so. Most of the time we were on 3 days on, 4 days off, dosage of

1/4 mg per pound, every 2 1/2 hrs during the day and 3 hrs at night.

We tried a few things, in term of dosage and frequency, and that what

worked best for him.

[Guest guest]

> If it still stays in his medical record and his school file, then I

> really don't understand what's the purpose of removing a diagnosis.

For me, I would like the satisfaction of having the piece of paper,

but I don't really know if I will take the time to actually have it done.

> I just hope I won't have to lie one day that and say that he was

> mis-diagnosed when he was 20 months old... After so many years of hard

> work and interventions, that would be a shame.

My son was misdiagnosed. He was diagnosed as classic Kanner's autism,

severe, low functioning, when he should have been diagnosed with heavy

metal poisoning, latent viruses, mitochondrial dysfunction, severe

nutritional deficiencies and toxicities, and several other problems.

> My pediatrician, the one who referred us to a developmental ped for

> the diagnosis, knows about his recovery. She was very closed minded at

> first, but she witnessed him recover and I found out recently that she

> now is a DAN doctor... Don't give up educating mainstreamed doctors!

Great!

Dana