Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Have you considered that you may be able to stop the other meds if you followed your RD's advice and went on Enbrel? Most people experience very few side effects compared to MTX. I was able to stop all other meds including pain meds when I went on Enbrel and I was on everything you are taking except the tolectin. If you are concerned with Enbrel, read the insert for MTX, especially the consequences of long term use. Enbrel may be a more sensible choice if it works for you. Also, if you keep taking that cocktail you may conceder taking folic acid supplements. [ ] other alternatives I was wondering if anyone on the list has tried other alternatives than the usual meds for PA. At my last dr visit it was suggested that I go on Enbrel. And while I know there are many people who are thrilled with the drug...I have too many concerns and I just don't want to go on it. I am currently on azulfidine,tolectin,and methotrexate. I recently had a stomach bug and couldn't eat for three days so I also didn't take my meds. I was amazed at how much better I felt being off of everything. Not that my PA symptoms went away but I have been less achy than I have been lately. So I begin to think about alternative therapies but I have found little on the net. Does anyone have any ideas they could point in my direction?? thanks Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 I'd have to agree on that about the MTX...actually all of it is frightening to mebut I ave always HATED taking any kind of medication and now I'm on about 8. But I got the impression that the majority of people are on ALL the same meds PLUS the Enbrel. If I am wrong then that is great. I feel like I just keep adding. And also yes I'm taking the folic acid too. I just forgot to mention it. Also, a blood pressure med. One reason I am waiting on the Enbrel is cos I don't know how much I'll have to pay myself and not sure I can afford it. I carry my own insurance as I am self-employed. thanks for the info Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Queen...I think you will find most of us have had the same experience as you and have searched for other treatments along the way. We each have found what works for us by experiments, being our own health advocates, and trial and error. Don't give up. One thing I will recommend is reading books on chronic illness and how to accept the challenges and making the best of life. Read up in the library on this site what we have tried and found also. I think said it once...remember 50% of doctors graduated at the bottom of their class and they don't know everything so question and search til you find what works for you. Everytime I hear I need more surgery (5 in 3 years now) I spend a day feeling sorry for me and then get on with it. I have had this for 23 years and found acceptance to be the key for me. Trudy. > I've just had my 6th sinus polypectomy. I can't take it anymore. Are > there any other alternatives? herbal? Diet change? Etc? HELP!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Thanx Trudy. It helps to know I'm not alone in this. I read somewhere that nutrients magnesium, B6, and zinc are helpful. It seems I'm having a surgery almost every couple of years. You're right, I will keep doing research, there's gotta be something... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 I second Trudy's thoughts. Its a process, and no one answer seems to work for everyone, or even for anyone continuously over time. I've benefited from finding the right meds, a sinus surgery, and diet changes. I tried aspirin desens but can't maintain without side effects. It may be the diet changes have been the most subtle, yet profound in impact. Although I avoid some of the worst salicylate foods, I'm more dedicated to trying to eat more from " whole foods " concepts popular with naturopaths, along with a few supplements. (I found magnesium helpful when I started having heart palpitations and joint pain last year). One day at a time, one nostril at a time.. Alice > Thanx Trudy. > > It helps to know I'm not alone in this. I read somewhere that > nutrients magnesium, B6, and zinc are helpful. It seems I'm having a > surgery almost every couple of years. You're right, I will keep doing > research, there's gotta be something... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 I am a fellow person looking for alternatives. What I find so frustrating that this doesn't seem to be as 'rare' as I am led to believe. If this is the case, why? how etc? All the sites I have looked at so far seem to look at just treating the individual symptoms etc, what about the whole package?! My husband at one stage found some interesting stuff, but it looks like noone is really looking at that angle! I am willing to try anything these days! > > Thanx Trudy. > > > > It helps to know I'm not alone in this. I read somewhere that > > nutrients magnesium, B6, and zinc are helpful. It seems I'm > having a > > surgery almost every couple of years. You're right, I will keep > doing > > research, there's gotta be something... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Have you ever tried antineoplastins, LimuPlus, or Ambrotose? Or has anyone out there? > > > Well, as a person LDN for almost 6 months, I can tell you a couple of > things. Only problem for me was a major sleep disturbance for the first > week. Have had a couple of small symptom improvements > which is a plus. Have never done steriods, but do quite a few alternatives > over my 20yr plus MS quest. > > Lorna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 About amrotose, yes it has helped me in a couple of ways. Never done steroids, but am on LDN as my Dr. says the dose is so small, it is almost homeopathic. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.