Guest guest Posted July 24, 2009 Report Share Posted July 24, 2009 dr said his lungs sound clear except up high in his chest. thanx, maureen k. I asked my pulmonologist about this because my lungs are always clear even when I feel SOB. He said that wheezing is a late sign when you have lost all of about 15% of your lung function and not a reliable indicator of an asthma attack at an earlier stage. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? thanx, maureen k. ________________________________ From: instdesgn1 <instdesgn1@...> Sent: Saturday, July 25, 2009 2:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 There is also " silent asthma " plus with lung damage, you can never be totally certain of what is going on. When I am silent, I am almost worse because that means I am junky and all filled up with sticky mucus. Leigh ________________________________ From: instdesgn1 <instdesgn1@...> Sent: Saturday, July 25, 2009 1:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 > > this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? > thanx, maureen k. > > > I am the same way. I am having probs pulling air in and the doc says " well, you sound clear. " I have been on a CPAP for over 3 years now and ABSOLUTELY LOVE IT! It was a pain at first but after I got used to it I couldn't live without it. I even use it when I take a nap. I am breathing clean, fresh, humidified air all night long. The sleep study wasn't bad. They wired me up and watched me sleep. When my apnea started up, they came in and put a cpap on me. Got my own the next day. The CPAP is not for asthma. Sleep apnea occurs in the throat not the lungs. Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 Hi! Sounds to me that your husband's breathing is definitely made worse by his neuromuscular disorder and his asthma. Which neuromuscular disorder does he have? I would ask his pulmo to communicate with his neuro to discuss his case. Cpap and bipap is definitely used by people who cannot keep their saturation up without assistance, in the case of poor ventilation-perfusion or when there is a neuromuscular deficit for example. Cpap is one option to prevent intubation in ICUs and can be used intermittently at home when neeeded. It is not just for sleep apnea although that is how most of us know it. Prednisone is big guns and will make EVERYONE breathe better including those without asthma or any lung disease. As my pulmo said, if there wasn't such horrible side effects, we would put every asthmatic on 50 mg and be out of jobs. Pred is difficult esp in the condition of muscle wasting diseases because pred alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo, while it may be a temp fix, it is not a great solution for anyone. There are many reasons for desaturation and chest muscle weakness and fatigue could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like the right hand and the left hand do not speak to one another, which, unfortunatly, is often the case. ________________________________ From: Maureen Keller <mauireen14@...> Sent: Saturday, July 25, 2009 3:47:48 PM Subject: Re: [ ] Re: asthma this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? thanx, maureen k. ____________ _________ _________ __ From: instdesgn1 <instdesgn1 (DOT) com> Sent: Saturday, July 25, 2009 2:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 i think you have hit his problem on the spot. he had to go to the er last pm, he was sob after having the 4th day in a row of 125mg solu medrol inj. & was scheduled to get another today. he has had this series twice before. it always worked for him in the past. he was suddenly very sob while eating dinner. his O2 wasn't too bad in the er but the dr saw how his muscles have atrophied & agreed with his pulmonologist that he has asthma plus chest muscle weakness. also that the corticosteroids make his muscles weaker. they hospitalized him & put him on oxygen. unfortunately this is sunday & i doubt that tests can be done today unless they are emergencies. the biggest test will be to see if i can convince him to stay in the hospital. i am afraid that if he comes home, he will just continue to be sob & we don't have oxygen at home yet. he was to have an overnight sleep study this wed. in order to get a cpap machine to use during the day. he is being assigned a plumonologist & neurologist in the hospital but he may not see them till mon. i agree he needs a setting like the hospital where these dr can communicate & come up with a home solution. i am exhausted myself taking him from dr to dr, urgent care, etc. on an almost daily basis. he has pls primary lateral sclerosis possibly progressing to als. ________________________________ From: <carrie72583@...> Sent: Saturday, July 25, 2009 7:58:11 PM Subject: Re: [ ] Re: asthma Hi! Sounds to me that your husband's breathing is definitely made worse by his neuromuscular disorder and his asthma. Which neuromuscular disorder does he have? I would ask his pulmo to communicate with his neuro to discuss his case. Cpap and bipap is definitely used by people who cannot keep their saturation up without assistance, in the case of poor ventilation- perfusion or when there is a neuromuscular deficit for example. Cpap is one option to prevent intubation in ICUs and can be used intermittently at home when neeeded. It is not just for sleep apnea although that is how most of us know it. Prednisone is big guns and will make EVERYONE breathe better including those without asthma or any lung disease. As my pulmo said, if there wasn't such horrible side effects, we would put every asthmatic on 50 mg and be out of jobs. Pred is difficult esp in the condition of muscle wasting diseases because pred alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo, while it may be a temp fix, it is not a great solution for anyone. There are many reasons for desaturation and chest muscle weakness and fatigue could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like the right hand and the left hand do not speak to one another, which, unfortunatly, is often the case. ____________ _________ _________ __ From: Maureen Keller <mauireen14 (DOT) com> Sent: Saturday, July 25, 2009 3:47:48 PM Subject: Re: [ ] Re: asthma this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? thanx, maureen k. ____________ _________ _________ __ From: instdesgn1 <instdesgn1@ . com> Sent: Saturday, July 25, 2009 2:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 I am really sorry to hear that your husband has PLS. That is a tough diagnosis. How old is he? I am hoping they will keep him in hospital until they can set up home oxygen. Tell the treating team you are exhausted and you cannot continue with him like this. Perhaps they will be able to get you some home care as well. Is he independent at home or does he need helps for his activities of daily living? How long has he been on xolair for? Keep us posted! ________________________________ From: Maureen Keller <mauireen14@...> Sent: Sunday, July 26, 2009 7:15:47 AM Subject: Re: [ ] Re: asthma i think you have hit his problem on the spot. he had to go to the er last pm, he was sob after having the 4th day in a row of 125mg solu medrol inj. & was scheduled to get another today. he has had this series twice before. it always worked for him in the past. he was suddenly very sob while eating dinner. his O2 wasn't too bad in the er but the dr saw how his muscles have atrophied & agreed with his pulmonologist that he has asthma plus chest muscle weakness. also that the corticosteroids make his muscles weaker. they hospitalized him & put him on oxygen. unfortunately this is sunday & i doubt that tests can be done today unless they are emergencies. the biggest test will be to see if i can convince him to stay in the hospital. i am afraid that if he comes home, he will just continue to be sob & we don't have oxygen at home yet. he was to have an overnight sleep study this wed. in order to get a cpap machine to use during the day. he is being assigned a plumonologist & neurologist in the hospital but he may not see them till mon. i agree he needs a setting like the hospital where these dr can communicate & come up with a home solution. i am exhausted myself taking him from dr to dr, urgent care, etc. on an almost daily basis. he has pls primary lateral sclerosis possibly progressing to als. ____________ _________ _________ __ From: <carrie72583@ .ca> Sent: Saturday, July 25, 2009 7:58:11 PM Subject: Re: [ ] Re: asthma Hi! Sounds to me that your husband's breathing is definitely made worse by his neuromuscular disorder and his asthma. Which neuromuscular disorder does he have? I would ask his pulmo to communicate with his neuro to discuss his case. Cpap and bipap is definitely used by people who cannot keep their saturation up without assistance, in the case of poor ventilation- perfusion or when there is a neuromuscular deficit for example. Cpap is one option to prevent intubation in ICUs and can be used intermittently at home when neeeded. It is not just for sleep apnea although that is how most of us know it. Prednisone is big guns and will make EVERYONE breathe better including those without asthma or any lung disease. As my pulmo said, if there wasn't such horrible side effects, we would put every asthmatic on 50 mg and be out of jobs. Pred is difficult esp in the condition of muscle wasting diseases because pred alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo, while it may be a temp fix, it is not a great solution for anyone. There are many reasons for desaturation and chest muscle weakness and fatigue could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like the right hand and the left hand do not speak to one another, which, unfortunatly, is often the case. ____________ _________ _________ __ From: Maureen Keller <mauireen14@ . com> Sent: Saturday, July 25, 2009 3:47:48 PM Subject: Re: [ ] Re: asthma this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? thanx, maureen k. ____________ _________ _________ __ From: instdesgn1 <instdesgn1@ . com> Sent: Saturday, July 25, 2009 2:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 thank you. he is 61 years old (3 days ago-bad birthday present). he can take care of his daily needs, but is constantly exhausted. he has had 3 xolair treatments. ________________________________ From: <carrie72583@...> Sent: Sunday, July 26, 2009 3:24:24 PM Subject: Re: [ ] Re: asthma I am really sorry to hear that your husband has PLS. That is a tough diagnosis. How old is he? I am hoping they will keep him in hospital until they can set up home oxygen. Tell the treating team you are exhausted and you cannot continue with him like this. Perhaps they will be able to get you some home care as well. Is he independent at home or does he need helps for his activities of daily living? How long has he been on xolair for? Keep us posted! ____________ _________ _________ __ From: Maureen Keller <mauireen14 (DOT) com> Sent: Sunday, July 26, 2009 7:15:47 AM Subject: Re: [ ] Re: asthma i think you have hit his problem on the spot. he had to go to the er last pm, he was sob after having the 4th day in a row of 125mg solu medrol inj. & was scheduled to get another today. he has had this series twice before. it always worked for him in the past. he was suddenly very sob while eating dinner. his O2 wasn't too bad in the er but the dr saw how his muscles have atrophied & agreed with his pulmonologist that he has asthma plus chest muscle weakness. also that the corticosteroids make his muscles weaker. they hospitalized him & put him on oxygen. unfortunately this is sunday & i doubt that tests can be done today unless they are emergencies. the biggest test will be to see if i can convince him to stay in the hospital. i am afraid that if he comes home, he will just continue to be sob & we don't have oxygen at home yet. he was to have an overnight sleep study this wed. in order to get a cpap machine to use during the day. he is being assigned a plumonologist & neurologist in the hospital but he may not see them till mon. i agree he needs a setting like the hospital where these dr can communicate & come up with a home solution. i am exhausted myself taking him from dr to dr, urgent care, etc. on an almost daily basis. he has pls primary lateral sclerosis possibly progressing to als. ____________ _________ _________ __ From: <carrie72583@ .ca> Sent: Saturday, July 25, 2009 7:58:11 PM Subject: Re: [ ] Re: asthma Hi! Sounds to me that your husband's breathing is definitely made worse by his neuromuscular disorder and his asthma. Which neuromuscular disorder does he have? I would ask his pulmo to communicate with his neuro to discuss his case. Cpap and bipap is definitely used by people who cannot keep their saturation up without assistance, in the case of poor ventilation- perfusion or when there is a neuromuscular deficit for example. Cpap is one option to prevent intubation in ICUs and can be used intermittently at home when neeeded. It is not just for sleep apnea although that is how most of us know it. Prednisone is big guns and will make EVERYONE breathe better including those without asthma or any lung disease. As my pulmo said, if there wasn't such horrible side effects, we would put every asthmatic on 50 mg and be out of jobs. Pred is difficult esp in the condition of muscle wasting diseases because pred alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo, while it may be a temp fix, it is not a great solution for anyone. There are many reasons for desaturation and chest muscle weakness and fatigue could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like the right hand and the left hand do not speak to one another, which, unfortunatly, is often the case. ____________ _________ _________ __ From: Maureen Keller <mauireen14@ . com> Sent: Saturday, July 25, 2009 3:47:48 PM Subject: Re: [ ] Re: asthma this is interesting. my husband's lungs are usually clear when he is short of breath. often the drs look at him like " why are you here " ? they didn't look at him that way last wed. when he sounded clear but his O2 was 88%!! his pulmonologist still thinks he aslo has chest muscle weakness from his neuromuscular disorder that contributes to the SOB. however, he always responds to prednisones which the neurologists insist will have no effect at all on his neurological condition. now he has to do a sleep study in order to get a cpap machine. the pulmonologist thinks he can use that during the day when he feels SOB & that he may be able to avoid all the prednisone meds. has anyone used a cpap in the day for SOB? thanx, maureen k. ____________ _________ _________ __ From: instdesgn1 <instdesgn1@ . com> Sent: Saturday, July 25, 2009 2:52:13 PM Subject: [ ] Re: asthma Interesting! Doctors often say my lungs sound clear even though I have daily SOB. The catscan did show damage to my lungs although thankfully it was considered reltively minor to moderate. I'm a non-smoker and always have been. So, I'm glad to hear that some doc somewhere had admitted that listening to lungs does not always prove much! Thank you! > > dr said his lungs sound clear except up high in his chest. > thanx, maureen k. > I asked my pulmonologist about this because my lungs are always clear even > when I feel SOB. He said that wheezing is a late sign when you have lost all > of about 15% of your lung function and not a reliable indicator of an asthma > attack at an earlier stage. > Carol > > > Quote Link to comment Share on other sites More sharing options...
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