Walkaid, etc.

[Guest guest]

I started LDN last Sept. when I found this group. My energy is astounding - no more fatigue. Since I have Secondary Progressive and have had for some years, I did not think I'd get more symptom relief, however, I am using a walkaid-like system and my gait/balance is indeed improving!

I was lucky to have my nuero write me a PT order for gait training and the Rehab facility is using the Bioness NESS L3000, which works a little differently from Walkaid. It also goes below your knee, but has a sensor in your shoe that sets off the electrodes when you lift your heel to walk.

I have an 8 week script, but the first time I put it on I started actully " walking " (not dragging my right side around) and in 3 weeks am starting to have residual muscle use -a little.

I suggest going through your doctor, get a physical therapy script and find a facility that uses that equipment - it really makes a difference.

And I suspect the LDN also has something to do with it.

I also saw the NMSS Nuerology conference overview and was astonished to see LDN in it. Below are the findings:

MS Neurology Conference

Two groups reported on the use of low dose naltrexone (LDN). Naltrexone is an opioid antagonist that has been approved by the U.S. Food and Drug Administration (FDA) for the treatment of addictions to opioids and alcohol. At significantly lower doses, it has been prescribed as a treatment for a variety of diseases. Dr. Gianvito o (San Raffaele Hospital, Milan, Italy) and colleagues administered 5 mg of LDN to 40 people with primary-progressive MS for 6 months, evaluating its safety and effects on spasticity, pain and fatigue. Five patients dropped out. Significant improvements were shown in fatigue and depression. Transient increases in liver enzymes, urinary tract infections, mild agitation and sleep disturbance were the most common adverse events. (Abstract #P01.149, funded by the Italian Federation of Multiple Sclerosis)

Dr. Bruce Cree (University of California, San Francisco) and colleagues reported that eight weeks of treatment with LDN significantly improved quality of life (specifically, mental health,

pain, and self-reported cognitive function) in 60 people with MS as measured by the MS Quality of Life Inventory. No impact was observed on physical quality of life (such as fatigue, bowel and bladder control, sexual satisfaction, and visual function). Vivid dreaming was reported during the first week of treatment by some patients, but no other adverse effects were reported. (Abstract #P02.151) Patient advocates with MS have funded Dr. Cree to conduct a larger, controlled study that will involve 80 people with MS.

It's a start!

[Guest guest]

Hi,

I have a walk-aide and like I have said before that I do hate it and it sits in my closet. On the one that you use, do you feel the shocks or do the electrodes just work off of each other. I had to get a script for mine also but it is still not paid by my insurance. Does your insurance pay for yours?

Thanks

Marie

[low dose naltrexone] Walkaid, etc.

I started LDN last Sept. when I found this group. My energy is astounding - no more fatigue. Since I have Secondary Progressive and have had for some years, I did not think I'd get more symptom relief, however, I am using a walkaid-like system and my gait/balance is indeed improving!

I was lucky to have my nuero write me a PT order for gait training and the Rehab facility is using the Bioness NESS L3000, which works a little differently from Walkaid. It also goes below your knee, but has a sensor in your shoe that sets off the electrodes when you lift your heel to walk.

I have an 8 week script, but the first time I put it on I started actully "walking" (not dragging my right side around) and in 3 weeks am starting to have residual muscle use -a little.

I suggest going through your doctor, get a physical therapy script and find a facility that uses that equipment - it really makes a difference.

And I suspect the LDN also has something to do with it.

I also saw the NMSS Nuerology conference overview and was astonished to see LDN in it. Below are the findings:

MS Neurology Conference

Two groups reported on the use of low dose naltrexone (LDN). Naltrexone is an opioid antagonist that has been approved by the U.S. Food and Drug Administration (FDA) for the treatment of addictions to opioids and alcohol. At significantly lower doses, it has been prescribed as a treatment for a variety of diseases. Dr. Gianvito o (San Raffaele Hospital, Milan, Italy) and colleagues administered 5 mg of LDN to 40 people with primary-progressive MS for 6 months, evaluating its safety and effects on spasticity, pain and fatigue. Five patients dropped out. Significant improvements were shown in fatigue and depression. Transient increases in liver enzymes, urinary tract infections, mild agitation and sleep disturbance were the most common adverse events. (Abstract #P01.149, funded by the Italian Federation of Multiple Sclerosis)

Dr. Bruce Cree (University of California, San Francisco) and colleagues reported that eight weeks of treatment with LDN significantly improved quality of life (specifically, mental health,

pain, and self-reported cognitive function) in 60 people with MS as measured by the MS Quality of Life Inventory. No impact was observed on physical quality of life (such as fatigue, bowel and bladder control, sexual satisfaction, and visual function). Vivid dreaming was reported during the first week of treatment by some patients, but no other adverse effects were reported. (Abstract #P02.151) Patient advocates with MS have funded Dr. Cree to conduct a larger, controlled study that will involve 80 people with MS.

It's a start!