Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Here we go again... I have been defending myself and this protocol like crazy on other boards from Moms who think this same thing after coming here and asking questions. I have witnessed some really unfriendly snippy replies myself although have not had any directed at me ( THANK YOU )You guys need to remember not everyone knows this protocol and asking questions should be expected and respected. You cant expect new members to just accept what they read without asking questions. Andy states himself over and over not to believe everything people or Dr's tell you. How is this any different? I believe in this protocol 100% but being pushy and expecting people to get it right away and snapping at them or giving aggressive answers is rude. Dont respond if you have not got the patience to answer in a positive manner. You might not realize it, but you are turning people off to this protocol and I am watching people join and leave and feel bad because I have faith in it, just as you do and want to see as many children healed as possible. THAT should be the goal.. not being a KNOW IT ALL . Of course this is not directed at the majority of very kind helpful people in this group From: kellymac92 <cs-mom@...> Sent: Monday, January 7, 2008 12:36:19 PM Subject: [ ] EDTA and DMPS - , I guess, I don't NEED your kind of " help " with anything. Sorry for asking around before I do something to my son that I am not very familiar with. It DOES help my peace of mind to get several opinions before making such an important decision. You may not have been trying to be snippy, but you were. You aren't the first person on this group to be rude to me for asking a question nicely. I am a memeber of about several different support groups relating to autism and chelation, and NEVER have I received such rude comments as I have on this board. SOME of you people think you are the god of chelation and no one should question you. As one person put it on another board, you ARE just like a cult! Count me out. I will be cancelling my membership as of right now. I do want to say THANK YOU to all of the KIND members of this board who offered their advice without trying to make me feel stupid or like I didn't belong. It is KIND, CARING people like you who make it possible to get through this terrifying journey. As for the others....good riddance! ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Points well taken, but people really need to learn not to take things so personally. Information is information, after all. This is not about (or should not be about) ego. Anne > > Here we go again... I have been defending myself and this protocol like crazy on other boards from Moms who think this same thing after coming here and asking questions. I have witnessed some really unfriendly snippy replies myself although have not had any directed at me ( THANK YOU )You guys need to remember not everyone knows this protocol and asking questions should be expected and respected. You cant expect new members to just accept what they read without asking questions. Andy states himself over and over not to believe everything people or Dr's tell you. How is this any different? I believe in this protocol 100% but being pushy and expecting people to get it right away and snapping at them or giving aggressive answers is rude. Dont respond if you have not got the patience to answer in a positive manner. You might not realize it, but you are turning people off to this protocol and I am watching people join and leave and feel bad because I have > faith in it, just as you do and want to see as many children healed as possible. THAT should be the goal.. not being a KNOW IT ALL . Of course this is not directed at the majority of very kind helpful people in this group > > > > From: kellymac92 <cs-mom@...> > > Sent: Monday, January 7, 2008 12:36:19 PM > Subject: [ ] EDTA and DMPS - > > > , > I guess, I don't NEED your kind of " help " with anything. Sorry for > asking around before I do something to my son that I am not very > familiar with. It DOES help my peace of mind to get several opinions > before making such an important decision. You may not have been > trying to be snippy, but you were. You aren't the first person on > this group to be rude to me for asking a question nicely. I am a > memeber of about several different support groups relating to autism > and chelation, and NEVER have I received such rude comments as I > have on this board. SOME of you people think you are the god of > chelation and no one should question you. As one person put it on > another board, you ARE just like a cult! Count me out. I will be > cancelling my membership as of right now. > I do want to say THANK YOU to all of the KIND members of this board > who offered their advice without trying to make me feel stupid or > like I didn't belong. It is KIND, CARING people like you who make it > possible to get through this terrifying journey. > > As for the others....good riddance! > > > > > > _____________________________________________________________________ _______________ > Never miss a thing. Make your home page. > http://www./r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 I'd just like to share what I have read on this subject. I hope you haven't left the group yet and you reconsider. The articles I have read suggest that EDTA is absorbed very little (5%) if taken orally. This means that the rest of it (unabsorbed EDTA in GI) will grab most all minerals and trace minerals that are so vital to body's functions. Therefore not a good choice. Regarding other forms of EDTA, CDC suggests that if the Lead blood level is below a certan level, just remove the child from the environment that is causing the exposure. Do not use EDTA, thinking that risks outweigh the benefits. The studies that have been done shows that EDTA redistributes the Lead to brain. This is how it was explained: EDTA chelates the Lead from kindneys and the blood. So, the Lead level goes down initially and then it will rebound. I don't know what the mechanism exactly is. However, it was explained that once the Lead level becomes low in kidneys, that causes for the Lead to be pulled from the bones and the Lead level will rebound. Once Lead is in the blood it competes with Calcium and the body kind of confuses Lead with Calcium. It tells me that consuming a LOT of calcium will definitely help. Give your kid a high dose of calcium until you find out more... Kaylee > > , > I guess, I don't NEED your kind of " help " with anything. Sorry for > asking around before I do something to my son that I am not very > familiar with. It DOES help my peace of mind to get several opinions > before making such an important decision. You may not have been > trying to be snippy, but you were. You aren't the first person on > this group to be rude to me for asking a question nicely. I am a > memeber of about several different support groups relating to autism > and chelation, and NEVER have I received such rude comments as I > have on this board. SOME of you people think you are the god of > chelation and no one should question you. As one person put it on > another board, you ARE just like a cult! Count me out. I will be > cancelling my membership as of right now. > I do want to say THANK YOU to all of the KIND members of this board > who offered their advice without trying to make me feel stupid or > like I didn't belong. It is KIND, CARING people like you who make it > possible to get through this terrifying journey. > > As for the others....good riddance! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 We have been here before with this Mom, she had previously asked the same ? and gotten the same answer, kindly. THIS is why I said I don't know what else we could do to help her. People are not responsible to do other people's research. Unfortunately having one of our kids requires an enormous amount of time and effort. She had gotten an answer several times, just sometimes people don't like the answer they get. See http://health/group/ /message217768 dated 12/27/07 > > Here we go again... I have been defending myself and this protocol like crazy on other boards from Moms who think this same thing after coming here and asking questions. I have witnessed some really unfriendly snippy replies myself although have not had any directed at me ( THANK YOU )You guys need to remember not everyone knows this protocol and asking questions should be expected and respected. You cant expect new members to just accept what they read without asking questions. Andy states himself over and over not to believe everything people or Dr's tell you. How is this any different? I believe in this protocol 100% but being pushy and expecting people to get it right away and snapping at them or giving aggressive answers is rude. Dont respond if you have not got the patience to answer in a positive manner. You might not realize it, but you are turning people off to this protocol and I am watching people join and leave and feel bad because I have > faith in it, just as you do and want to see as many children healed as possible. THAT should be the goal.. not being a KNOW IT ALL . Of course this is not directed at the majority of very kind helpful people in this group > > > > From: kellymac92 <cs-mom@...> > > Sent: Monday, January 7, 2008 12:36:19 PM > Subject: [ ] EDTA and DMPS - > > > , > I guess, I don't NEED your kind of " help " with anything. Sorry for > asking around before I do something to my son that I am not very > familiar with. It DOES help my peace of mind to get several opinions > before making such an important decision. You may not have been > trying to be snippy, but you were. You aren't the first person on > this group to be rude to me for asking a question nicely. I am a > memeber of about several different support groups relating to autism > and chelation, and NEVER have I received such rude comments as I > have on this board. SOME of you people think you are the god of > chelation and no one should question you. As one person put it on > another board, you ARE just like a cult! Count me out. I will be > cancelling my membership as of right now. > I do want to say THANK YOU to all of the KIND members of this board > who offered their advice without trying to make me feel stupid or > like I didn't belong. It is KIND, CARING people like you who make it > possible to get through this terrifying journey. > > As for the others....good riddance! > > > > > > __________________________________________________________ _______________ > Never miss a thing. Make your home page. > http://www./r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 I understand what your saying but this group is for asking questions not judging why someone is asking or what or how many times. I just think if you dont have the patience to answer a question kindly..dont. [ ] EDTA and DMPS - > > > , > I guess, I don't NEED your kind of " help " with anything. Sorry for > asking around before I do something to my son that I am not very > familiar with. It DOES help my peace of mind to get several opinions > before making such an important decision. You may not have been > trying to be snippy, but you were. You aren't the first person on > this group to be rude to me for asking a question nicely. I am a > memeber of about several different support groups relating to autism > and chelation, and NEVER have I received such rude comments as I > have on this board. SOME of you people think you are the god of > chelation and no one should question you. As one person put it on > another board, you ARE just like a cult! Count me out. I will be > cancelling my membership as of right now. > I do want to say THANK YOU to all of the KIND members of this board > who offered their advice without trying to make me feel stupid or > like I didn't belong.. It is KIND, CARING people like you who make it > possible to get through this terrifying journey. > > As for the others....good riddance! > > > > > > ____________ _________ _________ _________ _________ _________ _ ____________ ___ > Never miss a thing. Make your home page. > http://www.. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
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