Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Liora. The symptoms certainly sound like they could be mercury issues. This hair tes,t unfortunately, is not adequate. Would you be able to do one via DirectLabs.Com? They would probably send you a kit in China, if you could pay them in US currency. The test you want is the " Hair Elements " test, _not_ the " Toxic Hair Elements " test. (If you have trouble, email me directly. To reach me, you will have to go through a small hurdle. My email address on this post will return an email to you, giving you another email to respond to. That is my way of avoiding spam.) Barring that, or even if you do it and find that she is mercury toxic, I would suggest: (0) Just must confirm that she has no amalgam fillings, right? (1) Doing an elimination diet to find _all_ food allergies. (You feed a short list of generally safe foods for a week, and then put foods back in one by one and look for reactions. That short list is in the files section of the frequent-dose-chelation list, perhaps also the autism treatment list) (2) Doing a sulfur exclusion diet to find out if she needs or needs to stay away from high sulfur foods. (Search using Onibasu.Com and look for " sulfur exclusion diet " ) (3) Putting the proper (standard) supplements in place as described here. (Basically magnesium, zinc, vitamins C, E, lots of Bs, CoQ10, selenium as selenomethionine, Cod liver oil or flax oil, borage oil, milk thistle) (4) Doing a trial few rounds of chelation, using ALA on the proper protocol and looking to see if she has any reactions to the ALA. If so, then you have diagnosed mercury toxicity. (The way to use ALA is dosing every 3 hours, even at night, starting at 1/8 mg per lb of bodyweight. This is _very important_.) I would also strongly suggest your buying andy cutler's books from amazon.com or directly from him at noamalgam.com. I'm pretty sure he would mail to china, if you could transmit US currency here. Dave ------------------ Posted by: " lioracc " lioracc@... lioracc Date: Wed May 28, 2008 10:40 pm ((PDT)) Hi, I live in China with a mildly impaired girl, age 4. She's a " not Autistic, BUT... " kind of kid. We are certain had we kept vaxxing her that she would have been autistic...there are just too many similarities between her sxs and ASD. There are no doctors here who know anything about metals, nor even how to test for them. We got a hair analysis via mail (Dr. Janet Starr Hull) a year ago which showed " She is high in the following metals: Aluminum (toxic levels, sourced to the manufacturing of foods) Antimony (high levels, mocks arsenic toxicity) Arsenic (toxic levels, antimony and arsenic can be found in public water, irritates the skin and breathing) Bismuth (possibly from medications) Cadmium (toxic levels, pollution) Lead (toxic levels) Mercury (high levels) Thallium (I do not see this toxin often, toxic levels, radioactive, medical industry) Uranium (toxic levels, but combined with thallium, can be more toxic) Nickel (high levels) Silver (high levels) Tin (toxic levels) Titanium (high levels, medications and food preservatives) Copper (toxic levels) " So I have been giving her supplement that I know is inadequate. But we keep kosher so it was the best I could find at the time...also a probiotic which I have just stopped since I discovered it contains mannitol. I will drop the kosher requirements in order to find a protocol which is not too risky, which I can implement totally on my own, with no tests or monitoring. I was looking at Lang's available here http://www.brainchildnutritionals.com and does anyone here think, for a mildly impaired girl, this would be a wise move to try? Her problems (short list): 1) IgA deficiency--often has sore throat and red vulva area 2) Loss of emotional control/tantrums/rages, 3) Oversensitive to fabrics/hot water--slight sensory issues, 4) Terrible digestion (chunky, loose stools--chronic, stomachaches, bloating, at times in her life, small for age, now normal range), 5) Facial tics, (at one time vocal tics as well, which are now gone), 6) Milk allergy, multiple food intolerances and probably Celiac's disease though I just can't subject her to that intestinal biopsy to confirm. We are low gluten but not totally gluten free as I cook oatmeal, and use rye flour at times. She is totally dairy free. We eat all organic, lots of veggies and fresh whole foods. A teensy sliver of dairy free chocolate for an occasional treat. My kids think dessert is a blended frozen banana and chocolate Rice dream... thanks so much in advance my head is spinning ! Liora in Beijing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 >>We got a hair analysis via mail (Dr. Janet Starr > Hull) a year ago which showed > " She is high in the following metals: Find and remove sources of current exposures http://www.danasview.net/metals.htm > I will drop the kosher requirements in order to find a protocol which > is not too risky, which I can implement totally on my own, with no > tests or monitoring. I chelated my kids with ALA, on my own without a doctor or testing. > Her problems (short list): > 1) IgA deficiency--often has sore throat and red vulva area Consider yeast overgrowth http://www.danasview.net/yeast.htm > 2) Loss of emotional control/tantrums/rages, Yeast overgrowth, milk intolerance, a few other things. > 3) Oversensitive to fabrics/hot water--slight sensory issues, Yeast ovegrowth, a few other things. > 4) Terrible digestion (chunky, loose stools--chronic, stomachaches, > bloating, at times in her life, small for age, now normal range), Try giving digestive enzymes. http://www.danasview.net/parent3.htm#supplements > 5) Facial tics, (at one time vocal tics as well, which are now gone), Most tics at my house were caused by yeast overgrowth. > 6) Milk allergy, multiple food intolerances and probably Celiac's > disease though I just can't subject her to that intestinal biopsy to > confirm. Milk intolerance is very probable. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Hello Liora, Welcome to the list. I don't have much time, but wanted to drop a couple of things before heading out the door. Maybe others can expand a bit, if not I'll be back. You can search the back posts for two topics which will have lots of info and discussion. One is " yeast " - the facial and speech tics for my son were all about yeast. He too is very mild, like your daughter. But, the tics and outbursts of anger we controlled pretty easily by using Grapefruit Seed Extract, and later adding biotin to his supplements. We are getting ready to chelate, since until the mercury is gone, the yeast will be a constant battle. The second thing is to check out Mitochondrial Dysfunction. The stomach aches make me think that. There are also some other symptoms that you may not even be considering which are linked. For my daughter it was teeth grinding, excessive ear wax, stomach aches (which lessened when we used raw milk products only), headaches, acne, and more - I just can't remember them all in a hurry. We put her on a Mito Cocktail as outlined by other list member Dana at http://www.danasview.net - don't have the exact link right now. That helped IMMENSELY with her, and we are also chelating her in the near future. Hope that gives you something to go on for now. The info here can seem overwhelming, but after reading for a while, it all starts to make sense. What I do is try to pick a subject or two that really interests me and keep up with it until I can take it in. Then, move on to the next one. You will find lots of helpful info here, don't be afraid to ask questions as you go. P. lioracc wrote: > > Hi, I live in China with a mildly impaired girl, age 4. > > She's a " not Autistic, BUT... " kind of kid. We are certain had we > kept vaxxing her that she would have been autistic...there are just > too many similarities between her sxs and ASD. > > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 HI Liora, & nbsp; I have Celiac and also lactose intolerance as well as sugar intolerances. What helped me a lot was following and sticking to SCD ( specific carbohydrate diet). I am 41 and I do biopsy every year. Since on the diet I improved in both symptoms ( I am symptoms free if I stick 100% to the diet which I try. I just cheat a bit with maybe more cafee than allowed and some dark chocolate). Definetely gluten is out of my diet completely. It was hard in the first month but after that I got used to it. I eliminated also all preservatives, artificial colorants and flavours as I noticed I had bad reaction to them and try to buy organic as much as I can (not completely). Start with next link http://www.breakingtheviciouscycle.info/ & nbsp; Google specific carbohydrate diet and you will find recipes, support group. Bellow is the link for more info on this diet and you can contact me directly if you need more info on the subject. Varinia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Thank you SO much for your replies, everyone! SCD and more dietary restrictions like low sulfur: I have considered it, but...our diet is already extremely limited. I am to the point though that I must look into more food probs.. Kosher products only 95% organic 90%+ fresh whole foods for kids No meat No dairy (allergic, she is) No fish (I give her fish oil, sporadically) No wheat (reacts). Gluten free cereals on special occasions. No oils except coconut, olive, flax seed, pumpkin seed and occasionally sunflower....all are organic. Yeast...interesting, since we ran out of her probiotic the constant eye tics have RETURNED. How much GSE should I give a 34 pound (15.5 kilo) four year old each day? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Try to identify and reduce/remove sources of exposure. www.danasview.net/metals Overwhelmed with the info here, need guidance. Posted by: " lioracc " lioracc@... lioracc Wed May 28, 2008 10:40 pm (PDT) Hi, I live in China with a mildly impaired girl, age 4. She's a " not Autistic, BUT... " kind of kid. We are certain had we kept vaxxing her that she would have been autistic...there are just too many similarities between her sxs and ASD. There are no doctors here who know anything about metals, nor even how to test for them. We got a hair analysis via mail (Dr. Janet Starr Hull) a year ago which showed " She is high in the following metals: Aluminum (toxic levels, sourced to the manufacturing of foods) Antimony (high levels, mocks arsenic toxicity) Arsenic (toxic levels, antimony and arsenic can be found in public water, irritates the skin and breathing) Bismuth (possibly from medications) Cadmium (toxic levels, pollution) Lead (toxic levels) Mercury (high levels) Thallium (I do not see this toxin often, toxic levels, radioactive, medical industry) Uranium (toxic levels, but combined with thallium, can be more toxic) Nickel (high levels) Silver (high levels) Tin (toxic levels) Titanium (high levels, medications and food preservatives) Copper (toxic levels) " So I have been giving her supplement that I know is inadequate. But we keep kosher so it was the best I could find at the time...also a probiotic which I have just stopped since I discovered it contains mannitol. I will drop the kosher requirements in order to find a protocol which is not too risky, which I can implement totally on my own, with no tests or monitoring. I was looking at Lang's available here http://www.brainchildnutritionals.com and does anyone here think, for a mildly impaired girl, this would be a wise move to try? Her problems (short list): 1) IgA deficiency--often has sore throat and red vulva area 2) Loss of emotional control/tantrums/rages, 3) Oversensitive to fabrics/hot water--slight sensory issues, 4) Terrible digestion (chunky, loose stools--chronic, stomachaches, bloating, at times in her life, small for age, now normal range), 5) Facial tics, (at one time vocal tics as well, which are now gone), 6) Milk allergy, multiple food intolerances and probably Celiac's disease though I just can't subject her to that intestinal biopsy to confirm. We are low gluten but not totally gluten free as I cook oatmeal, and use rye flour at times. She is totally dairy free. We eat all organic, lots of veggies and fresh whole foods. A teensy sliver of dairy free chocolate for an occasional treat. My kids think dessert is a blended frozen banana and chocolate Rice dream... thanks so much in advance my head is spinning ! Liora in Beijing _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 > Yeast...interesting, since we ran out of her probiotic the constant > eye tics have RETURNED. How much GSE should I give a 34 pound (15.5 > kilo) four year old each day? I would start with one drop in the morning, it is pretty potent. When I added biotin and magnesium, I was able to significantly reduce the required dose of GSE. Eventually, I was able to remove the GSE. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Liara/: This test is fine. For the moment, you don't need to do another one. 3 red, (Ca, Mg, Zn) " suspicious " 12 outside of green zone (that's a counting rule) 7 under + 1 borderline (generally high pattern) Ca elevated. As moderately elevated; maybe an issue?? ==> TMG (.5-2g early in day), folic acid (.4-1.2mg, 4x/d) & B12 (several mg/d) Scale those three to weight for a child and be aware that too much methl donors can cause anger, aggression and lack of motivation. May not handle carbs well - high protein or even Atkins can be tried. If chemical sensitivity: avoid carotenes, eat grapefuit & niacinamide .5gm 4x/d Also Al and Antimony (see Andy's other book, " Hair Test Interpretation " on what to avoid here) Tin quite elevated, Thallium a bit elevated, Ok, all of that indicates that the kid is very probably mercury toxic for which you will need to chelate with ALA. Lead is also very elevated. You will need to include DMSA at least 3 days per month in the chelation protocol. Uranium - could be location or could be an iron issue (too low iron can lead to too high uranium). Actually, I wouldn't worry about this since the test pattern is generally high. (That doesn't effect lead though.) If you happen to have a ferritin test, then you want to see anything between 30 and 70. Under 30 is low. Magnesium red high with deranged minerals ==> Give Mag and Taurine. Na/Mg = 1.27, low end of normal. No adrenal sign. Na/K fine K/Ca = .06 Thyroid looks ok. Ca & Mg elevated ==> parathyroid may be in trouble. Give Calcium and Magnesium. Make sure sufficient vitamin D. Give 1200IU-2000IU (adult) scaled by weight for a child _if_ he is not out in the sun much. Otherwise, it depends on location. I don't know how far north Beiging is, but if over about 40 deg north latitude, then you shold supplement. If lower then consider just supplementing in the winter. Since I remember that there are no more exposures and you appear to have the supps in place, then you can get started with DMSA. Read in the files section and/or andy's book, but the basic idea is to start the dose at 1/8mg per lb of bodyweight. It's the same dose for ALA. You only need DMSA for 3 days per month for the lead. It will also chelate mercury, but only from extracellular spaces outside of the brain. The ALA is necessary to remove mercury from the brain. Do not be in any rush to raise the dose level, and certainly don't go above 1/2mg-lb. Good luck - let us know how it's going! (And spread the word in China!) Dave. -------------- Posted by: " lioracc " lioracc@... lioracc Date: Thu May 29, 2008 7:42 pm ((PDT)) > > The symptoms certainly sound like they could be mercury issues. > >This hair test unfortunately, is not adequate. ...The test you want > >is the " Hair Elements " test... ***The test we got was from Doctors Data Labs and does say Hair Elements Test on it. I took an easily cut 'n paste general overview from the discussion section of another document...I'll post the actual results in another post. > > (0) Just must confirm that she has no amalgam fillings, right? ** Right. No fillings at all. I do have a few. She had Vaccines from Birth, 1 mo. and 2 mo. She got in total: 2 Hep B (1 imported, 1 Chinese at birth, both with mercury I'm sure) BCG tuberculosis (do not know country of origin, given at birth) 1 Oral Polio (Chinese) 1 DPT (whole cell pertussis, Chinese brand) then we STOPPED entirely. > > (1) Doing an elimination diet to find _all_ food allergies. > > (You feed a short list of generally safe foods for a week, and then > >put foods back in one by one and look for reactions. That short list > >is in the files section of the frequent-dose-chelation list, perhaps > >also the autism treatment list) *** Will try. > > (2) Doing a sulfur exclusion diet to find out if she needs or needs > >to stay away from high sulfur foods. > > (Search using Onibasu.Com and look for " sulfur exclusion diet " ) ***Hmm, ok. Need to check out that link. DAVE--There is a list of high and low sulfur foods in the files section of Frequent-Dose-Chelation, probably also in . > > (3) Putting the proper (standard) supplements in place as described > >here. (Basically magnesium, zinc, vitamins C, E, lots of Bs, CoQ10, > >selenium as selenomethionine, Cod liver oil or flax oil, borage oil, > >milk thistle) ****I'm ordering some Spectrum Support and extras currently. Already give brazil nuts for selenium each day. Sodium Ascorbate high dose several times a week. The best children's kosher chewable multi I could find, not mainstream brand, not bad ingredients, good levels of stuff, some digestive enzymes and a bit of lactobacillus....pretty decent formulation but not sure how helpful/utilized. Flax oil check. Selenium check plus a little in supp. Vit C check Vit E 75 IU daily B's seem adequate in supply, can give specs if u want. Zinc and mag are inadequate in supplement-need to get. CoQ10- need Borage oil, can get easily but we have a lot of healthy oils in our diet...is there something specific about Borage oil I don't know??? DAVE--Ok, make sure that when doing the elimination diet, you consider the possibility that he might also be reactive to some additive in the supps. If " Spectrum Support " is from Spectrum Naturals (??) I have had some trouble with their stuff myself. (Arsenic is not too elevated, but it along with mercury can lead to chemical sensitivity.) As for Borage oil, Andy suggests it. It's just to make sure that the kid is getting all of the proper EFAs, both w-3 an w-6. > > (4) Doing a trial few rounds of chelation, using ALA on the proper > >protocol and looking to see if she has any reactions to the ALA. If > >so, then you have diagnosed mercury toxicity. > > (The way to use ALA is dosing every 3 hours, even at night, starting > >at 1/8 mg per lb of bodyweight. This is _very important_.) > > > > I would also strongly suggest your buying andy cutler's books from > >amazon.com > > or directly from him at noamalgam.com. I'm pretty sure he would mail to china, > > if you could transmit US currency here. Thanks so much, Dave, will do!!' Liora and in Beijing. ------------------------------------------------------- Re: Overwhelmed with the info here, need guidance. Posted by: " lioracc " lioracc@... lioracc Date: Thu May 29, 2008 9:01 pm ((PDT)) our hair results, this is from a year ago, I have been very neglectful sitting on this info for so long. Time for another hair test, I think. comments and interpretation welcome. thank you! Liora in Beijing Doctor's Data labs Hair Elements test TOXIC RESULT REFERENCE ELEMENTS & #956;g/g RANGE Aluminum 14 < 8.0 Yellow Antimony 0.082 < 0.066 Yellow Arsenic 0.13 < 0.080 Yellow Beryllium < 0.01 < 0.020 Zero Bismuth 0.048 < 2.0 Green Cadmium 0.30 < 0.10 Yellow Lead 3.1 < 1.0 Yellow Mercury 0.36 < 0.40 High Green Platinum < 0.003 < 0.005 Zero Thallium 0.014 < 0.010 Yellow Thorium < 0.001 < 0.005 Zero Uranium 0.12 < 0.060 Yellow Nickel 0.30 < 0.40 High Green Silver 0.18 < 0.20 High Green Tin 0.83 < 0.30 High Yellow very nearly Red Titanium 0.89 < 1.0 High Green ELEMENTS & #956;g/g RANGE Calcium 1320 140- 500 RED OVER Magnesium 150 15- 45 RED OVER Sodium 190 12- 90 Yellow Over Potassium 79 9- 60 Yellow Over Copper 27 10- 22 Yellow Over Zinc 310 100- 190 RED OVER Manganese 0.92 0.20- 0.55 Yellow Over Chromium 0.34 0.26- 0.50 Green Under Vanadium 0.074 0.030- 0.10 Green over Molybdenum 0.067 0.048- 0.13 Green Under Boron 0.50 0.35- 3.0 Green Under Iodine 0.86 0.25- 1.3 Green over Lithium 0.008 0.007- 0.023 Green Under Phosphorus 210 160- 250 Green over Selenium 0.94 0.95- 1.7 Borderline Green/Yellow Under Strontium 3.6 0.19- 2.0 Yellow over Sulfur 45000 45500- 53000 Yellow Under Barium 3.6 0.16- 1.2 Yellow over Cobalt 0.021 0.013- 0.035 White Over Iron 18 8.0- 19 Green over Germanium 0.039 0.045- 0.065 Yellow Under Rubidium 0.071 0.012- 0.16 Green Over Zirconium 0.21 0.030- 1.0 White middle Ca/Mg 8.8 4- 30 Ca/P 6.29 1- 12 Na/K 2.41 0.5- 10 Zn/Cu 11.5 4- 20 Zn/Cd > 999 > 800 Quote Link to comment Share on other sites More sharing options...
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