Re: interest in supplements

[Guest guest]

I am not sure I want a multi yet (though it sure would be nice), but

what I would love is if some company would come up with high quality,

minimal filler, low dose, small (size 3 or 4) capsules of all the

stuff I want. I, too, am tired of dividing the stuff up.

Anne

>

> So many posts and questions on supplements and no-one seems

interested

> in expressing what they would like to see in a multi supplement? The

> owner of " Our Kids " will make a supplement geared toward the needs

of

> many of our kids. please check out the post I left and comment on

what

> you would like or need in a supplement. The more people who have

input

> the better our chances at having a supplement made for us. I know I

> would like to cut down the time it takes dividing supplements and

> finding good quality ones I can trust. I really thought it would be

> nice to have one geared toward the needs of a child who is chelating.

>

[Guest guest]

I think we were one of the few that could use a multi, and if you can there are

already many, many out there. Most people find they do better with individual

supplements and that's been discussed her more than a few times.

[ ] Re: interest in supplements

I am not sure I want a multi yet (though it sure would be nice), but

what I would love is if some company would come up with high quality,

minimal filler, low dose, small (size 3 or 4) capsules of all the

stuff I want. I, too, am tired of dividing the stuff up.

Anne

>

> So many posts and questions on supplements and no-one seems

interested

> in expressing what they would like to see in a multi supplement? The

> owner of " Our Kids " will make a supplement geared toward the needs

of

> many of our kids. please check out the post I left and comment on

what

> you would like or need in a supplement. The more people who have

input

> the better our chances at having a supplement made for us. I know I

> would like to cut down the time it takes dividing supplements and

> finding good quality ones I can trust. I really thought it would be

> nice to have one geared toward the needs of a child who is chelating.

>

[Guest guest]

Thanks for replying. If you give me a description of what you would like I can

pass it on to the owner. I asked for a multi that was lower than the commonly

seen supplements without some of the things we typically supplement seperate

like vitamin A ( cod liver oil ) and to leave zinc or calcium out as they do

better seperate. I thought if the supplement had all the things in it we give

our kids 4 times a day and it was low dose for that reason.. except maybe some

things people may not want like copper iron etc. If I could get some good

feedback he is willing to work on something. I just dont want to see this

opportunity to pass. Thanks

[ ] Re: interest in supplements

I am not sure I want a multi yet (though it sure would be nice), but

what I would love is if some company would come up with high quality,

minimal filler, low dose, small (size 3 or 4) capsules of all the

stuff I want. I, too, am tired of dividing the stuff up.

Anne

>

> So many posts and questions on supplements and no-one seems

interested

> in expressing what they would like to see in a multi supplement? The

> owner of " Our Kids " will make a supplement geared toward the needs

of

> many of our kids. please check out the post I left and comment on

what

> you would like or need in a supplement. The more people who have

input

> the better our chances at having a supplement made for us. I know I

> would like to cut down the time it takes dividing supplements and

> finding good quality ones I can trust. I really thought it would be

> nice to have one geared toward the needs of a child who is chelating.

>

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[Guest guest]

,

I think it is a great idea. However, I think lots of kids can't

even really do the Bs, some are sensitive to C and need corn-free,

etc. Lots of parents use a multimineral like Minerall (available at

Kirkman's) without too much problem, but the vitamins are more of an

issue. I still love the idea of lots of teeny tiny capsules. I

would be more than happy to give my son two small caps per dose

rather than have to crush, divide, reencapsulate, etc. Make any

sense?

One way I have gotten around this is to take any and all palatable

supps and mix them with some organic pear/cranberry juice, add lots

of water, and just have my son drink that throughout the day. That

way he is getting this stuff 6-8 times per day, I can send it to

school with him, etc. Not ideal, since the dosing on stuff isn't

perfect, but if I did get it perfect, I would probably last a day

until I jumped off a bridge. Of course, lots of stuff can't go in

there (zinc, Bs, etc.) but I cover alot of the basics (mag, C,

Calcium, Carnitine, Minerall, etc.) this way.

Anne

> >

> > So many posts and questions on supplements and no-one seems

> interested

> > in expressing what they would like to see in a multi supplement?

The

> > owner of " Our Kids " will make a supplement geared toward the

needs

> of

> > many of our kids. please check out the post I left and comment

on

> what

> > you would like or need in a supplement. The more people who have

> input

> > the better our chances at having a supplement made for us. I

know I

> > would like to cut down the time it takes dividing supplements

and

> > finding good quality ones I can trust. I really thought it would

be

> > nice to have one geared toward the needs of a child who is

chelating.

> >

>

>

[Guest guest]

I see what your saying. I have been having a problem trying to cut up 100 mg

caps to like 5mg. It very hard to find supplements for my sons' needs as he is

only 20/m and many of them are like 1,000 RDA for him.My house looks like a

pharmacy lol.. I did look into mineral all but there was a caution statement on

it that says not for use on people under 18 arggg. The multi mineral pro support

is a starnge mix and dosage. Kind of lost on the minerals. I am very lucky my

son seems to do well on most vitamins. The b vitamins I only give in the am and

very small dose just as support. I am not into the high dose B vitamins, at

least not right now. More just support while chelating. Is it true zinc and

calcium should be given seperate? Thats what I heard. I am pretty sure my son is

low in calcium. When I upped it his visual stimming was less and eye pressing,

squinting etc stopped.

[ ] Re: interest in supplements

,

I think it is a great idea. However, I think lots of kids can't

even really do the Bs, some are sensitive to C and need corn-free,

etc. Lots of parents use a multimineral like Minerall (available at

Kirkman's) without too much problem, but the vitamins are more of an

issue. I still love the idea of lots of teeny tiny capsules. I

would be more than happy to give my son two small caps per dose

rather than have to crush, divide, reencapsulate, etc. Make any

sense?

One way I have gotten around this is to take any and all palatable

supps and mix them with some organic pear/cranberry juice, add lots

of water, and just have my son drink that throughout the day. That

way he is getting this stuff 6-8 times per day, I can send it to

school with him, etc. Not ideal, since the dosing on stuff isn't

perfect, but if I did get it perfect, I would probably last a day

until I jumped off a bridge. Of course, lots of stuff can't go in

there (zinc, Bs, etc.) but I cover alot of the basics (mag, C,

Calcium, Carnitine, Minerall, etc.) this way.

Anne

> >

> > So many posts and questions on supplements and no-one seems

> interested

> > in expressing what they would like to see in a multi supplement?

The

> > owner of " Our Kids " will make a supplement geared toward the

needs

> of

> > many of our kids. please check out the post I left and comment

on

> what

> > you would like or need in a supplement. The more people who have

> input

> > the better our chances at having a supplement made for us. I

know I

> > would like to cut down the time it takes dividing supplements

and

> > finding good quality ones I can trust. I really thought it would

be

> > nice to have one geared toward the needs of a child who is

chelating.

> >

>

>

[Guest guest]

I don't do a lot of stuff in teeny increments, like 5 mgs, but I

would love to have normal caps with 1/3 what they have OTC, if that

makes sense.

We had the same calcium issue a while back. There seem to be

serious problems with calcium regulation in lots of our kids. My

feeling is that no matter what anyone says on any board, if you see

calcium deficiency signs, supplement calcium until you get the

system working better.

Signing off for the day. Need to do work.

Anne

> > >

> > > So many posts and questions on supplements and no-one seems

> > interested

> > > in expressing what they would like to see in a multi

supplement?

> The

> > > owner of " Our Kids " will make a supplement geared toward the

> needs

> > of

> > > many of our kids. please check out the post I left and comment

> on

> > what

> > > you would like or need in a supplement. The more people who

have

> > input

> > > the better our chances at having a supplement made for us. I

> know I

> > > would like to cut down the time it takes dividing supplements

> and

> > > finding good quality ones I can trust. I really thought it

would

> be

> > > nice to have one geared toward the needs of a child who is

> chelating.

> > >

> >

> >

[Guest guest]

I just know that with my kids, some take some, some take another. We

found a pretty basic, multi that doesn't contain too much of what we

really want to focus on, but contains a bit of what we don't want to

focus on. But, the more I learn about the supplements the different kids

need, the more I learn it hasn't really been helpful. So, I don't know

that a multi is really what I want. With all we are learning, adjusting

and changing, I don't know that at any one point there would be any one

multi that would do what we need. For example, as I add the mito

cocktail supps that Dana suggested, I will add them one at a time,

increasing or decreases according to observation, until I get what my

daughter needs. Then, as she starts to absorb, I'm under the impression

that we will again be adjusting. When I read about mito cocktail, I saw

there were multis for that, but I wouldn't want to do it that way. I

wouldn't know what any reactions were caused by if given as a group from

the start, or if there was one she wasn't tolerating. A multi gives us

less control of the individuals. A few of the supps I give are combos -

like the calcium/magnesium or the A/D. And I saw when ordering

supplements for the mito, that they combined some of the same in single

doses, but again, no real chance to alter dosages if combos. I often

see here that someone had to add more of this or their child didn't

tolerate that, etc. The kids are so individual I don't know that

anything but individual supplements would really be helpful. So, I guess

that is why I didn't respond. It just wouldn't work for my situation or

perception of what needs to be done. Even for my kids, I've got them

and their Dad all taking different combos according to their needs until

we can get straightened out enough for hair tests and chelation (and I

can read Andy's books - I finally ordered the first one yesterday). So,

any input I would have for needs would have changed in a month, or even

a day.

I think it is great that " Our Kids " would do that, and if it is helpful

for someone else, hope they will give input.

P.

l.largey wrote:

>

> So many posts and questions on supplements and no-one seems interested

> in expressing what they would like to see in a multi supplement? The

> owner of " Our Kids " will make a supplement geared toward the needs of

> many of our kids. please check out the post I left and comment on what

> you would like or need in a supplement. The more people who have input

> the better our chances at having a supplement made for us. I know I

> would like to cut down the time it takes dividing supplements and

> finding good quality ones I can trust. I really thought it would be

> nice to have one geared toward the needs of a child who is chelating.

>

>

[Guest guest]

On the other hand, I would add that on more than a few occasions I

have thought my kid wasn't tolerating something that is pretty

essential for these kids (vitamin A, for example), or that he was

already too high in it, when in fact what I needed to do was just

bear down and give it in reasonable doses every day and not think

that tinkering was a good idea. A good basic multi might help with

those issues, but maybe not.

Anne

> >

> > So many posts and questions on supplements and no-one seems

interested

> > in expressing what they would like to see in a multi supplement?

The

> > owner of " Our Kids " will make a supplement geared toward the

needs of

> > many of our kids. please check out the post I left and comment

on what

> > you would like or need in a supplement. The more people who have

input

> > the better our chances at having a supplement made for us. I

know I

> > would like to cut down the time it takes dividing supplements and

> > finding good quality ones I can trust. I really thought it would

be

> > nice to have one geared toward the needs of a child who is

chelating.

> >

> >

>

[Guest guest]

>

> So many posts and questions on supplements and no-one seems interested

> in expressing what they would like to see in a multi supplement?

The problem is, there is too much variation in what each individual child needs.

So the multi I

might put together for my kid may not be useful to very many other kids. Also

the needs

change pretty often as well.

For example, my son needed a high dose of B1 and B5, a medium dose of B3, no B2

or B6 at

all, B12 sublingually but with folinic acid. Other kids may have totally

different B vitamin

needs according to their particular metabolisms and which pathways are blocked.

After years

of chelation, he needed B6 and could tolerate B2.

You can try working with a pharmacy and getting your supps compunded, or you can

do it

yourself. I did it for years.

Nell

[Guest guest]

,

You might want to invest in the capsule maker at www.capsuline.com.

I use mine all the time.

Anne

> >

> > So many posts and questions on supplements and no-one seems

interested

> > in expressing what they would like to see in a multi supplement?

>

> The problem is, there is too much variation in what each

individual child needs. So the multi I

> might put together for my kid may not be useful to very many other

kids. Also the needs

> change pretty often as well.

>

> For example, my son needed a high dose of B1 and B5, a medium dose

of B3, no B2 or B6 at

> all, B12 sublingually but with folinic acid. Other kids may have

totally different B vitamin

> needs according to their particular metabolisms and which pathways

are blocked. After years

> of chelation, he needed B6 and could tolerate B2.

>

> You can try working with a pharmacy and getting your supps

compunded, or you can do it

> yourself. I did it for years.

>

> Nell

>

[Guest guest]

That makes sense. I know all kids are different. I just felt there might be

something we could recommend that would be helful for many people. It doesnt

have to be a multi. Maybe a combo of just antioxidents using the best

ingredients. Or a yeast support of biotin, with a few other ingredients that

help keep yeast in check? He is pretty open to suggestions

[ ] Re: interest in supplements

I don't do a lot of stuff in teeny increments, like 5 mgs, but I

would love to have normal caps with 1/3 what they have OTC, if that

makes sense.

We had the same calcium issue a while back. There seem to be

serious problems with calcium regulation in lots of our kids. My

feeling is that no matter what anyone says on any board, if you see

calcium deficiency signs, supplement calcium until you get the

system working better.

Signing off for the day. Need to do work.

Anne

> > >

> > > So many posts and questions on supplements and no-one seems

> > interested

> > > in expressing what they would like to see in a multi

supplement?

> The

> > > owner of " Our Kids " will make a supplement geared toward the

> needs

> > of

> > > many of our kids. please check out the post I left and comment

> on

> > what

> > > you would like or need in a supplement. The more people who

have

> > input

> > > the better our chances at having a supplement made for us. I

> know I

> > > would like to cut down the time it takes dividing supplements

> and

> > > finding good quality ones I can trust. I really thought it

would

> be

> > > nice to have one geared toward the needs of a child who is

> chelating.

> > >

> >

> >

[Guest guest]

>

> So many posts and questions on supplements and no-one seems interested

> in expressing what they would like to see in a multi supplement?

My son never really tolerated any multis. And, as soon as I developed

one, his needs would change and I would need something different.

Dana