Re: Re: RE Vit D, Autoimmune Disease & LDN - did LDN stop...

[Guest guest]

Hi,

As far as LDN being for Lyme, from what I hear it seems to fall somewhere down the middle. 50/50. Those of us who have more of an MS-like illness, or with autoimmune stuff going on in general, seem to do well on it. Mostly late stagers. But it is no cure, and other treatments must be used. I have made nice improvements on LDN, but am a long way from well.

And yeah, you're right. I was one who got very sick, much sicker, on the MP.

In a message dated 7/20/2008 2:03:50 A.M. Eastern Daylight Time, drizzit32@... writes:

Good luck but that protocol is far from Rock solid science. Can youeven post the stats on how many recover or how many leave the researchprogram?I new a person who tried that and got very sick.LDN is not for Lyme anyway is it?>> You MUST check out www.marshallprotocol.com. I have> Lyme and from my first summer after being diagnosed I> would get sicker starting in May. This cycle repeated> itself many years before I came across Trevor> Marshall's work. It is fairly complex and completely> opposite of the current mindset, but the beauty behind> this protocol is that there is rock hard science> behind it and 2 tests will determine if you have a> vit. D dis-regulation causing your autoimmune> disorder. In normal people 20 to 100 is normal vit. D> range, but when the 1,25 Dihydroxy (the hormone your> body produces from the vit. D) gets above 43 your body> starts to break down calcium out of your bones and> redeposit it in soft tissue. This can cause a HUGE> list of "medical diagnoses" including Sarcoidosis. My> vit. D was 50 a few years back and when they checked> the 1,25 D it was 73! I was extremely sick and> thought I was dying as did my wife who is a RN. My> skin was burning all over and it felt like my kidneys> and heart were about to explode. Healthy people do> not produce exceedingly high levels of 1,25 D with> "normal" levels of vit. D. People with ALL autoimmune> disease have Cell Wall Deficient bacteria thriving in> their immune cells that can cause this dis-regulation> or conversion of vit.D to 1,25D. The high points of> the protocol are to avoid the sun, vit D. ingestion> and taking Benicar and very low doses of antibiotics. > Benicar is a blood pressure med., but Marshall found> that it inhibits the body's ability to convert the vit> D. into 1,25D. Once you get your vit D. level down> the immune system comes back on line and it only takes> extremely small doses of antibiotics to destroy the> bacteria. LDN is an immune modulator, but it does> that through the regulation of hormones and this> protocol is no different for people that have a vit. D> dis-regulation. I know this ideology is in conflict> with most Dr's out there, but as I said you cannot> dispute the science and the big gun researchers like> Lida Mattman who support Marshall's theory. I was> taking LDN until summer hit and it stopped working> like so many others on this board. I was also taking> many natural products to keep my Lyme in check and> they too stopped working. Since going on this> protocol I am taking 1/5 pf the products to kill> bacteria and it is causing such a bacterial die off> (herx) that I can barely handle it. The hard part is> finding a doctor to work with you on this as Benicar> is a prescription drug. They will help though at the> website to find one. Most brillant scientist of> history were thought to be quacks during their life> time only to find out years after their passing they> were right. Dr. B. still has his opponents about LDN> and Marshall is in the same boat. They use to put> people to death for saying the world was flat, so that> is the type of thing we are dealing with. Educate> yourself, get the 2 simple tests done and see if you> fit the bill. I am no Dr. and cannot give medical> advice, but I have been attending the school of hard> knocks for a long time and right now this is working> for me. We all have to find our own path and what> works for one does not the other, but education, trial> and error and perseverance are the KEY! This may be> the reason though that some have had failure to thrive> on LDN or it stopped working?> Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

I believe you are right. Not everyone has this D disregulation, and would go further and say few actually do. But for those who do MP is great. But the D tests, or at least the way they are interpreted, in my opinion, are a poor indicator.

But LDN has been great.

In a message dated 7/20/2008 12:50:43 P.M. Eastern Daylight Time, rball@... writes:

I did great on the MP,after many other treatments. I tested positive on the D tests. if you have this disfunction then your chances on the MP, are much better. I'm on the LDN, and it finally took away, the final few joint pains. I'm really using it for preventative prostate cancer. it has helped some. I had many friens go through this, so I started LDN, for this. I'm only .7 on PSA,but thought a good immune would help, for future. One of my fingers was always sore and swollen. This as resolved. i do the MP, once a year for 2 weeks, just to make sure no lyme comes back, I also, do rife, once a month and mag, pulser, periodically. The D science of trevor marshall, i beleive is right on, ONLY not everyone actually has this disfuntion, and might have low D absorption.For me it worked perfectly, and tests comfirmed it .

Hi,

As far as LDN being for Lyme, from what I hear it seems to fall somewhere down the middle. 50/50. Those of us who have more of an MS-like illness, or with autoimmune stuff going on in general, seem to do well on it. Mostly late stagers. But it is no cure, and other treatments must be used. I have made nice improvements on LDN, but am a long way from well.

And yeah, you're right. I was one who got very sick, much sicker, on the MP.

In a message dated 7/20/2008 2:03:50 A.M. Eastern Daylight Time, drizzit32 writes:

Good luck but that protocol is far from Rock solid science. Can youeven post the stats on how many recover or how many leave the researchprogram?I new a person who tried that and got very sick.LDN is not for Lyme anyway is it?>> You MUST check out www.marshallprotocol.com. I have> Lyme and from my first summer after being diagnosed I> would get sicker starting in May. This cycle repeated> itself many years before I came across Trevor> Marshall's work. It is fairly complex and completely> opposite of the current mindset, but the beauty behind> this protocol is that there is rock hard science> behind it and 2 tests will determine if you have a> vit. D dis-regulation causing your autoimmune> disorder. In normal people 20 to 100 is normal vit. D> range, but when the 1,25 Dihydroxy (the hormone your> body produces from the vit. D) gets above 43 your body> starts to break down calcium out of your bones and> redeposit it in soft tissue. This can cause a HUGE> list of "medical diagnoses" including Sarcoidosis. My> vit. D was 50 a few years back and when they checked> the 1,25 D it was 73! I was extremely sick and> thought I was dying as did my wife who is a RN. My> skin was burning all over and it felt like my kidneys> and heart were about to explode. Healthy people do> not produce exceedingly high levels of 1,25 D with> "normal" levels of vit. D. People with ALL autoimmune> disease have Cell Wall Deficient bacteria thriving in> their immune cells that can cause this dis-regulation> or conversion of vit.D to 1,25D. The high points of> the protocol are to avoid the sun, vit D. ingestion> and taking Benicar and very low doses of antibiotics. > Benicar is a blood pressure med., but Marshall found> that it inhibits the body's ability to convert the vit> D. into 1,25D. Once you get your vit D. level down> the immune system comes back on line and it only takes> extremely small doses of antibiotics to destroy the> bacteria. LDN is an immune modulator, but it does> that through the regulation of hormones and this> protocol is no different for people that have a vit. D> dis-regulation. I know this ideology is in conflict> with most Dr's out there, but as I said you cannot> dispute the science and the big gun researchers like> Lida Mattman who support Marshall's theory. I was> taking LDN until summer hit and it stopped working> like so many others on this board. I was also taking> many natural products to keep my Lyme in check and> they too stopped working. Since going on this> protocol I am taking 1/5 pf the products to kill> bacteria and it is causing such a bacterial die off> (herx) that I can barely handle it. The hard part is> finding a doctor to work with you on this as Benicar> is a prescription drug. They will help though at the> website to find one. Most brillant scientist of> history were thought to be quacks during their life> time only to find out years after their passing they> were right. Dr. B. still has his opponents about LDN> and Marshall is in the same boat. They use to put> people to death for saying the world was flat, so that> is the type of thing we are dealing with. Educate> yourself, get the 2 simple tests done and see if you> fit the bill. I am no Dr. and cannot give medical> advice, but I have been attending the school of hard> knocks for a long time and right now this is working> for me. We all have to find our own path and what> works for one does not the other, but education, trial> and error and perseverance are the KEY! This may be> the reason though that some have had failure to thrive> on LDN or it stopped working?>

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

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[Guest guest]

I did great on the MP,after many other treatments. I tested positive on the D tests. if you have this disfunction then your chances on the MP, are much better. I'm on the LDN, and it finally took away, the final few joint pains. I'm really using it for preventative prostate cancer. it has helped some. I had many friens go through this, so I started LDN, for this. I'm only .7 on PSA,but thought a good immune would help, for future. One of my fingers was always sore and swollen. This as resolved. i do the MP, once a year for 2 weeks, just to make sure no lyme comes back, I also, do rife, once a month and mag, pulser, periodically. The D science of trevor marshall, i beleive is right on, ONLY not everyone actually has this disfuntion, and might have low D absorption.For me it worked perfectly, and tests comfirmed it .

Hi,

As far as LDN being for Lyme, from what I hear it seems to fall somewhere down the middle. 50/50. Those of us who have more of an MS-like illness, or with autoimmune stuff going on in general, seem to do well on it. Mostly late stagers. But it is no cure, and other treatments must be used. I have made nice improvements on LDN, but am a long way from well.

And yeah, you're right. I was one who got very sick, much sicker, on the MP.

In a message dated 7/20/2008 2:03:50 A.M. Eastern Daylight Time, drizzit32 writes:

Good luck but that protocol is far from Rock solid science. Can youeven post the stats on how many recover or how many leave the researchprogram?I new a person who tried that and got very sick.LDN is not for Lyme anyway is it?>> You MUST check out www.marshallprotocol.com. I have> Lyme and from my first summer after being diagnosed I> would get sicker starting in May. This cycle repeated> itself many years before I came across Trevor> Marshall's work. It is fairly complex and completely> opposite of the current mindset, but the beauty behind> this protocol is that there is rock hard science> behind it and 2 tests will determine if you have a> vit. D dis-regulation causing your autoimmune> disorder. In normal people 20 to 100 is normal vit. D> range, but when the 1,25 Dihydroxy (the hormone your> body produces from the vit. D) gets above 43 your body> starts to break down calcium out of your bones and> redeposit it in soft tissue. This can cause a HUGE> list of "medical diagnoses" including Sarcoidosis. My> vit. D was 50 a few years back and when they checked> the 1,25 D it was 73! I was extremely sick and> thought I was dying as did my wife who is a RN. My> skin was burning all over and it felt like my kidneys> and heart were about to explode. Healthy people do> not produce exceedingly high levels of 1,25 D with> "normal" levels of vit. D. People with ALL autoimmune> disease have Cell Wall Deficient bacteria thriving in> their immune cells that can cause this dis-regulation> or conversion of vit.D to 1,25D. The high points of> the protocol are to avoid the sun, vit D. ingestion> and taking Benicar and very low doses of antibiotics. > Benicar is a blood pressure med., but Marshall found> that it inhibits the body's ability to convert the vit> D. into 1,25D. Once you get your vit D. level down> the immune system comes back on line and it only takes> extremely small doses of antibiotics to destroy the> bacteria. LDN is an immune modulator, but it does> that through the regulation of hormones and this> protocol is no different for people that have a vit. D> dis-regulation. I know this ideology is in conflict> with most Dr's out there, but as I said you cannot> dispute the science and the big gun researchers like> Lida Mattman who support Marshall's theory. I was> taking LDN until summer hit and it stopped working> like so many others on this board. I was also taking> many natural products to keep my Lyme in check and> they too stopped working. Since going on this> protocol I am taking 1/5 pf the products to kill> bacteria and it is causing such a bacterial die off> (herx) that I can barely handle it. The hard part is> finding a doctor to work with you on this as Benicar> is a prescription drug. They will help though at the> website to find one. Most brillant scientist of> history were thought to be quacks during their life> time only to find out years after their passing they> were right. Dr. B. still has his opponents about LDN> and Marshall is in the same boat. They use to put> people to death for saying the world was flat, so that> is the type of thing we are dealing with. Educate> yourself, get the 2 simple tests done and see if you> fit the bill. I am no Dr. and cannot give medical> advice, but I have been attending the school of hard> knocks for a long time and right now this is working> for me. We all have to find our own path and what> works for one does not the other, but education, trial> and error and perseverance are the KEY! This may be> the reason though that some have had failure to thrive> on LDN or it stopped working?> Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.