Re: I have a question can someone give some input

[Guest guest]

I don't know about the school part, but I generally only try new

things on the weekends or on vacation days. That way, if there is a

problem, I get to handle it.

Anne

>

> Hello, My son is 15 years old and sometimes when he tries a

new vitamin

> or other things that might upset him, one way or another, i.e.,

gas pains etc..

> He sometimes not very often, will have a meltdown in school. The

last time

> he did the school freaked out and locked him outside the school.

The teacher

> was holding the door so he could not get back in, and one other

teacher and a

> police officer watched to make sure he did not hurt himself or

anyone else, if

> so they would have to handcuff him. (Something that would make

him freak out

> more) My question is: Is there something else they could do to not

lock him

> outside of the school. Has this happened to anyone?

>

> Thanks

>

> Janis

>

>

> </HTML>

>

>

>

[Guest guest]

maybe you could start everything out really low and work up to the recommended

dosage? Like 1/8 the dosage to start and raise it every few days?

BTW, I am so sorry to hear that happened to your son. My heart goes out to

him.

iVORYOURS@... wrote:

Hello, My son is 15 years old and sometimes when he tries a new vitamin

or other things that might upset him, one way or another, i.e., gas pains etc..

He sometimes not very often, will have a meltdown in school. The last time

he did the school freaked out and locked him outside the school. The teacher

was holding the door so he could not get back in, and one other teacher and a

police officer watched to make sure he did not hurt himself or anyone else, if

so they would have to handcuff him. (Something that would make him freak out

more) My question is: Is there something else they could do to not lock him

outside of the school. Has this happened to anyone?

Thanks

Janis

[Guest guest]

OMG...what district/state do you live in?

They cannot do anything like that in our schools. Does he have an

IEP..if so some provisions of how to handle meltdowns need to be

figured out other than this.

In our schools where I work we do see this from time to time for

various reasons..some of the kids are autistic, some Learning

problems..others are just punks...but in any case..

We have security staff to calm them down, escort them to a quiet place

and try to talk them through what is wrong. You remove the child from

the situation that has triggered the meltdown. Acknowledge their

feelings and fears, get their version of what went wrong, see what

they think will help..etc. And if need be contact a parent! Never

would we push a kid out the door and lock him out...

If your son has a learning disability or is autistic...I am assuming

because your on this board...then strategies need to be in place that

would work for him when this happens. And these strategies need to be

introduced to the staff that works with him, so they know a better way

to diffuse this. Often time we can see a child is getting agitated, or

overdone is a situation and we remove them from the room. Not as

punishment, nothing like that. but offer them another room to go to, a

library, and office, a computer lab...or bring in a person

specifically aware of how to manage that child when this happens.

I am sorry this happened to your son...I would have tried to see what

could be done to help him if I were in that school, rather than

locking him out. The only thing I can think of is they must have been

afraid he would hurt them..

-- In , iVORYOURS@... wrote:

>

> Hello, My son is 15 years old and sometimes when he tries a new

vitamin

> or other things that might upset him, one way or another, i.e., gas

pains etc..

> He sometimes not very often, will have a meltdown in school. The

last time

> he did the school freaked out and locked him outside the school.

The teacher

> was holding the door so he could not get back in, and one other

teacher and a

> police officer watched to make sure he did not hurt himself or

anyone else, if

> so they would have to handcuff him. (Something that would make him

freak out

> more) My question is: Is there something else they could do to not

lock him

> outside of the school. Has this happened to anyone?

>

> Thanks

>

> Janis

>

>

[Guest guest]

Janice,

This is not the help you were asking for, but that 1500 mgs DMSA is a

dangerously high dose. I would expect your son to react like that

each time you do the challenge test. Mikey has shown you he cannot

tolerate that much DMSA. When you get that urine test back and you

see tons of heavy metals, remember that anyone given that high of a

dose of chelator will dump metals. It certainly doesn't mean 1500

mgs DMSA is needed for Mikey to succesfully chelate.

If you do go forward with chelation, try using a very small dose of

DMSA every 4 hours. I'm guessing your doctor will recommend

something like 100 mgs DMSA every 8 hours for 72 hours? I would read

the files on chelation here and reduce the dose to 25 mgs or even

12.5 mgs and use it every 4 hours.

This is something I think you can do to help prevent those

uncontrollable moments. It doesn't replace a behavior plan.

Your school can't be locking a child out of school in the middle of

winter. I sure hope he had his jacket on already. Did they force

him out or was he on his way out to get picked up for his afternoon

program and then try to get back in? The staff are in a tough

position at times to weigh the safety of your child against their own

personal safety or safety of the other students. It sounds like they

need don't have much of a clue.

Careful with allowing staff or that police officer to restrain your

son as part of the behavior plan. For a child that size, restraint

can quickly get dangerously out of hand. Don't assume for one minute

that the police officer knows how to safely restrain a disabled

person. If you do opt for an in-school restraint option, make sure

they get training. I second the need for an advocate or attorney to

help you figure this out.

Good luck. Do you have your Special Education Rights booklet? The

district should give you one annually, I believe. There is a section

in there which lays out the procedures when disciplining a child with

disabilities. This deals with removing a child or expelling a child

from their current school or placement, but it also talks about

getting a Functional Behavior Assessment.

How is Mikey doing now? Have the sound sensitivites lessened?

Take care,

pam

>

> Thanks Jada,

>

> My son is 15 years old 5'4 and 135 LB, a severely autistic. We

live in

> Littleton, NH. He only goes to school from 8:00am to 12 . He

works with an

> aid, in a back room, that guy works very will with my son (Mikey)

he takes him to

> drop off mail and news papers around the school etc... and works

with him one

> on one. But when he has a melt down, nobody seems to know what to

do. This

> week was bad for him. Mikey, on Sunday had 1500 mg of DMSA, for

his 6 hour

> urine test. He was great on Sunday and Monday but Tues. Wed and

Thurs he was

> total off, with his melt downs and not being able to deal with

noise, people,

> etc.. So when that happened in school they did not no what to do.

So they

> locked him outside the school. Thank God, he has a program that

picks him up at

> school from 12:00 to 2:00. That guy seen Mikey locked outside and

he is the

> one that told me what they did. But he said, Mikey was very

afraid, because he

> could see everyone looking at him from inside the glass doors, but

they would

> not let him in. So, when he got there he restrained him, by

grabbing his arms

> and rapping them around him. Until he calms down and then he lets

him go.

> Once Mikey calmed down he walked to the car and was OK the rest of

the day. He

> told me the reason the locked him out was so he would not hurt

anyone, they

> said he was pushing the cop thats at the school. And the school

staff cannot

> put their hands on any student. So the only other thing would have

been 911 or

> the police hand cuffing him.

>

> Janice </HTML>

>

>

>

[Guest guest]

>>My question is: Is there something else they could do to not lock him

> outside of the school. Has this happened to anyone?

He needs a behavior plan [bIP] included in his IEP. It indicates what

will be done when he has behavior issues like this.

Dana

[Guest guest]

Thanks, Pam

My son seems to be getting back to his normal self. But we have to do

that test again, next weekend... Here we go again, The first test, we messed

up.

Those pills smell like rotten eggs, so we took two pills at a time and put

them in his drink, and give him another drink with two more pills and the last

two in his drink and not even 6 mins later Mikey had to go to the bathroom.

We did not get to collect that first urine so, Mikey's Dan doc. said, we

needed to do it again in two weeks..

As for the school, I have to do something with them because if every time

Mikey gets some kinda of treatment that he gets 3 - 4 days of bad behaviors from

it I cannot handle not knowing what they well be doing to my son. That day

they locked him outside, the school tried to call me but of all the days I was

with my 2 year old at his doctor's appointment. But if I would have got the

message in time and went to the school and seen my son locked outside yelling

like an animal with everyone looking at him.... God help them ,,,,, They would

be locking Mikey's Mom from the school.

Janice/NH

J

</HTML>

[Guest guest]

----- Original Message -----

From: iVORYOURS@...

Thanks, Pam

My son seems to be getting back to his normal self. But we have to do

that test again, next weekend...

====>Please reconsider doing this test.....again. Not only is it making his

behavior worse, it is redistributing metals to sensitive body organs.....like

his brain. Whatever dr is suggesting this is inaccurate and very incompetent no

matter how nice he is. This test has the capacity to make your boy more

autistic.

And it's pointless. Do a hair test to see what if any mineral transport

problems he has.

I understand your anger at the school but if you're going to do things to make

him worse I don't know what choice the school has. I don't agree with locking

him out of the school but sometimes you're forced into decisions to protect

yourself and others that you wouldn't normally do.

Find another dr, read Andy's book, read the files and/or go to Moira's site to

find out why this test is not a good idea.

Here we go again, The first test, we messed up.

Those pills smell like rotten eggs, so we took two pills at a time and put

them in his drink, and give him another drink with two more pills and the last

two in his drink and not even 6 mins later Mikey had to go to the bathroom.

We did not get to collect that first urine so, Mikey's Dan doc. said, we

needed to do it again in two weeks..

As for the school, I have to do something with them because if every time

Mikey gets some kinda of treatment that he gets 3 - 4 days of bad behaviors

from

it I cannot handle not knowing what they well be doing to my son. That day

they locked him outside, the school tried to call me but of all the days I was

with my 2 year old at his doctor's appointment. But if I would have got the

message in time and went to the school and seen my son locked outside yelling

like an animal with everyone looking at him.... God help them ,,,,, They would

be locking Mikey's Mom from the school.

Janice/NH

J

</HTML>

[Guest guest]

Janice,

For Mikey's sake PLEASE do NOT do another challenge test and do not go back to

that DAN doc. He'll do more harm than good. Challenge tests are not necessary,

safe, or useful (despite what the doc says). They push more mercury into the

brain. Order a DDI hair elements test through DLS. You don't need a doc for

the hair test and if you mention this group they'll give you a discount. Please

read the FAQs of this list.

LInda S S

Re: I have a question can someone give some input

Posted by: " iVORYOURS@... " iVORYOURS@... ivoryours05

Sat Jan 19, 2008 2:28 pm (PST)

Thanks, Pam

My son seems to be getting back to his normal self. But we have to do

that test again, next weekend... Here we go again, The first test, we messed up.

Those pills smell like rotten eggs, so we took two pills at a time and put

them in his drink, and give him another drink with two more pills and the last

two in his drink and not even 6 mins later Mikey had to go to the bathroom.

We did not get to collect that first urine so, Mikey's Dan doc. said, we

needed to do it again in two weeks..

As for the school, I have to do something with them because if every time

Mikey gets some kinda of treatment that he gets 3 - 4 days of bad behaviors from

it I cannot handle not knowing what they well be doing to my son. That day

they locked him outside, the school tried to call me but of all the days I was

with my 2 year old at his doctor's appointment. But if I would have got the

message in time and went to the school and seen my son locked outside yelling

like an animal with everyone looking at him.... God help them ,,,,, They would

be locking Mikey's Mom from the school.

Janice/NH

J

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Join Excite! - http://www.excite.com

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[Guest guest]

Trying not to steal the thread----but can I ask what's wrong with

challenge tests, my ND wants me to get one.

>

>

> Janice,

> For Mikey's sake PLEASE do NOT do another challenge test and do not

go back to that DAN doc. He'll do more harm than good. Challenge

tests are not necessary, safe, or useful (despite what the doc says).

They push more mercury into the brain. Order a DDI hair elements

test through DLS. You don't need a doc for the hair test and if you

mention this group they'll give you a discount. Please read the FAQs

of this list.

> LInda S S

>

> Re: I have a question can someone give some input

> Posted by: " iVORYOURS@... " iVORYOURS@... ivoryours05

> Sat Jan 19, 2008 2:28 pm (PST)

>

> Thanks, Pam

>

> My son seems to be getting back to his normal self. But we have to

do

> that test again, next weekend... Here we go again, The first test,

we messed up.

> Those pills smell like rotten eggs, so we took two pills at a time

and put

> them in his drink, and give him another drink with two more pills

and the last

> two in his drink and not even 6 mins later Mikey had to go to the

bathroom.

> We did not get to collect that first urine so, Mikey's Dan doc.

said, we

> needed to do it again in two weeks..

>

> As for the school, I have to do something with them because if

every time

> Mikey gets some kinda of treatment that he gets 3 - 4 days of bad

behaviors from

> it I cannot handle not knowing what they well be doing to my son.

That day

> they locked him outside, the school tried to call me but of all the

days I was

> with my 2 year old at his doctor's appointment. But if I would have

got the

> message in time and went to the school and seen my son locked

outside yelling

> like an animal with everyone looking at him.... God help them ,,,,,

They would

> be locking Mikey's Mom from the school.

>

> Janice/NH

>

> J

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

Challenge tests use a single very high dose of chelator, which

stirs up a lot of metals. A small amount of this is excreted

and the rest is dropped in new places causing more damage.

While this stirring up and dropping is happening, there can be

a lot of symptoms and discomfort.

These tests are harmful and they don't say anything about the

body burden of mercury. If you feel you need to do a urine

test, do it on the third day of a frequent, low dose chelation

round.

--

> >

> >

> > Janice,

> > For Mikey's sake PLEASE do NOT do another challenge test and do not

> go back to that DAN doc. He'll do more harm than good. Challenge

> tests are not necessary, safe, or useful (despite what the doc says).

> They push more mercury into the brain. Order a DDI hair elements

> test through DLS. You don't need a doc for the hair test and if you

> mention this group they'll give you a discount. Please read the FAQs

> of this list

> > LInda S S

> >

> > Re: I have a question can someone give some input

> > Posted by: " iVORYOURS@ " iVORYOURS@ ivoryours05

> > Sat Jan 19, 2008 2:28 pm (PST)

> >

> > Thanks, Pam

> >

> > My son seems to be getting back to his normal self. But we have to

> do

> > that test again, next weekend... Here we go again, The first test,

> we messed up.

> > Those pills smell like rotten eggs, so we took two pills at a time

> and put

> > them in his drink, and give him another drink with two more pills

> and the last

> > two in his drink and not even 6 mins later Mikey had to go to the

> bathroom.

> > We did not get to collect that first urine so, Mikey's Dan doc.

> said, we

> > needed to do it again in two weeks..

> >

> > As for the school, I have to do something with them because if

> every time

> > Mikey gets some kinda of treatment that he gets 3 - 4 days of bad

> behaviors from

> > it I cannot handle not knowing what they well be doing to my son.

> That day

> > they locked him outside, the school tried to call me but of all the

> days I was

> > with my 2 year old at his doctor's appointment. But if I would have

> got the

> > message in time and went to the school and seen my son locked

> outside yelling

> > like an animal with everyone looking at him.... God help them ,,,,,

> They would

> > be locking Mikey's Mom from the school.

> >

> > Janice/NH

> >

> > J

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

[Guest guest]

I'm glad Mikey went back to his normal self. I'm worried you won't

be so lucky next time. His behavior is telling you something. DAN!

docs (not all) will try to get you to look at this episode in a

positive way... the 'horns and tails' necessary to get to the

recovery phase. Personally, I think that is a load of hooey.

It IS your choice on whether or not to do these challenge tests.

Before you do, please read the files about challenge tests, listen to

the parents who don't do challenge tests (especially the ones who

used to do them) and make your decision with some good information.

Ask your doctor what these challenge tests are even showing him/you.

Are the results determining whether or not to chelate? Is this how

to tell if DMSA will 'work'? I'd be interested in hearing why each

doc thinks challenge tests are necessary as a first option.

The best way to learn if chelation will work is to chelate. Small

doses that the organs can handle (liver and kidneys are not able to

deal with that huge metal dump). I've done a few urine heavy metals

tests on 25 mg doses of DMSA and I've seen metals. It doesn't take

the massive doses.

Confused? I'm sure. We want to think these DAN! or naturopathic

docs know what they are doing because they listen to us and believe

like we do that our children were harmed by traditional medical

practices. Unfortunately, many are painfully undereducated and are

learning right along with the parents. I love and appreciate their

support, but was quick to realize I needed to pay attention and

challenge their decisions at times.

Did you collect any urine from last week's test? If so, just use

that. Believe me, he had a ton of DMSA in his system even after that

first urine.

If you go forward with next week's challenge test, you might want to

keep Mikey home from school until that bad days are over (if that is

possible). You won't have a school plan in place and you'll kill

yourself with worry. Like you, I would have ripped the school a new

one if I witnessed my child being treated in that manner.

http://www.autism-society-nh.org/support.html

I think you said you were from NH? Maybe you can find some advocacy

support or good info from your state's Autism Society (see link) to

get a behavior plan that works for your son as well as the school.

Take care,

Pam

>

> Thanks, Pam

>

> My son seems to be getting back to his normal self. But we have

to do

> that test again, next weekend... Here we go again, The first test,

we messed up.

> Those pills smell like rotten eggs, so we took two pills at a time

and put

> them in his drink, and give him another drink with two more pills

and the last

> two in his drink and not even 6 mins later Mikey had to go to the

bathroom.

> We did not get to collect that first urine so, Mikey's Dan doc.

said, we

> needed to do it again in two weeks..

>

> As for the school, I have to do something with them because if

every time

> Mikey gets some kinda of treatment that he gets 3 - 4 days of bad

behaviors from

> it I cannot handle not knowing what they well be doing to my son.

That day

> they locked him outside, the school tried to call me but of all the

days I was

> with my 2 year old at his doctor's appointment. But if I would

have got the

> message in time and went to the school and seen my son locked

outside yelling

> like an animal with everyone looking at him.... God help them ,,,,,

They would

> be locking Mikey's Mom from the school.

>

> Janice/NH

>

> J

>

>

> </HTML>

>

>

>