Re: Started DMSA today-questions? Supposatories

[Guest guest]

Hi, We are due to start DMSA supposatories. Does anyone have any

experience with that? My son weighs 41 lbs and the prescription

reads " 1 suppository (250mg dmsa compound) at bedtime for 3 days, stop

for 11 days, repeat 5 cylces. This sounds very different from what is

being discussed right now on this board. Any guidance/thoughts?

>

> Hi, we finally are at the point and started DMSA at 4pm today. My

> daughter is 5 and we started at 5mg. My question is how far apart do

> we give her supplements from the DMSA?

>

> THanks Sheila

>

[Guest guest]

My 4 yr old son is about 32 pounds & his DAN Dr. has him on DMSA supp.250

mg/glut 250. supp. (in one supp.), with the same instructions 3 days on, 11 days

off, then 2 days of EDTA supp. We have been rotating those for about 4 months.

Chase is recognizing letters & numbers his receptive language has improved, & he

is potty trained (except at night). We saw most progess after being on

supplements for 2 months. But no jaw dropping moments. Our progress has been

very slow, but I'm hoping that's for the better. I did ask our DAN Dr. about ALA

& we may try this a little later in his protocol.

What brand of garlic do you all use for children--I was hoping for a liquid?

I've searching the iherb site & I really like their variety of name brands.

Their Nordic Naturals CLO is cheaper than the manufacturers sales it for, but

not sure if shipping costs even it out.

Ginger

---- Phyllis Colace <phylc888@...> wrote:

Hi, We are due to start DMSA supposatories. Does anyone have any

experience with that? My son weighs 41 lbs and the prescription

reads " 1 suppository (250mg dmsa compound) at bedtime for 3 days, stop

for 11 days, repeat 5 cylces. This sounds very different from what is

being discussed right now on this board. Any guidance/thoughts?

>

> Hi, we finally are at the point and started DMSA at 4pm today. My

> daughter is 5 and we started at 5mg. My question is how far apart do

> we give her supplements from the DMSA?

>

> THanks Sheila

>

[Guest guest]

That is a dangerously high dose and dangerously infrequent dosing schedule.

Please consider oral chelation using Andy's protocol.

S S

Re: Started DMSA today-questions? Supposatories

Posted by: " Phyllis Colace " phylc888@... phylc888

Sun Mar 23, 2008 4:41 am (PDT)

Hi, We are due to start DMSA supposatories. Does anyone have any

experience with that? My son weighs 41 lbs and the prescription

reads " 1 suppository (250mg dmsa compound) at bedtime for 3 days, stop

for 11 days, repeat 5 cylces. This sounds very different from what is

being discussed right now on this board. Any guidance/thoughts?

_______________________________________________

Join Excite! - http://www.excite.com

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[Guest guest]

i think he was trying to stay away from the oral because my son is

having some GI issues right now. Are most of you doing oral chelation?

>

>

>

> That is a dangerously high dose and dangerously infrequent dosing

schedule. Please consider oral chelation using Andy's protocol.

> S S

>

> Re: Started DMSA today-questions? Supposatories

> Posted by: " Phyllis Colace " phylc888@... phylc888

> Sun Mar 23, 2008 4:41 am (PDT)

>

>

> Hi, We are due to start DMSA supposatories. Does anyone have any

> experience with that? My son weighs 41 lbs and the prescription

> reads " 1 suppository (250mg dmsa compound) at bedtime for 3 days,

stop

> for 11 days, repeat 5 cylces. This sounds very different from what

is

> being discussed right now on this board. Any guidance/thoughts?

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

What kind of GI issues and what are you doing about them. Moving mercury causes

yeast, that's not route dependent. Is your child on a particular diet?

Enzymes? What's his diet like? Picky eater? Does he eat only six foods, all

dairy and carbs? Is he on supplements? Has he had lots of antibiotics over the

years? Is he taking probiotics?

S S

Re: Started DMSA today-questions? Supposatories

Posted by: " Phyllis Colace " phylc888@... phylc888

Mon Mar 24, 2008 5:34 am (PDT)

i think he was trying to stay away from the oral because my son is

having some GI issues right now. Are most of you doing oral chelation?

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Yikes thats a lot of questions. My son sees a GI specialist

that only works with asd kids. i believe his own son is asd. he

lectures with the dan lecturer circuit and as published many papers

on GI issues and asd. His dan dr, gi dr, and the chelation panel at

the 2006 dan conference says that suppositories do not cause

dysbiosis of gut bacteria. My son has mild disbiosis, no yeast

issues, low in digestive enzymes. He is not a picker eater. He eats

anything I ask him to but doesn't like spongy stuff like baked goods.

His diet is meat, veggies, and fruit with some gfcf pasta. Those are

the orders of his favorites. He is on the usual supplements, has not

had a lot of antibiotics and doesnt take probiotics though the gi

wants him too. he has to find one that doesnt give my son instant

dihrea. Enzymes caused the same thing. He has a

endeo/secretin/colonoscopy scheduled in 2 weeks and an appt with an

allegist that specializes in asd kids this thursday. I'll have to ask

the GI again about moving mercury causing yeast through

supposatories. I know it doesnt cause disbiosis. Im not starting the

dmsa until after our consult beginning may. I just wanted to get

everyone's input on the dosage and type of dmsa they are using and

trying to find more parents using the supposatories bc of disbiosis.

>

>

> What kind of GI issues and what are you doing about them. Moving

mercury causes yeast, that's not route dependent. Is your child on a

particular diet? Enzymes? What's his diet like? Picky eater? Does

he eat only six foods, all dairy and carbs? Is he on supplements?

Has he had lots of antibiotics over the years? Is he taking

probiotics?

> S S

>

> Re: Started DMSA today-questions? Supposatories

> Posted by: " Phyllis Colace " phylc888@... phylc888

> Mon Mar 24, 2008 5:34 am (PDT)

> i think he was trying to stay away from the oral because my son is

> having some GI issues right now. Are most of you doing oral

chelation?

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

This is very different. Andy does not recommend giving dmsa once a day

like this. It only has a half life one four hours in the body and

should be given every four hours. However, you would not want to give

suppositories every four hours....

250 mg is a lot.

Any thoughts on using Andy's protocol? You can use TD if you

absolutely feel oral is out of the question.

> >

> > Hi, we finally are at the point and started DMSA at 4pm today. My

> > daughter is 5 and we started at 5mg. My question is how far apart do

> > we give her supplements from the DMSA?

> >

> > THanks Sheila

> >

>

[Guest guest]

Comments interspersed.

S S

Re: Started DMSA today-questions? Supposatories

Posted by: " Phyllis Colace " phylc888@... phylc888

Mon Mar 24, 2008 11:41 am (PDT)

Yikes thats a lot of questions. My son sees a GI specialist

that only works with asd kids. i believe his own son is asd. he

lectures with the dan lecturer circuit and as published many papers

on GI issues and asd. His dan dr, gi dr, and the chelation panel at

the 2006 dan conference says that suppositories do not cause

dysbiosis of gut bacteria. My son has mild disbiosis, no yeast

issues,

*No yeast, that's pretty rare in this population. I would read up on Andy's

protocol if I were you. Just because a DAN! doc tells you something and

lectures on it, doesn't necessarily make it true, doesn't change the way the

half-life/biochemistry works. I seem to recall him prescribing a high dose

(250mg)?! once every (couple?) day(s)?

low in digestive enzymes. He is not a picker eater. He eats

anything I ask him to but doesn't like spongy stuff like baked goods.

His diet is meat, veggies, and fruit with some gfcf pasta. Those are

the orders of his favorites. He is on the usual supplements, has not

had a lot of antibiotics and doesnt take probiotics though the gi

wants him too.

*We use American Health chewables (banana, strawberry, or blueberry) which we

special order through WFM. It's one of the few which is dairy and soy-free.

he has to find one that doesnt give my son instant

dihrea. Enzymes caused the same thing.

*Have you tried Houston Enzymes? You son may need the ones without the papain

and bromelain.

He has a

endeo/secretin/colonoscopy scheduled in 2 weeks and an appt with an

allegist that specializes in asd kids this thursday. I'll have to ask

the GI again about moving mercury causing yeast through

supposatories. I know it doesnt cause disbiosis. Im not starting the

dmsa until after our consult beginning may. I just wanted to get

everyone's input on the dosage and type of dmsa they are using and

trying to find more parents using the supposatories bc of disbiosis.

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

I know he is a rare child because he doesn't have yeast issues. the

dr says it may be because the child stopped eating completely, was

put in a feeding program and then started with fieldgold/gfcf from

teh bottom. this could have cleared up any yeast issues. its

something that i will ask him to monitor when he goes on dmsa based

on what you all are saying. i trust his gi. he is now presenting with

dr. bauman and the mind institute series on " current trends in

autism " . they already started the tour. if you are interested the

mind institute probably has the schedule of lectures. i dont know who

andy cutler is. isn't he a chemist?

>

>

> Comments interspersed.

> S S

>

> Re: Started DMSA today-questions? Supposatories

> Posted by: " Phyllis Colace " phylc888@... phylc888

> Mon Mar 24, 2008 11:41 am (PDT)

> Yikes thats a lot of questions. My son sees a GI specialist

> that only works with asd kids. i believe his own son is asd. he

> lectures with the dan lecturer circuit and as published many papers

> on GI issues and asd. His dan dr, gi dr, and the chelation panel at

> the 2006 dan conference says that suppositories do not cause

> dysbiosis of gut bacteria. My son has mild disbiosis, no yeast

> issues,

>

> *No yeast, that's pretty rare in this population. I would read up

on Andy's protocol if I were you. Just because a DAN! doc tells you

something and lectures on it, doesn't necessarily make it true,

doesn't change the way the half-life/biochemistry works. I seem to

recall him prescribing a high dose (250mg)?! once every (couple?) day

(s)?

>

> low in digestive enzymes. He is not a picker eater. He eats

> anything I ask him to but doesn't like spongy stuff like baked

goods.

> His diet is meat, veggies, and fruit with some gfcf pasta. Those

are

> the orders of his favorites. He is on the usual supplements, has

not

> had a lot of antibiotics and doesnt take probiotics though the gi

> wants him too.

>

> *We use American Health chewables (banana, strawberry, or

blueberry) which we special order through WFM. It's one of the few

which is dairy and soy-free.

>

> he has to find one that doesnt give my son instant

> dihrea. Enzymes caused the same thing.

>

> *Have you tried Houston Enzymes? You son may need the ones without

the papain and bromelain.

>

> He has a

> endeo/secretin/colonoscopy scheduled in 2 weeks and an appt with an

> allegist that specializes in asd kids this thursday. I'll have to

ask

> the GI again about moving mercury causing yeast through

> supposatories. I know it doesnt cause disbiosis. Im not starting

the

> dmsa until after our consult beginning may. I just wanted to get

> everyone's input on the dosage and type of dmsa they are using and

> trying to find more parents using the supposatories bc of disbiosis.

>

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

GI issues are not an excuse to ignore the chelator timing/dosing. And it does

nothing to reduce gut issues.

250mg of dmsa is a HUGE dose and giving it once a day is bad. I can definitely

tell that the people who make up these protocols have NEVER taken a chelator in

their life or they'd know how bad you feel if you take too much or if you take

it randomly. As a chelating adult...I can tell it's miserable and I'd rather

have gut issues any day over the redistribution that infrequent dosing causes.

It's no coincidence my used to be PDD three old is now barely an Asperger who is

actually functioning above his Asperger medicated non chelated peers. He tests

above average, he has perfect eye contact and he has social skills. He's not

perfect yet, not, but you can definitely tell when he's in a room with a bunch

of other ASD kids...he looks NT next to them.

It's because he's had 117 rounds of frequent low dose dmsa/ala. He's never taken

more than 25/30mg of these chelators and always on a Andy's suggested protocol.

He had terrible gut yeast and that was well controlled with natural antifungals

and probiotics. He has food issues and the same stuff other ASD kids have. But

we still were able to follow Andy's recommendations.

And it's paid off and not one day have I regretted it. Its sad that these

doctors do this to kids and parents don't know any better.

Why aren't kids getting better from Autism....because doctors are not using

Andy's protocol

Jan

> >

> >

> >

> > That is a dangerously high dose and dangerously infrequent dosing

> schedule. Please consider oral chelation using Andy's protocol.

> > S S

> >

> > Re: Started DMSA today-questions? Supposatories

> > Posted by: " Phyllis Colace " phylc888@ phylc888

> > Sun Mar 23, 2008 4:41 am (PDT)

> >

> >

> > Hi, We are due to start DMSA supposatories. Does anyone have any

> > experience with that? My son weighs 41 lbs and the prescription

> > reads " 1 suppository (250mg dmsa compound) at bedtime for 3 days,

> stop

> > for 11 days, repeat 5 cylces. This sounds very different from what

> is

> > being discussed right now on this board. Any guidance/thoughts?

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

[Guest guest]

There are always going to be people who trust Dr's above all else or reasons

such as they are a big name and have wrote books, they lecture about autism,

they claim to be " experts. " . If your so sold on this protocol whey even come on

here and ask? It seems, hope I'm wrong, that your simply looking for an

argument.

> >

> >

> > Comments interspersed.

> > S S

> >

> > Re: Started DMSA today-questions? Supposatories

> > Posted by: " Phyllis Colace " phylc888@ phylc888

> > Mon Mar 24, 2008 11:41 am (PDT)

> > Yikes thats a lot of questions. My son sees a GI specialist

> > that only works with asd kids. i believe his own son is asd. he

> > lectures with the dan lecturer circuit and as published many papers

> > on GI issues and asd. His dan dr, gi dr, and the chelation panel at

> > the 2006 dan conference says that suppositories do not cause

> > dysbiosis of gut bacteria. My son has mild disbiosis, no yeast

> > issues,

> >

> > *No yeast, that's pretty rare in this population. I would read up

> on Andy's protocol if I were you. Just because a DAN! doc tells you

> something and lectures on it, doesn't necessarily make it true,

> doesn't change the way the half-life/biochemistry works. I seem to

> recall him prescribing a high dose (250mg)?! once every (couple?) day

> (s)?

> >

> > low in digestive enzymes. He is not a picker eater. He eats

> > anything I ask him to but doesn't like spongy stuff like baked

> goods.

> > His diet is meat, veggies, and fruit with some gfcf pasta. Those

> are

> > the orders of his favorites. He is on the usual supplements, has

> not

> > had a lot of antibiotics and doesnt take probiotics though the gi

> > wants him too.

> >

> > *We use American Health chewables (banana, strawberry, or

> blueberry) which we special order through WFM. It's one of the few

> which is dairy and soy-free.

> >

> > he has to find one that doesnt give my son instant

> > dihrea. Enzymes caused the same thing.

> >

> > *Have you tried Houston Enzymes? You son may need the ones without

> the papain and bromelain.

> >

> > He has a

> > endeo/secretin/colonoscopy scheduled in 2 weeks and an appt with an

> > allegist that specializes in asd kids this thursday. I'll have to

> ask

> > the GI again about moving mercury causing yeast through

> > supposatories. I know it doesnt cause disbiosis. Im not starting

> the

> > dmsa until after our consult beginning may. I just wanted to get

> > everyone's input on the dosage and type of dmsa they are using and

> > trying to find more parents using the supposatories bc of disbiosis.

> >

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>