Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 welcome to the group. I saw your post and I really relate to you. My son is also 4 and his biggest symptom is speech as well. He can't seem to get his brain and his mouth to work together although he clearly tries. Sometimes he will say words but loses them very quickly. I am about to chelate him using the Andy Cutler protocol that most on this board use. Check out the FAQ section in the files. I am going to use DMSA for a weeks and then add ALA. We are going to do the 3 days on, 4 days off method. I too am worried, but I'm even more concerned that my son is walking around so toxic. I have left my DAN! doctor because she wanted to wait, so I only have the parents on this board to guide me (and that's fine with me). As for yeast....well, every child is different. Dana @ dana'sview has a great page on her site about yeast and bacteria issues. Stuff like biotin and GSE can be used to control yeast and you cn find it at your local health food store. You'll just have to keep a close eye on him and ask lots of questions! Welcome! georgies_mama <babyjjmama@...> wrote: Hi, I am new to this group although I am not new to autism and biomed. I have a four year old son with autism. He tested as having autoantibodies on an immunoscience lab that indicates metal toxitity, and he showed very high mercury and lead and pesticides on the French urine test. Speech is our HUGE issue. My son is very limited verbal and has major articulation issues. I am really hoping this group can provide me with the guidance to lead me in the right direction. I know my son needs chelation, but I am terrified of causing a regression and of messing up his gut. On his past labs (MAP and CDSA) he did not have any problems with yeast, and I am very worried of creating new issues for him and doing more harm than good. My son is super sensitive to supplements so I am even more scared. I know my son is getting older and the best time to chelate would be now. Am I worrying about things needlessly or are my concerns legit? I am not sure how my son would handle sulfur-chelators, and I have heard that EDTA is not good if you have mercury (though two DANs I went to suggested IV-EDTA). I am wasting precious time worrying needlessly or is lasting regression a real possiblity? Is it a certainty that chelation will cause yeast? Thanks for any info. you can provide. I am the worrier-mom, so this is not easy for me. I am both afraid to and not to chelate. Am I the only one? Help! Michele ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 You won't have a lasting regression on Andy's protocol, though if you already have yeast, you will continue to have yeast. Being afraid of rocking the yeast boat will keep you (and your son) in the same position forever. Just get it together and start chelating him. Get some biotin, lots of good probiotics, some other yeast stuff, and start dealing. It sucks, I know. We are about 85 or 90 rounds in (I stopped counting a while ago) and even though my kid, who has always been a HUGE gut kid, still is, he is SOOOOOOO much better than he was going to be if I didn't chelate him. We had apraxia, global dyspraxia, autism, hypotonia, CAPD, blah blah blah. Really, he was heading straight to the bottom. Now we have a high functioning kid who is cute and cuddly, sweet as all get out, quite well coordinated, pretty decent listening skills, and often too goofy because of the yeast. Speech is still funky, but it is here. Writing is coming in, as is reading. Social is much better. Lots and lots of benefits. And all of that with almost no formal therapy. We have a long way to go, but have come SOOOO far. Even my husband, the doubting (though a pretty decent assistant compared to some) has no doubts whatsover anymore. My advice: It is going to take a long time, so don't put off the inevitable any longer than you have to. Anne > > Hi, > > I am new to this group although I am not new to autism and biomed. > I have a four year old son with autism. He tested as having > autoantibodies on an immunoscience lab that indicates metal > toxitity, and he showed very high mercury and lead and pesticides on > the French urine test. Speech is our HUGE issue. My son is very > limited verbal and has major articulation issues. I am really > hoping this group can provide me with the guidance to lead me in the > right direction. > > I know my son needs chelation, but I am terrified of causing a > regression and of messing up his gut. On his past labs (MAP and > CDSA) he did not have any problems with yeast, and I am very worried > of creating new issues for him and doing more harm than good. My > son is super sensitive to supplements so I am even more scared. > > I know my son is getting older and the best time to chelate would be > now. Am I worrying about things needlessly or are my concerns > legit? I am not sure how my son would handle sulfur-chelators, and > I have heard that EDTA is not good if you have mercury (though two > DANs I went to suggested IV-EDTA). > > I am wasting precious time worrying needlessly or is lasting > regression a real possiblity? Is it a certainty that chelation will > cause yeast? > > Thanks for any info. you can provide. I am the worrier-mom, so this > is not easy for me. I am both afraid to and not to chelate. Am I > the only one? Help! > > > Michele > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 I have been chelating my 4yo for quite a while now. It always stirs up yeast. I then get it under control and we go on. She gets yeasty when we chelate, but the gains she makes are completely worth it! I don't think she will ever be completely free of yeast overgrowth until the metals are out of her system. Her speech gets better with every round now, though she did not start to improve until about 10 rounds of chelation. I am amazed by how much it helps her now! As we speak she is actually playing with her sisters yelling " roll around " which is a game they made up. A year ago all she did was sit and line up toys all day, not comunicating with anyone. She has not had any type of therapy. We just do biomed. http://autismshare.com > Hi, > > I am new to this group although I am not new to autism and biomed. > I have a four year old son with autism. He tested as having > autoantibodies on an immunoscience lab that indicates metal > toxitity, and he showed very high mercury and lead and pesticides on > the French urine test. Speech is our HUGE issue. My son is very > limited verbal and has major articulation issues. I am really > hoping this group can provide me with the guidance to lead me in the > right direction. > > I know my son needs chelation, but I am terrified of causing a > regression and of messing up his gut. On his past labs (MAP and > CDSA) he did not have any problems with yeast, and I am very worried > of creating new issues for him and doing more harm than good. My > son is super sensitive to supplements so I am even more scared. > > I know my son is getting older and the best time to chelate would be > now. Am I worrying about things needlessly or are my concerns > legit? I am not sure how my son would handle sulfur-chelators, and > I have heard that EDTA is not good if you have mercury (though two > DANs I went to suggested IV-EDTA). > > I am wasting precious time worrying needlessly or is lasting > regression a real possiblity? Is it a certainty that chelation will > cause yeast? > > Thanks for any info. you can provide. I am the worrier-mom, so this > is not easy for me. I am both afraid to and not to chelate. Am I > the only one? Help! > > > Michele > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Michele, I may be repeating what others have said, so pardon if I do. Obviously your son is toxic. Yes, he needs chelation. Being terrified is natural. Reading the files section and keep referring to it, will help explain how to safely chelate your child and control yeast and regressions. Lead means you need to use dmsa. I have a mercury/Lead kid myself. You go slowly with supplements, introducing one per week or two. Making sure to purchase ones that are pure, no additives, etc. Some kids do fine with this. Some don't tolerate certain vitamins until later on. You will have to see how he does. The supplement file will help with that. Make sure the vitamins do not have yeast in them. Controlling and treating yeast is very important and will be a part of chelation. Any child that has ever taken antibiotics, has a yeast problem despite what a lab says. You won't know how he will handle the chelator unless you try it. In small doses appropriate for his weight. NO EDTA..I don't know why DAN!'s offer this. It's not for mercury people. It is also a very old chelator that does pull minerals. DMSA, or DMPS won't do that. And NO WAY on IV anything. Very dangerous and traumatic and completely unnecessary. Giving a high dose of chelator through an IV periodically is dangerous. Chelation will cause yeast, yes. But it's controllable. As for regressions, some people do see them but they are usually related to yeast. I have not heard of any permanent regressions from using Andy's' protocol. With my son in the beginning of chelation we noticed that some of his behaviors would reappear after a round (regressions), but they went away with the next round and yeast control. This ebb and flow of symptoms happened for the first 10 rounds or so. Finally, those behaviors disappeared for good. He no longer has regressions between rounds. But we have done 31 rounds in 18 months. I can't say what's right for you and your son, but I can say I have not regretted my decision to chelate my son. Many here have seen remarkable improvements, recoveries etc..including myself. My PDD son is normal. His only remaining symptoms are a bit of sensory to clothing. As I say, what have we to lose in trying this? No one else has any answers. Read the files and learn as much as you can.. > > Hi, > > I am new to this group although I am not new to autism and biomed. > I have a four year old son with autism. He tested as having > autoantibodies on an immunoscience lab that indicates metal > toxitity, and he showed very high mercury and lead and pesticides on > the French urine test. Speech is our HUGE issue. My son is very > limited verbal and has major articulation issues. I am really > hoping this group can provide me with the guidance to lead me in the > right direction. > > I know my son needs chelation, but I am terrified of causing a > regression and of messing up his gut. On his past labs (MAP and > CDSA) he did not have any problems with yeast, and I am very worried > of creating new issues for him and doing more harm than good. My > son is super sensitive to supplements so I am even more scared. > > I know my son is getting older and the best time to chelate would be > now. Am I worrying about things needlessly or are my concerns > legit? I am not sure how my son would handle sulfur-chelators, and > I have heard that EDTA is not good if you have mercury (though two > DANs I went to suggested IV-EDTA). > > I am wasting precious time worrying needlessly or is lasting > regression a real possiblity? Is it a certainty that chelation will > cause yeast? > > Thanks for any info. you can provide. I am the worrier-mom, so this > is not easy for me. I am both afraid to and not to chelate. Am I > the only one? Help! > > > Michele > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Thank you so much for the help. Now I have two more questions, if I can ask. I went to two DAN doctors who want to do IV EDTA. What confuses me is I have heard before that EDTA chelates lead and that mercury is the last metal to come out, so you should work on the lead first and then the mercury. Yet it seems that I am hearing that EDTA is bad if you have mercury. What does the ETDA do that makes it bad if you have mercury? Also, I was told to stay away from oral chelators because they are so hard on the gut and to do suppository or IV instead. Yet it seems here people are liking oral chelators. Why is oral better or vice versa? Thank you for any clarification. Michele > > > > Hi, > > > > I am new to this group although I am not new to autism and biomed. > > I have a four year old son with autism. He tested as having > > autoantibodies on an immunoscience lab that indicates metal > > toxitity, and he showed very high mercury and lead and pesticides on > > the French urine test. Speech is our HUGE issue. My son is very > > limited verbal and has major articulation issues. I am really > > hoping this group can provide me with the guidance to lead me in the > > right direction. > > > > I know my son needs chelation, but I am terrified of causing a > > regression and of messing up his gut. On his past labs (MAP and > > CDSA) he did not have any problems with yeast, and I am very worried > > of creating new issues for him and doing more harm than good. My > > son is super sensitive to supplements so I am even more scared. > > > > I know my son is getting older and the best time to chelate would be > > now. Am I worrying about things needlessly or are my concerns > > legit? I am not sure how my son would handle sulfur-chelators, and > > I have heard that EDTA is not good if you have mercury (though two > > DANs I went to suggested IV-EDTA). > > > > I am wasting precious time worrying needlessly or is lasting > > regression a real possiblity? Is it a certainty that chelation will > > cause yeast? > > > > Thanks for any info. you can provide. I am the worrier-mom, so this > > is not easy for me. I am both afraid to and not to chelate. Am I > > the only one? Help! > > > > > > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Well, the protocol that are endorsed pretty strongly on this board are considered a more gentle approach, even if they are oral. The difference is instead of giving mega-doses every 8 hours 3 x a day you give smaller, more frequent doses round the clock (this includes dosing throughout the night as well) DMSA does chelate lead as well as a few other metals and when used in conjunction with ALA it can speed mercury out of the body. Now, of course, everything has it's risks. DMSA CAN put a strain on liver and kidney functions since the metals are excreted through the urine. That is why it is recommended that you give milk thistle or other liver support while chelating (even on " off " days) Now, if your son's only metal issue is with mercury you can just use ALA (alpha lipoic acid) This actually supports liver function and is the only chelating substance that can pull mercury from the brain tissue (DMSA cannot cross the blood brain barrier, no other chelater except ALA will do this) So, eventually you'll have to use it anyway but you can bypass the other chelating substances if you are only dealing with mercury. Again, ALA is given in small, frequent doese (every 3 hours for 3 days, then 4 days off) I totally understand where you are coming from and your concerns. The thing that really motivated me was reading some of Andy Cutler's papers and also doing some outside research. Our children are so sensetive that a gentle method of chelation is a must so they don't experience discomfort or possible side effects from high levels of chelators. Especially when they are non-verbal like our kids and they can't tell us if they don't feel good. All metals are excreted through the gut, liver, or kidneys no matter if you give it in IV, oral, or suppository form. And that of course can stir up yeast. Strict diet, enzymes, probiotics, GSE, Biotin, or prescription meds can help. Metals are the reason our kids guts are so screwed up in the first place so until we chelate, the yeast will always be there. I've heard people posting about going off gf/cf after several rounds of chelation, and some people have posted about no longer neding yeast protocols the further along they are in the chelation proccess. I know how you feel, but we just have to bite the bullet on this one and get to the root of the problem instead of treating the symptoms! Your DAN! doctor is probably very smart and nice, but this is your child and you need to find a way to treat him that you are comfortable with. Hang in there and keep asking questions! Maggie georgies_mama <babyjjmama@...> wrote: Thank you so much for the help. Now I have two more questions, if I can ask. I went to two DAN doctors who want to do IV EDTA. What confuses me is I have heard before that EDTA chelates lead and that mercury is the last metal to come out, so you should work on the lead first and then the mercury. Yet it seems that I am hearing that EDTA is bad if you have mercury. What does the ETDA do that makes it bad if you have mercury? Also, I was told to stay away from oral chelators because they are so hard on the gut and to do suppository or IV instead. Yet it seems here people are liking oral chelators. Why is oral better or vice versa? Thank you for any clarification. Michele > > > > Hi, > > > > I am new to this group although I am not new to autism and biomed. > > I have a four year old son with autism. He tested as having > > autoantibodies on an immunoscience lab that indicates metal > > toxitity, and he showed very high mercury and lead and pesticides on > > the French urine test. Speech is our HUGE issue. My son is very > > limited verbal and has major articulation issues. I am really > > hoping this group can provide me with the guidance to lead me in the > > right direction. > > > > I know my son needs chelation, but I am terrified of causing a > > regression and of messing up his gut. On his past labs (MAP and > > CDSA) he did not have any problems with yeast, and I am very worried > > of creating new issues for him and doing more harm than good. My > > son is super sensitive to supplements so I am even more scared. > > > > I know my son is getting older and the best time to chelate would be > > now. Am I worrying about things needlessly or are my concerns > > legit? I am not sure how my son would handle sulfur-chelators, and > > I have heard that EDTA is not good if you have mercury (though two > > DANs I went to suggested IV-EDTA). > > > > I am wasting precious time worrying needlessly or is lasting > > regression a real possiblity? Is it a certainty that chelation will > > cause yeast? > > > > Thanks for any info. you can provide. I am the worrier-mom, so this > > is not easy for me. I am both afraid to and not to chelate. Am I > > the only one? Help! > > > > > > Michele > > > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Nicely put, Maggie. Anne > > > > > > Hi, > > > > > > I am new to this group although I am not new to autism and > biomed. > > > I have a four year old son with autism. He tested as having > > > autoantibodies on an immunoscience lab that indicates metal > > > toxitity, and he showed very high mercury and lead and > pesticides on > > > the French urine test. Speech is our HUGE issue. My son is > very > > > limited verbal and has major articulation issues. I am really > > > hoping this group can provide me with the guidance to lead me in > the > > > right direction. > > > > > > I know my son needs chelation, but I am terrified of causing a > > > regression and of messing up his gut. On his past labs (MAP and > > > CDSA) he did not have any problems with yeast, and I am very > worried > > > of creating new issues for him and doing more harm than good. > My > > > son is super sensitive to supplements so I am even more scared. > > > > > > I know my son is getting older and the best time to chelate > would be > > > now. Am I worrying about things needlessly or are my concerns > > > legit? I am not sure how my son would handle sulfur-chelators, > and > > > I have heard that EDTA is not good if you have mercury (though > two > > > DANs I went to suggested IV-EDTA). > > > > > > I am wasting precious time worrying needlessly or is lasting > > > regression a real possiblity? Is it a certainty that chelation > will > > > cause yeast? > > > > > > Thanks for any info. you can provide. I am the worrier-mom, so > this > > > is not easy for me. I am both afraid to and not to chelate. Am > I > > > the only one? Help! > > > > > > > > > Michele > > > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 >>Speech is our HUGE issue. My son is very > limited verbal and has major articulation issues. I wrote on this page what my kids needed for speech http://www.danasview.net/issues.htm > I know my son needs chelation, but I am terrified of causing a > regression and of messing up his gut. I used ALA. It caused yeast overgrowth until round 50, at which point there was no more gut yeast. My son also did have brain yeast, which was eliminated with other protocols. ALA did not " mess up " my kids' guts, it actually healed their guts. But I did have to keep yeast under control for the first 50 or so rounds. Biotin and GSE worked best here. > I know my son is getting older and the best time to chelate would be > now. Am I worrying about things needlessly or are my concerns > legit? Your concerns are legit, but you need to decide about the risk/benefit, both of chelating and of leaving the metals in place. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 > Also, I was told to stay away from oral chelators because they are > so hard on the gut and to do suppository or IV instead. Yet it > seems here people are liking oral chelators. Why is oral better or > vice versa? Based on my research, oral might be " harder " on the gut, altho I would not call it " hard " on the gut, just " harder " than other forms. However, IV is harder on the entire body, with much greater risks involved, so I would only consider it if the oral methods, and maybe TD and suppositories, did not help my child. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Dana, please tell us (me) about the other protocols that cleared " brain yeast " . TIA. [ ] Re: does chelation always stir up yeast >>Speech is our HUGE issue. My son is very > limited verbal and has major articulation issues. I wrote on this page what my kids needed for speech http://www.danasvie w.net/issues. htm > I know my son needs chelation, but I am terrified of causing a > regression and of messing up his gut. I used ALA. It caused yeast overgrowth until round 50, at which point there was no more gut yeast. My son also did have brain yeast, which was eliminated with other protocols. ALA did not " mess up " my kids' guts, it actually healed their guts. But I did have to keep yeast under control for the first 50 or so rounds. Biotin and GSE worked best here. > I know my son is getting older and the best time to chelate would be > now. Am I worrying about things needlessly or are my concerns > legit? Your concerns are legit, but you need to decide about the risk/benefit, both of chelating and of leaving the metals in place. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 > > Dana, please tell us (me) about the other protocols that > cleared " brain yeast " . TIA. Anti-virals [OLE, vitamin C, lysine] and biotin. The anti-virals caused a lot of brain yeast at first, just like chelation did. Once the viruses were gone and the biotin levels were normalized, no more yeast of any kind, whatsoever. Dana Quote Link to comment Share on other sites More sharing options...
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