Re: Loose Joints

[Guest guest]

double jointed they are! My brother was like that, it passed with age,

he no longer can put his legs behind his head and hop around the

living room!

I am not sure what you could take to " get rid of it " but

glucosamine-chondrotin is good for joints, calcium, mag, the usual stuff.

-- In , " Amy " <rnanjnc@...> wrote:

>

> Hi,

>

> Is there anything we can take that will help with extremely loose

> joints? I hate the instability. I dislocate, my daughter can dislocate

> her shoulder now too and she's only 10. My son his shoulders pop alot

> when I pick him up. When he props himself up, while sitting in the

> floor, you can't tell which side is his elbow (looks kinda gross). It's

> funny cause my kids gross me out with some of the stuff they can do but

> then I remember I was that gross kid at one time! I'm only 32 and some

> days I feel like I'm 52. I don't want my kids to feel like I do now

> when they get older (lots of pain).

>

> Thanks

>

> Amy

>

[Guest guest]

In a message dated 1/14/2008 11:27:18 P.M. Eastern Standard Time,

paxlforme@... writes:

It's

> funny cause my kids gross me out with some of the stuff they can do but

> then I remember I was that gross kid at one time! I'm only 32 and some

> days I feel like I'm 52. I don't want my kids to feel like I do now

> when they get older (lots of pain).

Here are a few ideas - as I've looked into this as we have similar issues

(although not as extreme as yours). As interesting as it might be for your

children to show off their " tricks " - warn them not to do it - because they are

going to create worse problems for themselves down the road. They/you should

not push a joint as far as it will go. Be careful in yoga - do not stretch as

far as you can stretch. Pilates is better. It is a good idea to work on

strengthening the areas around the joints for better support. In addition to

" glucosamine- In addition to " glucosamine-<WBR>chondrotin is good for join

as suggested by another post, try lots of vitamin C - this is an issue to do

with collagen. Be careful and conservative with medications, surgeries, etc.

- especially NSAIDs - which you might be tempted to try for pain - which can

suppress platelets and lead to further problems (platelets have something

called growth factor which helps the repair of connective tissue). Google

" ehlers danlos. "

Edie

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Amy,

My dh is like this, and he is having more pain as he gets older too.

For him, the best things has been exersise, especially with things

link that rubber tubing stuff you can get from hospitals. If he

doesn't do that, his joints are so loose they'll dislocate at very

little provocation. Doctors have offered a surgery, but the success

rate is low and the risks are high. No thanks. Keeping the muscles

strong around the joint really can make a big difference.

I haven't yet found any supplement that seems to help, although he is

trying glucosamine now to see if it helps. If I ever find something,

I'll be sure to post.

When I was pregnant with my third child, my legs would pop out of the

joint at the hip if I sat down the wrong way on the floor. I would

have to call someone to come put my let back in place before I could

move. It is very disturbing and I can understand why you'd want to

address it. It did make delivering the baby very easy, but I was

very happy to get back to " normal " after that.

Anita

>

> Hi,

>

> Is there anything we can take that will help with extremely loose

> joints? I hate the instability. I dislocate, my daughter can

dislocate

> her shoulder now too and she's only 10. My son his shoulders pop

alot

> when I pick him up. When he props himself up, while sitting in the

> floor, you can't tell which side is his elbow (looks kinda gross).

It's

> funny cause my kids gross me out with some of the stuff they can do

but

> then I remember I was that gross kid at one time! I'm only 32 and

some

> days I feel like I'm 52. I don't want my kids to feel like I do now

> when they get older (lots of pain).

>

> Thanks

>

> Amy

>

[Guest guest]

In a message dated 1/16/2008 10:30:20 A.M. Eastern Standard Time,

rnanjnc@... writes:

I've read a lot on Ehlers Danlos but I can't get anyone to do the

tests.

This seems to happen a lot! We've had the same experience. Just gave up

after a while and focus on other issues - and there are enough of them! I used

to belong to the following group to follow what people were doing - and

learned a lot that way. But haven't participated for a while. At this point

it's most helpful for us to be thinking about the nutritional/biomed approach

to things - because there's so much one can do in this area to optimize your

health in general and to deal with a lot of the conditions that those with EDS

seem to (also?) have. Here's the EDS group link. From a quick glance

it looks as if they added a lot since I last participated:

_ehlers-danlos-syndrome/_

(ehlers-danlos-syndrome/)

As you probably know - a lot of people go to a geneticist - or to (the holy

grail) s Hopkins - for a diagnosis.

It seems the biggest issue with loose joints and related conditions (and

similarly Marfan's) is the potential of heart problems - which would be - in my

mind - the issue you'd really want to get comfortable on. If you look into

that aspect and it's a concern you might have for you or for your children -

maybe that's the question you could be asking the doctors - not about loose

joints - which they don't have answers for - but whether or not you should be

concerned about potential heart issues - which they may be able to actually

test for and watch over time so that everyone can stay on a comfort level in

that area.

Other than that - it appears to me that at the end of the day - the most we

can do is to be practical in terms of caring for/supporting the joints - and

to focus on biomed issues, I think, which will keep you ahead of the game in

general.

You may have visited their site already - but here's the Ehlers Danlos

Foundation's site.

_http://www.ednf.org/index.php?option=com_deeppockets & task=catShow & id=3 & Itemid

=88889063_

(http://www.ednf.org/index.php?option=com_deeppockets & task=catShow & id=3 & Itemid=8\

8889063)

Best,

Edie

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hey everybody thanks for the replies! I will grab a bottle of

glucosamine and start with that. Hopefully it will help. I hate that

my son can't tell me how he feels. I don't know if he has pain from

his. My daughter complains of her back and shoulder some. I keep an

eye on her back because I have scoliosis. When my son was small he

would overlap all of his fingers. I asked the ped. if the loose

joints had anything to do with it, if that might be why he doesn't

have very good control of his hands and of course I was wrong.

Because having loose joints doesn't cause problems. Doctors suck!

I went to an orthopedic doc once and he told me to live with it and

here's some pain pills! I went home and threw the script in the

trash. He said he could do surgery on my shoulder but it probably

wouldn't hold or the other shoulder could dislocate. I know this is

true because it happened to my Aunt. Let's see, do I want 1 bad

shoulder or possibly 2! Well, both of mine are bad because 1

dislocates and the other pops and cracks but I'll take that over both

dislocating.

I've read alot on Ehlers Danlos but I can't get anyone to do the

tests. When I bring it up they think I'm crazy. You'd think I'd just

asked them if mercury caused my son's autism! My daughter scores a

7 on the Beighton Scale and my son and me score a 9. There was one

doc that said we didn't have the loose skin so we didn't have EDS.

There's 10 different types of EDS and they all don't have the loose

skin!

Thanks

Amy

>

>

> In a message dated 1/14/2008 11:27:18 P.M. Eastern Standard Time,

> paxlforme@... writes:

>

> It's

> > funny cause my kids gross me out with some of the stuff they can

do but

> > then I remember I was that gross kid at one time! I'm only 32

and some

> > days I feel like I'm 52. I don't want my kids to feel like I do

now

> > when they get older (lots of pain).

>

>

>

>

>

> Here are a few ideas - as I've looked into this as we have similar

issues

> (although not as extreme as yours). As interesting as it might be

for your

> children to show off their " tricks " - warn them not to do it -

because they are

> going to create worse problems for themselves down the road.

They/you should

> not push a joint as far as it will go. Be careful in yoga - do

not stretch as

> far as you can stretch. Pilates is better. It is a good idea to

work on

> strengthening the areas around the joints for better support. In

addition to

> " glucosamine- In addition to " glucosamine-<WBR>chondrotin is good

for join

> as suggested by another post, try lots of vitamin C - this is an

issue to do

> with collagen. Be careful and conservative with medications,

surgeries, etc.

> - especially NSAIDs - which you might be tempted to try for pain -

which can

> suppress platelets and lead to further problems (platelets have

something

> called growth factor which helps the repair of connective

tissue). Google

> " ehlers danlos. "

>

> Edie

>

>

>

>

> **************Start the year off right. Easy ways to stay in

shape.

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

>

>

[Guest guest]

In a message dated 1/16/2008 2:46:48 P.M. Eastern Standard Time,

nessy@... writes:

Mercury poisoning often causes hypothyroidism. Being born

with low thyroid hormones causes joint hypermobility and collagen

problems.

Excellent point. A number of drugs also - including NSAIDs - can cause

joint destruction. This brings us back to biomed - and the issue of sulfation.

Here's an interesting article which associates the condition with nutritional

deficiencies and suggests appropriate supplements. The condition is, of

course, partly genetic and that drives the nutritional side of things to due to

enzyme deficiencies, etc.- that on top of environmental influences - but

supplementation can help make up for genetic mutations and hopefully help

repair/prevent future damage. (sorry - just an abstract)

_http://grande.nal.usda.gov/ibids/index.php?mode2=detail & origin=ibids_referenc

es & therow=773255_

(http://grande.nal.usda.gov/ibids/index.php?mode2=detail & origin=ibids_references\

& therow=773255)

Here's another good article (in full): Sulfur in human nutrition and

applications in medicine:

_http://findarticles.com/p/articles/mi_m0FDN/is_1_7/ai_83582816/print_

(http://findarticles.com/p/articles/mi_m0FDN/is_1_7/ai_83582816/print)

Another article in full:Are We Getting Enough Sulfur in Our Diets?:

_http://www.nutritionandmetabolism.com/content/pdf/1743-7075-4-24.pdf_

(http://www.nutritionandmetabolism.com/content/pdf/1743-7075-4-24.pdf)

And there's always epsom salt baths!

Edie

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

--- Hi there

I have some experience with this. When my Son was a toddler he had a

thumb which he could completely dislovate out of it's joint and it was

always a funny mottled red/blue colour too. The Doc said it was

nothing to be concerned about.

Then about 3 years or so ago someone commented on my Son's " double

jointed elbow " . I also had ME/CFS/fibromyalgia. An osteopath had

previously commented on my hypermobile joints but had put it down to

me having been a dancer when I was younger.

At some point I started looking into " double jointedness " and the

links with Fibro and one thing led to another and I realised that I

had several hypermobile joints also. I also noticed the velvety soft

skin, easy bruising and scarring on both my children and me too.

Eventually I managed to get an appointment with a hypermobilty

specialist in London (only because my Husband had a really good

medical insurance with his new job, so I could CHOOSE a Doctor!.

He could see immediately, before I even opened my mouth, that we all

had a form of EDS, just by looking at the scar on my neck. After he

examined me and my two children he confirmed my suspicions that we all

have EDS type III which is the Hypermobility type. We actually had

quite a high score on the scale (Beighton???).

The diagnosis is important because you need to know how to look after

your body. You may also need physio to help strengthen the muscles

around the joints. Also, there may or may not be vascular

complications and those you most definitely need to know about! It

takes a specialist to be able to diagnose which type if any you have

and provide follow up care should you need it.

One other interesting thing I have learned, which ties in with mercury

is this: Mercury poisoning often causes hypothyroidism. Being born

with low thyroid hormones causes joint hypermobility and collagen

problems. Not many people know this but it is absolutely true. I have

a battle between EDS experts and Hormone experts as one insists that

the EDS is purely genetic (which of course it can be too) and the

other insists it's because we were all born with low thyroid hormones.

(which we were! We all have hypothyroidism and mercury poisoning, and

there is no history of EDS in my family that I know of either.)

Anyway, you must get an expert opinion. EDS and it's types are not

difficult to diagnose with someone who deals with it all the time. I

suggest you do an internet search for an expert in your area. There

are some serious compications that are possible with some of the

subtypes and you should know if you have this problem or not.

And by the way, you are absolutely right about not everyone having the

stretchy skin. Ours is slightly this and scars etc but it's not very

stretchy.

, " Amy " <rnanjnc@...> wrote:

>

> Hey everybody thanks for the replies! I will grab a bottle of

> glucosamine and start with that. Hopefully it will help. I hate that

> my son can't tell me how he feels. I don't know if he has pain from

> his. My daughter complains of her back and shoulder some. I keep an

> eye on her back because I have scoliosis. When my son was small he

> would overlap all of his fingers. I asked the ped. if the loose

> joints had anything to do with it, if that might be why he doesn't

> have very good control of his hands and of course I was wrong.

> Because having loose joints doesn't cause problems. Doctors suck!

>

> I went to an orthopedic doc once and he told me to live with it and

> here's some pain pills! I went home and threw the script in the

> trash. He said he could do surgery on my shoulder but it probably

> wouldn't hold or the other shoulder could dislocate. I know this is

> true because it happened to my Aunt. Let's see, do I want 1 bad

> shoulder or possibly 2! Well, both of mine are bad because 1

> dislocates and the other pops and cracks but I'll take that over both

> dislocating.

>

> I've read alot on Ehlers Danlos but I can't get anyone to do the

> tests. When I bring it up they think I'm crazy. You'd think I'd just

> asked them if mercury caused my son's autism! My daughter scores a

> 7 on the Beighton Scale and my son and me score a 9. There was one

> doc that said we didn't have the loose skin so we didn't have EDS.

> There's 10 different types of EDS and they all don't have the loose

> skin!

>

> Thanks

>

> Amy

>

>

>

>

>

>

>

>

> >

> >

> > In a message dated 1/14/2008 11:27:18 P.M. Eastern Standard Time,

> > paxlforme@ writes:

> >

> > It's

> > > funny cause my kids gross me out with some of the stuff they can

> do but

> > > then I remember I was that gross kid at one time! I'm only 32

> and some

> > > days I feel like I'm 52. I don't want my kids to feel like I do

> now

> > > when they get older (lots of pain).

> >

> >

> >

> >

> >

> > Here are a few ideas - as I've looked into this as we have similar

> issues

> > (although not as extreme as yours). As interesting as it might be

> for your

> > children to show off their " tricks " - warn them not to do it -

> because they are

> > going to create worse problems for themselves down the road.

> They/you should

> > not push a joint as far as it will go. Be careful in yoga - do

> not stretch as

> > far as you can stretch. Pilates is better. It is a good idea to

> work on

> > strengthening the areas around the joints for better support. In

> addition to

> > " glucosamine- In addition to " glucosamine-<WBR>chondrotin is good

> for join

> > as suggested by another post, try lots of vitamin C - this is an

> issue to do

> > with collagen. Be careful and conservative with medications,

> surgeries, etc.

> > - especially NSAIDs - which you might be tempted to try for pain -

> which can

> > suppress platelets and lead to further problems (platelets have

> something

> > called growth factor which helps the repair of connective

> tissue). Google

> > " ehlers danlos. "

> >

> > Edie

> >

> >

> >

> >

> > **************Start the year off right. Easy ways to stay in

> shape.

> > http://body.aol.com/fitness/winter-exercise?

> NCID=aolcmp00300000002489

> >

> >

> >

[Guest guest]

Integrative Therapeutics has a protocol for healthy connective tissue:

_http://www.integrativeinc.com/go/integrativeinc/Protocols.aspx?alias=integrat

iveinc & tabalias=Protocols_

(http://www.integrativeinc.com/go/integrativeinc/Protocols.aspx?alias=integrativ\

einc & tabalias=Protocols)

Edie

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489