Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Nigel, you will be lucky to get anywhere with the nurse, they follow the orders of the Specialists who over do not even know about LDN, the best person to get it from if you can, is your GP as they are more free to prescribe off label. This I found here in Scotland. Arm yourself with information and ask him/her if you can try it, then if your local chemist does not have arrangements for compounding (mine does) then send your scripts to Dickson's Chemist in Glasgow, these are very helpful...... Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Hi, and welcome onboard! you have to stop deleting the messages, I am afraid you have been deleting the relevant ones, too ;-) !! (this is a good reminder for all of us to remember: WHY NOT WRITE DISEASE + SUBJECT IN THE SUBJECT LINE) ?? LDN is often helping MS patients. Give it a try, just follow all the good advices I am sure you will get in here. Best wishes Ingrid [low dose naltrexone] Calling The UK Multiple Sclerosis VictimsHi All or anyone.This site seems to be heavily biased towards all good folk in Ameica. I have contacted my MS Nurse about LDN but have heard the square root of squat back so far. Do any of you have access to LDN and have you noticed any signs of improvement?I'm on dull things like Lyrica, Amitrityline, Codeine Phosphate for the main symptoms and Baclofen for the cramps and other things for the problems with underwear but that is about it for the pharmacuticals. Obviously, being an old hippie, I use cannabis and this is about the only thing that works. I used to use it to get stoned but as I fall about all over the place these days, don't use it for fun reasons purely medicinal.Any news would be more than welcome and feel free to e-mail me directly as with an awful lot of LDN traffic, I sometimes delete messages as I do not feel that they are relevant.Let me know. Please!!!!!!!!!!!!!!!!!!!nigel-j-douan@...------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Nigel, I hope you get this posting. I tried emailing you directly, but unfortunately it said your mail box was not available and the message could not be delivered. So here's the content of what I tried to send you directly: Although I live in the U.S., I am receiving as little useful support from doctors in the LDN arena as it seems that you are. My problem is not MS, but what I have is likely to respond to that treatment. As near as I can tell, the vast majority of doctors here are totally disinclined (read that "horrified") to try anything that a compounding pharmacy has had a hand in. So - yesterday, I contacted a naturopathic physician that my compounding pharmacy recommended. I do have to pay out of pocket to see her, but I guess that is the price of getting help, at least in this country. She prescribes LDN for those patients who she feels could benefit from it, and I've made an appointment to see her. SO, I wonder if you have access to naturopathic physicians where you live and/or a compounding pharmacy who can guide you to the right person? I hope so. Judy Quote Link to comment Share on other sites More sharing options...
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