Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Dear Group, I am looking for doctors who have prescribed LDN to their RA patients. My rheumatologist will not prescibe LDN from the info on the web-site without a discussion with another MD about the LDN pathways and how they might interact with the drug that I am presently on. I live in CT and am willing to travel, if necessary. Any help appreciated. Time is of the essence. A Soos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 What great news Shirley. It is early days like you say so lets hope it just keeps getting better and better. - In low dose naltrexone , Shirley <pj20844@...> wrote: > > My husband has end stage RA. He has taken 3 doses of LDN as of last night. The first night after about 3 hours, he found the very hot temp in the elbows was GONE. Temp was normal in both joints. A large, hard spur on one elbow was mostly gone and what remained was soft, not hard as before. His very cold hands and feet were WARM for the first time in a few years. He could completely close the fingers of his right hand. His left hand is improved in this respect, but not like the right one. He had suffered a crush injury to that hand 10 or so years ago and that is a factor in that situation we feel sure. His mood is improved and so is his pain, but he still takes Celebrex because he is afraid the pain might return or get worse. He still has pain, but on occasion is pain free. Doesn't last though as of yet. I had not intended to send a message to the group for some time because we feel it is too early to get too, too excited, but nevertheless, > we are very excited. He feels some new sensations in his body that are difficult to describe. Maybe 'enlivening' is a good word for the situation. He is 72 yrs. old, going on 100 or so we hope!! pj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Thank you Shirley for sharing; that gives something to look forward to. Hope your husband continoues to improve. Best to you and your family From: Shirley <pj20844@...>Subject: [low dose naltrexone] RA and LDNlow dose naltrexone Date: Thursday, January 29, 2009, 7:53 PM My husband has end stage RA. He has taken 3 doses of LDN as of last night. The first night after about 3 hours, he found the very hot temp in the elbows was GONE. Temp was normal in both joints. A large, hard spur on one elbow was mostly gone and what remained was soft, not hard as before. His very cold hands and feet were WARM for the first time in a few years. He could completely close the fingers of his right hand. His left hand is improved in this respect, but not like the right one. He had suffered a crush injury to that hand 10 or so years ago and that is a factor in that situation we feel sure. His mood is improved and so is his pain, but he still takes Celebrex because he is afraid the pain might return or get worse. He still has pain, but on occasion is pain free. Doesn't last though as of yet. I had not intended to send a message to the group for some time because we feel it is too early to get too, too excited, but nevertheless,we are very excited. He feels some new sensations in his body that are difficult to describe. Maybe 'enlivening' is a good word for the situation. He is 72 yrs. old, going on 100 or so we hope!! pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 I've tried green lipped muscle oil, and it helped a lot. There is also krill oil, instead of using cod liver oil. MJB w/RA-Fibro Re: [low dose naltrexone] RA and LDN I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS, HER HUSBAND ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE CAREFUL ABOUT MEDICATIONS LIKE THIS... Some folks posted here about taking cod liver oil daily, either as part of the Swank diet or in its own right. The Berkeley Wellness newsletter, a monthly newsletter Feb 09 issues says: "Don't take cod liver oil, unless the label shows that its vitamin A content has been reduced. The oil usually contains very high levels of A which may weaken bones and cause birth defects. And since it is made from livers, which filter out toxins, there is greater concern about contaminants, even though the oil is supposed to be purified." http://www.wellnessletter.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Mercola recently renegged on his recommendation to use cod liver oil for the Vitamin A toxicity concern. I do still take it, but feel it is worth further research. > From: Jo Butitta <mjojob@...> > Subject: Re: [low dose naltrexone] RA and LDN > low dose naltrexone > Date: Friday, January 30, 2009, 6:42 PM > I've tried green lipped muscle oil, and it helped a lot. > There is also krill oil, instead of using cod liver oil. > MJB w/RA-Fibro > Re: [low dose naltrexone] RA and LDN > > > > > I HAVE A VERY CLOSE FRIEND WHO HAS BEEN > DIAGNOSED WITH MS, HER HUSBAND ALSO SUFFERS FROM RA AND > BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL WILL HELP > BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE > CAREFUL ABOUT MEDICATIONS LIKE THIS... > Some folks posted here about taking cod liver oil > daily, either as part of the Swank diet or in its own right. > The Berkeley Wellness newsletter, a monthly newsletter Feb > 09 issues says: > " Don't take cod liver oil, unless the > label shows that its vitamin A content has been reduced. The > oil usually contains very high levels of A which may weaken > bones and cause birth defects. And since it is made from > livers, which filter out toxins, there is greater concern > about contaminants, even though the oil is supposed to be > purified. " > > http://www.wellnessletter.com/<http://www.wellnessletter.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 hi maryjo what kind and how much did you take? i've been thinking of trying this: http://www.pernax.com/ingredients.htm monique http://www.pernax.com/ingredients.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 You make a good point that echos what I was just thinking...a spoonful of cod liver oil is an age old tonic/remedy. It seems rather tried and true. I am glad to read this as I do feel I am being much helped by the cod liver/butter oil combination I am using, which I believe to be very high quality. As a person with Crohns, I can practically feel it going in and helping my gut. This is not science on my part, but I feel it is beneficial and a part of my healing at this time. > From: Case Health Pty Ltd <casehealth@...> > Subject: [low dose naltrexone] Re: RA and LDN > low dose naltrexone > Date: Friday, January 30, 2009, 9:55 PM > Hi Mark, > > It's always good to be cautious and research because > everything has a > chemical composition and can react not only with the body > chemistry but all > other ingested chemicals - medications, supplements, and > even everyday > foods and drinks. > > We all need to consider the total over the single - > everything we take in > combo, rather than everything in isolation. > > Having said that, a single 1000mg capsule of cod liver oil > supplement (if > good quality, mercury free, etc) has benefited many over > the years - the > treatment of children's Rickets is just one example - > and so in isolation, > a good quality cod liver oil is absolutely nothing to fear. > > Children not exposed to adequate sunlight when they were > young sometimes > developed Rickets, a softening of the bones which can > progress to fractures > and deformity, such as bow legs. Cod liver oil has been > used extensively > and safely to treat Rickets. (This is why new mothers are > advised to give > their children early morning sun baths - to help strengthen > bones, clear > nappy rash, etc). > > Cod liver oil offers many benefits: For example, it's > also been used > extensively to support a healthy respiratory system, and > can help protect > against the development of asthma. > > 8a. Re: RA and LDN > Posted by: " Mark " > jarheaddad56@... jarheaddad56 > Date: Fri Jan 30, 2009 2:10 pm ((PST)) > > I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS, > HER HUSBAND > ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT > COD LIVER OIL > WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE > MUST BE CAREFUL > ABOUT MEDICATIONS LIKE THIS... > Some folks posted here about taking cod liver oil daily, > either as part of > the Swank diet or in its own right. The Berkeley Wellness > newsletter, a > monthly newsletter Feb 09 issues says: > " Don't take cod liver oil, unless the label shows > that its vitamin A > content has been reduced. The oil usually contains very > high levels of A > which may weaken bones and cause birth defects. And since > it is made from > livers, which filter out toxins, there is greater concern > about > contaminants, even though the oil is supposed to be > purified. " > http://www.wellnessletter.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi Mark, It's always good to be cautious and research because everything has a chemical composition and can react not only with the body chemistry but all other ingested chemicals - medications, supplements, and even everyday foods and drinks. We all need to consider the total over the single - everything we take in combo, rather than everything in isolation. Having said that, a single 1000mg capsule of cod liver oil supplement (if good quality, mercury free, etc) has benefited many over the years - the treatment of children's Rickets is just one example - and so in isolation, a good quality cod liver oil is absolutely nothing to fear. Children not exposed to adequate sunlight when they were young sometimes developed Rickets, a softening of the bones which can progress to fractures and deformity, such as bow legs. Cod liver oil has been used extensively and safely to treat Rickets. (This is why new mothers are advised to give their children early morning sun baths - to help strengthen bones, clear nappy rash, etc). Cod liver oil offers many benefits: For example, it's also been used extensively to support a healthy respiratory system, and can help protect against the development of asthma. 8a. Re: RA and LDN Posted by: " Mark " jarheaddad56@... jarheaddad56 Date: Fri Jan 30, 2009 2:10 pm ((PST)) I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS, HER HUSBAND ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE CAREFUL ABOUT MEDICATIONS LIKE THIS... Some folks posted here about taking cod liver oil daily, either as part of the Swank diet or in its own right. The Berkeley Wellness newsletter, a monthly newsletter Feb 09 issues says: " Don't take cod liver oil, unless the label shows that its vitamin A content has been reduced. The oil usually contains very high levels of A which may weaken bones and cause birth defects. And since it is made from livers, which filter out toxins, there is greater concern about contaminants, even though the oil is supposed to be purified. " http://www.wellnessletter.com/ Quote Link to comment Share on other sites More sharing options...
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