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what i have been learning these days is that our kids just dont have the toxic

burden but also pathogens that thrive on these toxins and these pathogens are

actually the reason for most of the symptoms our kids have and its must to

address them while chelating thats the way most of the people have got success

..Use natural or prescription antivirals,antibacterials and antifungals too

hopefully u will see a change. 

[ ] non-responders

I remember reading somewhere that about 75% of vaccine-injured

children are toxic and respond to chelation. If you have a child who

has had only minimal response to chelation (we have done over 200

rounds) what else can be done to help?

My 11 year-old son is non-verbal and has dyspraxia issues. He has been

in an ABA classroom in the public school system. We have done auditory

integration therapy, sensory integration, Houston Enzymes, assorted

supplements, probiotics, etc. We have seen many small gains over the

years, but he remains on the severe end of the autism spectrum. Any

suggestions are appreciated.

Rainy

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Have you done anti-virals? Also, if you've been doing ABA without

great results, check out Floortime. We have had great results.

Wishing you the best,

Ruth

On Jul 4, 2008, at 12:51 PM, rainy2071 wrote:

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

>

> My 11 year-old son is non-verbal and has dyspraxia issues. He has been

> in an ABA classroom in the public school system. We have done auditory

> integration therapy, sensory integration, Houston Enzymes, assorted

> supplements, probiotics, etc. We have seen many small gains over the

> years, but he remains on the severe end of the autism spectrum. Any

> suggestions are appreciated.

>

> Rainy

>

>

>

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Rainy,

In addition to all the good suggestions, I think it was suggested to get an EEG

to rule our seizures for kids who either don't progress or who progress and then

return to baseline, in cycles.

[ ] non-responders

I remember reading somewhere that about 75% of vaccine-injured

children are toxic and respond to chelation. If you have a child who

has had only minimal response to chelation (we have done over 200

rounds) what else can be done to help?

My 11 year-old son is non-verbal and has dyspraxia issues. He has been

in an ABA classroom in the public school system. We have done auditory

integration therapy, sensory integration, Houston Enzymes, assorted

supplements, probiotics, etc. We have seen many small gains over the

years, but he remains on the severe end of the autism spectrum. Any

suggestions are appreciated.

Rainy

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Not sure if this has been asked.

What sort of nutrition are you giving?

Are you juicing?

We've got to get bad stuff out (chelation, anti-virals, etc).

But we've also also got to put the good stuff in, so the the body has

all the building blocks it needs to repair itself.

rainy2071 wrote:

>

>

> >

> > Have you done anti-virals?

>

> We have tried Vira-stop, monolauren, and GSE. Oh and also Ojibwa tea.

>

> Rainy

>

>

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Rainy,

My son's homeopath believes that the kids who are non-responders to

homeopathy are struggling with parasites or lyme. According to her

this is a very small number, as she has said that only about 5 kids in

her practice seem to be non-responders to the clears (my son would be

one of these, at least so far.)

Anita

>

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

>

> My 11 year-old son is non-verbal and has dyspraxia issues. He has been

> in an ABA classroom in the public school system. We have done auditory

> integration therapy, sensory integration, Houston Enzymes, assorted

> supplements, probiotics, etc. We have seen many small gains over the

> years, but he remains on the severe end of the autism spectrum. Any

> suggestions are appreciated.

>

> Rainy

>

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Sorry, that post wasn't very clear. Lots of the kids my homeopath

sees are kids who have been through lots of other interventions

(chelation, supping, diet, etc) without a great deal of progress. My

son is one of those kids. According to my homeopath they have pretty

good success with even these kids (traditionally non-responders).

But, they do have kids that don't respond very well to homeopathy

too, and of those kids, they suspect lyme and parasites. Perhaps it

is the lyme or the parasites preventing progress all along.

FWIW, my kid does respond well to HBOT, but we've needed 125 dives to

get there, and I'm sure we'll need another 125 more.

Anita

> >

> > I remember reading somewhere that about 75% of vaccine-injured

> > children are toxic and respond to chelation. If you have a child

who

> > has had only minimal response to chelation (we have done over 200

> > rounds) what else can be done to help?

> >

> > My 11 year-old son is non-verbal and has dyspraxia issues. He has

been

> > in an ABA classroom in the public school system. We have done

auditory

> > integration therapy, sensory integration, Houston Enzymes,

assorted

> > supplements, probiotics, etc. We have seen many small gains over

the

> > years, but he remains on the severe end of the autism spectrum.

Any

> > suggestions are appreciated.

> >

> > Rainy

> >

>

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Rainy,

 

First of all, sorry to hear that he is a non-responder. 

 

Regardless, is he still toxic?  Suggest determining toxicity via porphyrins

test.  If he is still toxic, keep chelating.

 

Next, have you tested him for high testosterone?  High testosterone prevents

progress during chelation.

 

Have you tried visual therapy? 

 

From: rainy2071 <rainy2071@...>

Subject: [ ] non-responders

Date: Friday, July 4, 2008, 12:51 PM

I remember reading somewhere that about 75% of vaccine-injured

children are toxic and respond to chelation. If you have a child who

has had only minimal response to chelation (we have done over 200

rounds) what else can be done to help?

My 11 year-old son is non-verbal and has dyspraxia issues. He has been

in an ABA classroom in the public school system. We have done auditory

integration therapy, sensory integration, Houston Enzymes, assorted

supplements, probiotics, etc. We have seen many small gains over the

years, but he remains on the severe end of the autism spectrum. Any

suggestions are appreciated.

Rainy

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Guest guest

>

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

At my house, chelation really did not accomplish much. The only thing

it really did do, was allow my son to tolerate foods and supplements.

It was the supplements that caused his recovery.

> My 11 year-old son is non-verbal and has dyspraxia issues.

What supps do you give? What my son required for speech is written here

http://www.danasview.net/issues.htm

Dana

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>

> Not sure if this has been asked.

>

> What sort of nutrition are you giving?

>

> Are you juicing?

We are not juicing. Following is a list of what supplements we are

currently giving:

Spectrum Complete Powder

lecithin

extra zinc--helps to reduce chewing on shirts

extra magnesium and vit. c --reduces irritability with chelating

lauricidin

Omega Twin Flax/Borage oil

Kids DHA

AFP Peptizyde and TriEnza

Super Pro-Bio 75 billion

Loratidine -- for seasonal allergies

Rainy

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Guest guest

>

> Sorry, that post wasn't very clear. Lots of the kids my homeopath

> sees are kids who have been through lots of other interventions

> (chelation, supping, diet, etc) without a great deal of progress. My

> son is one of those kids. According to my homeopath they have pretty

> good success with even these kids (traditionally non-responders).

> But, they do have kids that don't respond very well to homeopathy

> too, and of those kids, they suspect lyme and parasites. Perhaps it

> is the lyme or the parasites preventing progress all along.

>

> FWIW, my kid does respond well to HBOT, but we've needed 125 dives to

> get there, and I'm sure we'll need another 125 more.

>

> Anita

>

We took our son to see a homeopath a couple of years ago. As I recall,

he was on thuja, and we didn't see any difference with it. I had

wondered about trying again with a different remedy. At any rate, I

will now also be trying to research lyme and parasites. Thanks.

Rainy

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>

> Rainy,

>

> First of all, sorry to hear that he is a non-responder.

>

> Regardless, is he still toxic? Suggest determining toxicity via

porphyrins test. If he is still toxic, keep chelating.

>

> Next, have you tested him for high testosterone? High testosterone

prevents progress during chelation.

>

> Have you tried visual therapy?

>

We started chelating after doing a hair test and it met the counting

rules, etc. During the time we have been chelating, my son's hair

color has gone from light brown, almost blond to dark brown. I don't

know if that means anything or not.

We have not had him tested for high testoserone or tried visual therapy.

Rainy

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Hi...I have a non-responder too with limited progress. we saw no

change on DMSA, LDN, TTFD and Glut creams, B12,

some progress with ABA clean diet and supps probiotics but could you

say a little bit more about high testosterone? is there behaviours

that reflect this. Also is it linked with Kulver-Bucy Syndrome which

sym. include genital rubbing, mouthing PICA among others...

What is the protocol - if testosterone is high

Thanks

Aileen

>

> From: rainy2071 <rainy2071@...>

> Subject: [ ] non-responders

>

> Date: Friday, July 4, 2008, 12:51 PM

>

>

>

>

>

>

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

>

> My 11 year-old son is non-verbal and has dyspraxia issues. He has

been

> in an ABA classroom in the public school system. We have done

auditory

> integration therapy, sensory integration, Houston Enzymes, assorted

> supplements, probiotics, etc. We have seen many small gains over the

> years, but he remains on the severe end of the autism spectrum. Any

> suggestions are appreciated.

>

> Rainy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Rather than me going over the protocal and details, suggest you listen to the

Geiers:

 

http://www.autismmedia.org/media4.html

From: stepbystep67 <stepbystep@...>

Subject: [ ] Re: non-responders

Date: Saturday, July 5, 2008, 7:26 PM

Hi...I have a non-responder too with limited progress. we saw no

change on DMSA, LDN, TTFD and Glut creams, B12,

some progress with ABA clean diet and supps probiotics but could you

say a little bit more about high testosterone? is there behaviours

that reflect this. Also is it linked with Kulver-Bucy Syndrome which

sym. include genital rubbing, mouthing PICA among others...

What is the protocol - if testosterone is high

Thanks

Aileen

>

> From: rainy2071 <rainy2071@. ..>

> Subject: [ ] non-responders

>

> Date: Friday, July 4, 2008, 12:51 PM

>

>

>

>

>

>

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

>

> My 11 year-old son is non-verbal and has dyspraxia issues. He has

been

> in an ABA classroom in the public school system. We have done

auditory

> integration therapy, sensory integration, Houston Enzymes, assorted

> supplements, probiotics, etc. We have seen many small gains over the

> years, but he remains on the severe end of the autism spectrum. Any

> suggestions are appreciated.

>

> Rainy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Have you looked into genetic testing and Amy Yasko protocol? I heard

her speak at Autism One and she sounds absolutely brilliant - her

research makes a lot of sense. That would be my next route if

chelation, GFCF, DAN!, etc. wasn't working. I've heard it's expensive,

but very well worth it.

HBOT would also be another good thing to try.

Sheri

>

> I remember reading somewhere that about 75% of vaccine-injured

> children are toxic and respond to chelation. If you have a child who

> has had only minimal response to chelation (we have done over 200

> rounds) what else can be done to help?

>

> My 11 year-old son is non-verbal and has dyspraxia issues. He has been

> in an ABA classroom in the public school system. We have done auditory

> integration therapy, sensory integration, Houston Enzymes, assorted

> supplements, probiotics, etc. We have seen many small gains over the

> years, but he remains on the severe end of the autism spectrum. Any

> suggestions are appreciated.

>

> Rainy

>

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Guest guest

thanks

> >

> > From: rainy2071 <rainy2071@ ..>

> > Subject: [ ] non-responders

> >

> > Date: Friday, July 4, 2008, 12:51 PM

> >

> >

> >

> >

> >

> >

> > I remember reading somewhere that about 75% of vaccine-injured

> > children are toxic and respond to chelation. If you have a child

who

> > has had only minimal response to chelation (we have done over 200

> > rounds) what else can be done to help?

> >

> > My 11 year-old son is non-verbal and has dyspraxia issues. He has

> been

> > in an ABA classroom in the public school system. We have done

> auditory

> > integration therapy, sensory integration, Houston Enzymes,

assorted

> > supplements, probiotics, etc. We have seen many small gains over

the

> > years, but he remains on the severe end of the autism spectrum.

Any

> > suggestions are appreciated.

> >

> > Rainy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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Guest guest

> Hi...I have a non-responder too with limited progress. we saw no

> change on DMSA, LDN, TTFD and Glut creams, B12,

> some progress with ABA clean diet and supps probiotics but could you

> say a little bit more about high testosterone? is there behaviours

> that reflect this. Also is it linked with Kulver-Bucy Syndrome which

> sym. include genital rubbing, mouthing PICA among others...

You sent me a private email, but I cannot reply to it because my reply

comes back as " not a valid mailbox " . Please send me another email

address that I can reply to.

Dana

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Guest guest

> >

> > From: rainy2071 <rainy2071@>

> > Subject: [ ] non-responders

> >

> > Date: Friday, July 4, 2008, 12:51 PM

> >

> >

> >

> >

> >

> >

> > I remember reading somewhere that about 75% of vaccine-injured

> > children are toxic and respond to chelation. If you have a child who

> > has had only minimal response to chelation (we have done over 200

> > rounds) what else can be done to help?

> >

> > My 11 year-old son is non-verbal and has dyspraxia issues. He has

> been

> > in an ABA classroom in the public school system. We have done

> auditory

> > integration therapy, sensory integration, Houston Enzymes, assorted

> > supplements, probiotics, etc. We have seen many small gains over the

> > years, but he remains on the severe end of the autism spectrum. Any

> > suggestions are appreciated.

> >

> > Rainy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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Guest guest

> > >

> > > From: rainy2071 <rainy2071@>

> > > Subject: [ ] non-responders

> > >

> > > Date: Friday, July 4, 2008, 12:51 PM

> > >

> > >

> > >

> > >

> > >

> > >

> > > I remember reading somewhere that about 75% of vaccine-injured

> > > children are toxic and respond to chelation. If you have a

child who

> > > has had only minimal response to chelation (we have done over

200

> > > rounds) what else can be done to help?

> > >

> > > My 11 year-old son is non-verbal and has dyspraxia issues. He

has

> > been

> > > in an ABA classroom in the public school system. We have done

> > auditory

> > > integration therapy, sensory integration, Houston Enzymes,

assorted

> > > supplements, probiotics, etc. We have seen many small gains

over the

> > > years, but he remains on the severe end of the autism spectrum.

Any

> > > suggestions are appreciated.

> > >

> > > Rainy

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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I would like to know if anyone knows of any good doctors around San ,

California, who will screen autistic children for Lupron treatment. I

really appreciate your help.

Thanks ahead of time,

Kym

[ ] non-responders

> >

> > Date: Friday, July 4, 2008, 12:51 PM

> >

> >

> >

> >

> >

> >

> > I remember reading somewhere that about 75% of vaccine-injured

> > children are toxic and respond to chelation. If you have a child

who

> > has had only minimal response to chelation (we have done over 200

> > rounds) what else can be done to help?

> >

> > My 11 year-old son is non-verbal and has dyspraxia issues. He has

> been

> > in an ABA classroom in the public school system. We have done

> auditory

> > integration therapy, sensory integration, Houston Enzymes,

assorted

> > supplements, probiotics, etc. We have seen many small gains over

the

> > years, but he remains on the severe end of the autism spectrum.

Any

> > suggestions are appreciated.

> >

> > Rainy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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I would call Dr. Geier for a referral.  He may work with you long distance.  If

nothing else, go to any pediatrician and tell him you suspect Precocious

Puberty.  Your child will get tested.

From: Kym Ng <kym@...>

Subject: RE: [ ] Re: non-responders

Date: Monday, July 7, 2008, 2:39 AM

I would like to know if anyone knows of any good doctors around San ,

California, who will screen autistic children for Lupron treatment. I

really appreciate your help.

Thanks ahead of time,

Kym

[ ] non-responders

> >

> > Date: Friday, July 4, 2008, 12:51 PM

> >

> >

> >

> >

> >

> >

> > I remember reading somewhere that about 75% of vaccine-injured

> > children are toxic and respond to chelation. If you have a child

who

> > has had only minimal response to chelation (we have done over 200

> > rounds) what else can be done to help?

> >

> > My 11 year-old son is non-verbal and has dyspraxia issues. He has

> been

> > in an ABA classroom in the public school system. We have done

> auditory

> > integration therapy, sensory integration, Houston Enzymes,

assorted

> > supplements, probiotics, etc. We have seen many small gains over

the

> > years, but he remains on the severe end of the autism spectrum.

Any

> > suggestions are appreciated.

> >

> > Rainy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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Hi Aileen :-) My thoughts are interspersed below.

>

> 250mg every eight hrs. 3 days on 11 day off for about six months.

We

> had two sets of bloods done but It was very traumatic. Now I don't

> want to do bloods anymore so we stopped last Oct. Can't remember my

> child's exact weight at the time but my Dan doc worked it out.

Lots of people, like me, stopped doing blood tests because using the

Cutler protocol wasn't taxing our kids and the blood tests kept

showing that everything was fine. Blood tests are horrible for us

too, but I would have kept them up had I been worried at all. If

you're going to continue chelation, you may want to do so using the

AC protocol, as the low, frequent doses rarely seem to be problematic

for the liver, etc.

>

> RE: Yes - showed up metal toxic.

>

> B12 shots for 11/2 half years but no change good or bad.

>

> Biggest reaction in the Dan protocol was removing sugar from his

diet

> and other offenders but it has only took him so far.

>

> Yeast/bacteria/viral/parasites/metals/loading - I can't tell what

is

> causing what.

> The only behaviours that I could pin point to with diet are

giggling

> and no sleep but i havn't had those behaviours for over two years

now.

> We blamed yeast then.

Those do sound like yeast, but sometimes yeast behaviours do change

over time.

>

> I havn't tried ALA...but thinking of it -

> Also thinking of homeopathy and someone suggested Yasko but I don't

> know.

>

> This week I introed Adrenal Cortex and he has become much more

calmer

> and is verbalising more so I live in hope

As you should :-) That is great news about the ACE.

>

> issues at mo

> biting for pressure on jawbone

> Aloof to all outside our home (that has never changed)

> Rubbing privates

> Swearing (attention/seeking behaviour- he thinks its really funny)

> Visual stim - staring at trees out of the corner of his eyes (has

> done this since he was a baby)

> Verbally stimmy - loud sometimes but usually if he is holding a

> string of beads, my bead braclet etc. or the tank. - think

> this stime is more behavioural

> Functional speech but only lately seems to want to use it.

> Poor concentration

> can be busy but has calmed this last week

A lot of this sounds like my son used to be, except the swearing part

(that would be my issue!).

For my son, we've seen very, very slow improvements by using cultured

foods, addressing the lectin problems (using Lectin Lock and soaked

foods), addressing nutritional defiencies with an improved gut, HBOT,

continued AC chelation with DMSA and now just LA, viral protocols,

addressing oxidative stress, and addressing inflammation. Now, as

I've told you, we are using homeopathy on top of all these things

Any wows we've ever had have been lost. But, ds is no longer losing

ground like he used to and I think it required all of what we've done

to get to that place. This journey has been much, much more complex

than I thought it would be, and now that I've accepted we need to do

many treatments simultaneously and long term, I feel much more

confident that ds is going to recover.

I hope some of the might help,

Anita

>

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-

Hi Anita

LOL....you made me smile and i should be tucked up in bed...anyway

I have cut and pasted and will debrief myself in the morning. Thank

you for your input ... I have a lot to chew on!

RE Swearing...the funny thing is it is in total context. I said to

him this morning..or yesterday morning 'ok time for school' and he

answers F*** sake.

or when something drops or his teacher asks him to repeat

something...so I guess that is the good bit.

He KNOWS it is not appropriate lang as he comes up to me with a few

hugs and kiss then eyes balls me and say 'f***' and waits a response

which he doesn't get but he goes away giggling anyway...Wasn't so

funny on Sunday when he shouted out f***** at the priest from the

balcony....!!!!!!!!!!!!!

Everyone else though thought it was hilarious including his 11 year

old brother...

You know he has been doing stuff a 3 year old would do like dressing

up in my clothes and his fathers boots...and swearing can happen

around that time too..Maybe he is just going through his troublesome

threes...ah well better late than never!!!

Aileen X

-- In , " Anita " <mysuperteach@...>

wrote:

>

> Hi Aileen :-) My thoughts are interspersed below.

>

>

>

>

> >

> > 250mg every eight hrs. 3 days on 11 day off for about six months.

> We

> > had two sets of bloods done but It was very traumatic. Now I

don't

> > want to do bloods anymore so we stopped last Oct. Can't remember

my

> > child's exact weight at the time but my Dan doc worked it out.

>

> Lots of people, like me, stopped doing blood tests because using

the

> Cutler protocol wasn't taxing our kids and the blood tests kept

> showing that everything was fine. Blood tests are horrible for us

> too, but I would have kept them up had I been worried at all. If

> you're going to continue chelation, you may want to do so using the

> AC protocol, as the low, frequent doses rarely seem to be

problematic

> for the liver, etc.

>

>

>

> >

> > RE: Yes - showed up metal toxic.

> >

> > B12 shots for 11/2 half years but no change good or bad.

> >

> > Biggest reaction in the Dan protocol was removing sugar from his

> diet

> > and other offenders but it has only took him so far.

> >

> > Yeast/bacteria/viral/parasites/metals/loading - I can't tell what

> is

> > causing what.

> > The only behaviours that I could pin point to with diet are

> giggling

> > and no sleep but i havn't had those behaviours for over two years

> now.

> > We blamed yeast then.

>

>

> Those do sound like yeast, but sometimes yeast behaviours do change

> over time.

>

>

> >

> > I havn't tried ALA...but thinking of it -

> > Also thinking of homeopathy and someone suggested Yasko but I

don't

> > know.

> >

> > This week I introed Adrenal Cortex and he has become much more

> calmer

> > and is verbalising more so I live in hope

>

>

> As you should :-) That is great news about the ACE.

>

>

> >

> > issues at mo

> > biting for pressure on jawbone

> > Aloof to all outside our home (that has never changed)

> > Rubbing privates

> > Swearing (attention/seeking behaviour- he thinks its really funny)

> > Visual stim - staring at trees out of the corner of his eyes (has

> > done this since he was a baby)

> > Verbally stimmy - loud sometimes but usually if he is holding a

> > string of beads, my bead braclet etc. or the tank. - think

> > this stime is more behavioural

> > Functional speech but only lately seems to want to use it.

> > Poor concentration

> > can be busy but has calmed this last week

>

>

> A lot of this sounds like my son used to be, except the swearing

part

> (that would be my issue!).

>

> For my son, we've seen very, very slow improvements by using

cultured

> foods, addressing the lectin problems (using Lectin Lock and soaked

> foods), addressing nutritional defiencies with an improved gut,

HBOT,

> continued AC chelation with DMSA and now just LA, viral protocols,

> addressing oxidative stress, and addressing inflammation. Now, as

> I've told you, we are using homeopathy on top of all these things

>

> Any wows we've ever had have been lost. But, ds is no longer

losing

> ground like he used to and I think it required all of what we've

done

> to get to that place. This journey has been much, much more

complex

> than I thought it would be, and now that I've accepted we need to

do

> many treatments simultaneously and long term, I feel much more

> confident that ds is going to recover.

>

> I hope some of the might help,

> Anita

>

>

> >

>

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