New to the Group

[Guest guest]

I'm a parent of a 5 year old ASD boy and have been researching biomed for 2.5

years. Yes I

made the mistake of doing IV-DMPS with a DAN and have tried much of the 2006 DAN

protocol. I state the year because there have been additions that I haven't

tried. My son is

a non-responder actually could be getting worse. Not until I tried homeopathy

this

Christmas did I realize that it could have been the IV-DMPS that could have made

him

worse. So here I am trying to learn about the AC protocol. From reading on here

for the

past week it seems like this is an intense group. I am not trying to start any

arguements I

would just like to hear from parents who have done this protocol and actually

found that it

was a piece of the puzzle for their kids. I would also like to know if there is

anyone on

here that tried this protocol and found that it made things worse. I understand

that

because it is low and slow it shouldn't but my kid is about as sensitive as it

gets. I am

under the guidance of a great doctor in Seattle and was about to start with

6.25 mg of

DMSA every 4 hours for 7 days straight and then 7 days off and start again but

after the

2nd day I couldn't and my son couldn't tolerate it. His stims were absolutely

uncontrollable. We have Epicor and Del Immune V and Biotin in his supplement

list but I

am unsure if it is yeast or if he cannot tolerate the DMSA. My doc has

prescribed Tenex to

keep him comfortable while we chelate. I tried 1 mg but it didn't stop his hyper

stimming

just made him take a nap (very unusual). I know there has been much discussion

on how

to give advice and I will tell you I am going through my own issues because of

feeling like

a failure to my kid BUT I would like to hear from others whether they had a

really tough

nut kid (non-verbal- high verbal stimming - not retaining ABA therapy- intense

hand

stimming - eating his shirt -biting- giggling/drunkeness) and whether they saw

some

gains with this protocol. I am not a parent who wants to ease the work for a

group home. I

want recovery. Please let me know if it was intense at the beginning of the DMSA

rounds

and then got better.

Kathy in BC