6 Months on LDN for MS

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Its now been 6 months since i started on ldn for progressive ms.

which i have had for 5 years. i could walk ok for a few minutes, but

no longer, bladder freq and urgency. poor leg strength and balance.

my left leg was the start of problem when diagnosed, and has always

been the weaker leg. these are all my symptons of ms.

I started on 3mg in the end of January, for the first 8 weeks,

fantastic results , improved balance, strength in legs, walking,

slightly better bladder.

Then for some unknown reason i took a turn for the worse, all the

above benifits became much worse. even to the extent where i could

just about walk, for 10 seconds,. limping lots with dragging left foot.

This continued for 3 months! its only been the beggining of the last

month i have SLIGHTLY improved. but remained the same since that

small improvement.

Although my leg strength , balance, and mobility have become ALOT

worse,. but for some odd reason my bladder has improved LOTS.

over the last 2 months, i go to the toilet every 2 hours, compared to

every 1 hour before i DONT wake up in the night needing the toilet, or

even have problems in bed. This is confusing me , legs become worse ,

my bladder becomes better??? surely they should both get better or

worse at the same time, as it is the damaged nerves thats the problem???

In these 6 months i have tried different doses from 2mg , 3 , 3.7 ,

4.5 mg . i did feel alot less stiffer on 2mg. but was advised to try

and go up to 3mg, so only stayed on 2mg for 2 weeks.

Now i want peoples opinions please, do i continue with LDN? Its been

6 months, and although i had GREAT sympton relief at the beginning, i

am now in a MUCH worse state than i was before starting ldn.

I understand LDN is just to stop / slow down progression, and sympton

relief is a bonus. But in this 6 months , it has just made me ALOT

worse, much quicker than if i didnt take LDN. I have not suffered any

trauma or stress either, to start this problem.?

Any advice appreciated

Adam