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,

How is your speech changing? Do you mean the tone? My daughter is 8 yo with congenital hypothyroidism. She has a very soft nature of talking and she also has articulation problems. She currently takes Synthroid daily and that is supposed to replace her thyroid hormone. My reason for joining this list is to find out what kinds of contraindications go along with taking this Synthroid. i.e. sleep/relaxation, moodiness, almost an anxietal feeling. It's so hard for me to figure this out because it isn't happening to me, I just want to make sure my daughter is feeling good!

From your symptoms you mentioned, maybe I ought to have my thyroid tested. I never have, but probably should since she was born without one. I hope someone can contribute to our concerns as well.

thanks,

Kelley King

Re:

Here is a general question fellow hypothyroider's-What emotional or physical problem do you most hatewith this disease and why?Mine is besides weight gain I seem to tear up at Fostythe snowman melting. Or get extra moody/(REAL EXTRA weare talking) at certain time of the months...therejust never seems to be a time when everything is inbalance...for me anyways.Now I notice my speech is changing. Nothing worse thenbeing able to articulate in your head but not have itcome out the way you wanted it to.Oh-and if the lack of sex is at the bottom of thelist. I guess that just says it! You don't desire-andit truly is the last thing I think about!:} Well this was my thought this morning, I hope ya'llcan contribute.__________________________________________________

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Hello ,

My speech changing is the clarity and slurring of words. I remember at sometimes when my thyroid was WAY off I would talk to my mum and she would tell me that I must be drinking over the phone my words were slurring together. (This of course is not the case-I don't drink at all) My tone has gotten deeper-I don't have a goiter which is rare. Perhaps your daughter is like me with the soft talking because of low self esteem that seems to follow this disease. I would encourage everyone to get checked for it! After all you can go into a coma if not treated properly. Are her blood test "within normal range"?

, Memphis, TN

atkhorses <atkhorses@...> wrote:

,

How is your speech changing? Do you mean the tone? My daughter is 8 yo with congenital hypothyroidism. She has a very soft nature of talking and she also has articulation problems. She currently takes Synthroid daily and that is supposed to replace her thyroid hormone. My reason for joining this list is to find out what kinds of contraindications go along with taking this Synthroid. i.e. sleep/relaxation, moodiness, almost an anxietal feeling. It's so hard for me to figure this out because it isn't happening to me, I just want to make sure my daughter is feeling good!

From your symptoms you mentioned, maybe I ought to have my thyroid tested. I never have, but probably should since she was born without one. I hope someone can contribute to our concerns as well.

thanks,

Kelley King

Re:

Here is a general question fellow hypothyroider's-What emotional or physical problem do you most hatewith this disease and why?Mine is besides weight gain I seem to tear up at Fostythe snowman melting. Or get extra moody/(REAL EXTRA weare talking) at certain time of the months...therejust never seems to be a time when everything is inbalance...for me anyways.Now I notice my speech is changing. Nothing worse thenbeing able to articulate in your head but not have itcome out the way you wanted it to.Oh-and if the lack of sex is at the bottom of thelist. I guess that just says it! You don't desire-andit truly is the last thing I think about!:} Well this was my thought this morning, I hope ya'llcan contribute.__________________________________________________

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  • 1 year later...

,

That is not uncommon, but it is not desirable. Are you starting on

medication soon? You REALLY need some. At least a beta blocker. ATDs are

the medication to treat hyperT, but beta blockers are usually used as well

at first to help control such symptoms.

Untreated hyperT is dangerous, especially over time, as it can damage the

heart. You can also have thyroid storm, which can be deadly. I hope you

call your doctor and receive the medication soon.

At 10:09 AM 1/21/2004, you wrote:

>Hi everyone..hope everyone is well.

>

>So last night my heart started racing just out of the blue. It was

>like this for about an hour. I timed it and it was 137 beats a

>minute. My husband suggested we go to the er, but we ended up

>waiting a bit. I was also feeling nauseous while this was

>happening. Is this a normal symptom for hyperT? Is there meds for

>this? Currently, Im not on any meds and dont know when I will be.

>Should I call the doctor? Any info is greatly appreciated..Im new

>to all this so I have tons of questions.

>

>Thanks again

>

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Thanks ! I left a message for my doctor this morning so

hopefully shell call soon. What can I do meanwhile if this happens

again?

>

> >Hi everyone..hope everyone is well.

> >

> >So last night my heart started racing just out of the blue. It

was

> >like this for about an hour. I timed it and it was 137 beats a

> >minute. My husband suggested we go to the er, but we ended up

> >waiting a bit. I was also feeling nauseous while this was

> >happening. Is this a normal symptom for hyperT? Is there meds

for

> >this? Currently, Im not on any meds and dont know when I will be.

> >Should I call the doctor? Any info is greatly appreciated..Im new

> >to all this so I have tons of questions.

> >

> >Thanks again

> >

>

>

>

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,

Just in case you are asthmatic, I wanted to mention that those who have

asthma should not take a beta blocker, but rather a calcium channel

blocker. Realize that if you are on a beta blocker, and then or also taking

ATDs, you will need to wean off the beta blocker, as stopping it abruptly

can be dangerous.

If your doctor hasn't called and it's been a few hours, call again. If

necessary, show up in the office about 1 hour prior to her leaving, and

insist on getting some help. You really shouldn't be left hanging. Can you

get ATD medication from her? If not, then a beta blocker will tide you

over, but you really should get the proper treatment as soon as you can.

Don't be alarmed, you should be fine; just want you to get the help you

need. If you have some palpitations or rapid heartbeating, just try to

relax and

let it pass. Avoid iodine as much as possible (no salt, no kelp, no

seafood, no dairy), at least right now. Also, no caffeine, no chocolate, no

alcohol. No stress. Cigarette smoke is a no-no too, but if you are a

smoker, that may be hard to stop right now...

At 01:03 PM 1/21/2004, you wrote:

>Thanks ! I left a message for my doctor this morning so

>hopefully shell call soon. What can I do meanwhile if this happens

>again?

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Great advice .

Perfect !

The only thing I can add, given the situation, if you are a smoker ,

do NOT try to quit or cut back today. Try to not over-smoke, but to add

stress at this exact moment, will not help at all. There are some

antithyroid qualities in cigarettes, and that is the reason many Graves'

patients have self medicated with them up till their diagnosis.

BUT... the other additives and pesticides used on the tobacco have

contributed to the autoimmune system going whacky. That IS a contributing

factor in all of this, and once on antithyroid drugs, the urges then become

less, as the reason the patient started smoking, and continued is slowly

becoming under control.

Smoking greatly worsens our eye disease, and smokers are more likely to get

the eye disease, if not right now, probably soon.

Now watch... she will be a non-smoker. LOL

-Pam L-

BTW... Thanks Kate :-)

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good lord no caffeine or chocolate! thats a tough one. I havent

heard back from her yet..The message says that I should receive a

call back with in 3 business days which is crap but thats how these

doctors work. Ill keep you updated. As of right now im not taking

any medication. I quit smoking last May..yeeeaahh me!!

> >Thanks ! I left a message for my doctor this morning so

> >hopefully shell call soon. What can I do meanwhile if this

happens

> >again?

>

>

>

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Hi Pam...yeah im a non smoker...i used to smoke...but you guys give

some great advice..i really appreciate all your help.

yall are great!

> Great advice .

> Perfect !

>

> The only thing I can add, given the situation, if you are a smoker

,

> do NOT try to quit or cut back today. Try to not over-smoke, but

to add

> stress at this exact moment, will not help at all. There are some

> antithyroid qualities in cigarettes, and that is the reason many

Graves'

> patients have self medicated with them up till their diagnosis.

>

> BUT... the other additives and pesticides used on the tobacco have

> contributed to the autoimmune system going whacky. That IS a

contributing

> factor in all of this, and once on antithyroid drugs, the urges

then become

> less, as the reason the patient started smoking, and continued is

slowly

> becoming under control.

> Smoking greatly worsens our eye disease, and smokers are more

likely to get

> the eye disease, if not right now, probably soon.

>

> Now watch... she will be a non-smoker. LOL

>

> -Pam L-

> BTW... Thanks Kate :-)

>

>

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At 09:17 AM 1/22/2004, you wrote:

>good lord no caffeine or chocolate! thats a tough one. I havent

>heard back from her yet..The message says that I should receive a

>call back with in 3 business days which is crap but thats how these

>doctors work. Ill keep you updated. As of right now im not taking

>any medication. I quit smoking last May..yeeeaahh me!!

That will make the road so much easier. I would call the doc, but that's

me. Hang in, and let us know.

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Hi ,

I just got a phone call from the doc. Shes putting in a RX for a

beta blocker and also wants to see me on Monday. Shes put in for

referrals for me to see an endocrinologist. I also told her I didnt

want to do the radioactive iodine uptake either and she said it was

an important diagnostic procedure. I said I will not do that. So I

guess we'll further discuss that monday.

Have a great weekend.

> >good lord no caffeine or chocolate! thats a tough one. I havent

> >heard back from her yet..The message says that I should receive a

> >call back with in 3 business days which is crap but thats how

these

> >doctors work. Ill keep you updated. As of right now im not

taking

> >any medication. I quit smoking last May..yeeeaahh me!!

>

> That will make the road so much easier. I would call the doc, but

that's

> me. Hang in, and let us know.

>

>

>

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I think there's a couple of articles on why RAI uptake scan is outdated and

unnecessary on the ithyroid site. You could print those out as added

ammunition.

Good luck! I hate arguing with doctors...

Nissa

Re: Concerns

>Hi ,

>I just got a phone call from the doc. Shes putting in a RX for a

>beta blocker and also wants to see me on Monday. Shes put in for

>referrals for me to see an endocrinologist. I also told her I didnt

>want to do the radioactive iodine uptake either and she said it was

>an important diagnostic procedure. I said I will not do that. So I

>guess we'll further discuss that monday.

>Have a great weekend.

>

>

>

>

>> >good lord no caffeine or chocolate! thats a tough one. I havent

>> >heard back from her yet..The message says that I should receive a

>> >call back with in 3 business days which is crap but thats how

>these

>> >doctors work. Ill keep you updated. As of right now im not

>taking

>> >any medication. I quit smoking last May..yeeeaahh me!!

>>

>> That will make the road so much easier. I would call the doc, but

>that's

>> me. Hang in, and let us know.

>>

>>

>>

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  • 2 years later...

>

> Re: Oregano Oil I read in Natural Health Magazine that OO is toxic

and not to take more than 2 drops per day for a short time. Said it is

toxic to the Liver. I have read that before also.

==>I wouldn't put too much faith in health magazines Deb. They are

selling products and have a vested interest in pushing the biggest

advertisers' products, some of which would want to eliminate certain

products from the market. My friend here in Calgary has been taking

pure 100% oregano oil (cost $100 for a tiny amount) for about 1-1/2

years and she is curing her candida. Her rosacea and other serious

skins problems disappeared along with other health problems.

==>If it's toxic to the liver then all of our members who use it would

have complained about liver problems. But liver problems are normal in

the beginning because the liver is handling most of the candida

toxins. When a person get through the worst die-off symptoms and if

they also do things that help the body detox they won't have any liver

problems.

==>I've heard wild claims about many natural products. As they say " the

proof is in the pudding. "

>

> In Alternative Medicine Review (Journal of Clinical Therapeutics)

Unecylenic acid appears to have the greatest antifungal activity of the

medium chain fatty acids and has been shown to have 6 times more

effective as an antifungal than caprylic acid. Do you know anything

about this?

==>What is Unecylenic acid, and what product is it in? I recommend

coconut oil for many health benefits, not just because it has caprylic

acid in it, which is it's main antifungal component. That's why I

recommend you also have one other product, i.e. raw garlic or clove oil

or oil of oregano.

Bee

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  • 1 year later...
Guest guest

Please bear with me. I'm really nervous about starting DMPS on my

daughter who is 3 1/2. She was diagnosed with autism at 27 months.

This past year she has made great improvements with eye contact, some

socialization. To begin with, she is VERY loving, loves to cuddle.

Her main issues are speech. She has very little behavioral issues,

very mild stims (when excited). She is an extremely picky eater. Her

speech therapist thinks she has apraxia. Bless her heart, she tries to

repeat words you say. She is very vocal, and can say a handful of

words.

So, why am I worried?? Can this chelating stuff make her regress?? If

so, is it a permanent thing? Will it make her really ill?? What GAINS

has anyone seen when doing this??

Sorry for all the questions.... she is to start this weekend! Help!!

Thanks

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Guest guest

Was catching up and just noticed the dmps topic too. You've gotten some

good replies, and yes, doing injection and not even knowing how often,

you have cause to be concerned. I suggest you hold off on any chelation

treatment for your daughter until you've had a chance to research it

more yourself. Don't rely on any doctor, allopathic or natural, to be

making the right decisions for your child. Waiting a month or so while

you research won't hurt a thing.

P.

gbrn98 wrote:

>

> Please bear with me. I'm really nervous about starting DMPS on my

> daughter who is 3 1/2. She was diagnosed with autism at 27 months.

> This past year she has made great improvements with eye contact, some

> socialization. To begin with, she is VERY loving, loves to cuddle.

> Her main issues are speech. She has very little behavioral issues,

> very mild stims (when excited). She is an extremely picky eater. Her

> speech therapist thinks she has apraxia. Bless her heart, she tries to

> repeat words you say. She is very vocal, and can say a handful of

> words.

> So, why am I worried?? Can this chelating stuff make her regress?? If

> so, is it a permanent thing? Will it make her really ill?? What GAINS

> has anyone seen when doing this??

> Sorry for all the questions.... she is to start this weekend! Help!!

> Thanks

>

>

>

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Guest guest

>

> Please bear with me. I'm really nervous about starting DMPS on my

> daughter who is 3 1/2. She was diagnosed with autism at 27 months.

> This past year she has made great improvements with eye contact, some

> socialization. To begin with, she is VERY loving, loves to cuddle.

> Her main issues are speech. She has very little behavioral issues,

> very mild stims (when excited). She is an extremely picky eater. Her

> speech therapist thinks she has apraxia. Bless her heart, she tries to

> repeat words you say. She is very vocal, and can say a handful of

> words.

> So, why am I worried??

It's your intuition telling you to be cautious for the sake of your

child - very normal!

> Can this chelating stuff make her regress??

Yes, if done improperly.

The protocol that most people in this group use (Andy's protocol) is

the safest and has almost no risk of regression, if done properly.

> If

> so, is it a permanent thing? Will it make her really ill??

Only for what Andy calls the " harmful, inappropriate " chelation protocols.

On Andy's protocol it is possible to feel much better during

chelation, there is no need to feel ill, if a person does get really

ill it is an indication that something is wrong.

> What GAINS

> has anyone seen when doing this??

Many parents have cured there children (had their diagnosis reversed).

Many adults have cured chronic health conditions (that mainstream med

would say are incurable).

> Sorry for all the questions.... she is to start this weekend! Help!!

Stop and investigate before you follow the advise of a doctor. Most

do not understand chelation and do prescribe treatments that are harmful.

Tell us exactly what she is to start this weekend.

It's ok to delay or say no to the treatment (depending on what it is).

J

> Thanks

>

>

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Guest guest

I just wanted to tell you that we've done 6 rounds of ALA using Andy's

protocol and my almost 3 1/2 year old feels better on her " on " days.

She is happier, stims less (unless she has parasites,but that's a

whole other thing) and does a few small new things with each round. I

haven't had any rebinding symptoms so far.

I would highly suggest doing Andy's protocol. I wouldn't do it any

other way. The very first dose of ALA we gave Ruby, she jumped up on

the couch about 45 minutes later and started jumping. She would never

do that before and she could only jump on her knees. This time she

jumped on her feet. My husband and I were in shock.

So, do your research first. We haven't had any regression, only

positives. Our problem is that the parasites are causing her discomfort.

> >

> > Please bear with me. I'm really nervous about starting DMPS on my

> > daughter who is 3 1/2. She was diagnosed with autism at 27 months.

> > This past year she has made great improvements with eye contact, some

> > socialization. To begin with, she is VERY loving, loves to cuddle.

> > Her main issues are speech. She has very little behavioral issues,

> > very mild stims (when excited). She is an extremely picky eater. Her

> > speech therapist thinks she has apraxia. Bless her heart, she

tries to

> > repeat words you say. She is very vocal, and can say a handful of

> > words.

>

> > So, why am I worried??

>

>

> It's your intuition telling you to be cautious for the sake of your

> child - very normal!

>

>

>

> > Can this chelating stuff make her regress??

>

>

> Yes, if done improperly.

>

> The protocol that most people in this group use (Andy's protocol) is

> the safest and has almost no risk of regression, if done properly.

>

>

> > If

> > so, is it a permanent thing? Will it make her really ill??

>

>

> Only for what Andy calls the " harmful, inappropriate " chelation

protocols.

>

> On Andy's protocol it is possible to feel much better during

> chelation, there is no need to feel ill, if a person does get really

> ill it is an indication that something is wrong.

>

>

>

> > What GAINS

> > has anyone seen when doing this??

>

>

> Many parents have cured there children (had their diagnosis reversed).

> Many adults have cured chronic health conditions (that mainstream med

> would say are incurable).

>

>

>

>

> > Sorry for all the questions.... she is to start this weekend! Help!!

>

>

> Stop and investigate before you follow the advise of a doctor. Most

> do not understand chelation and do prescribe treatments that are

harmful.

>

> Tell us exactly what she is to start this weekend.

>

> It's ok to delay or say no to the treatment (depending on what it is).

>

> J

>

>

>

>

>

> > Thanks

> >

> >

>

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Guest guest

She is going to be given 50 mg?? (couldn't read handwriting) -

hopefully orally. Will call docs office today to double check. We

are to do 6 hours urine pre/post so.........

I'm really considering post poning until I know more about this. I

just don't want my daughter to miss that " window " .

> >

> > Please bear with me. I'm really nervous about starting DMPS on

my

> > daughter who is 3 1/2. She was diagnosed with autism at 27

months.

> > This past year she has made great improvements with eye contact,

some

> > socialization. To begin with, she is VERY loving, loves to

cuddle.

> > Her main issues are speech. She has very little behavioral

issues,

> > very mild stims (when excited). She is an extremely picky eater.

Her

> > speech therapist thinks she has apraxia. Bless her heart, she

tries to

> > repeat words you say. She is very vocal, and can say a handful

of

> > words.

>

> > So, why am I worried??

>

>

> It's your intuition telling you to be cautious for the sake of your

> child - very normal!

>

>

>

> > Can this chelating stuff make her regress??

>

>

> Yes, if done improperly.

>

> The protocol that most people in this group use (Andy's protocol) is

> the safest and has almost no risk of regression, if done properly.

>

>

> > If

> > so, is it a permanent thing? Will it make her really ill??

>

>

> Only for what Andy calls the " harmful, inappropriate " chelation

protocols.

>

> On Andy's protocol it is possible to feel much better during

> chelation, there is no need to feel ill, if a person does get really

> ill it is an indication that something is wrong.

>

>

>

> > What GAINS

> > has anyone seen when doing this??

>

>

> Many parents have cured there children (had their diagnosis

reversed).

> Many adults have cured chronic health conditions (that mainstream

med

> would say are incurable).

>

>

>

>

> > Sorry for all the questions.... she is to start this weekend!

Help!!

>

>

> Stop and investigate before you follow the advise of a doctor. Most

> do not understand chelation and do prescribe treatments that are

harmful.

>

> Tell us exactly what she is to start this weekend.

>

> It's ok to delay or say no to the treatment (depending on what it

is).

>

> J

>

>

>

>

>

> > Thanks

> >

> >

>

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Guest guest

Dana,

Do I need to use ALL the supplements you have listed under your list

to improve speech, or do I try one at a time. For example, do I need

ALL the anti-virals at the same time? Thanks in advance for clearing

this up for me.

> >

> > Does ALA need to be supervised by a doctor or can I start that

> > myself?

>

>

> I chelated all four of my kids, and now myself, with ALA only. I

did

> not use a doctor.

>

>

> >>It's her speech that is holding

> > her back, speech therapist thinks she has apraxia. Would

> > ALA/chelating help with this??

>

>

> What my son needed for speech is written here

>

> http://www.danasview.net/issues.htm

>

> Dana

>

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  • 2 years later...
Guest guest

Hi Gayle,

I gave blood but didn't need it. I think it's a good idea to give it anyway just

in case and you can discuss that when you do your pre surgical testing at the

hospital and not even discuss with your doctor if that's how you want to go.

Conversely my mother in law just had both knees done and needed 3 units of

blood. I also did not have the ice machine, used regular ice packs and that was

fine. I was in the process of losing weight when I had the surgery and lost lots

more after.

Good luck with your decision,

Jeff

________________________________

From: Gayle <keithandgayle@...>

Joint Replacement

Sent: Wed, June 30, 2010 1:58:51 PM

Subject: concerns

Hi everyone...

 

Soon I will be scheduling my TKR.  I have one more appointment with another

Doctor before I make my decision on which one I will select.

 

Currently my top runner seems to be someone I can trust to do his best.  I do

have a couple of issues...which may not be issues at all...but concerns maybe.

 

1.  He does not have the patient give their own blood...indicating not enough

blood is lost to warrant it.  Has anyone gone through a TKR without needing

blood?

 

2.  He does not have the patient use that ice machine device which pumps cold

water constantly over the site.  He says people keep it on too long and end up

damaging their body.

 

What are your opinions on those two issues?

 

Also...if there is anyone who has had a TKR and was obese at the time...I would

love to hear from you.

 

Thank you...

Gayle

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Guest guest

Hi Gayle and all:

TKR, L, 10/28/09. My os advised against pre-banking blood, said unless I

did it several mos. before op., I would not be " recovered " by op. time.

Also, here in rural WY it would have been complex and expensive to do

this. And post-op, he said I did not need it/would not have needed it.

Did not use ice machine device, just regular icing and elevation. Based

on others who have written in, the ice machine would not have sped

recovery anyway. Still have pain in the 2 collateral ligaments, but

joint is working fine. Ligament pain manageable on otc meds, improving

with p/t exercises. Good luck, I am sure it will go OK for you. ////Adrienne

==============================================================================

Gayle wrote:

>

>

> Hi everyone...

>

> Soon I will be scheduling my TKR. I have one more appointment with

> another Doctor before I make my decision on which one I will select.

>

> Currently my top runner seems to be someone I can trust to do his

> best. I do have a couple of issues...which may not be issues at

> all...but concerns maybe.

>

> 1. He does not have the patient give their own blood...indicating not

> enough blood is lost to warrant it. Has anyone gone through a TKR

> without needing blood?

>

> 2. He does not have the patient use that ice machine device which

> pumps cold water constantly over the site. He says people keep it on

> too long and end up damaging their body.

>

> What are your opinions on those two issues?

>

> Also...if there is anyone who has had a TKR and was obese at the

> time...I would love to hear from you.

>

> Thank you...

> Gayle

>

>

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