Lupus and LDN

[Guest guest]

Hi All,

I was wondering if others with SLE (systemic lupus) are on LDN as

well. I'm just starting up again. I was off for a few weeks to

determine which medication was helping my ANA levels. It appears it

may have been the LDN. I started eating wheat because I am not

allergic to it, but have noticed slightly less sleep disturbances (I

only eat wheat during one meal every 4 days - I'm on a strict rotation

diet). I'm seeing a nutritionist to see how I can build up

carbohydrates to maintain weight while dropping gluten (I'm allergic

to rice, corn, soy, eggs, and many other foods). I feel more energy

and it's easier to wake up, but so far as I can tell I'm still having

some break through symptoms at this point. I feel better, but it's

still easy to do too much. It's only been a week though

Last time I had a lot of positive results over several months, so I'm

excited to be trying LDN again. I've been tested for Lymes (ELISA I

think is the name of the test and it was a western blot - I was told

it was the most sensitive test there was). Every indicator was

negative. I was also tested for the epstein barr virus and oddly that

was also negative for exposure and live virus. There was another

virus tested that was also negative, but I can't remember that off the

top of my head. So it appears it truly is just autoimmune... After 4

days I have improvements in depression. It's been a rough week as I

found out an experimental treatment was not working. I start Nystatin

again for potential yeast overgrowth in my colon, and I'm really not

looking forward to the die off symptoms. As always, I will do the

treatment if it means better health in the long run.

Thank you for letting me vent a little and I hope everyone is feeling

better.

Cami