FMS/CFS/Arthritis/IDS,etc. (long)

[Guest guest]

Hi,

I also have FMS, sleep apnea/other sleep problems and

other goodies. I know I had it long ago and was

actually diagnosed with it over 7 years ago. I was at

my worst 7 yrs ago. I couldn't lay, sit, stand

anything. I had gotten to where I couldn't even

function daily. I had been a very (extrememly)

organized person that kept her house spotless. I

couldn't even think of where to put the mail. I

couldn't work. I couldn't sleep more than an hour at a

time and never deep sleep. I walked, but it was v e r

y s l o w l y and it took forever to get a half mile

in. I am VERY happy to say that most of it is going

away now. I still have the aches and pains, but not

the depression, no coping mechanisms, migraines,IBS

and others. My <mystery> pain is for the most part

gone. My tumors still grow and burst, again a mystery

to me and the Dr's. My last job I worked 15 hour days

6-7 days a week. It was killing me. Fast food city

for the past 6years minimum. I left that job in July,

have a desk job now (although changing from that in

the near future), don't hardly eat any fast food and

am eating salads every chance I get. I can't sleep

more than 4 hours at a time unless I take prescription

sleep aids and even then only rarely sleep more than 5

hours. However, I am sleeping harder during those 4-5

hours. Deep sleep is extremely important to people

and even more so with these problems we have. You

need to figure out how to get DEEP SLEEP and let your

body rejuvinate and heal itself. I'm also trying to

get in lots of Olive Oil. OO is very good for

inflammation, which is a HUGE part of FMS and

(obviously) Arthritis. I do notice that I have always

had a problem with inflammation. I hate taking

prescription meds so only do in emergency situations

or trying something new and only then long enough to

see if it will work. If not, I quit. I am not on ANY

(PTL) medications at this time and have been off for

about a year. I have more energy now than I have had

for 7 years. I walk my dog(s), work outside the home

and work my dog training business the rest of the

hours. My dog helped me quite a bit with getting

better. Do you have a pet? I know how hard it is to

walk when you feel like you do right now, I have been

there!! Depression is a huge part of all of this. I

refused to go on Prozak or similar, not that it is

wrong, but I knew that it wasn't <depression> that was

getting me, it was a <side> effect of the FMS, etc...

I also started an FMS list at groups where I

have a few friends and we chat amongst ourselves and

tell each other when something works and so forth.

Not a medical list, just a friendly list. I believe

that helps to have the support of friends. I drink

very little alcohol (a few drinks every 6 mo or so...)

and am lessening my intake of meat products which is

VERY hard for me becuase I need the meat! (physically

and mentally)I doubt I will every become totally meat

free but I will get it only rarely eating meat. I

cannot take supplements as they only make me nauseus

(sp?). So.... use what you can. Each of us are

totally different and you have to figure out what

works for you. It has taken me a long time (25 yrs or

so) to get to this point. I used to have more energy

than the Energizer Bunny and am working on getting

back to that point in my life now. I wish you well

(literally) and if you wanna talk write me privately

with FMS in the subject line. Otherwise I delete.

DON'T let the depression (again, a side effect of the

FMS,CFS,Arthritis) Lack of sleep will cause

depression. Deborah

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