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There is a bunch of info in the files section about insurance. Who is

your carrier? We just got our payment from Aetna and are waiting

reimbursement from Cranial Tech.

Kathy

mom to

l lamdoid cranio CVR 1/18/01

DOC Band 2/2/01-5/24/01

> I'M A NEW MEMBER AND AM HAVING SOME TROUBLE AS TO WHERE TO FIND

INFORMATION

> TO HELP GET THE THERAPY HELMET APPROVED BY OUR INSURANCE. CAN ANY

HELP????

> THANKS A TON!!

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  • 1 year later...
Guest guest

Hi Otilia,

I think that some childrens anti-virals might be switched around every six

months or so, so that the virus doesn't get used to the meds.

I would stay on the gluten free completely, if it seemed to be working. Even

though it didn't show up on our son's food sensitivity test as a problem, we

had a misshap and we had to peel our son off the ceiling. For some children

, just as it caused an improvement over time it can also cause a subtle

regression. In some children GF/CF can make huge improvements and in others

it doesn't seem to make a difference. Until you are positive it doesn't make

a difference you should try to stick with it.

I don't know much about amino acids but if you are looking for high protein

foods your son may eat, I have a recipe for carrot cake made with quinoa

which is a high protein, high calcium, gluten free grain, that you son may

eat. Post if you want it.

Need some help

> Hello All,

>

> I need help understanding how to best help my son.

>

> has been seeing Dr. Goldberg for about 6 months now

> and over all we have been very happy. I do however need help

> with the following:

>

> 1. has done very well being on Valtrex, however he seems

> to be regressing in the last 2 months. Is it possible that the

> Valtrex can lose its effectiveness?

>

> 2. About 4 weeks ago Dr. G started on Paxil and he did not

> do well at all. We have just recently changed to Celexa and the

> first day I noticed that had a need to have his hands in his

> mouth all day. As the days have continued his need for oral

> stimulation has become less but he still has his hands in his

> mouth a lot. We have noticed some improvement in potty

> habits,

> but he is still not doing as well as when we first had him on the

> Valtrex solely.

>

> 3. has been on a GF/CF diet and we have now allowed

> him to have some Gluten (not a lot) per the " does and don'ts of

> the diet " . Should I keep him off of the Gluten completely?

>

> 4. My son is a VERY picky eater (like most of our kids). He will

> hardly ever eat meat. Can anyone suggest a good amino acid

> supplement that is ok with Dr. G.

>

> Sorry for all of the questions, any help is appreciated.

>

> Otila

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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Guest guest

Yes, I would love the recipe. Thanks for the information.

> Hi Otilia,

> I think that some childrens anti-virals might be switched

around every six

> months or so, so that the virus doesn't get used to the meds.

> I would stay on the gluten free completely, if it seemed to be

working. Even

> though it didn't show up on our son's food sensitivity test as a

problem, we

> had a misshap and we had to peel our son off the ceiling. For

some children

> , just as it caused an improvement over time it can also cause

a subtle

> regression. In some children GF/CF can make huge

improvements and in others

> it doesn't seem to make a difference. Until you are positive it

doesn't make

> a difference you should try to stick with it.

> I don't know much about amino acids but if you are looking for

high protein

> foods your son may eat, I have a recipe for carrot cake made

with quinoa

> which is a high protein, high calcium, gluten free grain, that you

son may

> eat. Post if you want it.

>

> Need some help

>

>

> > Hello All,

> >

> > I need help understanding how to best help my son.

> >

> > has been seeing Dr. Goldberg for about 6 months

now

> > and over all we have been very happy. I do however need

help

> > with the following:

> >

> > 1. has done very well being on Valtrex, however he

seems

> > to be regressing in the last 2 months. Is it possible that the

> > Valtrex can lose its effectiveness?

> >

> > 2. About 4 weeks ago Dr. G started on Paxil and he did

not

> > do well at all. We have just recently changed to Celexa and

the

> > first day I noticed that had a need to have his hands in

his

> > mouth all day. As the days have continued his need for oral

> > stimulation has become less but he still has his hands in

his

> > mouth a lot. We have noticed some improvement in potty

> > habits,

> > but he is still not doing as well as when we first had him on

the

> > Valtrex solely.

> >

> > 3. has been on a GF/CF diet and we have now allowed

> > him to have some Gluten (not a lot) per the " does and don'ts

of

> > the diet " . Should I keep him off of the Gluten completely?

> >

> > 4. My son is a VERY picky eater (like most of our kids). He

will

> > hardly ever eat meat. Can anyone suggest a good amino

acid

> > supplement that is ok with Dr. G.

> >

> > Sorry for all of the questions, any help is appreciated.

> >

> > Otila

> >

> >

> >

> > Responsibility for the content of this message lies strictly

with

> > the original author, and is not necessarily endorsed by or the

> > opinion of the Research Institute.

> >

> >

> >

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Guest guest

i would love to have this recipe also. pls. post?

barb

--- Doug McCreary <dmccreary@...> wrote:

> Hi Otilia,

> I think that some childrens anti-virals might be

> switched around every six

> months or so, so that the virus doesn't get used to

> the meds.

> I would stay on the gluten free completely, if it

> seemed to be working. Even

> though it didn't show up on our son's food

> sensitivity test as a problem, we

> had a misshap and we had to peel our son off the

> ceiling. For some children

> , just as it caused an improvement over time it can

> also cause a subtle

> regression. In some children GF/CF can make huge

> improvements and in others

> it doesn't seem to make a difference. Until you are

> positive it doesn't make

> a difference you should try to stick with it.

> I don't know much about amino acids but if you are

> looking for high protein

> foods your son may eat, I have a recipe for carrot

> cake made with quinoa

> which is a high protein, high calcium, gluten free

> grain, that you son may

> eat. Post if you want it.

>

> Need some help

>

>

> > Hello All,

> >

> > I need help understanding how to best help my son.

> >

> > has been seeing Dr. Goldberg for about 6

> months now

> > and over all we have been very happy. I do

> however need help

> > with the following:

> >

> > 1. has done very well being on Valtrex,

> however he seems

> > to be regressing in the last 2 months. Is it

> possible that the

> > Valtrex can lose its effectiveness?

> >

> > 2. About 4 weeks ago Dr. G started on Paxil

> and he did not

> > do well at all. We have just recently changed to

> Celexa and the

> > first day I noticed that had a need to have

> his hands in his

> > mouth all day. As the days have continued his

> need for oral

> > stimulation has become less but he still has his

> hands in his

> > mouth a lot. We have noticed some improvement in

> potty

> > habits,

> > but he is still not doing as well as when we first

> had him on the

> > Valtrex solely.

> >

> > 3. has been on a GF/CF diet and we have now

> allowed

> > him to have some Gluten (not a lot) per the " does

> and don'ts of

> > the diet " . Should I keep him off of the Gluten

> completely?

> >

> > 4. My son is a VERY picky eater (like most of our

> kids). He will

> > hardly ever eat meat. Can anyone suggest a good

> amino acid

> > supplement that is ok with Dr. G.

> >

> > Sorry for all of the questions, any help is

> appreciated.

> >

> > Otila

> >

> >

> >

> > Responsibility for the content of this message

> lies strictly with

> > the original author, and is not necessarily

> endorsed by or the

> > opinion of the Research Institute.

> >

> >

> >

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Guest guest

Hi .

Not meaning to interfere with you conversation with Otilia, I would LOVE

the recipe for your carrot cake. I am always looking for protein for my son

and carrot cake would be something great to add to my newly acquired GFCF

repertoire!

Thanks,

Lori

Re: Need some help

Hi Otilia,

I think that some childrens anti-virals might be switched around every six

months or so, so that the virus doesn't get used to the meds.

I would stay on the gluten free completely, if it seemed to be working.

Even

though it didn't show up on our son's food sensitivity test as a problem,

we

had a misshap and we had to peel our son off the ceiling. For some

children

, just as it caused an improvement over time it can also cause a subtle

regression. In some children GF/CF can make huge improvements and in

others

it doesn't seem to make a difference. Until you are positive it doesn't

make

a difference you should try to stick with it.

I don't know much about amino acids but if you are looking for high

protein

foods your son may eat, I have a recipe for carrot cake made with quinoa

which is a high protein, high calcium, gluten free grain, that you son may

eat. Post if you want it.

Need some help

> Hello All,

>

> I need help understanding how to best help my son.

>

> has been seeing Dr. Goldberg for about 6 months now

> and over all we have been very happy. I do however need help

> with the following:

>

> 1. has done very well being on Valtrex, however he seems

> to be regressing in the last 2 months. Is it possible that the

> Valtrex can lose its effectiveness?

>

> 2. About 4 weeks ago Dr. G started on Paxil and he did not

> do well at all. We have just recently changed to Celexa and the

> first day I noticed that had a need to have his hands in his

> mouth all day. As the days have continued his need for oral

> stimulation has become less but he still has his hands in his

> mouth a lot. We have noticed some improvement in potty

> habits,

> but he is still not doing as well as when we first had him on the

> Valtrex solely.

>

> 3. has been on a GF/CF diet and we have now allowed

> him to have some Gluten (not a lot) per the " does and don'ts of

> the diet " . Should I keep him off of the Gluten completely?

>

> 4. My son is a VERY picky eater (like most of our kids). He will

> hardly ever eat meat. Can anyone suggest a good amino acid

> supplement that is ok with Dr. G.

>

> Sorry for all of the questions, any help is appreciated.

>

> Otila

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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  • 2 years later...
Guest guest

I thought of that but he has not taken any antibiotics.... the only thing so far is he had some kind of a wheat cereal at his aunts... but he eats wheat bread... so unless there is something else in the cereal... but it seems if it was a food allergy it would be on the neck or face also...

thanks Kathy.

SuziKathy L <angeldestiny@...> wrote:

My daughter got something like that when she took antibiotics. (she was allergic)

Kathy L.

Suzi

Senior Moderator

What is a weed? A plant whose virtues have not yet been discovered.

http://suziesgoats.wholefoodfarmacy.com/__________________________________________________

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Let us know what the doctor says Suzi. Tell her no baths until it clears, too much bathing can make it worse. Just got back from the doctor myself with Alyssa, she has a bladder infection sheesh.

Janet

----- Original Message -----

From: Suzanne

health

Sent: Wednesday, March 16, 2005 8:02 AM

Subject: Need some help

Help

My grandson has overnite gotten a rash (little red-like pimples (bumps) on his back mainly and some on chest, has some congestion/runny nose. DIL says otherwise feels fine... no fever..

appeared last nite when she gave him a bath... wasn't there in the morning.. She thought it looked better this am... but the sitter called and said she needs to get him.. (apparently worse)

Any ideas??? She said he really hasn't had anything different in food that she can think of..

Does have dr apt this afternoon... I told her meantime try some catnip/yarrow and that I would quiz our members...

Suzi

Suzi

Senior Moderator

What is a weed? A plant whose virtues have not yet been discovered.

http://suziesgoats.wholefoodfarmacy.com/

__________________________________________________

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Guest guest

> From: Suzanne

> Help

> My grandson has overnite gotten a rash (little red-like pimples

(bumps) on his back mainly and some on chest, has some

congestion/runny nose. DIL says otherwise feels fine... no fever..

> appeared last nite when she gave him a bath... wasn't there in

the morning.. She thought it looked better this am... but the sitter

called and said she needs to get him.. (apparently worse)

>

> Any ideas??? She said he really hasn't had anything different

in food that she can think of

..

Sounds like.. could it be measles?

one of my children , when a baby, would break out similarly after

taking his orange juice.

Lee

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Suzi,

My son had constant strep infections when he was younger and many times with a rash. If you had mentioned a severe sore throat, I would have thought of strep. Though I must say that my computer must learn to "wait" for me when I am not around..lol

By the way, does anyone happen to get the hiccups when they eat something hot and spicy? Just thought I would ask since I am hoping on the keyboard . Not much of a bother since I eat at home ;)

Hope everyone is having a wonderful evening

Toni

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Guest guest

Didn't know he had one... hasn't acted like it.. she did say he was a bit more picky about what he would eat.. but then he's picky anyway...

SuziToni <tone102@...> wrote:

Suzi,

My son had constant strep infections when he was younger and many times with a rash. If you had mentioned a severe sore throat, I would have thought of strep. Though I must say that my computer must learn to "wait" for me when I am not around..lol

By the way, does anyone happen to get the hiccups when they eat something hot and spicy? Just thought I would ask since I am hoping on the keyboard . Not much of a bother since I eat at home ;)

Hope everyone is having a wonderful evening

Toni

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Guest guest

Well thankfully he feels pretty good considering.. and he'll be happy cause he loves juices and will be getting alot more of them... lol...

SuziToni <tone102@...> wrote:

Suzi,

Just glad she got him diagnosed on that. Rashes really are so tricky. I have been around so many different things that were or were not associated with them.

Prayers to him that he is well soon

Toni

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  • 2 years later...
Guest guest

I lived in S. Florida for several years and I was actually healthier

there. The mold is worse there due to the moisture in the air. We

never had a mold problem in our homes we lived in. We always kept

fresh air coming in through cracking our windows as well as used the AC

to dry the indoor air out. I don't know what kid of molds grow down

there but I would assume most would be the same as they are here. You

can most likely call your county agency or health dept and find out.

>

> What molds are mostly found in buildings in Florida. I am going to be

> tested for molds and need the names of these molds here. I got real

> sick at work and now they are denying me treatment. I can hardly

breath

> and get real dizzy. No meds seem to work. Anyone else in south

Florida

> having the same problem?

>

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Guest guest

It would be great if there was a commune (sp??) like hippies use to

live in but all mold free and safe housing. Each person can have a

job. We can grow our own organic veggies and cook them just right.

I feel society has gotten far to spread out. It use to be family

helping family and neighbor helping neighbor. Then one had their

church when family and neighbors could not help. I can't help but

wonder what has happened to our world!

> > >

> > > What molds are mostly found in buildings in Florida. I am

going

> to be

> > > tested for molds and need the names of these molds here. I

got

> real

> > > sick at work and now they are denying me treatment. I can

> hardly

> > breath

> > > and get real dizzy. No meds seem to work. Anyone else in

south

> > Florida

> > > having the same problem?

> > >

> >

> >

> >

> >

> >

> >

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Guest guest

WOW Jackie,

It was the same with me I would say why this happen but don't want to affine

anyone with the truth you see truth really hurt I'm the black sheep in the

family. mother died 3 days before my 10th birthday grandparent gone they went

buck wild the family that is but the couldn't take all of that one thing the

Land.

I mean what I say and if we don't want to take that Land maybe someone could

come up with another plain pooling money for Land to build safe housing. have

our own Doctors and so on what's wrong with that I'm sure by now many know who's

who and who can be trusted?

Elvira

[] Re: Need some help

It would be great if there was a commune (sp??) like hippies use to

live in but all mold free and safe housing. Each person can have a

job. We can grow our own organic veggies and cook them just right.

I feel society has gotten far to spread out. It use to be family

helping family and neighbor helping neighbor. Then one had their

church when family and neighbors could not help. I can't help but

wonder what has happened to our world!

> > >

> > > What molds are mostly found in buildings in Florida. I am

going

> to be

> > > tested for molds and need the names of these molds here. I

got

> real

> > > sick at work and now they are denying me treatment. I can

> hardly

> > breath

> > > and get real dizzy. No meds seem to work. Anyone else in

south

> > Florida

> > > having the same problem?

> > >

> >

> >

> >

> >

> >

> >

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Guest guest

Land is great to have!

Don't feel bad, I am the black sheep of my family as well!! I have

grown to like it!

> > > >

> > > > What molds are mostly found in buildings in Florida. I am

> going

> > to be

> > > > tested for molds and need the names of these molds here. I

> got

> > real

> > > > sick at work and now they are denying me treatment. I can

> > hardly

> > > breath

> > > > and get real dizzy. No meds seem to work. Anyone else in

> south

> > > Florida

> > > > having the same problem?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

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