Re: Digest Number 892

[Guest guest]

Albert,

Your son regressed at age 12?!!!

[Guest guest]

WOW! You all were so incredible to reply to my problem and I cant say thanks

enough I will be printing responses and giving them to the family. I must

admit attitude for me has been 3/4 of my battle and if it were not for that I

am not sure where I might be. This group is to be commended for their

enduring the tough battles. I know these battles first hand and even after 30

years you have given me and this family much inspiration. I tried desperately

to fight tears that flowed as I felt the support pouring out from each

response. Many, many ,many thanks!!!!! God bless and have a great day!

Happy birthday Josh!!!!!

Donna Fox

[Guest guest]

Dear Donna,

I feel for the family that is going through the fears and feelings of

helplessness as they wait for a diagnosis. We went through a similar

situation with my son Cameron. He was the picture of health, and a budding

gymnast when he presented the first sign that something was wrong--a swollen

ankle. The swelling disappeared within a couple of days, but was replaced by

high spiking temps and an occasional rash. After 2 weeks of trying to

convince the docs that we were dealing with more than an aggresive viral

infection, I took Cameron to the children's hospital where a battery of tests

were run, and every specialist was consulted. He was discharged with a

tentative diagnosis of systemic jra, but the rheumatologist told us that is

would be months before a definitive diagnosis could be made. They started

Cameron on the standard regimine of ibuprofen and eventually introduced

prednisone when it appeared the ibuprofen was not effective in alleviating

the symptoms. Over the course of a couple of months, more of the classic

symptoms appeared--joint pain and swelling, persistent spiking fevers,

lethargy, anemia, high sed. rate and crp, and a non-raised rash. At about

six months into the disease, Cameron required surgery on his shoulder,

biceps, and ankle to remove build-up of synovial fluid. As his symptoms got

worse, the docs increased and added medications. He was on ibuprofen,

prednisone, indomethacin, methotrexate, IVIG, folic acid, cyclosporin, and a

few homeopathic meds. In spite of all the meds, Cameron was hospitalized

twice for flares, where nothing could alleviate the pain or control the

fevers. There were many times when he could not get around on his own

because of the pain. (We have a collection of crutches, walkers, and other

aids as reminders of those days.) At about 2 years into the disease we took

Cameron to Calif. for 3 weeks of in-patient rehab.

At some point, my husband and I knew that all the meds that Cameron was on

were doing little to improve the worst symptoms. The labs still indicated

the inflammation was raging in his little body, his appetite was

non-existant, and he was in constant pain. Unfortunately, the doctors didn't

have any answers, and we found ourselves in the strange position of being

more knowledgable on jra than some of the 'experts' we were taking our son

to!

An important lesson our family learned early on was that we had to deal with

our situation one day at a time. We would celebrate every reduction in his

sed rate, only to be disappointed the next week when the rate would return to

the original high. We would agonize over the doctors dismal predictions that

Cameron would probably be wheelchair-bound. We looked to our son, who was

handling his disease with the innocence of child--he wasn't worrying about

tomorrow, let alone years ahead, he was making the most of the day. We were,

and still are vigorous about his therapies, and investigate every opportunity

to improve his well-being, but we don't worry about tomorrow.

Cameron has managed to surprise all his doctors. Although he has never been

in remission, he keeps up with his friends and swims 5 days a week on a swim

team. He underwent hip surgery 3 months ago, and only took 6 weeks off from

swimming! He goes to therapy 4 days a week, after school, and does nightly

stretches, too. He continues to be a trooper through it all, and rarely

complains. He is truely an inspiration to all who know him.

I pray for all the families experiencing the uncertainties and challenges jra

presents. Please hang in there, your kids are capable of amazing things.

( & Cameron, 11 yrs. old)

[Guest guest]

hi christine, what type of surgery did cameron have on his hip?

thanks, brandy

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[Guest guest]

Hi ,

Last year, routine x-rays revealed numerous, large cysts throughout Cameron's

hips. The largest of the cysts was at the head of the femur, and the docs

were very concerned of fracture. He underwent an operation to remove the

cyst and replace the void with synthetic bone and a plate, pin, and couple of

screws to keep everything together. This January, the surgery was to remove

the hardware since the synthetic graft had taken nicely. There was never a

definitive answer as to what caused the cysts, but luckily, the rest of the

cysts that were present a year ago have since resolved on their own. JRA is

a strange disease, and with so many new medications, the doctors are never

really sure if some of what Cameron experiences is from the disease itself or

a reaction to the medications he's been on.

Hope that long answer (!) was beneficial.

[Guest guest]

hi christine, cameron sounds like hes a real trooper.i havent met you yet,

so to say, so here goes. i asked about the hip because i am 23 and have new

hips myself. since i was 18, i have had both hip joints replaced, both

knees, and my left shoulder. i was supposed to do my left elbow, but waited

and it somehow got better, kind of a miracle on that elbow. it had

complications from my shoulder replacement. i have systemic jra, as so does

cameron correct? i am glad he handles it so well. sometimes me attitude

has been all i had, and some faith to keep things going. i was diagnosed at

5, but there are several people here with kids even younger than that. i am

glad that cameron didnt have hip replacement at his age, its a lot harder

when we are younger. not the surgery itself, but rehabilitation is harder

because there are alot of rules about how we can and cannot move for a

while. i hope he does well and keeps on being strong, just remember he got

it from somewhere...smile christine. thanks, brandy

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[Guest guest]

Hello my name is and I have a daughter who is 16 and she has

polyarticular jra. She also has had both knees and boths hips replaced. Her

hip were replaced Sept. of last year. I definitely know what you mean by

rules to follow. We still have to get her to put a pillow between her legs

because of the rule--no crossing the legs--while she sleeps. Her left knee

was done in 1998. Her right knee in 1999 but that replacement did not go

well. Her knee is locked in a bent position. We are waiting on a brace to see

if it will help straighten it out or they might manipulate it. If these

don't work the one that is worse which is another replacement. I say worse

because it will make her leg way shorter than the other. She had to have her

right ankle fused also in 1997. You are right about one thing is you have to

definitely have attitude for this disease. Tabitha has alot of attitude-well

some good and some bad haha. well i am glad i found your letter.

good luck.............karen

[Guest guest]

hello it is karen again.................I fogot to ask about your

shoulder replacement. We was told that replacement doesn't take well.

Tabitha can barely raise her arms high. Could you please give me some input

on it. Good Luck to you....................karen

[Guest guest]

karen, wow. tabithas been thru it hasnt she. my knees froze too, both of

them. they did a manipulation on both 2 months after my surgery....i had

mine done bi-laterally (at the same time). does she think the knees were

worse than the hips? i do. i would speak to tabitha anytime, she can email

me or if you have instant messneger, thats great too. i have msn's and

aol's. it seems weird that they still wont let her cross her legs, its been

7 months since her hips? she should be allowed to do anything she thinks

she can handle by now. i dumped the pillow at about 4 months. is she

walking unassisted? as for the shoulder, i like mine. it doesnt hurt

anymore. i can only raise that hand a little higher than my shoulder but its

worth to me, to get rid of that pain. i cant put it behind very far either,

but still worth it. the damage to my shoulder was worse than my doc

expected. they had to remove a lot of damaged tissues, more muscular

reconstruction than they expected. when i woke up, my arm wa strapped to me

and i couldnt move it. the strap was called an " immobilizer " and i had to

wear it for almost a whole month so i wouldnt tear my shoulder apart.....it

was literally a very tight fit. anyway, that of course screwed my elbow and

wrist and made my hand very weak. my elbow was stuck in that L shape, from

being strapped that way for 30 days. we all thought i was gonna have to

that do that elbow, physical therapy for 5 months and it refused to get any

better, only hurt worse and worse each week. then my therapist realized

that therapy was what was making it worse. after they immediately stopped

therpay, within 2 weeks....it stopped hurting. 2 more weeks and it tried

moving. its been another 8 months and its been miraculous, no replacement

needed and its moving almost as well as before being strapped. if your

daughter can lift her arm to her head or higher, she does need to decide if

it hurts bad enough to lose some range of motion....because thats a pretty

good possibilty. write anytime, i gotta go for now, brandy

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[Guest guest]

-

Yes! You are a super mom, and is supergirl! Congratulations to

both of you!

Love,

Heidi

--

Heidi Parthena White

heidiwhite@...

[Guest guest]

Naomi,

Hi! F7 comprises a couple of different types of mands for attention.

The one you're describing is one type, but another one is 'tacting for

attention' like if your son said " Mommy, it's a firetruck!! " or " Look,

it's a helicopter " (OK, so we're a little vehicle-intensive at our house

--LOL). It's a tact, but the real function is to get someone's attention. I

don't know if your son is already doing that, but I found it was easier to

teach 'tacting for attention' than the type you're referring to. I know that

my son often gets embarrassed and doesn't like too many people eyeballing

him, so it's difficult to get him to say " Look what I did! " or " Look what I

made! " .

Good luck!

---

Mom to , almost 6, autistic

and , 2 1/2, NT

From: " nscearce " <nscearce@...>

>

> Subject: manding for attention

>

> I am working on F7 on the ABLLS. I wonder how you get your child to

> mand for attention to see what they have done. For example, my son

> is an excellent line drawer. But he will draw something amazing on

> his magnadoodle, and you have to fight him to even get a glimpse at

> it. How have others handled it?

[Guest guest]

I'm probably out in left field on this but when we started the old video

tape pausing program that teaches commenting, my son turned into a

manding for attention nut. We would simply pause the tape, give full

verbal prompt " look, its a bear " , and continue to do this through the

movie (make sure you don't kill the movie as an EO by keeping demands

low enough and success high).

Kathy , Parent

http://kathyandcalvin.com <http://kathyandcalvin.com/>

http://feator.org <http://feator.org/>

Opinions expressed are those of my own and do not reflect upon FEAT of

Oregon

~~~~~~~~~~~~~~~~~~~~~~~~

If you value my contribution give to Families for Early Autism

Treatment, Oregon:

http://svcs.affero.net/rm.php?r=harriska2

~~~~~~~~~~~~~~~~~~~~~~~~

manding for attention

>

> I am working on F7 on the ABLLS. I wonder how you get your child to

> mand for attention to see what they have done. For example, my son

> is an excellent line drawer. But he will draw something amazing on

> his magnadoodle, and you have to fight him to even get a glimpse at

> it. How have others handled it?

[Guest guest]

Mark

What a wonderful way to start the day! May hers be a rich, full and

spiritfilled life.

mjh

In a message dated 9/29/02 12:41:42 PM Eastern Daylight Time,

writes:

> From: " Mark Schauss " <schauss@...>

> Subject: She finally arrived

>

> To all my friends,

>

> This morning at 6:45 am my daughter Anika entered our world and

> our lives. So far she looks healthy and bewildered, but her parents

> just can't stop smiling.

>

> Just have to tell the world.

>

> In health,

> Mark Schauss

>

[Guest guest]

Dear Mark,

Congratulations with the new life! May she bring you endless joy.

Best wishes,

Lorinda

> From: " Mark Schauss " <schauss@...>

> Subject: She finally arrived

>

> To all my friends,

>

> This morning at 6:45 am my daughter Anika entered our world and

> our lives. So far she looks healthy and bewildered, but her parents

> just can't stop smiling.

>

> Just have to tell the world.

>

> In health,

> Mark Schauss

[Guest guest]

Hi all

It's been some time since I've last posted. Just wanted to let the group

know that I'm having posterior only fusion to the sacrum, along with a

possible small osteotomy per Dr. Moreno in FL.

With Blessings & Love,

Carla Kay

~ Ps. 96:1 O come let us sing unto the Lord: let us make a joyful noise to

the rock of our salvation.

[Guest guest]

BG,

Thanks for the interesting info. Did you invent Godzilla?

I've read lots of your posts in the past. I have Lyme Disease and founded the lyme-and-rife forum. I started using rife like devices about 2 years ago and am now about 90% well. I think Lyme is one of the hardest to get rid of. I have about 7 devices and have self taught myself most of this stuff.

The godzilla is really interesting to me. It also seems to directly affect my head symptoms which to this point I had never thought were based on blood pathogens. So, could Godzilla possibly be passing current directly through the brain?

BG, how do you think Godzilla compares with using other rife like devices such as the EMEM series, doug device, B3 (contact device), etc?

Keep an eye or nose as the case may be on it. Most report loose stools and extremely foul odors for a few days when using large currents for longish periods with godzilla.I am not sure the reason for it. It usually went away for me after a few days of really nasty reactions, headaches, the above, sleepiness, a little blahs attitude, etc. Then fine. After that, I stopped using it, and seemed improved somehow, not sure how to measure it.Can't really say if this effect is germs or some other changes. DC is very strong against microbes, however. The constant barrage of electrons, about 30 million billion per second with godzilla reading .3mA on the meter, will hit each microbe in its path with literally millions of charged ions. This may degrade the RNA and DNA of these organisms and produce the toxins you are seeing. Just a theory that sounds good, remember, we don't really know.Be careful and cut back to where the symptoms are very mild, increase if they vanish, jockey these two things. Don't go for a heavy blast, it's not wise. Some of us have damaged skin, and other battle scars to show for our efforts. The real idea behind "godzilla" I've said before, is to hit so hard they don't have a chance to get bored with the treatment. So, you take Tomy's case. Let's say he stopped for a few months. Not much should occur. The count might drop a bit, then he could hit them again and he'd have an improved T-cell count once more.One fellow had 25 percent improvement in 3 weeks, their doctor said to skip the drug cocktails for 3 months, since it would take that long for the count to go back up again..The godzilla idea is quite powerful and practical. It allows for the lack of follow-through of the average user. By the time they have burned their skin, lost energy doing it, and perhaps been ridiculed or wondered if they were crazy, it's too late. By a week or two most of the germs are gone. So, even if they never fully realize what happened, the job gets done, and that's our fist mission. Less talk, more action. That is what I had in mind with this over-killer device we nickname: godzilla. It also works on larger animals that man, so we don't need another device. On infants and smaller animals than man, it should definitely come equipped with a 500k potentiometer to allow the current to be greatly reduced where they can stand it without rejecting the treatment.Again, I beat the subject to death.bG

<><

[Guest guest]

Some basic electronics: current attempts to travel shortest and most

conductive pathway between two points, in this case, the electrodes

of a godzilla, which was my concoction, the specs and how to build

etc aren't anything unusual, but the results with it and the way

people take to it, are.

Current usually does not go out of its way, so the head, unless

specifically targetted, is not involved. If immunity is

heightened, then an infection somewhere is subject to clean ups and

dieoffs not due to electricity but the system fighting. So, maybe

that's what is going on.

As I understood Lyme's, it is bacterial and distributed randomly in

the body, is this right? What do you know of the pathology of

Lyme's?

DC electricity can work wonders if the pathology of the disease is

known, and it reveals where the microbe is concentrated. If no

study of pathology, results will be lacking or random.

You should be googling or finding out as much as possible if there

are any gathering spots with Lyme's, and how to detect them. Once

that is known, you can target the colonies by placing an electrode

on each side and letting current run through them.

Does this make sense?

It's what we are doing with HIV, Hep-c, etc. Common colds are easy

to followup and treat, because the pathology is painfully obvious,

your runny nose, watery eyes, sore throat, cough, etc. But other

things require a little research to tell where they typically hide

out. If Lyme's is completely systemic, as some have hinted, and I

don't know that, then this may be impractical as a remedy, since the

range of electrification is limited to a few square inches of

concentrated microbes, like the liver, gut, etc. Only microbes

living in bloodstream will be reached with wrist electrifiers of any

kind. There is some " collateral damage " to microbes that may lie in

the path, for example the lungs or heart when using across both

wrists. But it's not a sure thing always. Head-to-toe DC current

might be tried with Lyme's, using some sort of pads. You can easily

figure it out. I used the balls of the feet for one end and back of

neck for the other pad. Experimentation is needed here.

The Mag-pulser group has data on a super powerful mag field coil

that has had Lyme's people excited for some time now. Magnetic-

pulser, I think is their group name in .

HTH

bG

> BG,

>

> Thanks for the interesting info. Did you invent Godzilla?

>

> I've read lots of your posts in the past. I have Lyme Disease and

founded

> the lyme-and-rife forum. I started using rife like devices about

2 years ago

> and am now about 90% well. I think Lyme is one of the hardest to

get rid of. I

> have about 7 devices and have self taught myself most of this

stuff.

>

> The godzilla is really interesting to me. It also seems to

directly affect

> my head symptoms which to this point I had never thought were

based on blood

> pathogens. So, could Godzilla possibly be passing current

directly through the

> brain?

>

> BG, how do you think Godzilla compares with using other rife like

devices

> such as the EMEM series, doug device, B3 (contact device), etc?

>

>

> Keep an eye or nose as the case may be on it. Most report loose

> stools and extremely foul odors for a few days when using large

> currents for longish periods with godzilla.

>

> I am not sure the reason for it. It usually went away for me

after

> a few days of really nasty reactions, headaches, the above,

> sleepiness, a little blahs attitude, etc. Then fine. After that,

I

> stopped using it, and seemed improved somehow, not sure how to

> measure it.

>

> Can't really say if this effect is germs or some other changes.

DC

> is very strong against microbes, however. The constant barrage of

> electrons, about 30 million billion per second with godzilla

> reading .3mA on the meter, will hit each microbe in its path with

> literally millions of charged ions. This may degrade the RNA and

> DNA of these organisms and produce the toxins you are seeing.

Just

> a theory that sounds good, remember, we don't really know.

>

> Be careful and cut back to where the symptoms are very mild,

> increase if they vanish, jockey these two things. Don't go for a

> heavy blast, it's not wise. Some of us have damaged skin, and

other

> battle scars to show for our efforts.

>

> The real idea behind " godzilla " I've said before, is to hit so

hard

> they don't have a chance to get bored with the treatment.

>

> So, you take Tomy's case. Let's say he stopped for a few months.

> Not much should occur. The count might drop a bit, then he could

> hit them again and he'd have an improved T-cell count once more.

>

> One fellow had 25 percent improvement in 3 weeks, their doctor

said

> to skip the drug cocktails for 3 months, since it would take that

> long for the count to go back up again..

>

> The godzilla idea is quite powerful and practical. It allows for

> the lack of follow-through of the average user. By the time they

> have burned their skin, lost energy doing it, and perhaps been

> ridiculed or wondered if they were crazy, it's too late. By a

week

> or two most of the germs are gone. So, even if they never fully

> realize what happened, the job gets done, and that's our fist

> mission. Less talk, more action. That is what I had in mind with

> this over-killer device we nickname: godzilla. It also works on

> larger animals that man, so we don't need another device.

>

> On infants and smaller animals than man, it should definitely come

> equipped with a 500k potentiometer to allow the current to be

> greatly reduced where they can stand it without rejecting the

> treatment.

>

> Again, I beat the subject to death.

>

> bG

>

> <><

[Guest guest]

Microcurrent devices have been successfully used on the earlobes to treat the motor parts of the brain, and on the upper ears to treat the mental or emotional parts of the brain. You could probably find info by doing a search using "microcurrents + Brain" or "emotions". If you don't find anything let me know and I'll see if I can find something.

Dick

Re: Digest Number 892

BG,

Thanks for the interesting info. Did you invent Godzilla?

I've read lots of your posts in the past. I have Lyme Disease and founded the lyme-and-rife forum. I started using rife like devices about 2 years ago and am now about 90% well. I think Lyme is one of the hardest to get rid of. I have about 7 devices and have self taught myself most of this stuff.

The godzilla is really interesting to me. It also seems to directly affect my head symptoms which to this point I had never thought were based on blood pathogens. So, could Godzilla possibly be passing current directly through the brain?

BG, how do you think Godzilla compares with using other rife like devices such as the EMEM series, doug device, B3 (contact device), etc?

Keep an eye or nose as the case may be on it. Most report loose stools and extremely foul odors for a few days when using large currents for longish periods with godzilla.I am not sure the reason for it. It usually went away for me after a few days of really nasty reactions, headaches, the above, sleepiness, a little blahs attitude, etc. Then fine. After that, I stopped using it, and seemed improved somehow, not sure how to measure it.Can't really say if this effect is germs or some other changes. DC is very strong against microbes, however. The constant barrage of electrons, about 30 million billion per second with godzilla reading .3mA on the meter, will hit each microbe in its path with literally millions of charged ions. This may degrade the RNA and DNA of these organisms and produce the toxins you are seeing. Just a theory that sounds good, remember, we don't really know.Be careful and cut back to where the symptoms are very mild, increase if they vanish, jockey these two things. Don't go for a heavy blast, it's not wise. Some of us have damaged skin, and other battle scars to show for our efforts. The real idea behind "godzilla" I've said before, is to hit so hard they don't have a chance to get bored with the treatment. So, you take Tomy's case. Let's say he stopped for a few months. Not much should occur. The count might drop a bit, then he could hit them again and he'd have an improved T-cell count once more.One fellow had 25 percent improvement in 3 weeks, their doctor said to skip the drug cocktails for 3 months, since it would take that long for the count to go back up again..The godzilla idea is quite powerful and practical. It allows for the lack of follow-through of the average user. By the time they have burned their skin, lost energy doing it, and perhaps been ridiculed or wondered if they were crazy, it's too late. By a week or two most of the germs are gone. So, even if they never fully realize what happened, the job gets done, and that's our fist mission. Less talk, more action. That is what I had in mind with this over-killer device we nickname: godzilla. It also works on larger animals that man, so we don't need another device. On infants and smaller animals than man, it should definitely come equipped with a 500k potentiometer to allow the current to be greatly reduced where they can stand it without rejecting the treatment.Again, I beat the subject to death.bG

<><The information on this group is not intended as medical advice. Most group members are NOT doctors or health authorities. Please do not request medical advice, lest anyone get into trouble out of human compassion. There are huge fines and issues currently involved with unlicensed medical advice. The group is only here to share experiences according to the theme of the group, namely testing if electrical stimulus might inactivate microbes, as it seems to have done in the Einstein Medical College labs. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG

[Guest guest]

Hi Everyone!

I have been enjoying the debate over coloring our hair. I guess bottom line is

to do what makes you feel good about yourself. I am 47 and quit a couple of

years ago when I decided to cut down on toxic chemicals. At first I wasn't

crazy about the way I look. Now I like it! I and am third generation, that I

know about, premature gray. That's why I don't buy the copper deficient

theory. I wrote this for a class recently and thought some of you might

relate.

Preference

I remember my mother’s hair before she died, even though she tried to hide it

behind a dark wig.

Chemotherapy robbed her of more than its color.

It had been black as a raven’s wing – before it turned white.

White hair meant you were growing older and less attractive.

My mother dyed it, black as ink, just as her mother had done before her.

When my hair started turning gray at the age of 15, I pulled them out one by

one because I was ashamed.

A boy noticed as I leaned over my microscope and yelled out “Eww, she’s got

gray hair!” “I spilled paint in it” was my response, and I felt older and less

attractive than I did at fourteen.

Angry, I blamed my mother’s genes. “Color it!” was her solution.

When there were too many gray hairs to pull, I dyed my hair.

I admitted it freely, not wanting to hide the act like my mother did, but I

was still lying.

Why did I need to hide what nature had made me?

Premature gray had a dirty sound to it, like premature ageing or premature

mortality.

This is not who you really are my mirror reminded me as dark red and black

drops bled into the sink every six weeks.

I, like my mother, chose to hide behind a bottle.

Now, I know I am a “pitta” an Ayurvedic fire element, critical, wise and

brilliant.

My hair boasts of this with silver flash and waves.

I am not a crone.

In truth, my hair conveys premature strength and wisdom.

It says “This is who I am and I will not hide myself from you”.

My mother raised a strong daughter, intent on becoming more than her

reflection.

I miss her.