RE: Eyes - Adie's Tonic Pupil??

[Guest guest]

As I was reading your post I said to myself sounds like she has Lupus and

was glad when I got to the end that you have been tested for that. That is

what I thought I had for years until I had nail changes typical of psoriasis

and we decided I had PA. My arthritis is not really typical for that, if

any ever is, but I guess that is the best explanation. I really wonder how

the docs tell all these things apart. As long as you are getting

appropriate treatment it really doesn’t matter what they call it. Make sure

to get tested for lupus every once in a while though.

Cheers Anne :}

[ ] Eyes - Adie's Tonic Pupil??

There has been a lot of discussion about eye problems associated with PA and

PA drugs. I have only ever taken Celebrex (in the past) and Viouxx

(currently) for my PA. I have scalp psoriasis as well and it is easily

controlled with a prescription of Cyclocort.

I also have a bleeding disorder called ITP (Idiopathic Thrombocytopenic

Purpura), which is an immune disorder in which your body attacks your own

platelets resulting in clotting problems. For this I take Cyklokapron (only

as needed when bleeding occurs), which is used to make your platelets more

sticky so they work better.

A few years ago while at a visit to an eye doctor he suspected Adie's tonic

pupil and ran some tests. Sure enough - I had that too!!! It was explained

to me that it was a condition that developed after a series of inflamation

episodes permanently damages to the optic nerve, so that now one pupil

responds slowly to light, frequently spasming either open or closed. They

ran several tests to try to determine the source of the inflamtion, but were

never able to pinpoint it. I have the problems you would expect with this,

changing between light and dark. If I come in from a bright sunny day to a

dimly lit room, it takes me quite a while to get good vision inside, and

visa versa, and bright lights generally make my eyes and head ache.

Does anyone else here have any of these combinations of problems? I feel

like writing a book, " 101 Stupid Things That Are Wrong With Me " . I

certainly don't mean to make light of these conditions, as there are so many

who suffer far worse than I do. I have been lucky enough to be able to

control my conditions with minimal drugs and have more good days than bad.

I am very thankful for that, specially after visiting these sites and seeing

how other people are managing.

I am 29 years old, and the ITP started at 16, Tendonitis at 21 (they say it

was likely the onset of the PA as it was also the time I started suffering

from extreme dandruff that was so itchy at times it drove me crazy!!!), the

Adie's at 26 and the PA at 27, and at 28 they finally said it wasn't serious

dandruff but scalp psoriasis. A whole lot of minor problems turned up over

that time frame as well - migraines, heart palpitations, kidney scarring

(also from inflamtion), etc. I guess I have always belived that it must be

one problem causing the whole lot. I'm just waiting to hear what it is!!!

Anyone have any ideas? or similar experiences?

Roni

PS: I have been tested for SLE (Lupus) serveral times over the years but to

date have only met 3 of the criteria and 4 are required to diagnose.

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