Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 Hi Toni, I get those stabbing pains in my head also. They seem to come and go. I have a lot of all over body pain (joint, muscle & nerve). My LLMD just started me on the Duragesic pain patch because I am so sick of being in pain. I dont know how well it works yet because it takes time & I just started yesterday. I was taking Vicodin for the pain but it didnt always help. Good luck, I hope you get relief soon. --- Toni Gray <tgray@...> wrote: > Does anyone having stabbing pain in their head. My > neuropathy is out of > control right now. It started with the sciatic > nerve and pain in the back. > This morning I woke up with excruciating pain in my > head and the rest of my > body. I was just curious to see if anyone else has > this and what helps for > the pain. > > > > [Non-text portions of this message have been > removed] > > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe > from the list > -Digest - Switch your > subscription to a digest format > -Normal - Switch your > subscription to normal > > Please send messages not related to Lyme disease > (this includes humor and information about other > diseases) to -Offtopic > > The archives can be accessed at > > > The chat room is always open! > /chat > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 Thanks for the info Kim. I can't take Vicodin due to me being allergic to codeine, but i am going to try Ultram. I woke up in the middle of the night again with extreme neuropathy. I take klonopin and trazadone at night and that helps some but I will use the ultram during the day, and if that doesn't work I may ask for the duragesic pain patch. Re: [ ] neuropathy Hi Toni, I get those stabbing pains in my head also. They seem to come and go. I have a lot of all over body pain (joint, muscle & nerve). My LLMD just started me on the Duragesic pain patch because I am so sick of being in pain. I dont know how well it works yet because it takes time & I just started yesterday. I was taking Vicodin for the pain but it didnt always help. Good luck, I hope you get relief soon. --- Toni Gray <tgray@...> wrote: > Does anyone having stabbing pain in their head. My > neuropathy is out of > control right now. It started with the sciatic > nerve and pain in the back. > This morning I woke up with excruciating pain in my > head and the rest of my > body. I was just curious to see if anyone else has > this and what helps for > the pain. > > > > [Non-text portions of this message have been > removed] > > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe > from the list > -Digest - Switch your > subscription to a digest format > -Normal - Switch your > subscription to normal > > Please send messages not related to Lyme disease > (this includes humor and information about other > diseases) to -Offtopic > > The archives can be accessed at > > > The chat room is always open! > /chat > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 I had the same thing headaches unbearable and then jaw pain . It turns out to be TMJ . I went to the dentist and wear a retainer and this is alleviating the pain. Anyone else have TMJ with lyme? Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 I have had TMJ most of my adult life, had two molars out when I was a child and assumed the shifting caused it. Did not know it was related to Lyme, but then I guess all this stuff is related. I have had all my teeth removed and a full implant on the bottom (make of titanium) with still a temporary (plastic-like) denture on the top. Still have TMJ and I think my new DMD here in PA is going to treat it with improving my bite when he does my top denture next year. Hugs from a Light-HouseKeeper finally in Pennsylvania (Anyone can clean the house, only you can catch up on your rest,) Michele E. Townsend, FMS/90,ME/CFS/94,LD/??(Dx01),SSDI/95 mailto:michtown@... and homepages: http://msnhomepages.talkcity.com/SupportSt/michtown/default.htm With a dream to become an Inn-House-Keeper! Join at: TownsendVillage or by sending a blank email to TownsendVillage-subscribe ----- Original Message ----- From: <DMGPMG1@...>Sent: Thursday, July 05, 2001 11:10 AM > I had the same thing headaches unbearable and then jaw pain . It turns out to > be TMJ . I went to the dentist and wear a retainer and this is alleviating > the pain. Anyone else have TMJ with lyme? > Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 Hi Pam I developed neuropathy. It started when I was on tx & was one of the reasons I was taken off tx. It then became progressive & I'm on 2 meds for it. They're neurontin & Keppra. Both are anti seizure drugs. They're not eliminating many of the symptoms, though. Feel well--Kitzabu Jeanie kitzabu@... ICQ# 9881060 Civia, Inc. www.civia.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 http://www.postgradmed.com/issues/2000/01_00/smallridge.htm this next one is much better---below link http://www.ninds.nih.gov/health_and_medical/pubs/peripheral_neuropathy ..htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 thewfamily@... writes: > NAC at 500 4-5 times a day pulls out all the chemo and radiation over time. > Would this mean that if I take NAC daily that any dental xray radiation will be pulled out? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 NAC at 500 4-5 times a day pulls out all the chemo and radiation over time. Johanne From: jrrjim Sent: Thursday, June 19, 2008 12:56 PM Subject: [ ] Neuropathy Five months after ending chemo, I am still suffering from significant neuropathy in my hands and feet (numbness and tingling). The primary culprit in this situation is the drug oxaliplatin -- a platinum containing compound that really screws up the nerves. Does anyone have any suggestions for getting rid of this problem naturally? I was considering some chelation, but I think the nerve damage is already in place, whether or not there is still platinum in my body. But maybe I'm wrong -- maybe the platinum is the culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 The clay people claim that persisting chemo and radiation damage may be reversed over time by the ingestion of Calcium bentonite clay. Only a good quality high pH clay should be used...but only the calcium type...not the sodium type. You can buy A's ( Arledge's) book on the internet and learn how to do it. mrg [ ] Neuropathy Five months after ending chemo, I am still suffering from significant neuropathy in my hands and feet (numbness and tingling). The primary culprit in this situation is the drug oxaliplatin -- a platinum containing compound that really screws up the nerves. Does anyone have any suggestions for getting rid of this problem naturally? I was considering some chelation, but I think the nerve damage is already in place, whether or not there is still platinum in my body. But maybe I'm wrong -- maybe the platinum is the culprit. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 I CAN'T TELL YOU THE FUTURE AND I SUPPOSE IF YOU GET A HAIR ANALYSIS YOU WILL SEE WHAT IS IN THERE. YES, NAC PULLS OUT EVERYTHING AS YOUR BODY CAN RELEASE IT. Johanne From: szukipoo@... Sent: Thursday, June 19, 2008 2:40 PM Subject: Re: [ ] Neuropathy thewfamily@... writes: > NAC at 500 4-5 times a day pulls out all the chemo and radiation over time. > Would this mean that if I take NAC daily that any dental xray radiation will be pulled out? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Glass wrote: The clay people claim that persisting chemo and radiation damage may be reversed over time by the ingestion of Calcium bentonite clay. Only a good quality high pH clay should be used...but only the calcium type...not the sodium type. You can buy A's ( Arledge's) book on the internet and learn how to do it. mrg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 On Jun 19, 2008, at 11:56 AM, jrrjim wrote: > Does anyone have any suggestions for getting rid of this problem > naturally? I was considering some chelation, but I think the nerve > damage is already in place, whether or not there is still platinum in > my body. Here are some posts I've collected- From: basenjo@... Subject: [ ] acupuncture for neuropathy Date: April 18, 2008 11:45:00 PM PDT Reply- This may interest you, Al. Although the group consisted of HIV patients, the results are impressive. Scroll down to the final two sentences for the conclusion, if you want to skip the statistical mumbo jumbo. Effect of Acupuncture on Pain and Subjective Peripheral Neuropathy in Persons with HIV KD, et al. Department of Family and Community Medicine, University of Texas Health Science Center at San , San , TX. Researchers tested 21 subjects to determine the effect of 5 weeks of acupuncture treatment in a group setting on pain and symptoms of peripheral neuropathy in patients with human immunodeficiency virus (HIV). The subjects completed the Pain Rating Scale and the Subjective Peripheral Neuropathy Screen (SPNS) before and after 5 weeks of acupuncture. The acupuncture treatments occurred two evenings per week. Each of the 10 sessions consisted of participants receiving 10-15 needle insertions in acupoints that addressed the individual's changing pattern of pain, sleep problems, or other health issues. The treatment utilized only main or common points located below the elbows and knees, and on the head, neck, and ears. Only reactive points were used in the acupuncture treatments. Needles were left in situ for 30-45 minutes. A comparison of the pretreatment and post-treatment Pain Rating Scale results indicated a significant reduction in present pain (p = 0.0002), least and most pain in the last 24 hours (p < 0.0001 and p = 0.0004, respectively) and the total pain summary score (p < 0.0001). Symptoms reported in the SPNS were reduced during the 5 weeks of acupuncture. Scores for pain/aching/burning, pins and needles, and numbness in the hands and feet were reduced (all significant at less than p 0.0065), as well as the total summary score (p = 0.0001). Researchers concluded the results of this study indicate that subjective pain and symptoms of peripheral neuropathy were reduced during the period of individual acupuncture therapy delivered in a group setting. While the study design did not allow for control of nonspecific placebo factors, the data support the hypothesis that acupuncture in a group setting can reduce pain and neuropathic symptoms in HIV-infected individuals. For what's it's worth, I've had success with acupuncture for a variety of problems, from depression to back pain. Bill Bill Asenjo, PhD, CRC www.billasenjo.com basenjo@... Cell 319-461-4516 Phone/Fax 319-658-2016 =========================== From: basenjo@... Subject: [ ] peripheral neuropathy & ALA Date: April 24, 2008 3:20:41 PM PDT Reply- * Alpha Lipoic Acid - In Germany, alpha-lipoic acid is an approved medical treatment for peripheral neuropathy. It speeds the removal of glucose from the bloodstream, at least partly by enhancing insulin function, and it reduces insulin resistance, an underpinning of many cases of coronary heart disease and obesity. The therapeutic dose for lipoic acid is 600 mg/day. The richest food source of alpha-lipoic acid is red meat – but to ensure proper health, use lean cuts of organic beef that has not been subject to antibiotics or feed lot practices. Bill Asenjo, PhD, CRC ============================== From: robert-blau@... Subject: [never_do_harm_to_anyone] Vitamin D helps relieve pain among diabetic patients with neuropathy Date: April 25, 2008 3:08:05 PM PDT searching-alternatives , SymphonicHealth , oleandersoup , never_do_harm_to_anyone Reply- never_do_harm_to_anyone Moderator's Note: To find out lots about Vitamin D, do a search under " Vitamin D Counsel, " where you will see what some of the most knowledgeable scientists in the world say about Vitamin D. Of course, with regard to Vitamin D relieving neuropathy pain, the best thind is to eat and live so as not to get diabetes in the first place! Get off the Standard American Diet and onto the Gerson/Genesis diet! Vitamin D helps relieve pain among diabetic patients with neuropathy A research letter published in the April 14, 2008 issue of the American Medical Association journal Archives of Internal Medicine reported that vitamin D supplementation reduced pain levels in patients with diabetic neuropathy. The condition occurs when high levels of glucose damage the nerves, and can include burning, tingling, numbness, and throbbing sensations. Drs Lee and Chen of the Concord Repatriation General Hospital in New South Wales, Australia enrolled 51 type 2 diabetics with neuropathy for the study. Pain severity was rated via two questionnaires and serum 25 hydroxyvitamin D and parathyroid hormone levels were measured at the beginning and end of the treatment period. All participants were found to have insufficient levels of vitamin D at less than 24 nanograms per cubic milliliter at the study's onset, and were given a mean dose of 2,059 IU of the vitamin for three months. Continue Reading [search at lef.org] Neuropathy In all forms of neuropathy, there is abnormal stimulation of nerves or damage that results in pain. Peripheral nerves are sensitive conduits that carry impulses from the extremities back to the central nervous system (i.e., the spinal cord and brain). Impulses are transmitted along nerves by changes in the electrical charge of the cell membrane caused by movement of ions such as sodium, potassium, and calcium. Impulses are transmitted between nerves by neurotransmitters such as acetylcholine and substance P, which is responsible for transmitting pain impulses. For protection, most nerves are covered with a thin sheath called myelin, which is made from choline and lipids. The myelin functions like the rubber wrapping around an electrical cord: it insulates the nerve fibers and prevents abnormal transmissions. Depending on the nature of the specific neuropathy, some part of this system breaks down. In diabetic neuropathy, for example, there is a change in the microvascular network that supplies the nerve with nutrients. This lack of blood supply and nutrients causes the nerve to function abnormally. Diabetic neuropathy tends to occur in more than one nerve area (this condition is called polyneuropathy) and may cause loss of sensation and pain that typically worsens at night. In severe cases, diabetics can suffer from a kind of neuropathy called autonomic neuropathy. In this case, the autonomic nervous system, which controls automatic body functions, is affected with possibly serious consequences, including gastrointestinal problems, bladder-emptying problems, abnormal heart rhythms, and even sudden death (El-Atat FA et al 2004). Continue Reading [search at lef.org] ========================= From: ddarrin@...... Subject: Re: CS>Vaccines- chronic fatigue / NIACIN Date: October 18, 2007 9:26:07 PM PDT silver-list@... Nenah: Glad to have you back! I well know the power of Niacin, the first time I used it I took a 500 mg tablet and waited about a half an hour for the flush, it didn't come so I took another one. I turned bright red all over ( not like a swim suit) and the slightest movement made me feel like I was rolling in fiberglass insulation. My heart rate came up until it seemed close to that of a jackhammer. That lasted for 12 hours, so that is why I always say to start small and work up. Now I take 3 grams and get a mild flush which is my goal. The niacin has rid me of all spider veins and turned my numb right foot back to normal for a 20 year old. I'm 72. Sounds to me like Hubbard may be full of it! Dave ======================= From: " Dave " <ddarrin@....... <silver-list@...> Sent: Wednesday, October 17, 2007 11:17 AM Subject: Re: CS>Vaccines- chronic fatigue ....I never felt right for 42 years, Then I diagnosed my problem myself with the help of the Internet and cured it with CS in three days. Chronic Fatigue, Pain and Arthritis were the main problems (as well as brain fog) and I'm sure they would have called it one of those if given the chance. It even went so far that they wanted to remove the cartilage from my affected joints. After whipping the Lyme I cured the arthritis with CMO , Glucosamine, Condroitin along with 6 grams a day of vitamin C and equal amount of L-Lysine and 6 grams of Niacin to help the circulation of these things to the joints. If you want to try this start very small on the niacin as the flush can be severe until you build up a resistance. Dave ================================= Hi Dave. Glad to hear that you finally healed yourself. What a story! You mentioned building up a resistance to niacin so after a while you don't flush from it. You may not know that although this is a common perception of many, there are other factors involved. I thought I'd share with you a tidbit about niacin from my book on sauna therapy, ======beginning excerpt====== Niacin (also called nicotinic acid or Vitamin B-3) is known as the " flushing " vitamin because it causes the skin to redden or become flushed due to capillary enlargement and increased blood flow. It also makes the skin feel itchy and prickly. If people take high enough doses of B-3, they sometimes also feel nauseated, dizzy, disoriented, and even mentally unstable and volatile. For these reasons, niacinamide -- a close relative chemically to niacin that does not cause skin flush or other symptoms -- has become a popular substitute. However, it turns out that this " flushing " property unique to niacin is not only crucial to the detoxification process, but indicates that a detoxification process is actually occurring. Hubbard's research on niacin, begun in 1950, explains how this detox process works. In Clear Body, Clear Mind: The Effective Purification Program, he wrote: Odd manifestations occurred when this vitamin [niacin] was administered to individuals. Its most startling effect was that it would turn on, in a red flush, a sunburn on the person's body in an exact pattern of a bathing suit! These were very neat patterns. The bathing suit outline was unmistakable. What kind of " educated vitamin " was this that caused bodies to turn on a flush exactly like a previous sunburn, showing the exact pattern of a bathing suit outline? Could it be, Hubbard wondered, that niacin in itself does not cause a flush, but instead causes the body to start discharging old waste materials that had been stored in the fatty tissue? What if these people were simply recovering from a prior case of sun poisoning, acquired from too much sunbathing while in a swim suit? The subjects in this research program took carefully controlled dosages of niacin. At a 200 mg. (milligram) dose, the " sunburnlike " flushes eventually disappeared, at which point the dose was increased to 500 mg. At a 500 mg. dose, the flushes recurred, but with less intensity, at which point the dose was increased to 1000 mg. (which equals one gram). At a 1000 mg. dose, there was a small reaction for several days, at which point the dose was increased, and so on. Finally, at a 2000 mg. dose, Hubbard reported, there were no more niacin flush " side " effects. " The person would feel fine, his 'sunburn' would be gone, and he would experience no more flush from the niacin. " Both British and American pharmacopoeia agencies, Hubbard also pointed out, " advertised " that the niacin flush -- presumably an intrinsic characteristic of the vitamin -- is inherently negative to the body, and thus " toxic " in large amounts. " But if niacin was toxic, " the author asked, " how was it that the more you 'overdosed' [on] it the sooner you no longer experienced the sunburnlike flushes from it? " Those in orthodox medicine circles hypothesized that this was an example of the body's adjusting to unfavorable conditions by repressing the symptoms, and thus appearing asymptomatic. But this hypothesis was completely unsatisfactory, in view of the bathing suit outline on the test subjects! Nevertheless, Hubbard's revealing evidence was mostly ignored by mainstream doctors and scientists. They didn't consider Hubbard qualified to do research, regardless of how carefully he designed his experiments or how coherent and rational his observations were. Six years later, Hubbard had the opportunity to gather even more compelling data when working with subjects who had been exposed to fallout from atomic bomb tests, atomic accidents, and materials that had been part of an old atomic bomb explosion. " In 1956, " he wrote, " niacin was reacting differently on people than it had in 1950, and the effects were more severe. " People on the research program in 1950 had experienced only past sunburn flushes. In 1956, people on the research program, while experiencing a flush, were also experiencing nausea, skin irritations, hives, colitis and other uncomfortable manifestations, on the same vitamin and in the same dosages as had been used in 1950. One highly significant detail is that some of the same people participated in both Hubbard's earlier and later research. What had changed? Only the newly developed health problems the subjects brought with them to the second research project! The first group of research subjects, who needed to recover from sun poisoning, developed symptoms uniquely related to their condition. The second group manifested symptoms specific to atomic radiation poisoning (as well as more symptoms in general) because they had been exposed to nuclear waste. Hubbard's explanation 50 years ago was convincing then, and seems equally convincing today: that niacin is an effective and powerful catalyst that induces the body's detoxification response without itself becoming transformed in the change. Niacin's use in sauna therapy is also a wonderful choice since its dilation of surface blood vessels allows heat to escape. ======end excerpt====== --By the way, I'm glad to be re-subscribed to this list, after a fairly long hiatus. Nenah Nenah Sylver, PhD http://www.nenahsylver.com * author, The Handbook of Rife Frequency Healing * author, The Holistic Handbook of Sauna Therapy ask me why you should be taking * Transfer Factor for superior immune support and * VIBE raw fruit & vegetable concentrate for total nutrition Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 > > Hubbard's research on niacin, begun in 1950, explains how > this detox process works. In Clear Body, Clear Mind: The Effective > Purification Program, he wrote: > > buncha stuff L. Ron Hubbard? I would assume that his " research " would be suspicious. However, as far as niacin and detox goes -- yes it does work. I'll tell you how I know -- I had a friend that had a bit of a drug problem and was on probation. Three days before his mandatory urine test, he would start taking niacin like crazy. He said all the druggies did that, and the niacin would flush out enough drugs so that they would show " clean " on the urine tests. Goldenseal is also very powerful. So powerful, in fact, that the same drug tests mentioned above would test for goldenseal, and if they found it, you flunked the test, regardless of what else they found. The guys on probation were warned of this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Too late for me Rhoda -- I already had the chemo and it already caused the damage. Preventing damage is different than healing it once done. > > The Life Extension site *www.LEF.org* has extensive suggestions for dealing > with diabetic neuropathy. I followed their suggestions while doing chemo, > and had none. Rhoda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Someone could be a good scientist but turn into a religious kook, couldn't they? I just forwarded the posts as they were posted. I know of other people who are good scientists but spiritually kooky. I've had some experience with Niacin and detox, not drugs but histamines from allergies. The post about using Niacin to overcome numbness in the feet was directly applicable to the neuropathy question. On Jun 20, 2008, at 8:15 AM, jrrjim wrote: > L. Ron Hubbard? > > I would assume that his " research " would be suspicious. > > However, as far as niacin and detox goes -- yes it does work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I would love to try the Niacin. Do you have a specific brand and dosage for detox from Chemo. Thanks Al Tad Winiecki wrote: Someone could be a good scientist but turn into a religious kook, couldn't they? I just forwarded the posts as they were posted. I know of other people who are good scientists but spiritually kooky. I've had some experience with Niacin and detox, not drugs but histamines from allergies. The post about using Niacin to overcome numbness in the feet was directly applicable to the neuropathy question. On Jun 20, 2008, at 8:15 AM, jrrjim wrote: > L. Ron Hubbard? > I would assume that his " research " would be suspicious. > However, as far as niacin and detox goes -- yes it does work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 On Jun 20, 2008, at 3:19 PM, Al Hurt wrote: > I would love to try the Niacin. Do you have a specific brand and > dosage for detox from Chemo. > Thanks > Al Al- the man who used this says he started with 500 mg but I consider that a high dose. Niacin reacts with histamine in the body, so it can cause a strong reaction the first time. I would start with more like 50-100 mg and work up. It can actually be used to detect food allergies. I forget if it were taken before eating the food or after but flushing would indicate an allergy. I took it every night and after a while stopped flushing until I started eating something I was allergic to and got tired of the flushing so quit. It can have a good effect on the blood vessels. The man in the testimony I posted worked up to 3g to affect his numb foot, which would be a lot (I think he also mentions 6 g but I can't imagine that). If I were increasing dosages and had a lot of flushing I would attempt to find out if a food was acting as an allergen to minimize the flushing. I gave my DH some once without telling him about the flushing and he thought something major was happening to him.:-) It can be rather unpleasantly prickly at times but when wearing off it gives a nice warm relaxing glow. I am very frugal so use really cheap stuff, so can't really recommend a brand. I may get inspired and take some again. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I have a friend who is being treated for Multiple Myeloma. She also has Neuropathy. While she is going through her treatment for the mm she is trying to find other treatments for the Neuropathy. The medicine makes her very nauseous. Does anyone have any suggestions complementary supplements? Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 My husband has myeloma and is combining conventional treatments (thalidomide and dexamethasone) with the Gerson protocol. We have been very worried about neuropathy from the thalidomide, but so far (19 months later) he doesn't seem to have any significant PN (the studies say that " virtually 100% " of people develop neuropathy from thalidomide after a year). I believe the Gerson protocol (diet, juices and enemas) has helped him, but also he has been taken certain supplements that are supposed to help neuropathy. In particular, Vitamin 3, Vitamin B12, B complex, alpha lipoic acid, selenium, zinc, acetyl L carnitine. He also takes 8 grams of curcumin a day. From: eterrydotcom I have a friend who is being treated for Multiple Myeloma. She also has Neuropathy. While she is going through her treatment for the mm she is trying to find other treatments for the Neuropathy. The medicine makes her very nauseous. Does anyone have any suggestions complementary supplements? Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Dear Joanne, I tried Neurontin for Migraines. After 4 months on a VERY low dose, it gave me vertigo. Driving was impossible. The vertigo significantly improved when I stopped the Neurontin, but I still have some problems with it occasionally. I wish I had never taken it. Lilac > > > > > Hi Bee, > > I had another horrific night and did some research on the internet > > about my problem with burning sensations in my legs, chest and arms. > > It looks like some sort of neuropathy or paresthesia. I am seeing a > > naturopathic doctor today and from our conversation, he believes it is > > an auto immune disorder. All natural healing methods go along with > > your diet and supplements but there are a few conventioanal drugs that > > would help like Elevil or Neurontin. My question is, can we still heal > > when taking those types of drugs. I need some relief. > > Thanks Bee, > > Joanne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Joanne, Neurontin and Elavil are horrible drugs that causes all kinds of problems. Have you tried the diet ? I also had the burning extremities and it was horrible. But it went away. Those medications are not necessary for the symptoms that you describe. I know it is hard and painful but detoxing is very hard. Try and hang in there. Phyllis > > Hi Bee, > I had another horrific night and did some research on the internet > about my problem with burning sensations in my legs, chest and arms. > It looks like some sort of neuropathy or paresthesia. I am seeing a > naturopathic doctor today and from our conversation, he believes it is > an auto immune disorder. All natural healing methods go along with > your diet and supplements but there are a few conventioanal drugs that > would help like Elevil or Neurontin. My question is, can we still Quote Link to comment Share on other sites More sharing options...
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