Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 My SLL is stable at this point, but I am having a lot of inflammatory knee pain and swelling which may or may not be caused by the SLL but almost certainly is effected by it. Because of the cancer I have not considered having a knee replacement but I'm wondering if any of you have had joint replacement surgery after being diagnosed with CLL/SLL and what your experience was. Any advise will be appreciated. Carole from Vermont Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Carole, I was diagnosed with SLLCLL in 9/04. Thus far I am still watch and wait. I had complete replacement of my right knee 6-7 weeks ago (May 11) and came through the surgery well. Before the surgery, I checked with all my doctors, (pcp, pulmonologist, and oncologist,) and they all gave me their blessing. A nurse came to my home and stopped all medications that might cause blood thinning--like green tea. For a week after surgery my red blood level lowered, but it came back on its own to normal within a week after surgery. I had the surgery at Brigham and Women's in Boston, and I was there for only four days, but they sent me out with a sheet of exercises to do twice daily. After Brigham, I went for a week to an excellent local rehab hospital in my home-town of Providence. After that, Visiting Nurses service sent me a nurse to check my general health for a month, a phlebotomist to check my blood for three weeks, and a physical therapist to help me with exercises for a month. Brigham and Women's arranged all that, and Medicare and my medi-gap policy paid for it. This week I start outpatient physical therapy, and I continue to do many exercises twice a day on my own to increase my knee's flexibility. I also now use the stationery bike at my gym daily. I will not lie to you and say that it was easy; it was very, very painful for me. At first pain pills did not touch it, but then I managed with an Rx of Tylenol and codeine. On the other hand, I have friends who had NO pain at all after the surgery. My orthopedist says there is no way of predicting that. I now have very little residual pain and need no medication for it. I am still easily fatigued. But today, I carried my laundry up and down two flights of stairs and took out the garbage. I would suggest that you get the permission of your oncologist before you go ahead with any surgery since your blood levels are important. Good luck to you! Carolyn Swift, age 77, dx 9/04, w & w --- Carole MacIntyre <carole@...> wrote: > My SLL is stable at this point, but I am having a > lot of inflammatory > knee pain and swelling which may or may not be > caused by the SLL but > almost certainly is effected by it. Because of the > cancer I have not > considered having a knee replacement but I'm > wondering if any of you > have had joint replacement surgery after being > diagnosed with CLL/SLL > and what your experience was. Any advise will be > appreciated. > > Carole from > Vermont > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Carole, Sorry about your knee. I would encourage you to get your own knee repaired by the new process of growing tissue in the lab from your own body cells for a new maniscus (sp) and also they have bone repair material also etc. But you probably have all ready seen several experts right? If not then you should, just like with CLL/SLL........Anyway, they can fix a lot of knee stuff these days. Good luck, Kurt -------------- Original message -------------- From: "Carole MacIntyre" <carole@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Any help for stiff knees and hips when I get up out of a chair? Glucosamine and Condroitin (sp) or what? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 How about physical therapy? Do you have someone knowledgeable in that area? For example, for the past few months, since my wife needed help in and out of a hospital bed for weeks, I developed a strain/pain in back of my knee worse when sitting for a while and getting up. The knee surgeon examining my wife looked at my knee (he's a family friend) and said, sometimes this is the beginning of knee problems in the front of the knee but start at the rear. ?? I've been going to our development gym and working really hard with the equipment designed for legs. While I still have issues, I would say that I am at least 50% or more better. Some people claim great results with Glucosamine and it's relative Chondroitin and I wonder if it depends upon the formula/make? Is it Arthritis or some other problem? Muscular or ligament? Guessing game isn't it? How about trying Epsom salts (Magnesium) baths or, dissolve Epsom salts in water, drench a cloth in the warm water and wrap your knees in it a couple of times a day when sitting at the computer for example. I did this too. Also make sure you are taking Magnesium and look for the Citrate type. This is easy, low cost, and often effective. Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Cuns-Rial writes: > There is also a new product just as good (one capsule a day vs four > tablets) based on an extract of chicken eggshell collagen. People are trying it sucessfully. > What is this product? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.