Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi everyone. I am seeking information/help about thyroid cancer alternative treatments. I have a 2cm nodule on the right side of my thyroid. (You can't even tell it is there - the only reason it was discovered was during a routine doctor's appointment when the doctor was feeling my glands and said it seemed enlarged.) My thyroid hormone levels are apparently normal, although personally I do think I may have a slightly low thyroid (ie. my hands and feet are always cold, I am sluggish in the morning, etc) Anyway, after 2 ultrasound biopsies I've been told there is 90% chance it is papillary thyroid cancer. However it seems to be contained on the one side only. The surgeon I am seeing recommended that he do a partial thyroidectomy. He said there is only a 5% chance that the other side has cancer...but that he won't be able to tell for sure until after the surgery when they analyze the pathology reports. And worst case scenario I'd have to have a 2nd surgery to remove the whole thing 3 months later. He does not at this point recommend any radioactive iodine treatments for me. However, my endocrinologist is recommending a total thyroidectomy up front. She said there is a 30% chance I have smaller, microscopic cancers growing on the other side independently of the bigger nodule. That means I would be on synthetic thyroid hormones for the rest of my life. (she said if I get the partial thyroidectomy, since my thyroid is working well right now, there is a good chance the half would function fine, but the problem with that is she wouldn't be able to monitor it as well if I did develop cancer on the other side in the future) So now I don't know what to do since they are not really in agreement! I am also wondering if there is any other way. So many people have told me that thyroid cancer is the " good cancer " and why don't I just get out the whole thing and be done with it. Yet something inside me says well do I really want to get rid of an entire organ in my body? Might that not have a worse effect on my health? I am wondering if there is anyone here who can point me to any resources or share their personal experience. I am open to changing my lifestyle/diet - in fact i am seeing a naturopathic doctor who has me on a special diet right now. But can diet alone reverse cancer cells??? Any help you can give would be much appreciated. CG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi CG, I have no opinion on what you should do. However, I wanted to show you " the other side " so to speak. For those of us who are on thyroid meds, most are doing great. It really isn't that big of a deal. Personally, I would take that consideration out of the mix while trying to decide what to do. There is a thyca (thyroid cancer) group online where you can get more info about what it is like to have thyroid cancer. Whether you decide to treat this conventionally or alternatively, I wish you luck. ar On Wed, 20 Feb 2008 22:53:21 -0000, " coppertone.girl " <coppertone.girl@...> said: > Hi everyone. I am seeking information/help about thyroid cancer > alternative treatments. > > I have a 2cm nodule on the right side of my thyroid. (You can't even > tell it is there - the only reason it was discovered was during a > routine doctor's appointment when the doctor was feeling my glands and > said it seemed enlarged.) My thyroid hormone levels are apparently > normal, although personally I do think I may have a slightly low > thyroid (ie. my hands and feet are always cold, I am sluggish in the > morning, etc) > > Anyway, after 2 ultrasound biopsies I've been told there is 90% chance > it is papillary thyroid cancer. However it seems to be contained on > the one side only. > > The surgeon I am seeing recommended that he do a partial > thyroidectomy. He said there is only a 5% chance that the other side > has cancer...but that he won't be able to tell for sure until after > the surgery when they analyze the pathology reports. And worst case > scenario I'd have to have a 2nd surgery to remove the whole thing 3 > months later. He does not at this point recommend any radioactive > iodine treatments for me. > > However, my endocrinologist is recommending a total thyroidectomy up > front. She said there is a 30% chance I have smaller, microscopic > cancers growing on the other side independently of the bigger nodule. > That means I would be on synthetic thyroid hormones for the rest of my > life. (she said if I get the partial thyroidectomy, since my thyroid > is working well right now, there is a good chance the half would > function fine, but the problem with that is she wouldn't be able to > monitor it as well if I did develop cancer on the other side in the > future) > > So now I don't know what to do since they are not really in agreement! > > I am also wondering if there is any other way. So many people have > told me that thyroid cancer is the " good cancer " and why don't I just > get out the whole thing and be done with it. Yet something inside me > says well do I really want to get rid of an entire organ in my body? > Might that not have a worse effect on my health? > > I am wondering if there is anyone here who can point me to any > resources or share their personal experience. I am open to changing my > lifestyle/diet - in fact i am seeing a naturopathic doctor who has me > on a special diet right now. But can diet alone reverse cancer cells??? > > Any help you can give would be much appreciated. > > CG > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 " coppertone.girl " said: >I am seeking information/help about thyroid cancer, But can diet alone reverse cancer cells??? > Johanna Budwig says it can, or at least she says it can in 90% of cases. xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Thanks Carol for your message. I am not exactly sure what the 90% figure is, I guess based on the surgeon's experience from these biopsies where they come out suspicious for papillary thyroid cancer, 90% of the time it is accurate. I believe he is considered " conservative " in the field though, not only because he only wants to take out 1/2 of it (for now), but also because he doesn't usually recommend the radioactive iodine. I believe that is because the nodule is isolated just on one side and in the very early stages. I have read that the radioactive iodine is linked with breast cancer later on in life so I REALLY don't want to do that... As for my thyroid levels, I did get blood tests done and my endo went through them with me and said everything was completely normal - not even " low " just normal. Now I am not sure if I totally trust her (after she recommended getting out the whole thing) so I'm going to run them past my naturopath, who seems more open to this sort of thing... only problem is I can't get in to see her for another 2 weeks as she's on vacation. What is the Budwig protocol?? I don't know why my doc says he would wait 3 months after the partial thyroidectomy before a 2nd surgery, I guess that's how long he would need it to heal before going in again? I'm not really sure. My endo says if nodules are cancerous but microscopic they can go undetected but somehow influence your thyroid hormone levels in blood tests...which makes it all a bit hard to monitor. I guess the fear is that they are growing and possibly spreading and I would not know. I agree with you too, I have read so much about nutrition that I am wary of the whole surgery/radiation approach, it seems just so drastic and permanent. In my heart I believe the body can cure itself but of course I don't say this to anyone otherwise I'd come across like a wacko. My compromise I guess between western and alternative is to just have the half of my thyroid out and see if I can prevent any recurrence through good health/nutrition. >Hi CG ) > I have a question or two for you. Regarding your biopsies, how do they come to 90%? Are they telling you that radiation is not in the picture because of the size of your nodules? If you feel you have thyroid problems, you probably do, I would take your temperature in the morning before you rise for about a week. I would also check your adrenal, vitamin D, and hormone levels, as well as, any other blood tests that show any deficiences. I was told that thyroid symptoms can look like cancer and not be cancer. > I have 2 nodules (one on each side) and over the years they shrink some and grow some and stay the same for very long periods. I am doing the Budwig Protcol in part and have noticed a change in a few areas of my health. I choose not to lose my thyroid at this point in my life and will try different things before surgery. I am wondering why your surgeon will wait 3 months before he goes in again? My surgeon said he would take biopsies from both nodules and send them off and if cancerous go back within 3 days or so when they get the results back, therefore better healing is attained. My Endo reccommended a total thyroidectomy too, and I didn't like that idea. Why will your Endo have problems monitering the other nodule? > My Endo said nutrition alone doesn't work and got somewhat excited about it, I believe differently in my heart and I believe in jumping outside of the box and that is how I have walked. Fear probably is a companion of yours at this point but you have time to decide and make good choices, be informed first. Warm regards, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Thanks Alea. I too am on a special diet right now, it's something my naturopath put me on to strengthen my immune system. Basically it is: no sugar no dairy no alcohol no wheat/spelt no processed anything no corn no citrus fruits no beef/pork I am also taking supplements - vitamin D3, something called Moducare (another immune system strengthener), fish oil, selenium, and this thing called Ultra Clear - it's a powder you mix into a drink that is supposed to be for " metabolic detoxification " . My naturopath says it's almost like a multivitamin as it has everything you need in it, but it gently detoxifies the liver. Anyway I've been on it 2 weeks now and I am feeling good, although it's too early to see some of my symptoms go away. (Right now I " m not even sure if the sluggishness is me all the time or just right now because I'm so preoccupied/depressed by this whole thyroid cancer thing) It's interesting that a few of you guys have had the same experience with your endo pushing for surgery... that's how I feel too, sort of like I'm being rushed into this. And of course from a work perspective I feel like I have to make a decision about when it's all happening. My gut says I need to take some time off not only after surgery but also before - to rest, de-stress and mentally prepare myself.... meanwhile my job is so stressful that doesn't seem possible without quitting altogether. And of course I need the health insurance so I carry on. Not a very good situation! > > I'd like to start by saying a big " THANK YOU!!! " to everybody for all the information provided and please keep it coming. > > CG, > We're in the same boat, I'm trying to avoid total thyroidectomy as well because my biopsy was inconclusive and I think it's common practice for the endo to recommend that (my personal take on that is to cover their own butts). > My ayurveda herbalist recommended to start with a liver cleanse and a change of diet. Cancer cells feed on sugar, so I eliminated anything that has sugar or could convert into sugar in the digestion process. That means I completely eliminated sugar, dairy, starches (potato and the like), gluten (any flours and white rice) and processed foods from my diet. I eat only limited amounts of sweet fruit, lots of veggies and greens, eggs (free range), fish (only couple of times/week because of the mercury content), some nuts, and also free range meats (chicken or lamb are my personal preferences). This diet is called the paleolitic diet. All food has to be as clean and organic as possible. Some people do not agree with the meat consumption, I was vegetarian for many years and I was reluctant to putting meat into my body, but maybe it's not the meat itself, but the hormones, antibiotics, unhappiness of the animal that is toxic. That's my take on that one. > Before I changed my diet I had the same symptoms you describe, cold hands and feet, felt sluggish, found it impossible to lose weight, found it hard to tolerate cold. After 3 months on it though, my weight is back to normal (I only had 10-15 lbs extra that really bothered me because I wasn't used to carrying that much weight around), my energy level has gone up, I can finally enjoy a day snowshoeing because I can tolerate cold and my feet and hands don't feel cold anymore. > My concern right now is that my nodules have slightly increased in size since my last ultrasound, and I don't know if that happened before I did the lifestyle changes and hopefully that stopped them, or kept growing the whole time. I guess for me it's wait and see what the next ultrasound shows... I'm sure the endo at my next visit will try to persuade me (again) to have a thyroidectomy, but I think there has to be a better way, especially when the diagnostic isn't clear. > Good luck Alea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 Yes I know of someone who had 3 forms of thyroid cancer and was given 4 mos to live. She used the protocol that my group recommends and is listed on my website along with some other detoxing and nutrient balancing and she completely cured herself of it w/o surgery or RAI. Re: [ ] thyroid cancer , I began to read your story and plan to read the whole thing. So are you saying the cancer can be cured by iodine and selenium and other things of this nature. If this is true I would be thrilled. I no way want to take out my thyroid, but I also do not want the cancer to spread to other areas. What was it like after the surgery if you do not mind me asking and what sort of other issues did you have taking the thyroid hormone? I am sorry that you had to experience this. But, I really have to make some quick decisions and get as much information as possible. Did you experience other complications when you took out your thyroid? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 Yes I know of someone who had 3 forms of thyroid cancer and was given 4 mos to live. She used the protocol that my group recommends and is listed on my website along with some other detoxing and nutrient balancing and she completely cured herself of it w/o surgery or RAI. " Love to know more details especially about the detox and nutrient balancing. mei Quote Link to comment Share on other sites More sharing options...
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