Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Darren, Pontine gliomas are usually very difficult. How well has your son be faring on the oleander? Does he have side effects? Is compliance difficult for a child? If he is having favorable results, what else is he using/doing? It is extra sad when a child has cancer. At 06:36 AM 8/16/2009, you wrote: >Just a quick aside on the oleander treatment. I belong to the >oleander soup group as well. Dr. Marc Swanepoel and Tony Isaacs are >great resourses there. We use oleander on my 10 year-old son who has >a pontine glioma brain tumor. The one thing about oleander is that >it often takes 2-3 months to start seeing effects on a standard >dose. Dr. Marc would probably be able to tell you if a higher dose >would sway that time table at all. Either way, I think the >information you gather there will be honest and forthright. > >Darren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 , Yes, pontine gliomas are horribly hard to treat. We didn't have to option to go totally natural, as his tumor is far too agressive. However, we are using a combination of standard treatments and naturopathic methods. His tumor did not respond well to radiation or the first line of chemotherapy, Temodar. He is now on cetuximab (an EGF inhibitor) and irinotecan(on hold for now), along with celebrex and clomipramine(anti-depressant with anti-glioma effects). On the natural side, we use Sutherlandia OPC(oleander), vitamin D, Omega 3 fish/flax oil, and various other supplements. We plan on starting low-dose naltrexone as soon as we can get him off of morphine. I know many here and on the oleander soup group would shun using " allopathic " medicine, but they haven't seen the aggression of this tumor and how quickly it can overtake the tiny brainstem. I will give my son every chance to survive that I can. So far, we saw a .5 cm reduction in the tumor in two dimensions only two weeks after starting on cetuximab/irinotecan, and that being after progression that occurred after radiation and temodar. He actually ended up in the hospital after this due to headaches and other symptoms, apparently due to the changes the shrinking caused. If you have any suggestions, I would love to hear it. I am constantly searching for suggestions. Thanks for asking about Luke, . Darren (Luke's dad) http://www.caringbridge.org/visit/lukepollok > > Darren, > > Pontine gliomas are usually very difficult. How well has your son be > faring on the oleander? Does he have side effects? Is compliance > difficult for a child? If he is having favorable results, what else > is he using/doing? It is extra sad when a child has cancer. > > Quote Link to comment Share on other sites More sharing options...
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