Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi everyone, I've lurked around this group for a while but have found it difficult to find much information on AML. My history is this: I was diagnosed 2001, had 4 rounds of chemo but relapsed the following year which lead me to have an allogenic bone marrow transplant after an induction round of chemo. I relapsed again at the end of 2005 and I had another allo BMT, then relapsed again in early 2007 where I had an induction round of chemo to prepare for my THIRD BMT. I didnt end up having the BMT but after relapsing again later on in 2007 I was again induced and at the beginning of last month I had the BMT, this time from an unrelated donor (the others were from my sister). Things went well but there was always a high risk of my relapsing, which it looks like has happened. I have always responded well to chemo, and after something like 11 or 12 cycles it has never not worked, though it must be said that I always did relapse sooner or later. At this stage, apart from the fact that things just don't seem to be working I'm really fed up with chemotherapy and hospitals.. and was wondering if anyone could suggest any other approaches that may be helpful. I understand that AML is a pretty bad disease but I also find it pretty hard to believe that there's nothing that can help, or even cure it. Thank you so much for your time. Regards, Jordan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Jordan, Consider subscribing to Dr. Steve 's blog or consulting with him at www.grouppekurosawa.com. Marie " jordan.sugars " wrote: >I've lurked around this group for a while but have found it difficult to find much information on AML. My history is this: > I was diagnosed 2001, had 4 rounds of chemo but relapsed the following year which lead me to have an allogenic bone marrow transplant after an induction round of chemo. I relapsed again at the end of 2005 and I had another allo BMT, then relapsed again in early 2007 where I had an induction round of chemo to prepare for my THIRD BMT. I didnt end up having the BMT but after relapsing again later on in 2007 I was again induced and at the beginning of last month I had the BMT, this time from an unrelated donor (the others were from my sister). Things went well but there was always a high risk of my relapsing, which it looks like has happened. I have always responded well to chemo, and after something like 11 or 12 cycles it has never not worked, though it must be said that I always did relapse sooner or later. At this stage, apart from the fact that things just don't seem to be working I'm really fed up with chemotherapy and hospitals.. and was wondering if anyone could suggest any other approaches that may be helpful. I understand that AML is a pretty bad disease but I also find it pretty hard to believe that there's nothing that can help, or even cure it. Thank you so much for your time. Regards, Jordan > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.