Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Hi everyone, I just ran accross something that I find interesting. Last year some of 's symptoms included: Being hungry all the time. Temperature was below normal usually ~96. Of course she has nocturnal seizures which indicates an abnormal sleep pattern. Exessive sweating and then all of a sudden she stopped sweating entirely. Fluctuating emotions. All these things are regulated by hypothalmic function. Yet her focal origin is frontal lobe. Can anyone give me any input on how all this could fit together? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Carrol, The decreased temperature, I think, was due to the dental amalgams. Prior to getting them she was normal body temp. I remeber reading some where that Hg toxicity for some reason lowers body temp. Maybe it is because it does damage to the hypothalamus? This whole thing is like a huge puzzle, like one of those bought at a yard sale with missing pieces, haha... I wonder if the hypothalamus has the ability to repair itself if given time? If you all run accross anything in reference to this please let me know. And Carrol, thanks for all the encouragement, most of the time when I run accross material that relates to our situation I try to keep in mind that there are others who may benefit from the material and it is good to know that someone is using it. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Dear Tracey, This is really interesting. I could relate to all of 's symptoms here except that I usually struggle with not wanting to eat, even when I need to. My body temperature generally is about 94.7 -- I threw away three 3 thermometers before I finally believed this! My husband makes fun of me because I don't sweat; I also don't handle the heat well at all. And, I'm an insomniac, having major problems in my sleep. The hypothalaus is located at the base of the brain. My medical dictionary says: " some of its fibers continue into the pituitary gland. Practically all secretion of hormones from the anterior and posterior portions of the pituitary gland or hypophysis is controlled by the hypothalamus. Nearly all parts of the nervous system help to control the stimulation of the pituitary gland by the hypothalamus. Every reaction the person or animal has, from pain to pleasure, affects the hypothalamus, which in turn activates other systems. The hypothalamus also plays vital roles in regulating body temperature, controlling female rhythm, determining sleep and wakefulnes periods, stimulating circulation and regulating the amount of food intake. " The book went on to explain further that if the pituitary gland is removed, " artificial administration " of hormones is very important. I suppose that I had been viewing the subject of the hypothalamus somewhat passively, believing that fluctuation of female hormones was normal. Rethinking it, however, and the close proximity of the hypothalamus to the brain, it seems logical that there is more to this than meets the eye. Once again, Tracey, I think you're on to something! Best wishes, Carrol Traceygrubbs@... wrote:Hi everyone, I just ran accross something that I find interesting. Last year some of 's symptoms included: Being hungry all the time. Temperature was below normal usually ~96. Of course she has nocturnal seizures which indicates an abnormal sleep pattern. Exessive sweating and then all of a sudden she stopped sweating entirely. Fluctuating emotions. All these things are regulated by hypothalmic function. Yet her focal origin is frontal lobe. Can anyone give me any input on how all this could fit together? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 My son just finished his first year of confirmation in our Lutheran Church. I ordered a ciriculum from online for people with sp needs. It has a pic of a man with DS on the front. I scanned a copy of the Lutheran Catecism that the class uses and taped it on the front. It's way bigger than the other kids, but has the same info. I talk to the teachers ahead of time. We study what they are going to do in class at home the week before. Then it's not new to him when they introduce it in class. We had discussions with the minister how to do this. and I were thinking of just Homeschooling him in this area, but the minister was advocating for him to be in the class, as much for Maverick as for the rest of the kids. If she wants to email me privately, I can share the info that I have. M. ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ ......for a tree is recognized by its fruit. 3:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Gwen, There should be some committee for children or youth at the church- not the elders who decide. She should have a conversation with the pastor directly. My daughter will receive Confirmation with her peers this June 6th and has been attending classes, which get modified as necessary- they will be going on a weekend retreat in 3 weeks and I got an extra adult to accompany on the retreat. Confirmation in a Lutheran Church, I believe requires some statement about why a person wants to join that church and will they follow Christian values and perhaps participate in some service- join the choir, help out at events, etc. IMHO, the elders dont get to decide- the family does and if that is not working, well there are always other churches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 In a message dated 5/2/2004 4:21:43 PM US Mountain Standard Time, linman42@... writes: > There should be some committee for children or youth at the church Yup....that's the committee that totally excluded Maverick from the youth activities at our church. Not at all a supportive group of people. If they haven't approached the parent, KNOWING that they have a child of confirmation age and suggested ways to involve her, they probably aren't. And yes, you do hear bitterness here. LOL...the head of our youth group is the same person who is his sp ed resource person at school. GO FIGURE! M. ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ ......for a tree is recognized by its fruit. 3:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 And even more to 's comments, is why are they deciding to refuse the grace of God to this child? I think I'd have a heart to heart with them and get these elders to explain it. , a Catholic, mom to Bridget 11 ds in SC Re: Need Input Gwen, There should be some committee for children or youth at the church- not the elders who decide. She should have a conversation with the pastor directly. My daughter will receive Confirmation with her peers this June 6th and has been attending classes, which get modified as necessary- they will be going on a weekend retreat in 3 weeks and I got an extra adult to accompany on the retreat. Confirmation in a Lutheran Church, I believe requires some statement about why a person wants to join that church and will they follow Christian values and perhaps participate in some service- join the choir, help out at events, etc. IMHO, the elders dont get to decide- the family does and if that is not working, well there are always other churches. Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 The first thing I would ask church leaders who are unwilling to cooperate- " What do you think Jesus would do in this situation? " Excluding anyone goes totally against what Jesus stood for in his ministry! Darcy Re: Need Input In a message dated 5/2/2004 4:21:43 PM US Mountain Standard Time, linman42@... writes: > There should be some committee for children or youth at the church Yup....that's the committee that totally excluded Maverick from the youth activities at our church. Not at all a supportive group of people. If they haven't approached the parent, KNOWING that they have a child of confirmation age and suggested ways to involve her, they probably aren't. And yes, you do hear bitterness here. LOL...the head of our youth group is the same person who is his sp ed resource person at school. GO FIGURE! M. ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ .....for a tree is recognized by its fruit. 3:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Have you ever tried her on regular Adderall instead of the XR? My son takes Adderall which helps him a lot, but when we tried the XR he was an emotional wreak. He cried over nothing and his self esteem was terrible. I would definitely suspect the XR. Try something else for a while and I don't mean another extended release - he was the same way on Concerta. Hope this is helpful. On Dec 23, 2004, at 6:05 AM, emkayp wrote: > > > I am looking for ideas, input or fingers pointed in a direction to > follow for my daughter. She is 7, pdd-nos and apparently adhd. She > currently takes Adderall XR one time daily. Her behavior at school is > generally compliant though too quiet, sometimes pouty, often " down " . > Her behavior at home (with typical 5 year old sister) is often > explosive, angry, defiant, obstinate, oppositional. She hates me, > then loves me, then accuses me of loving the other one more and then > wishing the other sister weren't there so it would only be us. She > goes off the deep end because her specially made up face comes off > and cries for an hour in the middle of the night because she woke up > heartbroken over it. If I catch her soon enough I can redirect her > but if I don't we're in for hours of upsetness. And on and on. I > often can't wait till bedtime though I adore them both but it is so > hard to be around! > > Is this typical behavior for a seven year old (I've never had one > before) or, more to the point, one with her diagnoses? As much as I > never wanted to be a working parent I am beginning to LIKE going to > work just to have control! And I hate that feeling. > > Thanks for any input! > > mk > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Mine cannot handle time release meds either. We use regular Adderall also. -S GA Re: Need input Have you ever tried her on regular Adderall instead of the XR? My son takes Adderall which helps him a lot, but when we tried the XR he was an emotional wreak. He cried over nothing and his self esteem was terrible. I would definitely suspect the XR. Try something else for a while and I don't mean another extended release - he was the same way on Concerta. Hope this is helpful.On Dec 23, 2004, at 6:05 AM, emkayp wrote:>>> I am looking for ideas, input or fingers pointed in a direction to> follow for my daughter. She is 7, pdd-nos and apparently adhd. She> currently takes Adderall XR one time daily. Her behavior at school is> generally compliant though too quiet, sometimes pouty, often "down".> Her behavior at home (with typical 5 year old sister) is often> explosive, angry, defiant, obstinate, oppositional. She hates me,> then loves me, then accuses me of loving the other one more and then> wishing the other sister weren't there so it would only be us. She> goes off the deep end because her specially made up face comes off> and cries for an hour in the middle of the night because she woke up> heartbroken over it. If I catch her soon enough I can redirect her> but if I don't we're in for hours of upsetness. And on and on. I> often can't wait till bedtime though I adore them both but it is so> hard to be around!>> Is this typical behavior for a seven year old (I've never had one> before) or, more to the point, one with her diagnoses? As much as I> never wanted to be a working parent I am beginning to LIKE going to> work just to have control! And I hate that feeling.>> Thanks for any input!>> mk>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Have you considered the Feingold diet. It has great results with kids who are adhd. Since we have gone GFCF and organic my kids behavior has really improved minus the junk. emkayp <emkayp@...> wrote: I am looking for ideas, input or fingers pointed in a direction to follow for my daughter. She is 7, pdd-nos and apparently adhd. She currently takes Adderall XR one time daily. Her behavior at school is generally compliant though too quiet, sometimes pouty, often "down". Her behavior at home (with typical 5 year old sister) is often explosive, angry, defiant, obstinate, oppositional. She hates me, then loves me, then accuses me of loving the other one more and then wishing the other sister weren't there so it would only be us. She goes off the deep end because her specially made up face comes off and cries for an hour in the middle of the night because she woke up heartbroken over it. If I catch her soon enough I can redirect her but if I don't we're in for hours of upsetness. And on and on. I often can't wait till bedtime though I adore them both but it is so hard to be around!Is this typical behavior for a seven year old (I've never had one before) or, more to the point, one with her diagnoses? As much as I never wanted to be a working parent I am beginning to LIKE going to work just to have control! And I hate that feeling.Thanks for any input!mk__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Hi! I have a daughter who is 8. She does what your dd does, but has much more control over it. I've learned a few strategies over the years, and they helped to teach her how to control her feelings over time. Did you know that one human body close to another will begin to mimick the breathing pattern of another? It's true. When your dd is what i call " melting down " , try getting her sitting in the floor with her back to you. If she has something she likes for you to do to her, like stroking her hair, do it, talk calmly, reassure her you understand, and your sorry she is mad, sad, etc. Deep pressure massage is great during this. I target large muscle groups on my dd, like her hips and thighs(i had to do this to get her to sleep for years...another time the breathing trick works...barely breathe, and let her body follow, and she will sleep), and massage deep into the muscle slowly, and firmly. Keeping her close to you is key, so she can hear your breathing, and overexaggerating slow deep breathes will help her calm. This is not quick...in the beginning, it could take thirty minutes to get to the point where her brain took over on the breathing, but it learned over time to get there. You must remain calm and supportive through the whole thing, but this breathing thing works on most people. I used to exaggerate my emotions when talking to her about emotions. I used lots of visuals with words, and i used my own emotions throughout the day to teach her more appropriate means of getting control of her feelings.(whoever thought they have no feelings really never knew an autistic child). Stay in control...and girl, i know that's hard:0). But, she is learning from you how to control herself. It is absolutely essential to help them learn how. Have you got a crash pad? We dont need one any more, but we used to have a mattress that was loaded with pillows. I'd get her onto the mattress, and put pillows on her and roll around with her until she forgot she was mad. Include her sister in the game, and maybe someday, she will initiate it during a meltdown. About the meds. The Autism Research Institute has some studies done by parent report on thier website, although they may have a biased viewpoint in some areas, i thought that it was comparable to what i've seen for myself by parent report. The last med the doc tried with my dd(we just started last year), was horrible. I took her off at the end of the third week, because she was not my little girl any more. I took one of them the next day, and thought, no wonder she felt so horrible! I could not believe i had given that to her after experiencing it for myself. Research, research research, meds, whether for your daughter, or yourself. Doctors do not tell you all you need to know about anything, and meds are included. The diet mentioned...we did that strictly for years. I do believe it is one of the greatest helps we had, and we only removed red dye and casein products. Does your daughter have any friends? I see that as a huge frustrator for mine. We're looking for one, if you want to get together some time:0). Hugs, Scarlett -- In autism , " emkayp " <emkayp@a...> wrote: > > I am looking for ideas, input or fingers pointed in a direction to > follow for my daughter. She is 7, pdd-nos and apparently adhd. She > currently takes Adderall XR one time daily. Her behavior at school is > generally compliant though too quiet, sometimes pouty, often " down " . > Her behavior at home (with typical 5 year old sister) is often > explosive, angry, defiant, obstinate, oppositional. She hates me, > then loves me, then accuses me of loving the other one more and then > wishing the other sister weren't there so it would only be us. She > goes off the deep end because her specially made up face comes off > and cries for an hour in the middle of the night because she woke up > heartbroken over it. If I catch her soon enough I can redirect her > but if I don't we're in for hours of upsetness. And on and on. I > often can't wait till bedtime though I adore them both but it is so > hard to be around! > > Is this typical behavior for a seven year old (I've never had one > before) or, more to the point, one with her diagnoses? As much as I > never wanted to be a working parent I am beginning to LIKE going to > work just to have control! And I hate that feeling. > > Thanks for any input! > > mk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 In my humble opinion, you need more real food. There is not much protein in string cheese. I would also say to add more vegetables. I think you would do a lot better by adding more food as compared to just a protein bar for many of your meals. It would also help if you gave us more stats. What are your goals. How tall are you? Are you drinking enough water? Getting enough sleep? What does your cardio look like? Are you only doing lower body for weights? I would definitely NOT go light on weights! wrote: I have been stuck at 21% bodyfat for about 5 weeks. I am at the end of week 10 and I am still wearing the same jeans I started in (very discouraging). My husband is convinced that I am building too much muscle in my legs and that is the problem and wants me to go light on the weights. I don't know what to do but I am really struggling!! Here is a typical day for me: Eats M1 oatmeal, 3 egg whites, 1 whole egg M2 protein bar or apple 2 string cheese M3 chicken salad w/ low fat dressing sweet potato M4 cottage cheese and yogurt M5 protein bar M6 string cheese or protein bar I lift about 60 lbs max when I do my squats and do my leg workout as prescribed in BFL. Help!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 The string cheese I eat is sargento and it has 6 grams of protein per stick so that is 12 grams for both. I didn't think I needed more than 12 grams for a snack. My goals is to be smaller and look better I also want to gain control over my binging habit and that is considerably better. I am 5'4, drink 80 ounces of water at least a day, sleep at least 7 hours at night. My cardio is 3 HIIT workouts on an empty stomach I also jog 2-4 miles about 4-5 days a week. I do weights just like BFL recommends upper and lower body. The only place I deviate is with extra cardio. Thanks Re: Need input In my humble opinion, you need more real food. There is not much protein in string cheese. I would also say to add more vegetables. I think you would do a lot better by adding more food as compared to just a protein bar for many of your meals. It would also help if you gave us more stats. What are your goals. How tall are you? Are you drinking enough water? Getting enough sleep? What does your cardio look like? Are you only doing lower body for weights? I would definitely NOT go light on weights! wrote: I have been stuck at 21% bodyfat for about 5 weeks. I am at the end of week 10 and I am still wearing the same jeans I started in (very discouraging). My husband is convinced that I am building too much muscle in my legs and that is the problem and wants me to go light on the weights. I don't know what to do but I am really struggling!! Here is a typical day for me: Eats M1 oatmeal, 3 egg whites, 1 whole egg M2 protein bar or apple 2 string cheese M3 chicken salad w/ low fat dressing sweet potato M4 cottage cheese and yogurt M5 protein bar M6 string cheese or protein bar I lift about 60 lbs max when I do my squats and do my leg workout as prescribed in BFL. Help!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 I " m with Tara. Your meals seem insubstancial and you have NO veggies listed. Also, water is a key ingredient in fat loss. I am up to 3 liters a day, even on my free day, and I think it is one of the reasons the scale is moving for me. I don't ever recommend anyone go " light on the weights " , mostly because I don't believe that with out using artificial help you can 'build too much muscle'. Most likely you've built some nice muscle and burned some fat...legs stay the same, but you are stronger and healthier. Did you say what size you started at? You say you have been stuck at 21% for five weeks, so you must not have been that high to begin with. Everyone will tell you that it is very difficult to drop into the teens in BF% (I, personally, have yet to have that problem). You might be at a point where doing some of the body builder tricks are in order, calory cycling, carb reduction then loading...all that stuff. With out more complete stats its a little hard to guess. b. I have been stuck at 21% bodyfat for about 5 weeks. I am at the end of week 10 and I am still wearing the same jeans I started in (very discouraging). My husband is convinced that I am building too much muscle in my legs and that is the problem and wants me to go light on the weights. I don't know what to do but I am really struggling!! Here is a typical day for me: > Eats > M1 oatmeal, 3 egg whites, 1 whole egg > M2 protein bar or apple 2 string cheese > M3 chicken salad w/ low fat dressing sweet potato > M4 cottage cheese and yogurt > M5 protein bar > M6 string cheese or protein bar > > I lift about 60 lbs max when I do my squats and do my leg workout as prescribed in BFL. Help!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 The chicken salad is chicken with salad greens, that counts as a veg right? I also have sweet potato listed and I thought that was veggie too. I started at 29% I think but I am using calipers on my own and am just not really sure. I weight 157-156 depending on where I am at in my cycle. I am going to work on adding more real food. I actually thought I was doing okay on that <grin> I love my quick and easy protein bar I must admit. Thanks for the help guys I really appreciate it. Re: Need input I " m with Tara. Your meals seem insubstancial and you have NO veggies listed. Also, water is a key ingredient in fat loss. I am up to 3 liters a day, even on my free day, and I think it is one of the reasons the scale is moving for me. I don't ever recommend anyone go " light on the weights " , mostly because I don't believe that with out using artificial help you can 'build too much muscle'. Most likely you've built some nice muscle and burned some fat...legs stay the same, but you are stronger and healthier. Did you say what size you started at? You say you have been stuck at 21% for five weeks, so you must not have been that high to begin with. Everyone will tell you that it is very difficult to drop into the teens in BF% (I, personally, have yet to have that problem). You might be at a point where doing some of the body builder tricks are in order, calory cycling, carb reduction then loading...all that stuff. With out more complete stats its a little hard to guess. b. I have been stuck at 21% bodyfat for about 5 weeks. I am at the end of week 10 and I am still wearing the same jeans I started in (very discouraging). My husband is convinced that I am building too much muscle in my legs and that is the problem and wants me to go light on the weights. I don't know what to do but I am really struggling!! Here is a typical day for me: > Eats > M1 oatmeal, 3 egg whites, 1 whole egg > M2 protein bar or apple 2 string cheese > M3 chicken salad w/ low fat dressing sweet potato > M4 cottage cheese and yogurt > M5 protein bar > M6 string cheese or protein bar > > I lift about 60 lbs max when I do my squats and do my leg workout as prescribed in BFL. Help!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 It looks like a pretty classic " swell up " menu. Lots of cheese and bars, very high sodium, big lack of fruits and vegetables. If you increased your fruit and vegetable content and got rid of some of the processed stuff you would probably be amazed. Most people report dropping 3-5 pounds the first week they switch to a " lean out " menu. Do You Want to Lean Out or Swell Up http://www.skwigg.com/id55.html Remember, nutrition is at least 80% of your results, and it becomes even more critical when you're trying to break into the teens. There are two ways to lower your percentage of body fat. One of them is to lose fat, but the other is to gain muscle. If your husband's idea about you easily and miraculously gaining lots of muscle were true, your body fat percentage would be dropping like a rock. It's much more likely that the low-protein, carb/sodium heavy meal choices are your sticking point. Are you cooking any chicken or turkey or lean beef yourself? It's much higher in protein and lower in sodium than the pre-packaged stuff. Try to eat more things without nutrition labels and bar codes - meat, fish, poultry, fruits, vegetables, nuts, seeds, beans. Try something more like: egg whites, omelet veggies, cantaloupe protein shake, banana veggie burger, lettuce, tomato, avocado, apple chicken breast, big field green salad, olive oil vinaigrette, pear steak, sweet potato, steamed asparagus protein shake, strawberries If eating on the run is an issue, it's just a matter of taking an hour once or twice a week and prepping it all, doing some cooking, washing some fruit, throwing it all in tupperwares and ziploc bags so it's easy and portable when you need it. There's also a big lack of healthy fats in your current diet, so you might throw in some more things like cold water fish, olive oil, avocado, and nuts. That will also improve your fat loss. And don't forget free day. It can stall your progress if it's a little too free. Hope that gives you some ideas. > I have been stuck at 21% bodyfat for about 5 weeks. I am at the end of week 10 and I am still wearing the same jeans I started in (very discouraging). My husband is convinced that I am building too much muscle in my legs and that is the problem and wants me to go light on the weights. I don't know what to do but I am really struggling!! Here is a typical day for me: > Eats > M1 oatmeal, 3 egg whites, 1 whole egg > M2 protein bar or apple 2 string cheese > M3 chicken salad w/ low fat dressing sweet potato > M4 cottage cheese and yogurt > M5 protein bar > M6 string cheese or protein bar > > I lift about 60 lbs max when I do my squats and do my leg workout as prescribed in BFL. Help!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Rock, this group is unique in that we know how to get results the others do not; our approach applies as well to IBD as it does to candida. I mean, from what I've seen few other groups have a clue about biological support, most are allopathically-oriented, and most won't give up their carbs because the meat-and-potatoes mindset is mired in that " bread is the staff of life " kind of thing. So, the groups are social pockets of people whose only support for each other amounts to listening to each other grumble and compare notes about the side effects of their medications. Several people are getting the more open minded souls on those lists over here to candidiasis. The group colitiscrohns for example is better informed now I hear, and we probably have some of their members over here now Duncan > Besides reccommending this group, what other resources, like a good > Chrohn's support group or websites can I share that will give this > woman a fighting chance if she is open-minded enough to look at > different perspectives? > > Thanks, > > Rock > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hello, it's funny but I just ordered this Air free unit for my son who has a wet basement right now and he is allergic to mold. Within the first 24 hours his nose cleared up and he hasn't had any more wheezing since and it's been 3 1/2 weeks since he plugged it in. Rita Need Input I was considering this unit and would greatly appreciate any input you all have.http://www.airfree.com/testes/InsectReDLimited.pdfThanksCyndi No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: 1/16/2008 9:01 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Have your tried it in your environment? Do you think an 8 stage system would work better? > > Hello, it's funny but I just ordered this Air free unit for my son who has a wet basement right now and he is allergic to mold. Within the first 24 hours his nose cleared up and he hasn't had any more wheezing since and it's been 3 1/2 weeks since he plugged it in. Rita > > Need Input > > > I was considering this unit and would greatly appreciate any input you > all have. > > http://www.airfree.com/testes/InsectReDLimited.pdf > > Thanks > Cyndi > > > > > > > -------------------------------------------------------------------- ---------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: 1/16/2008 9:01 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 No I haven't tried it at my house and the only thing I know about it is that it did kill the dust mite and mold spores at my son's house. He has allergies and asthma real bad. Rita Need Input> > > I was considering this unit and would greatly appreciate any input you > all have.> > http://www.airfree.com/testes/InsectReDLimited.pdf> > Thanks> Cyndi> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: 1/16/2008 9:01 AM> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: 1/16/2008 9:01 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Thanks > > > > Hello, it's funny but I just ordered this Air free unit for my son > who has a wet basement right now and he is allergic to mold. Within > the first 24 hours his nose cleared up and he hasn't had any more > wheezing since and it's been 3 1/2 weeks since he plugged it in. Rita > > > > Need Input > > > > > > I was considering this unit and would greatly appreciate any > input you > > all have. > > > > http://www.airfree.com/testes/InsectReDLimited.pdf > > > > Thanks > > Cyndi > > > > > > > > > > > > > > ---------------------------------------------------------- > ---------- > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: > 1/16/2008 9:01 AM > > > > > > > > > -------------------------------------------------------------------- ---------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.5/1228 - Release Date: 1/16/2008 9:01 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi, I need some input from the group. I have Stage IV breast cancer with mets to the bones. I have been doing alternative for one year. Now the cancer is in my lymph nodes in my chest and it is closing the Superior Vena Cava that drains blood from my head. I have been having pressure in my head and lots of coughing for the past four months, so that is why. I have wanted to avoid chemo and have never had it, but at this point I don't think I have a choice. Please, I don't want suggestions on other alternative methods at this point - I will try and pick up on that later. Anyway, I have pretty much run out of money in that department. My doctor is going to talk to me about my choices for chemo.He also said I could choose radiation, but I think that would be worse because of the area of my heart. My question is: What can I do to alleviate the bad symptoms of chemo while I am taking it. Any particular supplements, etc. I would really appreciate advice in this area - especialy anyone who has gone through chemo and found supplements or whatever that helped a great deal. Thank You, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi , I'm stage 0 breast cancer - so my experience was very different than yours. What kind of alternatives have you done? Is the cancer hormone receptor positive? Most oncologists will discourage you from doing any supplements - even eating fresh fruits and veggies - while on chemo. Many supplements will counteract the affects of the chemo. And because you will become susceptable to bacterias, etc, fresh fruit and veggies are discouraged. I did radiation and was actually okay with it. It took me awhile to wrap my head around it, though. Since my cancer was on the right side, the radiation would not hit my heart. Your situation is a lot different than mine, so I can understand your concern. My best to you. ar On Thu, 27 Mar 2008 23:40:08 -0000, " Turmeric4 " <ggabrielson@...> said: > Hi, > > I need some input from the group. > I have Stage IV breast cancer with mets to the bones. I have been > doing alternative for one year. > > Now the cancer is in my lymph nodes in my chest and it is closing the > Superior Vena Cava that drains blood from my head. I have been > having pressure in my head and lots of coughing for the past four > months, so that is why. > > I have wanted to avoid chemo and have never had it, but at this point > I don't think I have a choice. > > Please, I don't want suggestions on other alternative methods at this > point - I will try and pick up on that later. Anyway, I have pretty > much run out of money in that department. > > My doctor is going to talk to me about my choices for chemo.He also > said I could choose radiation, but I think that would be worse > because of the area of my heart. > > > My question is: What can I do to alleviate the bad symptoms of chemo > while I am taking it. Any particular supplements, etc. I would > really appreciate advice in this area - especialy anyone who has gone > through chemo and found supplements or whatever that helped a great > deal. > > Thank You, > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi , This site has information about methods of combating the side effects of chemotherapy: http://tinyurl.com/2aqj9b If you are not taking LDN to combat your cancer, you should be. To learn more, visit http://tinyurl.com/2p57xv With best wishes, Dudley Delany dudley_delany Quote Link to comment Share on other sites More sharing options...
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