Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Well, despite trying to avoid it, I ended up having to get chemo. My tumor continued to grow and wrapped around my jugular so tight that I could barely breathe or swallow. It was bleeding, and a week ago, I lost so much blood that my count was 3.5 and I went full code. The ambulance had to be called and I basically almost died. It was that crucial. I had to be stabilized and because of the dire circumstances, I agreed to one treatment of chemo to reduce the pressure or else I was going to end up on a ventilator. I was terrified, but I made it through, miraculously. I didn't get sick at all, it actually went very smoothly. I'm due for a second treatment in about 2.5 weeks, but now I'd like to see what I can do moving forward. My tumor has shrunk DRAMATICALLY in just the last few days, even the doctors were amazed. But if possible, I'd still rather not do another treatment. Right now I'm feeling really exhausted and fatigued, just a little....weird about everything. Seems like before, none of the natural treatments were helping me. I tried everything that was suggested. I suspect even the LDN caused my tumor to explode in growth and become ulcerated because it OVER-stimulated my immune system. So I don't really know what to trust anymore, but now that the chemo has started the shrinkage and given me some extra time, I'd like to know from experience if there is something I can do to keep the momentum going? If I can't find a protocol that will actually keep the healing going before the next scheduled treatment, then I'd like to know what types of things I can take to help the treatment go better, keep me feeling relatively good without much sickness and support my immune system. I may not have to do more than two treatments total if the shrinkage continues. I plan to start walking again today. Oh I'm also dealing with a mother of a sinus infection on top of everything else! Thanks! (Just to recap, I have non-hodgkins lymphoma, stage 2A, diffuse large B cell, being treated with six cycles of R-CHOP) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hey there! I'm so glad you are okay. Yes, sometimes alternative treatments don't work, or don't work fast enough, and it is wise to turn to western medicine in order to get to where you need to be for alternative treatments to work. Your situation is why I talk about keeping an open mind in this group. Many of the breast cancer women I have talked to said that acupuncture helped to keep chemo side effects manageable. But for breast cancer, the treatment is six to eight rounds of multiple chemos and hormonals. If you only have two treatments (keeping fingers crossed that's all you need), I don't know if you would need anything like that. But acupuncture certainly can't hurt, imho. I think you might want to consult with an alternative healthcare practitioner who can help analyze what you did do and try to figure out why they didn't work. This way, you can prepare follow-up treatments with something that, hopefully, will work. Meanwhile, there are some posts scattered about concerning herbs and such that can help protect you during chemo. Unfortunately, I do not remember what they are. Hopefully, someone who does will jump in soon. Take care, ar > > Well, despite trying to avoid it, I ended up having to get chemo. My tumor continued to grow and wrapped around my jugular so tight that I could barely breathe or swallow. It was bleeding, and a week ago, I lost so much blood that my count was 3.5 and I went full code. The ambulance had to be called and I basically almost died. > > It was that crucial. I had to be stabilized and because of the dire circumstances, I agreed to one treatment of chemo to reduce the pressure or else I was going to end up on a ventilator. > > I was terrified, but I made it through, miraculously. I didn't get sick at all, it actually went very smoothly. I'm due for a second treatment in about 2.5 weeks, but now I'd like to see what I can do moving forward. My tumor has shrunk DRAMATICALLY in just the last few days, even the doctors were amazed. But if possible, I'd still rather not do another treatment. > > Right now I'm feeling really exhausted and fatigued, just a little....weird about everything. Seems like before, none of the natural treatments were helping me. I tried everything that was suggested. I suspect even the LDN caused my tumor to explode in growth and become ulcerated because it OVER-stimulated my immune system. So I don't really know what to trust anymore, but now that the chemo has started the shrinkage and given me some extra time, I'd like to know from experience if there is something I can do to keep the momentum going? > > If I can't find a protocol that will actually keep the healing going before the next scheduled treatment, then I'd like to know what types of things I can take to help the treatment go better, keep me feeling relatively good without much sickness and support my immune system. I may not have to do more than two treatments total if the shrinkage continues. > > I plan to start walking again today. Oh I'm also dealing with a mother of a sinus infection on top of everything else! > > Thanks! (Just to recap, I have non-hodgkins lymphoma, stage 2A, diffuse large B cell, being treated with six cycles of R-CHOP) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hello..I felt I had to chime in to your e-mail. Just want you to know that I am praying that you will have a quick rebound, and get on a good course of healing! I see you have done much, and not sure what you could be doing that you have not been doing. I am new on the board, and very silent. I had stage II breast cancer this year of the left breast, and had both removed. Sometimes, I am sorry about the surgery...but I did what I thought was best at the time. I had two positive lymph nodes and then 17 other lymph nodes were taken from my body, and came back negative. To this day, I have refused chemo, radiation and tamoxiphen. My surgery was on April 20, 2010. I juice everyday, and take several nutrients, and I am still learning. I avoid sugar, white flour, meats, try to keep my body in an alkaline state (test it every morning), stay away from dairy, and so on... I applaud you for your strong convictions with alternative health. I am seeing that there is a great success rate, but all situations are different. Keep your chin up, and keep your mind very postive. I hope to read more posts to you today...that will help you on your crusade and journey. Your triumph would bring smiles...rest and heal. I was given a prescription of LDN, and I just am not entirely sure what I think of that med? Blessings to you. Lynn ________________________________ From: detwa_3017 <epurdles@...> Sent: Sun, August 22, 2010 9:55:03 AM Subject: [ ] Continuing support after first chemo  Well, despite trying to avoid it, I ended up having to get chemo. My tumor continued to grow and wrapped around my jugular so tight that I could barely breathe or swallow. It was bleeding, and a week ago, I lost so much blood that my count was 3.5 and I went full code. The ambulance had to be called and I basically almost died. It was that crucial. I had to be stabilized and because of the dire circumstances, I agreed to one treatment of chemo to reduce the pressure or else I was going to end up on a ventilator. I was terrified, but I made it through, miraculously. I didn't get sick at all, it actually went very smoothly. I'm due for a second treatment in about 2.5 weeks, but now I'd like to see what I can do moving forward. My tumor has shrunk DRAMATICALLY in just the last few days, even the doctors were amazed. But if possible, I'd still rather not do another treatment. Right now I'm feeling really exhausted and fatigued, just a little....weird about everything. Seems like before, none of the natural treatments were helping me. I tried everything that was suggested. I suspect even the LDN caused my tumor to explode in growth and become ulcerated because it OVER-stimulated my immune system. So I don't really know what to trust anymore, but now that the chemo has started the shrinkage and given me some extra time, I'd like to know from experience if there is something I can do to keep the momentum going? If I can't find a protocol that will actually keep the healing going before the next scheduled treatment, then I'd like to know what types of things I can take to help the treatment go better, keep me feeling relatively good without much sickness and support my immune system. I may not have to do more than two treatments total if the shrinkage continues. I plan to start walking again today. Oh I'm also dealing with a mother of a sinus infection on top of everything else! Thanks! (Just to recap, I have non-hodgkins lymphoma, stage 2A, diffuse large B cell, being treated with six cycles of R-CHOP) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 I wish you a speedy recovery, and hope that you will be able to keep the chemo sessions to a minimum, as you are hoping. I might suggest you go on the Budwig diet, which is basically a vegetarian diet, along with sunshine, exercise, stress relief, daily flax oil mixed with cottage cheese (otherwise cutting out most dairy). It has been shown in research and written about in books like " The China Study " and " Curing Cancer from Inside Out " that animal protein can definitely increase the growth of cancer, and that cutting back can do just the opposite. Plant protein is totally safe, and doesn't cause an increase in cancer growth. If you are interested in the Budwig diet, here is the group at : FlaxSeedOil2 I have been on that diet since my breast cancer diagnosis back in Oct. (10 months ago). Hope this helps, and good luck. Pat Haas - near Seattle > > Well, despite trying to avoid it, I ended up having to get chemo. My tumor continued to grow and wrapped around my jugular so tight that I could barely breathe or swallow. It was bleeding, and a week ago, I lost so much blood that my count was 3.5 and I went full code. The ambulance had to be called and I basically almost died. > > It was that crucial. I had to be stabilized and because of the dire circumstances, I agreed to one treatment of chemo to reduce the pressure or else I was going to end up on a ventilator. > > I was terrified, but I made it through, miraculously. I didn't get sick at all, it actually went very smoothly. I'm due for a second treatment in about 2.5 weeks, but now I'd like to see what I can do moving forward. My tumor has shrunk DRAMATICALLY in just the last few days, even the doctors were amazed. But if possible, I'd still rather not do another treatment. > > Right now I'm feeling really exhausted and fatigued, just a little....weird about everything. Seems like before, none of the natural treatments were helping me. I tried everything that was suggested. I suspect even the LDN caused my tumor to explode in growth and become ulcerated because it OVER-stimulated my immune system. So I don't really know what to trust anymore, but now that the chemo has started the shrinkage and given me some extra time, I'd like to know from experience if there is something I can do to keep the momentum going? > > If I can't find a protocol that will actually keep the healing going before the next scheduled treatment, then I'd like to know what types of things I can take to help the treatment go better, keep me feeling relatively good without much sickness and support my immune system. I may not have to do more than two treatments total if the shrinkage continues. > > I plan to start walking again today. Oh I'm also dealing with a mother of a sinus infection on top of everything else! > > Thanks! (Just to recap, I have non-hodgkins lymphoma, stage 2A, diffuse large B cell, being treated with six cycles of R-CHOP) > Quote Link to comment Share on other sites More sharing options...
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