Scared - well terrified and trying to keep it together

[Guest guest]

I was diagnosed with IBC stage IV last September, I am also triple negative as

well. I just finished 6 months of chemo in March and had a mastectomy in May

(with clear margins) but because the skin wasn't healing after the mastectomy, I

had to have a skin graft. I am due for 4 field radiation next week.

I have noticed in the last couple of weeks since my graft has healed 4 places

outside, inside and near the skin graft that the IBC has started already. I had

a needle biopsy on the largest of the nodules - I already know it is back but

the results will be in next week. I have been on the cancer train for almost a

year now and I want off!

And I am not ready to buy the farm just yet.

I don't know what to ask- help? any thoughts of where to start - IBC is rare and

nasty and my pathology that came back about my cancer was something that the

oncologists have never heard of EVER - I guess I just want to know that there

are

others out there with the same or similar thing as myself and can offer a ray of

hope. I AM doing my best to see the forest for the trees, stay positive and

fight this all the way.