medications

[Guest guest]

<<3. Put on Rocephin IV for 6 weeks. Felt miserable!! [and it sludged my

gall bladder].

4. Purged my system of antibiotics for 1 month. Did neuro/psych testing

and was told by s Hopkins that I had attention deficit and they

wanted to put me on Ritalin [i refused].

5. I took Biaxin for 5 days at the end of January to do my Igenex LUAT

test and I FELT LIKE A NEW WOMAN!!

6. Found an LLMD: I did the Biaxin/Amantadine combo for a month while

waiting for test results.

7. Have been on IV Zithromax 500mg M-Th, 1g F since March and have just

added Amantadine [after gall bladder surgery] which seems to be

working.

>>

Lovette,

LOL I think I've found my opposite! (As far as what meds work.)

)

Cheryl

[Guest guest]

, an NSAID can control the symptoms (swelling and inflammation)

of PA and in some cases make you feel more comfortable, but it CANNOT

slow the progression of PA and prevent joint and bone damage from

occurring. Only DMARDs (disease modifying antirheumatic drugs)can do

that. These include MTX and the biologicals and perhaps others I'm not

familiar with. It's just like taking aspirin when you have strep

throat can make you feel better by lowering your fever and helping with

pain, but only an antibiotic can cure the strep. Not that PA

is " curable " but the DMARDs do actually modify the nature of the

disease so that it is less destructive.

I'm not sure " stronger " is the right word to describe these meds. They

are not necessarily stronger, just a different kind of drug than the

NSAIDs. NSAIDs themselves can be very potent and sometimes dangerous.

Remember Vioxx??? Even the common over-the-counter NSAIDs like Aleve

have side effects that must be taken very seriously. For example, you

must stop taking any NSAID, even Aleve or Tylenol, 5 days before having

a colonoscopy because they increase your risk of bleeding complications

from the procedure. They make you sign a paper swearing you didn't take

any!

I understand your concerns. Less than 2 years ago I had the same

concerns, the same hesitation, the same questions. I'm just sharing

with you the result of almost 2 years of experience and learning about

PA.

best regards,

sherry z

>

> I was wondering how many out there have been able to control their PA

> without having to go to stronger meds than NSAIDS. I am hearing a lot

> about Methotrexate but I really don't want to take something like

> that. Wanting to know what the chances are that I might be able to

> find a NSAID that will control it! Would appreciate any info.

>

[Guest guest]

You might find an NSAID that will mask the pain of your disease but it will not

stop the progression of the disease. Your joints are being damaged everyday.

You are just not aware of it. I have been taking MTX for 18 years and have been

fine. You really should consider taking a med that is going to stop the

progression of the disease and not just mask the pain.

skm91248 <skm91248@...> wrote:

I was wondering how many out there have been able to control their PA

without having to go to stronger meds than NSAIDS. I am hearing a lot

about Methotrexate but I really don't want to take something like

that. Wanting to know what the chances are that I might be able to

find a NSAID that will control it! Would appreciate any info.

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi - My son took Naproxen which worked for his PA. After 12

weeks on that at 500 mg/day his inflammation was gone. He is actually

now taking Methtrexate but that is to clear up the inflammation in his

eyes which the NSAID's didn't help with. It has worked great for his

eyes!! And no side effects! To be honest, I'm not really sure why

some people are so skeptical of that drug. Yes it is used for cancer

patients but in much higher doses.

& Grant/10/

>

> I was wondering how many out there have been able to control their PA

> without having to go to stronger meds than NSAIDS. I am hearing a

lot

> about Methotrexate but I really don't want to take something like

> that. Wanting to know what the chances are that I might be able to

> find a NSAID that will control it! Would appreciate any info.

>

[Guest guest]

Hi ,

NSAIDS do not control your PA, all they do is treat your symptoms.

Yes, they are sometimes necessary, but if you want to treat your

disease you need to be on a DMARD(like Methotrexate) or on a Biologic

drug like Enbrel or Humira (I think there are others too).

But ask your rheumatologist, ask lots of questions, read as much as you

can and make an informed choice.

These drugs can be potent and not compatible with everyone. But they

can also give back a life to someone suffering with multiple affected

joints.

Stay Well,

[Guest guest]

I was on nsaids exclusively for 10 yrs before reluctantly going on Remicade.

My case was pretty mild initially and then went into overdrive with a vengeance

which is what motivated me to overcome my fear of using a biologic. I wish I

hadn't waited. I could have prevented the loss of three toe joints. Nsaids

don't prevent the progression of the destruction like some of the other

treatments that are now available. also, Remicade made all of my psoriasis

disappear. all of it.

Just something to think about. Good luck with your decision.

[Guest guest]

Sorry to say this but if you have PA then a nsaid won't do it. It might relieve

some inflammation but the immune system is still compromised. It will rear its

ugly head. So you might as well control it earlier than later. The earlier you

start with proper treatment the less damage later....casey

[Guest guest]

Hello;

A few months ago I sent an email about my son who is 35 and has renal

cell carcinoma. He decided he wanted to not take their chemotherapy

because it wasn't good enough odds for him to risk what life he has

left being sick. So he came home from the hospital and decided he

wanted to fight his cancer with natural stuff. They sent him home with

medications for the pain. It was about 3 weeks ago. He is taking

Hodromorphone 4 mg every 4 hours and Methodone HCL 10 mg tabs every 8

hours. He cant eat or even think. He went from a young man playing

games on his XBox to not being able to even concentrate on anything. I

feel like they sent him home to die because they wouldn't do their

drugs. Be their experimental genie pig. When he left the hospital he

wanted to fight and now he doesn't care. Help me please, what can I do.

Kathy

[Guest guest]

Kathy:

 

Have your son call me at 503 839 1913. Let him know that I was given six

months to live 14 years ago. Let me know that even though I have a tumor next to

my heart sac and that in his eyes, I am an old lady (56 years old), I am

fighting like hell for my life and have EVERYTHING TO LIVE FOR. AND SO DOES

HE!!!

 

Dorr

Hello;

A few months ago I sent an email about my son who is 35 and has renal

cell carcinoma. He decided he wanted to not take their chemotherapy

because it wasn't good enough odds for him to risk what life he has

left being sick. So he came home from the hospital and decided he

wanted to fight his cancer with natural stuff. They sent him home with

medications for the pain. It was about 3 weeks ago. He is taking

Hodromorphone 4 mg every 4 hours and Methodone HCL 10 mg tabs every 8

hours. He cant eat or even think. He went from a young man playing

games on his XBox to not being able to even concentrate on anything. I

feel like they sent him home to die because they wouldn't do their

drugs. Be their experimental genie pig. When he left the hospital he

wanted to fight and now he doesn't care. Help me please, what can I do.

Kathy

[Guest guest]

See all the posts recently regarding Respen-A. Same thing. As a medication, it

is used as a horse tranquilizer. Pretty potent stuff.

[Guest guest]

She was coming from a safety point of view because my duaghter likes to run off,

climb things. She said it will help calm and focus her. But i thought cod liver

oil helped. What else can i give her that will help . I am hesistant to use

Risperidone.

Thanks

From: Pamela H <phaselow@...>

Subject: [ ] Re: Medications

Date: Saturday, January 23, 2010, 7:21 PM

Risperidone, I thought, was used for aggression, irritability and severe

behaviors; not hyperactivity.  I would not use it for hyperness.  I question

your MD's judgement based on what you describe as your symptoms (merely hyper?).

It is one of those drugs that apparently carries the risk of suicidal

behavior/thoughts, grogginess and weight gain.  Personally, unless I was dealing

with a dangerous situation or at my wits end, I would not use this drug.  I have

an aversion to psychotropic meds and meds for children in general.  That is just

me (and I live with a child on the milder end of the spectrum).

Pam

>

>

>

>

> Hey guys,

>  

> How are you. I took my daughter to a regular doctor that specializes in autism

and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> Any thoughts on this?

>

>

>       

>

>

[Guest guest]

What is her diet? Cod liver oil, fish oil, magnesium, L-theanine all have some

benefits but might not take away all the hyperactivity.

My immediate thought is that drug is way too big of a gun to use for these

circumstances. It will merely drug her.

What supplements is your daughter taking?

Pam

> >

> >

> >

> >

> > Hey guys,

> >  

> > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > Any thoughts on this?

> >

> >

> >       

> >

> >

[Guest guest]

For right now, she is taking vit c, codliver oil, fish oil, magesium and

sometimes GSE and OLE (depending on her yeast issues). She is on GFCF.

From: Pamela H <phaselow@...>

Subject: [ ] Re: Medications

Date: Sunday, January 24, 2010, 5:25 PM

What is her diet?  Cod liver oil, fish oil, magnesium, L-theanine all have some

benefits but might not take away all the hyperactivity.

My immediate thought is that drug is way too big of a gun to use for these

circumstances.  It will merely drug her.

What supplements is your daughter taking?

Pam

> >

> >

> >

> >

> > Hey guys,

> >  

> > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > Any thoughts on this?

> >

> >

> >       

> >

> >

[Guest guest]

Any use of B vitamins?

> > >

> > >

> > >

> > >

> > > Hey guys,

> > >  

> > > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > > Any thoughts on this?

> > >

> > >

> > >       

> > >

> > >

[Guest guest]

Pam, don't the B's make you more hyper?

On Jan 24, 2010, at 9:51 AM, Pamela H wrote:

> Any use of B vitamins?

>

>

> > > >

> > > >

> > > >

> > > >

> > > > Hey guys,

> > > >

> > > > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > > > Any thoughts on this?

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I do think the B vitamins help with focus and attention. That remains one of

our larger issues. I have not tried Taurine.

Pam

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Hey guys,

> > > > > > >

> > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > Any thoughts on this?

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

" I do think the B vitamins help with focus and attention. "

Yes, and mood. They help big time here.

" B6 and magnesium together have been touted as great for hyperactivity. Problem

is to find the forms that work best, and to correct any other issues that might

affect metabolism of B vitamins and such. "

And you know, I think it has to do with blood flow, I really do. I think all

that activity is really an attempt to get the blood flowing. My son could only

take food-based b vitamins at first, then he was able to take the higher doses

of synthetic B6 and magnesium.

I used taurine just to increase magnesium absorption, but that was just for a

short time.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hey guys,

> > > > > > > >

> > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > Any thoughts on this?

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

Pam...when you mentioned your son not doing well on B's, what type of behavior

was present?

Valencia

Sent from my iPhone

On Jan 24, 2010, at 2:37 PM, " Liz " <elizabethsoliday@...> wrote:

" I do think the B vitamins help with focus and attention. "

Yes, and mood. They help big time here.

" B6 and magnesium together have been touted as great for hyperactivity. Problem

is to find the forms that work best, and to correct any other issues that might

affect metabolism of B vitamins and such. "

And you know, I think it has to do with blood flow, I really do. I think all

that activity is really an attempt to get the blood flowing. My son could only

take food-based b vitamins at first, then he was able to take the higher doses

of synthetic B6 and magnesium.

I used taurine just to increase magnesium absorption, but that was just for a

short time.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hey guys,

> > > > > > > >

> > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > Any thoughts on this?

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

Guys where can i get these B vitamins. Which B vitamins to get.

" I do think the B vitamins help with focus and attention. "

Yes, and mood. They help big time here.

" B6 and magnesium together have been touted as great for hyperactivity. Problem

is to find the forms that work best, and to correct any other issues that might

affect metabolism of B vitamins and such. "

And you know, I think it has to do with blood flow, I really do. I think all

that activity is really an attempt to get the blood flowing. My son could only

take food-based b vitamins at first, then he was able to take the higher doses

of synthetic B6 and magnesium.

I used taurine just to increase magnesium absorption, but that was just for a

short time.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hey guys,

> > > > > > > >

> > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > Any thoughts on this?

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

A 'franticness', if that is a word, seemed to go away with B vitamins. Language

definitely improved with B12/P5P (both oral). He did get super emotional with

B6 in that pyridoxine form but now can take it in a multi just fine.

Pam

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Hey guys,

> > > > > > > > >

> > > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > > Any thoughts on this?

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

[Guest guest]

I use Ecological Farms because it's yeast free (coenzyme . Vitamin Shoppe has

it.

Sent from my iPhone

On Jan 24, 2010, at 4:10 PM, florence george <ethelgeorge@...> wrote:

Guys where can i get these B vitamins. Which B vitamins to get.

" I do think the B vitamins help with focus and attention. "

Yes, and mood. They help big time here.

" B6 and magnesium together have been touted as great for hyperactivity. Problem

is to find the forms that work best, and to correct any other issues that might

affect metabolism of B vitamins and such. "

And you know, I think it has to do with blood flow, I really do. I think all

that activity is really an attempt to get the blood flowing. My son could only

take food-based b vitamins at first, then he was able to take the higher doses

of synthetic B6 and magnesium.

I used taurine just to increase magnesium absorption, but that was just for a

short time.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hey guys,

> > > > > > > >

> > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > Any thoughts on this?

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

I wholeheartedly agree with Pam here. Risperidone is an anti-psychotic drug,

and while it may help slow your child down, there are (in my opinion) way too

many risks that would outweigh any benefits you might see. My 9yo daughter was

diagnosed with bipolar disorder a few years ago. Back then I didn't know

anything about biomed and we had her try Risperdal because she was raging. It

did calm her down, but didn't really fix anything, and she gained 17 lbs in 3

months! Also, atypical antipsychotics such as Risperdal carry a small but real

risk of tardive dyskinesia (abnormal muscle movements), which may or may not be

permanent. I would steer clear of these types of drugs unless you absolutely

need them.

By the way, my daughter's picture looked a lot like many kids here. She is no

longer on any medications, is on a GFCF diet and she takes a number of

supplements, and we're currently chelating. She has improved so much more than

I could have ever hoped for a few years ago, really pretty darn close to

looking/acting like an average kid her age.

> >

> >

> >

> >

> > Hey guys,

> >  

> > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > Any thoughts on this?

> >

> >

> >

> >

> >

[Guest guest]

Florence,

I recently went to a neuro who also indicated low dose risperidone for my

daughter, 3 1/2, milder form of PDD. she has bad hand flapping which he told us

would be reduced by the med, so that she didn't grow " accustomed " to doing it.

he also said kids would tease her at school (go figure).

we did some research on the drug, although I had no intention on giving her it,

and info we got, especially from other parents who had used it opn their kids,

was pretty scary. so I would stay away from it except if there was severe

aggression.

Lupe

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Hey guys,

> > > > > > > > >

> > > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > > Any thoughts on this?

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

[Guest guest]

Totally irresponsible to offer that drug for a 3 year old. I'm glad you did

your homework.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Hey guys,

> > > > > > > > > >

> > > > > > > > > > How are you. I took my daughter to a regular doctor that

specializes in autism and she prescribed low dose Risperidone to help my

daughter with her hyperactivity to give together with the supplements her DAN

doctor prescribed for her. She said Riperidone is not bad and she has not seen

the side effects affecting children.

> > > > > > > > > > Any thoughts on this?

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

[Guest guest]

It can also cause weight gain, childhood diabetes, and tardive diskenesia(sp?).

No need to use it for hyperactivity. There just isn't any other drug indicated

for treating autism.

> >

> >

> >

> >

> > Hey guys,

> >  

> > How are you. I took my daughter to a regular doctor that specializes in

autism and she prescribed low dose Risperidone to help my daughter with her

hyperactivity to give together with the supplements her DAN doctor prescribed

for her. She said Riperidone is not bad and she has not seen the side effects

affecting children.

> > Any thoughts on this?

> >

> >

> >       

> >

> >