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13 Yr Old Daughter with HCC and mets to the lungs.

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Hello all,

I am new to this forum and have not posted anywhere regarding my

daughters situation but am looking forward to any information or

suggestions you can share.

Late Nov07 she was diagnosed & we started her 1st round of chemo

early in Dec. Oral chemo is taken each morning as well as an IV

dripped in once a month. At this point I had read to the point of

exhaustion every piece of medical literature regarding her situation

with it ending up at the same place and time frame. It was at this

point that I started looking into the natural healing suppliments &

programs and was quite encouraged by what I was coming across. I was

also eager to try her on the FOCC that I had recently discovered but

figured that I would run into problems as she is picky eater as all

kids are. To my disappointment she only ate 1 spoonfull of the first

mixture I made & refused to eat any more. Not to be thwarted that

easily I tried a smoothie recipie that I came across that was

delicious, even the other kids thought so, but she wont drink that

either. I then spoke to natural health advocates regarding

suppliments and started her on IP6, Epa/Dha Omega3, Acidophilus,

CoQ10,,,,,,,,,,,,, the list goes on.

At the 2 month point another CT was done and revealed that the

largest 3 of the many lung mets had shrunk & there were dead & dying

spots in the primary tumor on the liver but the tumor itself had

gotten slightly larger. We took this as good news ( and it was so

good to finally get some )as the Onco didn't expect to see any

change. She has been ok with taking capsuls up to her 3rd round of

chemo. After that she has been quite nauseated & can only take a few

capsuls a day without throwing up. This lasted for 2 weeks.

A week ago we had a meeting with the Onco & another Dr and they were

proposing a Chemo-embylization for the 2 large lobes of the liver.

They aparently don't usually do this for patients with mets but

because of the shrinkage of the lung mets they figure that with

continued use of the oral chemo while they do the embylization the

lung tumors will not grow.

My question is if any of the readers of this forum have undergone

this treatment, what are the side effects & how severe are they.

My wife & I are considering not having her undergo any more chemo

and start the BP but would like to get some feedback from anyone

with a child going through this or similar and strategies for

implementing the BP with kids.

Thank-you in advance.

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First of all, sorry to hear your young daughter has to go through this

at all.

I would say look into alternatives like apricot kernels although they

are very bitter and the Budwig protocol which you can find out online

which isn't too bad if she's picky as she'll be eating cottage cheese

and flax oil everyday, you can make it into a salad kind of mayo or

like a custard type topping on top of friuts, along with taking sun and

exercise it's not to bad in my opinion.

Gerald

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