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,

I have found that the Heparin that I am on is my Hypobaric Oxygen Chamber. I

can finally breathe better and as a consequence all of my other funcions are

better. I can sleep well at night! And I naturally wake up in the morning like

I used to do, not sleep til noon, like I was before the Heparin.

Lyon

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  • 1 year later...
Guest guest

,

I don't know if this is a problem with your system, your ISP, my ISP or

groups, but I got this same message from the list no less than 10

times!

Jim Fox-

Sun Valley, CA

(just above Burbank Airport)

wrote:

> --- david__001 <david__001@...> wrote:

> > Hi.

> >

> > After initial investigations into acquiring a power

> > rack/cage (for big

> > squats, b-presses, chins, and dips with a little

> > ingenuity) I have stumbled

> > upon a lack of availability in my country.

>

> [snip]...

>

> >yet I cannot

> > seem to find a decent UK

> > distributor. This leaves me with the solution of

> > global or European

> > shipping.

> [snip]...

>

> >In

> > other words, what I'm

> > trying to say is, shipping and costs are also very

> > important to me.

> >

> > If anyone has any ideas on my problem I'd appreciate

> > it!

> >

> > Hutton.

> > Scotland (UK).

>

> Mark Reifkind suggested Louie ' stuff, which is

> a great suggestion if you can get it in the UK without

> prohibitive shipping expenses.

>

> Not from personal experience, but from ads, I would

> think it's worth looking into:

>

> Gym Equipment, Unit 8, Washington Road, West

> Wiltshire Trading Estate, Westbury, Wiltshire BA13 4JP

> (you an write for a free brochure, or call: tel/fax

> 01373 859617 ; mobile 0976752585, or email

> simon.watson1@...

>

> Also, possibly Pullum Sports, 45 New Bedford Road,

> Luton LU1 1SE tel 01582 481174, email

> steve@..., site is at

> www.pullumsports.com

>

> I want to also suggest trying Scorpion Gym Equip, but

> I don't have contact info at the moment....

>

> Hope that helps.

>

> Best,

>

>

> Los Angeles, CA

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Guest guest

oops Jim... well I'm afraid to test it with a reply...

I only sent it once, and don't want you to get ten

more... I've gotten doubles before but not that many.

Hopefully this one will prove it to have been an

anomaly... otherwise I don't know what to do! (being

semi-literate on the computer....)

Thanks for the heads up, Jim, and hopefully it won't

happen again

Los Angeles, USA

--- Jim Fox- <firedrake@...> wrote:

> ,

>

> I don't know if this is a problem with your system,

> your ISP, my ISP or

> groups, but I got this same message from the

> list no less than 10

> times!

>

> Jim Fox-

> Sun Valley, CA

> (just above Burbank Airport)

>

> wrote:

>

> > --- david__001 <david__001@...> wrote:

> > > Hi.

> > >

> > > After initial investigations into acquiring a

> power

> > > rack/cage (for big

> > > squats, b-presses, chins, and dips with a little

> > > ingenuity) I have stumbled

> > > upon a lack of availability in my country.

> >

> > [snip]...

> >

> > >yet I cannot

> > > seem to find a decent UK

> > > distributor. This leaves me with the solution

> of

> > > global or European

> > > shipping.

> > [snip]...

> >

> > >In

> > > other words, what I'm

> > > trying to say is, shipping and costs are also

> very

> > > important to me.

> > >

> > > If anyone has any ideas on my problem I'd

> appreciate

> > > it!

> > >

> > > Hutton.

> > > Scotland (UK).

> >

> > Mark Reifkind suggested Louie ' stuff,

> which is

> > a great suggestion if you can get it in the UK

> without

> > prohibitive shipping expenses.

> >

> > Not from personal experience, but from ads, I

> would

> > think it's worth looking into:

> >

> > Gym Equipment, Unit 8, Washington Road,

> West

> > Wiltshire Trading Estate, Westbury, Wiltshire BA13

> 4JP

> > (you an write for a free brochure, or call:

> tel/fax

> > 01373 859617 ; mobile 0976752585, or email

> > simon.watson1@...

> >

> > Also, possibly Pullum Sports, 45 New Bedford Road,

> > Luton LU1 1SE tel 01582 481174, email

> > steve@..., site is at

> > www.pullumsports.com

> >

> > I want to also suggest trying Scorpion Gym Equip,

> but

> > I don't have contact info at the moment....

> >

> > Hope that helps.

> >

> > Best,

> >

> >

> > Los Angeles, CA

>

>

>

__________________________________________________

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  • 7 months later...

I am O+. I had such a bad case of Candida (from all the antibiotics had

taken as a teenager). I don't know if you know about Candida, it can make

you ill with whatever you may be susceptible to at the time: so it can make

you ill with arthritis, or anything - if that is your weakness.

So basically I nearly died from morning sickness. One day I threw up for 9

hours straight - I was so tuggered out I couldn't even lift my little

finger.

Another day I threw up so much I couldn't breath for some time.

Moral of the story: make sure you don't have Candida from anti-biotics when

falling pregnant!

Well it was good that this made me discover Naturopathy and healthy living.

I was able to raise a pure bodied child who is extremely strong and healthy.

JK

's post

>They made me very ill so that I nearly died while I was pregnant.

, if you don't mind, I was wondering what happened? (Also,

I've forgotten, are you O+ or 0-?

Thanks,

C.B.

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JK,

Yup..when I was younger I had terrible time with

spermacides, penicillin, and sulfide medications. It

seems like anything would flare up a case of Candida.

I found a little cure that worked wonders, it is

called Lactinex....and basically has active bacteria

in it, that you would find in yogurt, chew 4 tablets 3

times a day and within 24 hrs the Candida would

disapper, it was almost like magic, even better it was

TOC and not prescription.

Dawn

--- Kalab <jk@...> wrote:

>

> I am O+. I had such a bad case of Candida (from all

> the antibiotics had

> taken as a teenager). I don't know if you know

> about Candida, it can make

> you ill with whatever you may be susceptible to at

> the time: so it can make

> you ill with arthritis, or anything - if that is

> your weakness.

>

> So basically I nearly died from morning sickness.

> One day I threw up for 9

> hours straight - I was so tuggered out I couldn't

> even lift my little

> finger.

>

> Another day I threw up so much I couldn't breath for

> some time.

>

> Moral of the story: make sure you don't have Candida

> from anti-biotics when

> falling pregnant!

>

> Well it was good that this made me discover

> Naturopathy and healthy living.

> I was able to raise a pure bodied child who is

> extremely strong and healthy.

>

> JK

>

> 's post

>

>

> >They made me very ill so that I nearly died while I

> was pregnant.

>

> , if you don't mind, I was wondering what

> happened? (Also,

> I've forgotten, are you O+ or 0-?

>

> Thanks,

>

> C.B.

>

>

>

>

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Thanks Dawn.

I never have a problem now. That was YEARS ago. I have a few favourite

pro-biotics that are fantastic along with grapefruit seed extract to kill

the baddies. But I haven't needed them at all in a few years and ER has

helped, too. I'm sure others can benefit from your recommendation.

JK

's post

>

>

> >They made me very ill so that I nearly died while I

> was pregnant.

>

> , if you don't mind, I was wondering what

> happened? (Also,

> I've forgotten, are you O+ or 0-?

>

> Thanks,

>

> C.B.

>

>

>

>

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That should be OTC ( over the counter ) *duh*

Dawn

--- Dawn Thorp <shamrockgreen7@...> wrote:

> JK,

>

> Yup..when I was younger I had terrible time with

> spermacides, penicillin, and sulfide medications. It

> seems like anything would flare up a case of

> Candida.

>

> I found a little cure that worked wonders, it is

> called Lactinex....and basically has active bacteria

> in it, that you would find in yogurt, chew 4 tablets

> 3

> times a day and within 24 hrs the Candida would

> disapper, it was almost like magic, even better it

> was

> TOC and not prescription.

>

> Dawn

> --- Kalab <jk@...> wrote:

> >

> > I am O+. I had such a bad case of Candida (from

> all

> > the antibiotics had

> > taken as a teenager). I don't know if you know

> > about Candida, it can make

> > you ill with whatever you may be susceptible to at

> > the time: so it can make

> > you ill with arthritis, or anything - if that is

> > your weakness.

> >

> > So basically I nearly died from morning sickness.

> > One day I threw up for 9

> > hours straight - I was so tuggered out I couldn't

> > even lift my little

> > finger.

> >

> > Another day I threw up so much I couldn't breath

> for

> > some time.

> >

> > Moral of the story: make sure you don't have

> Candida

> > from anti-biotics when

> > falling pregnant!

> >

> > Well it was good that this made me discover

> > Naturopathy and healthy living.

> > I was able to raise a pure bodied child who is

> > extremely strong and healthy.

> >

> > JK

> >

> > 's post

> >

> >

> > >They made me very ill so that I nearly died while

> I

> > was pregnant.

> >

> > , if you don't mind, I was wondering

> what

> > happened? (Also,

> > I've forgotten, are you O+ or 0-?

> >

> > Thanks,

> >

> > C.B.

> >

> >

> >

> >

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  • 6 months later...

Dear ,

I read your post and my heart really goes out to you.

I know exactly how

you feel and, to a certain extent, I still feel the

way you describe.

Also, I know the limitations you face with the HMO

because I'm on an

HMO too.

Recently, it finally got to the point with my doctor

where I felt like I

HAD to make a change - even though it meant switching

to a doctor

who was unknown to me and who was a 40-minute drive

away.

So far, I am glad I made the switch. At least my new

doctor is sincerely

trying to help me and has run three times as many

tests as the old doctor.

I know it's a tough decision to make. My HMO will only

let me change

one time a year. I wish you all the best and HANG IN

THERE! It

really is true that " the darkest hour is just before

the dawn. "

My thoughts and prayers are with you.

Jim

> Hi all,

>

>

> I called my doctor and asked if I could be switched

> from Levoxyl to

> another medication. I didn't talk to him but a

> nurse. I said that I

> was having reactions to it in that I was very moody

> ( flat-out

> depressed now), I had no energy, and am gaining

> weight.

>

> His responce was, " up your Levoxyl to .075 to every

> day except twice

> a week.

>

>

> Okay, what do you think? Should I give him the BOTD

> and see him in

> person or should I just go ahead and switch doctors?

>

>

> Guys, I hate to sound like a whiny thing but I am

> absolutely

> miserable. I don't want to get out of bed in the

> morning, I have no

> energy, FORGET going to the gym and I have to

> " entertain " my 2 year

> old( who also has a party this weekend I've got to

> round up and I'm

> NOT in the mood for this). I give up, I'm flat-out

> depressed. I

> truthfully haven't felt " whole " in 4 months. I hear

> about all these

> people who have switched meds and are doing SO much

> better now and

> I'm wondering if this could be me too. Could I

> actually BE happy and

> have Hashi's- is it possible?

>

> Well, anyway, I need your opinion about this doctor

> thing. My

> husbands wanting me to get a 2nd opinion - NOT

> possible on an HMO SO

> I'm going to just switch.

>

>

> Thanks for listening to my babbling.

>

>

>

>

>

>

________________________________________________________________________

>

________________________________________________________________________

>

> Message: 2

> Date: Fri, 16 Aug 2002 14:37:29 -0400

> From: " Pierce " <karlynn17@...>

> Subject: Re: Need opinions

>

> ,what dosage are you on now? Have you had

> blood work recently?

>

>

>

>

> ----Original Message Follows----

> From: " nabie67 " <nabie67@...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: Need opinions

> Date: Fri, 16 Aug 2002 18:03:45 -0000

>

> Hi all,

>

>

> I called my doctor and asked if I could be switched

> from Levoxyl to

> another medication. I didn't talk to him but a

> nurse. I said that I

> was having reactions to it in that I was very moody

> ( flat-out

> depressed now), I had no energy, and am gaining

> weight.

>

> His responce was, " up your Levoxyl to .075 to every

> day except twice

> a week.

>

>

> Okay, what do you think? Should I give him the BOTD

> and see him in

> person or should I just go ahead and switch doctors?

>

> Guys, I hate to sound like a whiny thing but I am

> absolutely

> miserable. I don't want to get out of bed in the

> morning, I have no

> energy, FORGET going to the gym and I have to

> " entertain " my 2 year

> old( who also has a party this weekend I've got to

> round up and I'm

> NOT in the mood for this). I give up, I'm flat-out

> depressed. I

> truthfully haven't felt " whole " in 4 months. I hear

> about all these

> people who have switched meds and are doing SO much

> better now and

> I'm wondering if this could be me too. Could I

> actually BE happy and

> have Hashi's- is it possible?

>

> Well, anyway, I need your opinion about this doctor

> thing. My

> husbands wanting me to get a 2nd opinion - NOT

> possible on an HMO SO

>

=== message truncated ===

__________________________________________________

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  • 10 months later...
Guest guest

Hi

Did you go on the Prednisone because of the fevers, or were your joints giving

you problems at the time, too?

When my knees were bad-it was sooo weird-I would have pain in one spot on one

day, and then in a different spot the next-both days, bad enough that I was

looking for a cane. The next day I was fine.

The worst pain was my wrists, and fingers, but as I said, the Celebrex seems to

be working.

A big wave to you in Buffalo from St. Catharines, Ontario!

Heidi

Re: no fevers

Hi Heidi,

I know what you mean about feeling like a rookie with this disease. I had

daily fevers for the first 2 and a half months (I was diagnosed in May 2002)

and

then I was finally put on prednisone which lessened the severity and how

often I got them right away. I was only put on 15 mg and now I'm down to

about 6

mg and I'm also on remicade. My fevers have never gone away completely. The

longest I've gone is 2 weeks without one and that was a while ago. I feel

lucky if I can get down to 1 per week. They're usually the worst when I'm

either

weaning off the pred. or if the remicade starts wearing off. But still,

they're nothing like they were in the beginning - usually 103-104.5. So my

fevers

and the pain seemed to have been helped right away by the pred. But after

about 8 months I developed problems with my knees. So sometimes I feel like

I'm

progressing and sometimes I don't. I have been feeling good lately, so I

have to say I'm cautiously optimistic right now. Anyway, I agree too that

I've

read what others have gone through and that maybe I don't have it as bad, but

I

think that's normal. Everyone's different. Well I hope this info. helps.

Take care.

Buffalo, NY

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  • 5 months later...

Hi ,

I am so glad you had fun on your trip. I have always wanted to play laser

tag, but because I was so heavy, I would never participate (now I can't wait for

a chance). Your post was pretty wonderful -- DON'T WORRY ABOUT THE WEIGHT!

You do count from the LOWEST weight, -- no looking backwards. You'll

take off this water weight quickly, you know. Rest and recovery and get the

fluid out of those legs and you will find it makes all the difference.

I know what you mean about your heart going out to the young girl with the

weight problem. It breaks my heart, especially when they are junior high or

high school age -- I know how it feels to be left out and it just makes me want

to cry for them.

I can just imagine the photo of in fishnets and strapless dance hall

outfit (no wonder 's eyes popped out)! Are you going to post the photo?

Congratulations to the kids on doing (and behaving) so well!

Hugs and blessings -- and happy anniversary!

Ann

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Hi ,

I am so glad you had fun on your trip. I have always wanted to play laser

tag, but because I was so heavy, I would never participate (now I can't wait for

a chance). Your post was pretty wonderful -- DON'T WORRY ABOUT THE WEIGHT!

You do count from the LOWEST weight, -- no looking backwards. You'll

take off this water weight quickly, you know. Rest and recovery and get the

fluid out of those legs and you will find it makes all the difference.

I know what you mean about your heart going out to the young girl with the

weight problem. It breaks my heart, especially when they are junior high or

high school age -- I know how it feels to be left out and it just makes me want

to cry for them.

I can just imagine the photo of in fishnets and strapless dance hall

outfit (no wonder 's eyes popped out)! Are you going to post the photo?

Congratulations to the kids on doing (and behaving) so well!

Hugs and blessings -- and happy anniversary!

Ann

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In a message dated 12/6/2003 10:59:05 PM Central Standard Time,

positivelyann@... writes:

> I can just imagine the photo of in fishnets and strapless dance hall

>

> outfit (no wonder 's eyes popped out)! Are you going to post the

> photo?

>

>

I'm gonna scan them sometime this week....i'll have to send you a copy. They

are funny....I have one somewhere we had done about 10 yrs ago....It is so

neat the way the B & W pics make you look better!!

in Bama

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

VBG to RNY revision 1996-Failed

Rny to Ds revision 12/06/02

Down111lbs!!

Thanks to Dr. K!

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In a message dated 12/6/2003 10:59:05 PM Central Standard Time,

positivelyann@... writes:

> I can just imagine the photo of in fishnets and strapless dance hall

>

> outfit (no wonder 's eyes popped out)! Are you going to post the

> photo?

>

>

I'm gonna scan them sometime this week....i'll have to send you a copy. They

are funny....I have one somewhere we had done about 10 yrs ago....It is so

neat the way the B & W pics make you look better!!

in Bama

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

VBG to RNY revision 1996-Failed

Rny to Ds revision 12/06/02

Down111lbs!!

Thanks to Dr. K!

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In a message dated 12/7/2003 12:21:48 AM Pacific Standard Time,

MDL1031@... writes:

> I'm gonna scan them sometime this week....i'll have to send you a copy.

> They

> are funny....I have one somewhere we had done about 10 yrs ago....It is so

> neat the way the B & W pics make you look better!!

I'd love to see them, . I like the way black and white photos do make

you look better, too! I haven't done any black and white for a long time

because processing them costs so much here at the photo shop.

Hugs and blessings, Ann

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  • 4 months later...
Guest guest

Something to consider about the current administration's grant proposal re:

community outreach...

First of all, the concept of a Community Outreach program for LPA was originally

conceived, developed, and implemented by Barbara Brullo Spiegel, before she left

her position as VP of Public Relations.

Matt and his group may have submitted a grant proposal, but it doesn't

necessarily mean they were awarded any funds or got their version of Barbara's

program off the ground.

When they moved to Maine, Barbara and Rick Spiegel got the originally conceived

program off the ground through the Northern New England chapter they founded.

It's easy to be impressed by a grant with lots of fancy language and talk of

stipends for volunteers...however, the Spiegels are making this program happen,

and reaping benefits, here and now.

Rick Spiegel and his team will soon have more information about the Community

Outreach program on www.lpa4people.org. Check it out!

Cara Egan

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  • 2 months later...
Guest guest

typed: " I never really paid attention to the sounds I can't hear but

after reading

's journal, all I can say is " Wow!!! I'm missing all of that??? "

Ahhh, , you just wait! I am amazed with what my CI has given me in just

18 months of being hooked up! It's been one big WOW after another for me!

I can't believe all the things that make noise and I am amazed with this

noisy world of ours and in awe with all the sounds I am hearing that I have

never heard before or haven't heard in a good long time.

Good luck to you on your journey to better hearing! Keep us posted.

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day 1/2/03 (A Happy Day!)

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Guest guest

Hi Patti,

I can't wait!!! I will be having a test done next Tuesday to find out why

the hearing in my left ear is fluctuating. I think it may be due to

eustachian tube problems and/or allergies, but I don't know for sure.

Hopefully the test next week will explain why this is happening.

I'm also a little worried right now because over the past week I've noticed

that my right HA isn't giving me enough amplification even when the volume

is turned all the way up. I've cleaned the ear mold, changed the battery,

checked the tubing -- all to no avail. My CI audi said the hearing in my

right ear dropped significantly since April, but I'm hoping it's not a

continual progression because it's the only ear I have speech discrmination

in.

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Guest guest

Hi !

Good luck with that test next Tuesday! I hope they find out why

your hearing is fluctuating. I was born with profound bi-lateral

sensori hearing loss, which was not diagnosed until I was 6 years

old. I am grateful to have been born into a large and loud

family! ;-) Seasonal allergies have always made my hearing go up

and down until 2002 when I woke up with the bulk of the rest of my

residual hearing gone. I was put on a wait and see what happens.

When my hearing didn't bounce back by the middle of September, it was

my HA audie who encouraged me to go see my current ENT who does

cochlear Implants. It's been quite a journey for me! And one I am

glad I finally took.

In answer to your other question, no, I have not put together a

journal...yet. I did mean to do a journal; but I just never got

around to it. I do have all my emails that highlight my journey

and my CI Moments so it's just a matter of putting everything in

order and typing it all up or just bounding them together.

Good luck to you, !

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day 1/2/03 (A Happy Day!)

> Hi Patti,

>

> I can't wait!!! I will be having a test done next Tuesday to find

out why

> the hearing in my left ear is fluctuating. I think it may be due to

> eustachian tube problems and/or allergies, but I don't know for

sure.

> Hopefully the test next week will explain why this is happening.

>

> >

>

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Guest guest

Patti,

How did your HA audi determine that your progressive hearing loss was caused

by allergies? The reason I ask is because I experience popping in both ears

(worse in my left ear than my right) and I'm also allergic to cigarette

smoke. I've had both of these problems for as long as I can remember and

never thought about how they might contribute to fluctuations in my hearing.

Something else I find interesting is the fact that I always notice changes

in my hearing during the summer and autumn months -- almost never in the

winter.

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Guest guest

Hi !

My progressive hearing loss was not caused by allergies; but rather

seasonal allergies made my hearing fluctuate up and down. Ok? There is a big

difference there. , it really wasn't hard to figure out that my allergies

were affecting what little hearing I did have with an aid. As soon as

hayfever season hit, my ears would clog up thus making everything sound even

more

muffled. My primary care physician confirmed it. My HA audie had nothing to

do with diagnosing the allergies and their relation to my hearing. It was my

primary care physician who told me that my hearing was down (even more for me)

due to the allergies after looking in my ears. It was me who told the

audiologists about having allergies and fluctations during the year whenever I

would

go for my evaluations. I could always count on my hearing being worst from

March-October thanks to hayfever and ragweed seasons. My hearing was pretty

bad to begin with anyway. My hearing loss and vision problems are due to

being born with water on the brain. I have no aidable hearing in my right ear

and I only have one optic nerve so I just count finger stubs with my right eye

if my left eye is covered. For a number of years I did quite well with a

hearing aid in my left ear, with speechreading; of course and I have 20/40

corrected vision in my left eye.

I hope I have answered your question and didn't go on and on too much.

Feel free to ask more questions.

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day 1/2/03 (A Happy Day!)

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Guest guest

In a message dated 7/11/2004 1:42:14 PM Pacific Daylight Time,

lisak70@... writes:

This is one of the things I worry about dealing with

once I'm employed. Hopefully by then, I'll have my CI and most (if not all)

of the mappings I need will be behind me.

I know it is scary to lose medicaid once you are employed, if you are lucky

to be on " ticket to work " program, good news,,, you can KEEP your medicaid,

even if you earn so much, you can " buy " insurance through them on sliding

scale. This is most exciting news I heard when I recieved my " ticket to work " .

Lee

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Guest guest

Hi Patti,

Okay, now I understand. <smile> Thanks for the clarification! I've never

been tested for allergies. In the past when I've told my doctor about the

popping sensation I have in both ears, he said it was a normal part of

sensorineural hearing loss. I'm going to discuss this with my CI audi to see

what she thinks about my taking Claritin and/or Flonase before my hearing

and speech tests in August. I do notice that if I plug my nose and blow,

everything sounds louder until the next time I swallow. I hope my CI audi

can figure out why this is happening because it so very confusing to say the

least.

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,

I take Claritin and still get the intermitten popping sound in my HA ear.

Re: Re: 's Post

> Hi Patti,

>

> Okay, now I understand. <smile> Thanks for the clarification! I've never

> been tested for allergies. In the past when I've told my doctor about the

> popping sensation I have in both ears, he said it was a normal part of

> sensorineural hearing loss. I'm going to discuss this with my CI audi to

see

> what she thinks about my taking Claritin and/or Flonase before my hearing

> and speech tests in August. I do notice that if I plug my nose and blow,

> everything sounds louder until the next time I swallow. I hope my CI audi

> can figure out why this is happening because it so very confusing to say

the

> least.

>

>

>

>

>

>

>

>

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Guest guest

Hi !

I used to get scolded for plugging my nose and blowing hard. It

sure did bring some louder sounds in briefly. I'm sorry if my

earlier post confused you. , I grew up in a loving family on a

very tight budget. I went to a city hosptital clinic for all my

hearing evaluations. I was lucky to get the same audie 4 years in a

row. But, always saw a different ENT as they were all Residents so

they moved on. Growing up, I didn't get very many answers about my

hearing loss and why it was progressing. The thing that botherd me

when I was in my teens was the distortion. No one could tell me why

it was getting worse. As for the hearing go up and down, that was

easy, in my case anyway, because it went down everytime I was

congested so everytime I had allergy symtoms or a cold it would go

way down and come back afterwards. I am currently on Flonase and so

far it's the best allergy medicine I have ever taken! But, now that

I have the CI, my hearing does not fluctuate. But, it's still a

mystery about what happened to me in 2002 that caused the bulk of the

rest of my aidable hearing to go and for my eye pressure to rise

enough for me to be diagnosed with Glaucoma. Sometimes there are no

answers. Things just happen.

Good luck to you, !

Patti

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Thanks, Patti! <smile>

I'm sure I'll feel much better once I get the test results back next week.

I'm also looking forward to the hearing and speech tests next month so that

I can find out whether or not my hearing has stabilized in both ears.

I agree...it's really difficult when no one can tell you why you're losing

your hearing. I found out a few years ago that my hearing loss was caused by

low birth weight and retinopathy of prematurity (ROP). I was diagnosed with

a mild hearing loss at age 3. Ear specialists recommended ear surgery or

hearing aids, but my parent's health isurance did not cover either one. When

I was 7, hearing aids were once again recommended, but my parent's health

insurance wouldn't pay. My parents tried applying for Medicaid but made too

much money to quality. By the time I was 16, I received my first pair of

hearing aids. By then, my hearing loss had progressed into the the

moderate/moderately severe range.

Once I turned 18 and started to receive social security disability for my

blindness, I was lucky enough to have annual visits with an audiologist and

ENT. I'm so thankful for this because I know how difficult it can be to work

with private insurance. This is one of the things I worry about dealing with

once I'm employed. Hopefully by then, I'll have my CI and most (if not all)

of the mappings I need will be behind me.

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