Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Lee, Would you mind writing me privately to explain " ticket to work " ? How do you sign up for the program? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Awww, , you are very welcome! I really didn't do anything though. I just shared my experiences with you. This is what this forum is all about.....sharing ideas and experiences with others and supporting others. I was really happy to get to know you better via your posts. I am looking forward to following your journey out of muffleness. Again, good luck on Tuesday! Oh, I forgot to tell you that it wasn't until my CI Candidacy appointment that I found out that I actually was born with Goldenhaar Syndrome. My CI ENT took one look at me and said, to my Dad, " Did anyone ever mention Goldenhaar Syndrome to you people? " After it was written down for me, and we both said no, he said that that's what I was born with. He said, I have all the hallmarks of it except for deformed ears. I couldn't believe it as he recited the hallmarks and I had it. It was amazing to discover after 39 years why I am the way I am. It does'nt change anything for me; but it explained why I am much different than my siblings. I will list the hallmarks to satisfy any curiosities out there: Uneven skeletal structure, hearing loss, vision loss, water on the brain, dental problems, high cleft palate and deformed ears. There may be some more but I am not sure. I really haven't done much research into Goldenhaar Syndrome so can't discuss any further. Anyway, it was like a big relief to finally know what caused me to be the way I am. Good luck to you! Patti Surgery Day 11/25/02 (What A Day!) Hook Up Day 1/2/03 (A Happy Day!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 , Have you noticed any kind of improvement in your hearing after taking Claritin? Someone on another list told me that they gained up to 10 dB of hearing after they started taking it. I've been thinking about taking Claritin to see what happens in my case, but I may hold off until after all of my tests just in case my CI audi is trying to rule out eustachian tube problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 , My hearing in the HA ear has both fluctuated up and down and slowly deteriorated despite the Claritin. Re: Re: 's Post > , > > Have you noticed any kind of improvement in your hearing after taking > Claritin? Someone on another list told me that they gained up to 10 dB of > hearing after they started taking it. I've been thinking about taking > Claritin to see what happens in my case, but I may hold off until after all > of my tests just in case my CI audi is trying to rule out eustachian tube > problems. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 , I'm hoping that my hearing will remain stable between now and the time I have my hearing and speech discrimination tests in August. I think I'll leave well enough alone because I don't want to cause the potential for any further complications. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 After re-reading my reply to you, I would like to add this cautionary advice. An endoscopy will look inside your esophagus and stomach for surface changes, i.e ulcers etc. Perhaps he is looking for an additional cause of the swelling. You would think that can be determined by the ugi without this additional expense but I don't know what your surgeon may be suspecting. What I would be concerned about is being on a cruise and being too tight. The excitment of a cruise, weather changes, hormones, can cause additional swelling. Personally, I would reread Sandy's post and think about this. Good luck, joanne in seattle. Like Sandy I am an RN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Thanks Deborah. I too am glad that i am not to have any more major surgery as yet but i will try anything just so long as it helps my reflux. I next see the Consultant in 6 months time for a review but in the meantime i shall try the Nexium. from the UK ________________________________ From: Deborah Lattimore <deborah_Lattimore@...> achalasia Sent: Wed, October 13, 2010 9:38:34 AM Subject: 's post  Hi, ,          I'm relieved to hear that you can try out Nexium and see how it goes, AS it goes. I have been on Omeprazole every day for several years now and just recently I've begun to take it at night, too. I think I've got my GURD under control now. We'll see.          I think Nexium is a good medication. I hope it helps you absolutely. I have been reading your posts with interest and I really feel better than you can wait a bit before a major surgery.         Best wishes,               Deborah, at the beach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 , I am thrilled to hear that you are doing so well. It is a testament to your amazing spirit and brain. I think of you often and thank you for all that you gave to us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 is a beacon of light in our lives and he is so loved by all of us. Thank you for being you . Pattie > From: suzeul <susan.ulintz@...> > Subject: [ ] 's Post > > Date: Thursday, October 21, 2010, 6:41 AM > , > I am thrilled to hear that you are doing so well. > It is a testament to your amazing spirit and brain. I think > of you often and thank you for all that you gave to us. > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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