Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 PET scan is not 100% accurate in deciding if you are cancer free. That is why blood work is necessary to further confirm it. Other cancer markers tests should include the following: AMAS HCG CEA PHI You should speak with your doctor to decide what tests are needed. If your doctor does not know, find one who can help you. Most doctors who deal with cancer treatments know what tests are needed for their patients. Jim K In a message dated 1/4/2009 12:45:39 P.M. Eastern Standard Time, jim.mcelroy10@... writes: The problem is, nobody here can really advise you on what to do, without breaking the law (I believe). The medical view at this point is that there may still be cancer cells floating around undetectable by the PET scan, and that more chemo is warranted to kill those. The alternative view is that there may still be cancer cells floating around, and that although the chemo might kill them, it also might not kill them, while simultaneously weakening your immune system which WOULD be able to kill them otherwise. In my case, I took the chance on the chemo side and lost. My initial CT scans showed no cancer after surgery, but I took chemo just in case. In 6 months, I had the cancer come back, plus the chemo almost killed me half way through, plus I had permanent lifetime physical damage from the chemo. So in my case, the choice is now easy. Chemo won't work for me anymore -- my cancer is now largely immune to it, and alternatives are the only thing I have left. > > Hello all, I recently had a pet scan and my cancer is gone. I took 3 > treatments of chemo, and kept myself alkaline. Of course my doctor > wants me to take more chemo... What do you guys think? I think not. > Why treat something that isn't there? I also have a port in my right > chest, and it is suppose to stay there for 2 years. I don't want > anymore chemo, so couldn't I get that removed? My insurance will only > last 18 months anyway. So I am thinking that I should get it out. > Everyone please let me know your thoughts. Thanks a > **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hello all, I recently had a pet scan and my cancer is gone. I took 3 treatments of chemo, and kept myself alkaline. Of course my doctor wants me to take more chemo... What do you guys think? I think not. Why treat something that isn't there? I also have a port in my right chest, and it is suppose to stay there for 2 years. I don't want anymore chemo, so couldn't I get that removed? My insurance will only last 18 months anyway. So I am thinking that I should get it out. Everyone please let me know your thoughts. Thanks a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 what kind of cancer did you have? Johanne From: brainpause533 Sent: Sunday, January 04, 2009 9:34 AM Subject: [ ] Cancer Free Hello all, I recently had a pet scan and my cancer is gone. I took 3 treatments of chemo, and kept myself alkaline. Of course my doctor wants me to take more chemo... What do you guys think? I think not. Why treat something that isn't there? I also have a port in my right chest, and it is suppose to stay there for 2 years. I don't want anymore chemo, so couldn't I get that removed? My insurance will only last 18 months anyway. So I am thinking that I should get it out. Everyone please let me know your thoughts. Thanks a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 --Hi Johanne, I'm so sorry. I forgot to say what type of Cancer I had. I had Follicular Lymphoma. a " Johanne Wayne " wrote: > > what kind of cancer did you have? > From: brainpause533 > Hello all, I recently had a pet scan and my cancer is gone. I took 3 > treatments of chemo, and kept myself alkaline. Of course my doctor > wants me to take more chemo... What do you guys think? I think not. > Why treat something that isn't there? I also have a port in my right > chest, and it is suppose to stay there for 2 years. I don't want > anymore chemo, so couldn't I get that removed? My insurance will only > last 18 months anyway. So I am thinking that I should get it out. > Everyone please let me know your thoughts. Thanks a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 --- Thanks Arlyn, I forgot to say what type of cancer I had. I had Follicular Lymphoma (Non-Hodgkins) Grade 3. I'm sure my oncologist will recommend further Chemo. But it makes me feel so bad. And it also keeps my immune system down. So I am not sure what I will do. Thanks again a " Arlyn Grant " <arlynsg@...> wrote: Hi a, I'm certainly not qualified to answer your questions. Please talk to your oncologist about this. The chemo is not just to treat the cancer you can see, but to treat the cancer you can't see. In other words, there may be minute cancer cells in your body that the chemo is supposed to kill. Perhaps it is like antibiotics. You have to take the full course of antibiotics in order to make sure the bug doesn't come back. If you stop too soon, the bug comes back and perhaps even stronger. I don't know if this applies to cancer or not, but it is just an analogy. > The decisions are yours to make. Just make sure to get qualified > opinions while making your decision. > ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi Can you define the time when you might consider it stopping when it's the right time as oppose to stopping too soon? How long should one remain on chemo after a PET shows no cancer? An Oncologists opinion would be extremely conservative. Thanks dan From: Arlyn Grant ....The chemo is not just to treat the cancer you can see, but to treat the cancer you can't see. In other words, there may be minute cancer cells in your body that the chemo is supposed to kill....If you stop too soon, the bug comes back and perhaps even stronger.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi Dan, I sure wish I knew. I didn't have chemo, so my knowledge is purely based on what I've heard/read others say. Hopefully, one of the health care practitioners that frequent this group will be able to shed some light. ar > > Hi > > Can you define the time when you might consider it stopping when it's the right time as oppose to stopping too soon? How long should one remain on chemo after a PET shows no cancer? An Oncologists opinion would be extremely conservative. > > Thanks > dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi a! I am so excited that your Pet scan is showing you good news..........for now.... Your job is to learn as you can to keep it that way. Jim here (and many of us) have learned and learned and share liberally with each other what we find.....It is a great group! I can tell you that there is more than keeping your body alkaline although it is a great start! If you are sharing with us that you are sick of chemo and want nothing to do with it, then we all will support you. Some of us had it and almost died, some of us toughed it out without it. That's not easy either..... Just glean from all the wonderful people here. I have been here since 1993 and am free of brain, breast, cervical, skin and ovarian cancer.....and I am only 43 years old! I fought the worst battle in my late 20s.... Bless you a! Johanne From: brainpause533 Sent: Sunday, January 04, 2009 11:47 AM Subject: [ ] Re: Cancer Free --Hi Johanne, I'm so sorry. I forgot to say what type of Cancer I had. I had Follicular Lymphoma. a " Johanne Wayne " wrote: > > what kind of cancer did you have? > From: brainpause533 > Hello all, I recently had a pet scan and my cancer is gone. I took 3 > treatments of chemo, and kept myself alkaline. Of course my doctor > wants me to take more chemo... What do you guys think? I think not. > Why treat something that isn't there? I also have a port in my right > chest, and it is suppose to stay there for 2 years. I don't want > anymore chemo, so couldn't I get that removed? My insurance will only > last 18 months anyway. So I am thinking that I should get it out. > Everyone please let me know your thoughts. Thanks a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hello Group, I have had chemo too and a clear PET scan in the spring, but it seems to be coming back in my bones. I haven't had another PET scan. Told the doctor I didn't want another one for several months. The reason cancer comes back after chemo is because it doesn't KILL the cancer STEM cells. They basically hide in your body and come out later when it's " safe " . I have talked to my onco about this and he agrees with me. There is some talk about cancer stem cells on the internet and they are beginning to come to that conclusion. People who get chemo in the early stage of cancer when it hasn't spread can sometimes knock it out - but if it's stage IV it is difficult to get rid of all of it. That is why it's so important to do alot of natural things to keep it at bay as best you can. I also believe that God has His hand in healing people, because we have all heard of people who are in a late stage of cancer that have been cured. If anyone has an opinion on my opinion please feel free to share. from Seattle, Wa > > Hello all, I recently had a pet scan and my cancer is gone. I took 3 > treatments of chemo, and kept myself alkaline. Of course my doctor > wants me to take more chemo... What do you guys think? I think not. > Why treat something that isn't there? I also have a port in my right > chest, and it is suppose to stay there for 2 years. I don't want > anymore chemo, so couldn't I get that removed? My insurance will only > last 18 months anyway. So I am thinking that I should get it out. > Everyone please let me know your thoughts. Thanks a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 a, I would certainly continue on with the Standard of treatment they recommend, they have valid reasons why they have a certain duration of treatment. You don't know if you have cancer cells still lurking about, no one does but there is a high chance you have, especially if it's Follicular. I have Follicular grade 1 stage 4 I was SO opposed to chemo that I ended up having association problems with things, its not something I did lightly, but my choice was either death or death and I didn't have time on my hands to play around, my lymph nodes were growing so fast and had gone into my bones, by time I did do something. My type of lymphoma is incurable as it is not like normal cancer cells, they do not rapidly divide, they are lazy (Indolent), my cells have a protein (BCL2) that allows the cells to live longer than they should, chemo was designed to work against rapidly dividing cells. So my ideal treatment was supposed to be 6 rounds of RCHOP given every 14 days, this is a quite aggressive approach, the reason it was every 14 days is because they found that given any later, gave the lymphoma cells the chance to become resistant to the chemo, it also gave me a better chance of hearing I have NO EVIDENCE OF DISEASE. Many have clean scans at the 4th round but continue on to eliminate any more cells that could be lurking about, if they don't get every last cell then it is FATED to come back. That is why mine is incurable as it is impossible to get every last cell. And my scans can show clean and can still have active disease as again you need rapidly dividing cells to suck up the tracer, I have to stave myself of all carbs for 24hrs to get the best chance of it showing up. The more aggressive Lymphomas can be cured by Chemotherapy, but Follicular indolent types have no chance, we can only hope for a long time without symptoms of disease. All the best a Taken from a web site... Follicular lymphoma This is the most common of the indolent lymphomas and accounts for about 70% of them, and about 22% of all lymphomas in North America and Europe. At the bottom of this page is an explanation of where the name follicular comes from and what it looks like under the microscope. Follicular lymphoma is divided into 3 grades. Grade 1, 2 or 3. However Grade 3 is somewhat blurry because it can appear to the the indolent form of follicular lymphoma or it can appear to be the more aggressive form. The grade refers to the number of large cells that appear under the microscope. Large cells tend to behave a bit more aggressively than small cells. Although more large cells appear in Grade 2, it is for all intents and purposes considered the same as Grade 1 from a prognosis and treatment point of view. See more information below about grade 3 follicular. If you are confused about the difference between grade and stage you are not alone. Here are links to the two definitions. Check out this informative web site .. http://www.nhlcyberfamily.org/types/follicular.htm Join this group and find out what they recommend with stopping treatment. nhl/ Again I Hope this helps a :0) > > Hello all, I recently had a pet scan and my cancer is gone. I took 3 > treatments of chemo, and kept myself alkaline. Of course my doctor > wants me to take more chemo... What do you guys think? I think not. > Why treat something that isn't there? I also have a port in my right > chest, and it is suppose to stay there for 2 years. I don't want > anymore chemo, so couldn't I get that removed? My insurance will only > last 18 months anyway. So I am thinking that I should get it out. > Everyone please let me know your thoughts. Thanks a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hi Johanna, I have read so much on cancer that it is almost overwhelming. There are so many diets, and other things I can't afford at this time. I would love to find what diet will work for me. I wanted to get the rave diet book, but have to wait on the funds to buy it. Thanks for your words of encouragement. Sounds like you have been through heck with cancer. I am glad to hear that you beat it. Did you do chemo? Thanks much. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Never did chemo or radiation although they pushed hard.... My husband and I interviewed many people with the different conditions (brain, cervical, breast, melanoma and ovarian) but everyone had a huge drop in their quality of life. I succumbed to surgery for the ovary but that was it and they froze me to get the breast tumor out (I was 9 months pregnant with our fourth at the time). There were times where I wanted the gamma knife but my husband kept telling me that we would find a better way. I was so angry with him for saying this. I could not figure out how this was possible. Anyway, here we are 14.5 years later and my body is whole and I was able to be all I can be for our children....they are now mid-late teen years and we have homeschooled them from the beginning. This made it ideal for my healing. Besides sports teams (snacks etc.) I did not have much peer pressure for the foods we ate. The children know everything I do and appropriate much of it for themselves. If they can do it, then everyone can. Hang in there a. There are many of us that find healing around the world. We just don't all live on the same street. And really, what is healing? Nobody can say they have no cancer cells right? Some of us have figured out a way to boost that immune system enough to keep those cancer cells at bay.....it takes lots of work and unfortunately some money. (Something we did not have all the time). Please keep sharing.......we are there for you! Johanne From: brainpause533 Sent: Wednesday, January 07, 2009 2:32 PM Subject: [ ] Re: Cancer Free Hi Johanna, I have read so much on cancer that it is almost overwhelming. There are so many diets, and other things I can't afford at this time. I would love to find what diet will work for me. I wanted to get the rave diet book, but have to wait on the funds to buy it. Thanks for your words of encouragement. Sounds like you have been through heck with cancer. I am glad to hear that you beat it. Did you do chemo? Thanks much. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 In a message dated 1/7/09 4:48:01 PM Eastern Standard Time, brainpause533@... writes: > There are so many diets, and other things I can't afford > at this time. There is a place in Manhattan, Alternative Cancer Therapies run by a woman named Ruth Sackman. It's free..or a donation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Please advise the contact information on Ruth Sackman (address, phone number or website, etc). Jim In a message dated 2/10/2009 10:02:31 P.M. Eastern Standard Time, szukipoo@... writes: In a message dated 1/7/09 4:48:01 PM Eastern Standard Time, _brainpause533@brainpaus_ (mailto:brainpause533@...) writes: > There are so many diets, and other things I can't afford > at this time. There is a place in Manhattan, Alternative Cancer Therapies run by a woman named Ruth Sackman. It's free..or a donation. **************The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there. (http://music.aol.com/grammys?ncid=emlcntusmusi00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hi Jim, You didn't put in a website. I appreciate your letting me know about this. But I can't get in touch with Ruth without any idea of how. a > > Please advise the contact information on Ruth Sackman (address, phone number or website, etc). > Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 http://www.whale.to/cancer/fact.html On Wed, Feb 11, 2009 at 9:18 AM, brainpause533 <brainpause533@...>wrote: > Hi Jim, You didn't put in a website. I appreciate your letting me know > about this. But I can't get in touch with Ruth without any idea of how. > a > > > > > > > Please advise the contact information on Ruth Sackman (address, > phone number or website, etc). > > Jim > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 http://www.fact-ltd.org/ On Wed, Feb 11, 2009 at 12:31 PM, Dana Herbert <danaherbert@...>wrote: > http://www.whale.to/cancer/fact.html > > > > > On Wed, Feb 11, 2009 at 9:18 AM, brainpause533 <brainpause533@...>wrote: > >> Hi Jim, You didn't put in a website. I appreciate your letting me know >> about this. But I can't get in touch with Ruth without any idea of how. >> a >> >> >> >> > >> > Please advise the contact information on Ruth Sackman (address, >> phone number or website, etc). >> > Jim >> > >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Her two case studies are spot on. You can all do this yourselves. They also claim that small amounts of animal-based proteins and raw milk are okay. Power to the people. On Wed, Feb 11, 2009 at 12:32 PM, Dana Herbert <danaherbert@...>wrote: > http://www.fact-ltd.org/ > > > On Wed, Feb 11, 2009 at 12:31 PM, Dana Herbert <danaherbert@...>wrote: > >> http://www.whale.to/cancer/fact.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Here is her web page. http://www.fact-ltd.org/ She is a woman in her 90s. She is very knowledgable. I talked to her on the phone a few years ago. > > Please advise the contact information on Ruth Sackman (address, phone number > or website, etc). > Jim > > > In a message dated 2/10/2009 10:02:31 P.M. Eastern Standard Time, > szukipoo@... writes: > > > > > In a message dated 1/7/09 4:48:01 PM Eastern Standard Time, > _brainpause533@brainpaus_ (mailto:brainpause533@...) writes: > > > There are so many diets, and other things I can't afford > > at this time. > > There is a place in Manhattan, Alternative Cancer Therapies run by a woman > named Ruth Sackman. It's free..or a donation. > > > > > > **************The year's hottest artists on the red carpet at the Grammy > Awards. AOL Music takes you there. > (http://music.aol.com/grammys?ncid=emlcntusmusi00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Can you tell us how much of cell salts do you take and where to buy it and your other herb supplements. thanks. Jim In a message dated 1/2/2011 7:00:27 P.M. Eastern Standard Time, home892002@... writes: Hello everyone, New to this group and would like to share my experience. Some years ago, was diagnosed with " rapid growing tumor in the upper left quadrant " . Weight had fallen to less than 90 lbs. Extreme pain, no energy, no ability to function. Doctor said basically, no hope, too far advanced. Saw three different doctors, same prognosis. Chose no surgery, didn't want to die in a hospital. No drugs also. Went home and put my faith in herbs to clean the blood, and the cell salts that are for cancer. Cell salts were new to me then. Cell Salts: Calcium Fluoride 6x Calcium Phosphate 6x Kali Phosphate 6x Kali Sulphate 6x Silicea 6x Herbs: Red Clover Chickweed Burdock And some strong B+C vitamins. There are many other blood cleaning herbs, these are the ones I used. Cancer was in the lymph. First day, the pain got less. Within two weeks, I knew I was healing. I use cell salts for everything that goes wrong. Along with herbs. I also deny any illness that might be coming on, been saying for so many years that I never get sick, that I never get sick. Mind is most important in healing. What a person thinks, matters. I couldn't find any reference to cell salts on this site, so offering the information that I have. Have experimented with cell salts and herbs for everything that anyone will allow. Must add, always use extreme caution when using medicinal herbs, especially if you take any prescription or OTC drugs. The mix can be bad, always check for interactions. There is no danger of interactions with cell salts. If we put all our information together, I think there is nothing that cannot be healed. Will be reading your site often. Thank you. With Gratitude, Suzann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 My husband has stage iv melanoma. Do u You think these cell salts may help? Sent from my iPhone Aileen Quote Link to comment Share on other sites More sharing options...
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