Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Alison, Who applied for your short term disability? Dana Rose > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > I am brand new to the group and fairly new to Lexapro. I > > have > > > > been > > > > > > taking it for about 8 weeks now (10mg) for anxiety. I was > > > > > wondering > > > > > > if those of you who have been using it for awhile ever have > > > > > > > > recurrances of your symptoms? It seemed to immediately help > > > > my > > > > > > > > > > anxiety within a few days of starting the medication. > > However, > > > > > > > > > > Monday I had a " spell " of my anxiety reappear...it was also > > > > > > after > > > > > > being told about an upcoming stressful event at work. Does > > > > > > anyone > > > > > > have any similar experience with Lexapro of symptoms coming > > > > back > > > > > > > > > > after being " cured " for several weeks? > > > > > > > > > > > > Thanks in advance. I appreciate all the great info I've > > already > > > > > > > > > > found here in your group!! > > > > > > Larissa > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 I am sorry to hear that you couldn't get Voc Rehab (((hugs))). But keep trying Alison, I mean keep trying with Voc Rehab. Dana Rose > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > I am brand new to the group and fairly new to Lexapro. I > > > > > have > > > > > been > > > > > > > taking it for about 8 weeks now (10mg) for anxiety. I was > > > > > > > > wondering > > > > > > > if those of you who have been using it for awhile ever > > have > > > > > > > > > > recurrances of your symptoms? It seemed to immediately > > help > > > > > > my > > > > > > > > > > > > anxiety within a few days of starting the medication. > > > However, > > > > > > > > > > > > Monday I had a " spell " of my anxiety reappear...it was > > also > > > > > > > > after > > > > > > > being told about an upcoming stressful event at work. > > Does > > > > > > > > anyone > > > > > > > have any similar experience with Lexapro of symptoms > > coming > > > > > > back > > > > > > > > > > > > after being " cured " for several weeks? > > > > > > > > > > > > > > Thanks in advance. I appreciate all the great info I've > > > already > > > > > > > > > > > > found here in your group!! > > > > > > > Larissa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Dana ..I did but the social worker where I get my meds looked over the application 1st. then the dr filled out her part. The thing is they are more confused at this clinic than I am. I the good news is I think I got it figured out this morning . I called both disability and UI. ( took 3 hours) They have to shut down unemployment claim...do a determination interview and then I have to appeal disability. All this will take about a month. so I asked them on the phone what do I do for a month with no income I only have 20 bucks in the bank.. they had no answer. THANK goodness my parents are letting me borrow some money for the bills . I just hope that all of this works out in the end and I do not wind up with nothing a month from now. what are you doing about your situation ..you are appealing the determination right? this sort of stuff sends me through the anxiety roof. thanks for your caring. alison On Mon, 29 Nov 2004 21:43:10 -0000 " danarose1950 " <danarose1950@...> writes: > > > Alison, > > Who applied for your short term disability? > > Dana Rose > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > I am brand new to the group and fairly new to Lexapro. > I > > > have > > > > > been > > > > > > > taking it for about 8 weeks now (10mg) for anxiety. I > was > > > > > > wondering > > > > > > > if those of you who have been using it for awhile ever > have > > > > > > > > > > recurrances of your symptoms? It seemed to immediately > > help > > > > > > my > > > > > > > > > > > > anxiety within a few days of starting the medication. > > > However, > > > > > > > > > > > > Monday I had a " spell " of my anxiety reappear...it was > also > > > > > > > > after > > > > > > > being told about an upcoming stressful event at work. > Does > > > > > > > > anyone > > > > > > > have any similar experience with Lexapro of symptoms > coming > > > > > > back > > > > > > > > > > > > after being " cured " for several weeks? > > > > > > > > > > > > > > Thanks in advance. I appreciate all the great info I've > > > > already > > > > > > > > > > > > found here in your group!! > > > > > > > Larissa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Sounds like you are on the right track Alison !!! Hurrah for you !!!! Remember that obsessing over the future is good to a degree, Remember that living in the present moment is where your power is, Remember that you have no control over your past nor your future only over your present moment. Dana Rose > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > I am brand new to the group and fairly new to Lexapro. > > I > > > > have > > > > > > been > > > > > > > > taking it for about 8 weeks now (10mg) for anxiety. I > > was > > > > > > > wondering > > > > > > > > if those of you who have been using it for awhile ever > > have > > > > > > > > > > > > recurrances of your symptoms? It seemed to immediately > > > > help > > > > > > > > my > > > > > > > > > > > > > > anxiety within a few days of starting the medication. > > > > However, > > > > > > > > > > > > > > Monday I had a " spell " of my anxiety reappear...it was > > also > > > > > > > > > > after > > > > > > > > being told about an upcoming stressful event at work. > > Does > > > > > > > > > > anyone > > > > > > > > have any similar experience with Lexapro of symptoms > > coming > > > > > > > > back > > > > > > > > > > > > > > after being " cured " for several weeks? > > > > > > > > > > > > > > > > Thanks in advance. I appreciate all the great info I've > > > > > > already > > > > > > > > > > > > > > found here in your group!! > > > > > > > > Larissa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 I am writing that one down ...alison On Mon, 29 Nov 2004 22:46:22 -0000 " danarose1950 " <danarose1950@...> writes: > > > Sounds like you are on the right track Alison !!! Hurrah for you > !!!! > > Remember that obsessing over the future is good to a degree, > Remember that living in the present moment is where your power is, > Remember that you have no control over your past nor your future > only > over your present moment. > > Dana Rose > > > > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > > > I am brand new to the group and fairly new to > Lexapro. > > > I > > > > > have > > > > > > > been > > > > > > > > > taking it for about 8 weeks now (10mg) for anxiety. > > I > > > was > > > > > > > > wondering > > > > > > > > > if those of you who have been using it for awhile > ever > > > have > > > > > > > > > > > > > > recurrances of your symptoms? It seemed to > immediately > > > > > > help > > > > > > > > > > my > > > > > > > > > > > > > > > > anxiety within a few days of starting the > medication. > > > > > However, > > > > > > > > > > > > > > > > Monday I had a " spell " of my anxiety reappear...it > was > > > also > > > > > > > > > > > > after > > > > > > > > > being told about an upcoming stressful event at > work. > > > Does > > > > > > > > > > > > anyone > > > > > > > > > have any similar experience with Lexapro of symptoms > > > > coming > > > > > > > > > > back > > > > > > > > > > > > > > > > after being " cured " for several weeks? > > > > > > > > > > > > > > > > > > Thanks in advance. I appreciate all the great info > > I've > > > > > > > > already > > > > > > > > > > > > > > > > found here in your group!! > > > > > > > > > Larissa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Wow Anne, I do not know what to say... I could not live in any of those places you have described... I have lived 250 meters from a telephone tower, I could not stand it, it was draining, my digestion was really perturbed, I got sick right after one week of living there. I moved as soon as I could. I have lived 750 meters from a major electrical tower, I could still feel the vibe, it was not draining yet it was irritating, it dried my face's skin and I could not focus on my school homework. I have lived in a home with a minor electrical wiring feeding six other homes passing right on its kitchen, the vibe from it would irritate me and make me uneasy. I wonder? don't these people feel any symptoms? digestion problems? problems with mental work? unability to focus? unability to do spiritual work as concentration or meditation? mood swings? fatigue? behavior issues? Flavio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Don't know about symptoms as the ones near radio towers just moved in Dec and the ones near the elec transformers are moving into the house June or July. Do you know the answer to my question on radio waves? - a > Wow Anne, > > I do not know what to say... I could not live in any of those places > you have described... I have lived 250 meters from a telephone > tower, I could not stand it, it was draining, my digestion was > really perturbed, I got sick right after one week of living there. I > moved as soon as I could. I have lived 750 meters from a major > electrical tower, I could still feel the vibe, it was not draining > yet it was irritating, it dried my face's skin and I could not focus > on my school homework. I have lived in a home with a minor > electrical wiring feeding six other homes passing right on its > kitchen, the vibe from it would irritate me and make me uneasy. > > I wonder? don't these people feel any symptoms? digestion problems? > problems with mental work? unability to focus? unability to do > spiritual work as concentration or meditation? mood swings? fatigue? > behavior issues? > > > > Flavio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Hi Anne, > Do you know the answer to my question on radio waves? - You may find the answer to your question in the following book, I have not read it but it is in my wish-to-read list. It is written by a M.D. and a research scientist. You can see the detailed table of contents through Amazon.com (I have nothing to do with Amazon.com). It seems there is info on radio waves. Cross Currents: The Promise of Electromedicine, the Perils of Electropollution by O. Becker Flavio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I had neck fusion ...took about a year tedwright9 <tedwright@...> wrote: Hi All, Just joined this group. I had fusion surgery (lumbar)in December and I am still in pain, the nerve pain is gone (thank God), so it is just pain from the operation. I know it will take a while, but if all goes well, any idea how long will this go on? In other words, how long (generally) does a fusion take to heal. I know that some folks are in pain for life and I really hope I don't wind up in that group although I know it is a possibility. Any thoughts would be appreciated. Thanks, Ted Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I had neck fusion ...took about a year tedwright9 <tedwright@...> wrote: Hi All, Just joined this group. I had fusion surgery (lumbar)in December and I am still in pain, the nerve pain is gone (thank God), so it is just pain from the operation. I know it will take a while, but if all goes well, any idea how long will this go on? In other words, how long (generally) does a fusion take to heal. I know that some folks are in pain for life and I really hope I don't wind up in that group although I know it is a possibility. Any thoughts would be appreciated. Thanks, Ted Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I had neck fusion ...took about a year tedwright9 <tedwright@...> wrote: Hi All, Just joined this group. I had fusion surgery (lumbar)in December and I am still in pain, the nerve pain is gone (thank God), so it is just pain from the operation. I know it will take a while, but if all goes well, any idea how long will this go on? In other words, how long (generally) does a fusion take to heal. I know that some folks are in pain for life and I really hope I don't wind up in that group although I know it is a possibility. Any thoughts would be appreciated. Thanks, Ted Brings words and photos together (easily) with PhotoMail - it's free and works with . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi Ted, I had ADR (Artificial Disc Replacement) surgery July of 2005. I am still healing and still in pain. I understood that, like a fusion, ADR can take up to a year for it to be set and pain to be considerably less. Even though they are 2 different things they are done similar. HTH And welcome to the group. Look forward to getting to know you. Take care, Katrina Group Moderator > Hi All, > > Just joined this group. > > I had fusion surgery (lumbar)in December and I am still in pain, the > nerve pain is gone (thank God), so it is just pain from the operation. > > I know it will take a while, but if all goes well, any idea how long > will this go on? In other words, how long (generally) does a fusion > take to heal. > > I know that some folks are in pain for life and I really hope I don't > wind up in that group although I know it is a possibility. > > Any thoughts would be appreciated. > > Thanks, > > Ted > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi Ted, I had ADR (Artificial Disc Replacement) surgery July of 2005. I am still healing and still in pain. I understood that, like a fusion, ADR can take up to a year for it to be set and pain to be considerably less. Even though they are 2 different things they are done similar. HTH And welcome to the group. Look forward to getting to know you. Take care, Katrina Group Moderator > Hi All, > > Just joined this group. > > I had fusion surgery (lumbar)in December and I am still in pain, the > nerve pain is gone (thank God), so it is just pain from the operation. > > I know it will take a while, but if all goes well, any idea how long > will this go on? In other words, how long (generally) does a fusion > take to heal. > > I know that some folks are in pain for life and I really hope I don't > wind up in that group although I know it is a possibility. > > Any thoughts would be appreciated. > > Thanks, > > Ted > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi Ted, I had ADR (Artificial Disc Replacement) surgery July of 2005. I am still healing and still in pain. I understood that, like a fusion, ADR can take up to a year for it to be set and pain to be considerably less. Even though they are 2 different things they are done similar. HTH And welcome to the group. Look forward to getting to know you. Take care, Katrina Group Moderator > Hi All, > > Just joined this group. > > I had fusion surgery (lumbar)in December and I am still in pain, the > nerve pain is gone (thank God), so it is just pain from the operation. > > I know it will take a while, but if all goes well, any idea how long > will this go on? In other words, how long (generally) does a fusion > take to heal. > > I know that some folks are in pain for life and I really hope I don't > wind up in that group although I know it is a possibility. > > Any thoughts would be appreciated. > > Thanks, > > Ted > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 LJ: I ask my doctor about this (if I understand what Unicopartmental is). I am assuming that you are talking about a partial knee replacement. Like one side. If that is the case my doctor said he did not do them because the surgery is major for either type why not just fix the whole joint. He liked it to a car that needs new valves. When you fix the valve it is easy to go ahead and put new springs and grind the valve seats and replace any bushings. You do this because if you don't it such a pain to have to go back and do it again. It made sense to me. I am not trying to talk you out of it but I would get a couple of opinions if I were you from other doctors. From what you describe you might be the exception to the rule, just get as much information as possible. Realize having the partial vs the total is just a tramantic as far as the operation itself. The medicine behind these operations is come a long way and is not experimental anymore. Hundreds of thousands have joints replaced every year. Here is a book I recommend to all who come to the site; " Total Knee Replacement and Recovery " By Dr. Brugioni MD and Dr. Jeff Falkel Ph.D, PT. It covers pre, operation and post on TKR. I think they also talk about partial knees too. Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Although I have not had my partial replacement yet, I visited Dr. Berger at Rush Medical Center Chicago. He is considered the best in MIS (minimally invasive surgery). After his examination of my knee he recommended a partial knee replacement. Most of my damage is under my knee cap. I still have good cartilage between the femur and tibia. What he said about the partial was that you had to pick the right candidates, which I was fortunately one. Sorry I can’t tell you what all the necessary parameters are. For more info on Berger you could visit the site http://www.rushortho.com. I called the prosthetic manufacturer (Zimmer) and they said I was lucky to get him, he is the best. They also said it was a difficult surgery, and many dr.s won’t do it. Good luck Dahhling new member with question Hi group, I know this is a " total " replacement group, but is there anyone in the group who was eligible for Unicompartmental Knee Replacement rather than having Total KR? I'm totally intimidated by the TKR, and my damage is localized to the trauma site. I'm wondering if anyone has had the Unicompartmental KR and can tell me about it. LJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Just found this article about UKA, this is the link http://orthoinfo.aaos.org/fact/thr_report.cfm?Thread_ID=263. The last sentence said cheaper cost, not in Berger’s case. new member with question Hi group, I know this is a " total " replacement group, but is there anyone in the group who was eligible for Unicompartmental Knee Replacement rather than having Total KR? I'm totally intimidated by the TKR, and my damage is localized to the trauma site. I'm wondering if anyone has had the Unicompartmental KR and can tell me about it. LJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Hi Matt, I just wanted to welcome you to this group:-) I'm sure someone will have a answer for you the people in this group are really nice to talk to and helpful :-) Well you take care and have a nice day :-) SusieMatt Glendale <utronix@...> wrote: Although I have not had my partial replacement yet, I visited Dr. Berger at Rush Medical Center Chicago. He is considered the best in MIS (minimally invasive surgery). After his examination of my knee he recommended a partial knee replacement. Most of my damage is under my knee cap. I still have good cartilage between the femur and tibia. What he said about the partial was that you had to pick the right candidates, which I was fortunately one. Sorry I can’t tell you what all the necessary parameters are. For more info on Berger you could visit the site http://www.rushortho.com. I called the prosthetic manufacturer (Zimmer) and they said I was lucky to get him, he is the best. They also said it was a difficult surgery, and many dr.s won’t do it. Good luck Dahhling -----Original Message-----From: sentto-7780446-21567-1168031277-utronix=compuserve.comreturns (DOT) [mailto:sentto-7780446-21567-1168031277-utronix=compuserve.comreturns (DOT) ] On Behalf Of ljlaurent2netzero (DOT) netSent: Friday, January 05, 2007 2:31 PMJoint Replacement Subject: new member with question Hi group, I know this is a "total" replacement group, but is there anyone in the group who was eligible for Unicompartmental Knee Replacement rather than having Total KR? I'm totally intimidated by the TKR, and my damage is localized to the trauma site. I'm wondering if anyone has had the Unicompartmental KR and can tell me about it. LJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 --- In Joint Replacement , " ljlaurent2@... " < Hi Lj I am a 50 yr old woman who just had a partial knee replacement done on Nov 20th, I had trama to my knee that thu the years has left me with no cartlage on the inside of my left knee. I went to a doctor who works with football players and of course elderly people and he took x rays with me standing up (other doctor I had never took them of me standing and he kept shooting me with lube and cortizone shots and it never helpped only left me with a lump in the back of my calf that is very painful and swelled) Anyway, after the x ray with me standing he showed me that I had a full cartlage on the outside of the knee and nothing on the inside on the knee. He told me that he would do the partial now and that someday I may need a full but he explained that if he did a full it would have to be replaced again someday with me being only 50 (they don't last forever. This way with the partial if I ever need a full it will be much easyer to take out a partial to put a full in, then it would be to take a full out and put another full in. he said it would be more bone loss and trama to redo the full. I love my partial and have not had to take pain pills very much at all. I have full rom and am very happy with the knee. I am glad I had the partial. Best of Luck and make sure you do alot of leg lifts and build the strength up in your leg before surgery, it helps alot, I did alot but now I wish I would of done more before surgery. PT after surgery is VIP, do your best and you will be ok. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Don, Thanks for the input. The reasons I prefer unicompartmental to total replacement are: a. I'm considered young for a total b. a partial can be remodeled later; while a total cannot c. the damage is highly localized to the spot where the car hit the joint d. the recovery time for MIS partial is considered to be 1/3 of that required for total e. only part of my knee is bad -- "If it ain't broke, don't fix it." f. I was recently badly burned by an egotistic heart surgeon, leaving me afraid of men with knives. LJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 If one is over 65-70 years old and has advanced arthritis, one may as well have a total knee replacement(TKR) that we know does well and lasts long. On the other hand, if one is younger and has exclusive medial or lateral compartment arthritis without patellar arthritis and without major deformity, then a unicompartmental knee replacement(UKR) is advisable. It last on an average 10 years, and one can then have a total knee replacement thereafter. Todays UKRs are different. They are done with a much smaller and minimally invasive technique as compared to TKRs. The recovery is also faster. Regards Dr Ameet Pispati Specialist in Hip and Knee Surgery, Mumbai, India www.hipkneesurgery.info > > LJ: > > I ask my doctor about this (if I understand what Unicopartmental is). > I am assuming that you are talking about a partial knee replacement. > Like one side. If that is the case my doctor said he did not do them > because the surgery is major for either type why not just fix the > whole joint. He liked it to a car that needs new valves. When you > fix the valve it is easy to go ahead and put new springs and grind the > valve seats and replace any bushings. You do this because if you > don't it such a pain to have to go back and do it again. It made > sense to me. > > I am not trying to talk you out of it but I would get a couple of > opinions if I were you from other doctors. From what you describe you > might be the exception to the rule, just get as much information as > possible. Realize having the partial vs the total is just a tramantic > as far as the operation itself. The medicine behind these operations > is come a long way and is not experimental anymore. Hundreds of > thousands have joints replaced every year. > > Here is a book I recommend to all who come to the site; > " Total Knee Replacement and Recovery " > By Dr. Brugioni MD and Dr. Jeff Falkel Ph.D, PT. > It covers pre, operation and post on TKR. I think they also talk > about partial knees too. > > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 > > Hello! > > I'm still new to this and getting lots of good information (both what > to do and what NOT to do!), and I have a question... > > Bee mentions cooking with bacon fat, provided it's made without sugar > and nitrites. Any idea where I can find that? I can find uncured > bacon but they all have sugar. And I would certainly LOVE to have > bacon again! > > Thanks for your help! > Meredyth ==>Hi Merdyth. Welcome to our group. It is hard to find good raw bacon, and unfortunately bacon fat is not sold separately; I wish it was! I suggest you post another message with a subject line that grabs other member's attention, i.e. Uncured bacon sources (plus your country). Or you can try searching our message archives for previous posts. Cheers, Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 you might want to check out Cpnhelp.org kaikrishna wrote: > > Hi, this seems like a great board. I like all the focus on > experimental treatments. I am having some health issues and I > thought this would be a good place to come and get advice and > insight. > I am a thirty something mom, married with kids. When I was in my > early twenties I was working alot and going to school, and I was > having panic attacks, and not eating very healthy. I was also > working at a vet that used chemicals. I got sick and then stayed > sick and the doctors thought it was mono. After a while I researched > and realized it was chronic fatigue syndrome. I tried to work but > was tired and sick alot, good days and days I just couldn't work, so > work was hard. Any real exercise could put me in bed for days. I > dealt with it for three years, allergy skin tests showed multiple > allergies and I got shots, I also did acupuncture and homeopathy but > nothing worked to well. A few years later it just went away. > A decade later, I start getting shortness of breath going up stairs > and exercising. A year after that we move into a nice new house in > the country and shortness of breath gets worse, but comes and goes. > Also, when I get sick it lasts a month each of last two years, one > time shortness of breath was so bad I needed breathing treatment. > This year I got sick in February with flu that turned to bronchitis. > Was treated with oral steroids for breathing and ashtma meds and > antibiotics. A month later I was still sick, hacking, coughing with > gagging, throwing up. A month after that I started to have days > where I would feel better but then I got sick again. Long story, but > now it is over four months I am still very short of breath most of > the day, can't drive, and seem to be stuck. It is very > uncomfortable. I am sick off and on, which makes it worse. Any bug > puts me down much longer than everyone else. I am suddenly sensitive > to chemicals like I was with CFS. I have practically no appetite. I > had asthma as a child but they did a methacholine test and a > pulmonary test and allergy tests came back fine. X-rays are fine. > They checked my heart a couple of years ago and it was fine then. > I would think it was CFS if not for the breathing aspect, which is > the worst part of it. Has anyone heard of this or have any ideas > what might be going on? I am concerned about autoimmune things. > Thanks so much > Kai > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 look into mycoplasma pneumoniae testing and chlamydia pneumoniae testing.  And....many would initially suggest a CD 57 test by labcorp. I've been reading CFS and FMS are symptoms of chronic lyme OR Lyme co-infections.......???? All I know many I meet were originally diagnosed with FMS and then found out they have chronic lyme. Finding a chronic lyme doc is worse than finding a CFS or FMS doctor...believe it or not. I listened to a doc on a radio station last night who said he was diagnosed with FMS then found out he had chronic lyme. He specifically said it runs in cycles. Just passing what I'm recently learning. Re: New member with question you might want to check out Cpnhelp.org kaikrishna wrote: > > Hi, this seems like a great board. I like all the focus on > experimental treatments. I am having some health issues and I > thought this would be a good place to come and get advice and > insight. > I am a thirty something mom, married with kids. When I was in my > early twenties I was working alot and going to school, and I was > having panic attacks, and not eating very healthy. I was also > working at a vet that used chemicals. I got sick and then stayed > sick and the doctors thought it was mono. After a while I researched > and realized it was chronic fatigue syndrome. I tried to work but > was tired and sick alot, good days and days I just couldn't work, so > work was hard.. Any real exercise could put me in bed for days. I > dealt with it for three years, allergy skin tests showed multiple > allergies and I got shots, I also did acupuncture and homeopathy but > nothing worked to well. A few years later it just went away. > A decade later, I start getting shortness of breath going up stairs > and exercising. A year after that we move into a nice new house in > the country and shortness of breath gets worse, but comes and goes. > Also, when I get sick it lasts a month each of last two years, one > time shortness of breath was so bad I needed breathing treatment. > This year I got sick in February with flu that turned to bronchitis. > Was treated with oral steroids for breathing and ashtma meds and > antibiotics. A month later I was still sick, hacking, coughing with > gagging, throwing up. A month after that I started to have days > where I would feel better but then I got sick again. Long story, but > now it is over four months I am still very short of breath most of > the day, can't drive, and seem to be stuck. It is very > uncomfortable. I am sick off and on, which makes it worse. Any bug > puts me down much longer than everyone else. I am suddenly sensitive > to chemicals like I was with CFS. I have practically no appetite. I > had asthma as a child but they did a methacholine test and a > pulmonary test and allergy tests came back fine. X-rays are fine. > They checked my heart a couple of years ago and it was fine then. > I would think it was CFS if not for the breathing aspect, which is > the worst part of it. Has anyone heard of this or have any ideas > what might be going on? I am concerned about autoimmune things. > Thanks so much > Kai > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009    I have joined recently. I am wondering if anybody has experience with the Simonici protocol. I hope I spelled his name correctly. The sodium bicarbonate injections. Josie Quote Link to comment Share on other sites More sharing options...
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