Re: Update and current protocol (miltefosine)

[Guest guest]

Is miltefosine different from " perifosine " (a drug pharma

companies have in trials against colon cancer)?

thanks

karla

>

> I am doing well. I've regained all pelvic

> functions in spite of the fact that the cancer

> had metastasized (I should say raged) through the

> bladder, prostate, seminal vesicles, rectum, anal

> canal, internal sphincter and evidently to lymph

> nodes and lungs. The pain went from non-stop

> excruciating to zilch and my narcotic use has

> dropped from over 200 mg/day of morphine to

> nothing. I have regained about 20 lbs of the 30

> lbs that I lost and my energy level and sleep are

> now normal. The cancer retreat center in Del Mar

> is operating normally. Every day I am overjoyed

> that I was able to dodge the bullet of the

> mutilating surgery demanded by the HMO. I'm sure

> they'll be recommending this surgery for me 30

> years from now -- if they are still alive.

>

> I am doing a few remarkable meds that I make

> myself, plus several I've mentioned in the past:

> dithiodinicotinic acid, CaPterin, benzaldehyde in

> cyclodextrin, and a form of macrophage activating

> factor. I purchase supplements such as vit E

> succinate, selenium, curcumin, calcitriol,

> melatonin (3mg at night), astragalus, EGCG,

> modified capsaicins (actually I do that),

> sulforaphane, and cimetidine. I do try to

> combine many of these in bulk form in a carrier

> drink to avoid dealing with so many tablets and capsules.

>

> I have tried and discontinued cannabis (it slowed

> my thinking), ketoralac (caused hemorrhaging),

> miltefosine (it is too expensive and I can make

> it should it seem especially important), DMSO (the odor),

>

> At the retreat center I do a sauna several days

> per week with a variety of sensitizers, which may

> include topical benzoic acid (15% in vaseline),

> carbogen, ascorbate with menadione, dipyridamole,

> quercetin, Lonidamine, and germanium sesquioxide

> plus I occasionally experiment with strategies to

> drop ORP (oxidation-reduction potential).

>

> I ferment several foods including shredded

> cabbage and also wheat germ. I am making

> D-glucarate and several related compounds.

>

> My Diet:

>

> Raw organic carrots, walnuts, or pistachios to satisfy the need to chew

>

> Raw sauerkraut (self-made using minimal sea salt)

>

> Extra firm organic tofu, diced and marinated in

> minced garlic, green onions, Japanese low-sodium

> soy sauce + Chinese dark soy sauce, a few splashes of sesame oil, vinegar

>

> Buckwheat groats cooked in organic vegetable

> stock; then sliced almonds, currants, and flax

> oil are added. There are many other possible

> inclusions: pinions, dried cranberries, mushrooms, garlic, shallots

>

> Asparagus quickly sautéed in olive oil

>

> Avocado

>

> Vegetables (broccoli, brussel sprouts, occasional

> corn, etc.), beans (lentils, mung, etc.), which,

> along with organic vegetable stock onions,

> tomatoes, and quinoa, can be converted into a

> quick soup. The same with burdock root, daikon radish, and carrots.

>

> V-8 Low-sodium vegetable juice (I use this to wash down supplements)

>

> Live-culture goat yogurt/kefir with organic

> fruit. I would prefer it unpasteurized but it

> has to be pasteurized to make a pure culture – I use Khachatrian's or Shirota

>

> Mixed organic juices (pomegranate, blueberry,

> cherry, cranberry) occasionally with carbonated water

>

> Organic beet and carrot juice

>

> Occasional sardines/salmon on a spinach or sprout

> salad with capers, olives, parmesan, etc.

>

> Salad dressing made from organic egg yolk, flax/walnut oil and lemon juice

>

> I still have an occasional serving of grits with

> a little butter, half and half, and molasses and

> I still kick off the day with a little French

> roast coffee. So far these haven't slowed my super fast recovery.

>

> I don't go by a strict schedule but pick out

> those things for which I am hungry. I often fast

> as it is dovetails with the many approaches to

> detoxing. Sometimes the exclusion of vitamins is

> as important as their inclusion. Sometimes

> enzyme inhibitors are just as important as enzyme use.

>

> This above list of foods is by no means

> complete. It is just the list of things I made

> today plus a few things that I commonly do. I am

> very open to suggestions of things to add to the

> list. I am especially interested in anything

> that can substitute for -- or quash the desire

> for -- the milled grains (breads and pasta) and the wonderful world of

cheeses.

>

>

>