Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 List: It has just been confirmed that I have rectal cancer. I highly suspected it for some time, but my HMO misdiagnosed it for six months claiming that it was nothing but internal hemorrhoids. I have easy access to virtually anything I need for medical purposes, but I thought I was being prudent by letting my HMO take care of anything that insurance covered. It has been quite an experience. I had a CT scan done in Mexico which my US HMO refused to look at because it wasn't done at the HMO. I had the radiology report from Mexico which they refused to look at because it was in Spanish. They didn't see fit to do a simple digital exam to feel the invasive 5.5 cm tumor because their gastroenterologist did a colonoscopy in April and told me I have hemorrhoids and to come back in ten years. I requested a CEA (blood tumor marker test) but they turned me down because they say this test is for assessment and not diagnosis. If I were anyone else I would be outraged, but my opinion of US conventional medicine was already so low, that all I can do is shake my head. Every one of my HMO docs was really nice as they told me they did not do this and they couldn't do that. A couple of days ago I received a 25 item questionnaire from my HMO asking me to rate my last visit to my primary physician. Every one of the questions pertained to doctor-patient interactions, e.g., Did he/she give you enough time? Did they listen to you carefully? Did they try to answer all your questions? Was the receptionist cheerful? I had to rate my physician extremely high on everything according to this questionnaire, but if they had asked questions about competence I would have had to flunk him. One of my board members informed me that although the HMO is a non-profit, the physicians that work for them are for-profit, thus all the money they save from not doing tests goes into their own pockets. I'll look further into this. Now I have been sent to the HMO oncologist who recommends chemo and external beam radiation. I asked what they do to protect immune function (nothing), to protect against multiple drug resistance (nothing), to protect against lymphedema (nothing), to protect against impotency (nothing), and to protect against anal canal fibrosis (nothing). Halfway through the treatment they will see if I am in danger of dying from hemolytic uremia. If so they are willing to consider reducing the dose. I asked the oncologist about doing medical treatments in China including neutron beam (what's that?), BSD-2000 hyperthermia (what's that?), photodynamic therapy (what's that?), fulguration (what's that?), sub-unit vaccines for SCC (what's that?), but he offered me plenty of pain killers and stool softeners. I told the HMO oncologist that I immediately started myself on rectal Newcastle virus (what's that?), on dithiodinicotinic acid (what's that?) on CaPterin (what's that?), on GcMAF (what's that?), on Miltefosine (what's that?), on benzaldehyde (what's that?), on artemether (what's that?), on hyperthermia with Lonidamine and dipyridamole (what's that?) and on cimetidine to help prevent metastasis (he didn't respond), and reticuloendothelial detox (what's that?). I invited him to my seminars. I am probably making early headway as the bleeding has stopped. The nature of this cancer had eluded me for some time as I have no known risk factors. I have no stress, no emotional trauma, I don't smoke, never any STDs, I'm exclusively heterosexual, my diet isn't the worst. There is plenty of cancer in my family though. Squamous cell carcinoma (SCC) of the rectum is rare and often starts from an unknown primary such as a head and neck cancer. If there was ever a person on this planet not to feel sorry for, it is me. I have access to almost everything and can make about anything, and of all the things I could worry about at least I don't have to worry about me suing myself. Does this mean I'm out of the woods even before I start? Not by a long shot. One of the biggest and most common mistakes in alternative medicine is to assume that a particular treatment/strategy/combination is going to work. The keys to beating cancer usually revolve around collecting and weighing credible information, careful assessment and analysis, avoiding missteps that can't be corrected, timely action, patience. So far there has been only one area in which I could have improved: I should have made a much greater nuisance of myself at the HMO. Has any of my thinking changed since being formally diagnosed? There has been a bit of a sense of relief that I now have a clear target to address. In about two weeks I plan to go to China for about a month. I will conduct my regular seminars and treatment program this coming week, November 8th-14th. On November 15 I will watch the LA Lakers beat Houston -- but without any beer and pizza. (Who knew that life would be this hard..!!!) Then it is off to China. Quote Link to comment Share on other sites More sharing options...
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