New to this group

[Guest guest]

15 days! It took at least 8 months of abx to stop my pins and needles - 3 years

of abx to stop 98% of my syptoms - good luck - i hope you find a dr who is

willing to give you what you need. Carolyn

K3ASI <k3asi@...> wrote: I am new to

this group and just want to say my GP has given up on me. He

tried doxycycline for 15 days and I still have pins and needles in my

face and head. Last visit he gave me Carbamazepine for seizures and said

come back in a month. So am going to call a LLMD near me and get an

appointment.

[Guest guest]

ok I found the link from my doctor

do not watch this unless you want to see an actual procedure of MIS

It is not really gross at all in my opinion I am glad I watched it

before my surgery date

http://www.whhs.com/whfca/videos/hip_replace/hip_replace_hq.htm

>

> Hello,

> My name is Rick and I have been diagnosed with " advanced

> avascular necrosis " . The problem is I also have FSHD, which is a

form

> of Muscular Dystrophy. I saw the orthopedic doctor here in

> Albuquerque,NM and he said I would not recover from a surgery like a

> hip replacement surgery. Is there anyone in this group that had or

has

> a muscle disease that went through hip surgery? Any type of input on

> this will be appreciated. Thanks, Rick

>

[Guest guest]

I would get a second or third or fourth opinion. There is doctor in

Denmark (do a search on this forum) who is willing to look at your

case if you send him x-rays and such. He does mostly hips as I recall.

Joint replacement is not an experiment and is done thousands of times

each week across this county. Can't address the muscle issue but

liked I said I would talk to a number of doctors in both orthopedics

and muscular dystrophy to see what options are out there.

Hope this helped.

Don

>

> Hello,

> My name is Rick and I have been diagnosed with " advanced

> avascular necrosis " . The problem is I also have FSHD, which is a form

> of Muscular Dystrophy. I saw the orthopedic doctor here in

> Albuquerque,NM and he said I would not recover from a surgery like a

> hip replacement surgery. Is there anyone in this group that had or has

> a muscle disease that went through hip surgery? Any type of input on

> this will be appreciated. Thanks, Rick

>

[Guest guest]

RickI would contact a group on Muscular Dystrophy and see what they say, Muscle is a big part of the healing and if you can't build the muscle back up it would be very hard to get full use of it. Are you in a Wheel Chair now? I don't know alot about MD but am learning as my grandson has dischines MD and is 8yrs old now, I have seen him loosing his muscle tone in his legs and I just had a Partial Knee done and can't beleive the strength I lost in the muscles just from a small surgery. I will pray that you find the answer. God Bless You - debrickc3557 <rick3557@...> wrote: Hello, My name is Rick and I have been diagnosed with "advanced avascular necrosis". The problem is I also have FSHD, which is a form of Muscular Dystrophy. I saw the orthopedic doctor here in Albuquerque,NM and he said I would not recover from a surgery like a hip replacement surgery. Is there anyone in this group that had or has a muscle disease that went through hip surgery? Any type of input on this will be appreciated. Thanks, Rick

Need Mail bonding?Go to the Q&A for great tips from Answers users.

[Guest guest]

Hi Deb,

Thank you for answering. I'm not in a wheelchair yet. I can still walk, at least I used to until I hurt my hip. I'm on crutches now. Isn't there a hip replacement that avoids cutting of the muscles and tendons? I'm trying to get some answers from the MD Assoc. Thanks again Deb and God Bless You! Rick

Re: New To This Group

RickI would contact a group on Muscular Dystrophy and see what they say, Muscle is a big part of the healing and if you can't build the muscle back up it would be very hard to get full use of it. Are you in a Wheel Chair now? I don't know alot about MD but am learning as my grandson has dischines MD and is 8yrs old now, I have seen him loosing his muscle tone in his legs and I just had a Partial Knee done and can't beleive the strength I lost in the muscles just from a small surgery. I will pray that you find the answer. God Bless You - debrickc3557 <rick3557msn> wrote:

Hello,My name is Rick and I have been diagnosed with "advanced avascular necrosis". The problem is I also have FSHD, which is a form of Muscular Dystrophy. I saw the orthopedic doctor here in Albuquerque,NM and he said I would not recover from a surgery like a hip replacement surgery. Is there anyone in this group that had or has a muscle disease that went through hip surgery? Any type of input on this will be appreciated. Thanks, Rick

Need Mail bonding?Go to the Q & A for great tips from Answers users.

[Guest guest]

Rick, I would call Dr. Paley at Mt. Sinai's Rubin Institute in Baltimore. He specializes in hips and has been featured on the the Discovery Channel for his groundbreaking techniques. http://www.lifebridgehealth.org/body.cfm?id=14 & action=detail & ref=21062. His patients come from around the world. I wish you the very best. Warm regards,

Donna Don <donavp@...> wrote: I would get a second or third or fourth opinion. There is doctor inDenmark (do a search on this forum) who is willing to look at yourcase if you send him x-rays and such. He does mostly hips as I recall.Joint replacement is not an experiment and is done thousands of timeseach week across this county. Can't address the muscle issue butliked I said I

would talk to a number of doctors in both orthopedicsand muscular dystrophy to see what options are out there.Hope this helped.Don>> Hello,> My name is Rick and I have been diagnosed with "advanced > avascular necrosis". The problem is I also have FSHD, which is a form > of Muscular Dystrophy. I saw the orthopedic doctor here in > Albuquerque,NM and he said I would not recover from a surgery like a > hip replacement surgery. Is there anyone in this group that had or has > a muscle disease that went through hip surgery? Any type of input on > this will be appreciated. Thanks, Rick>

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Thank You Donna, I appreciate the info. At this point I'll look into anything! Thanks Again, Rick

Re: Re: New To This Group

Rick,

I would call Dr. Paley at Mt. Sinai's Rubin Institute in Baltimore. He specializes in hips and has been featured on the the Discovery Channel for his groundbreaking techniques. http://www.lifebridgehealth.org/body.cfm?id=14 & action=detail & ref=21062. His patients come from around the world.

I wish you the very best.

Warm regards,

Donna Don <donavpsbcglobal (DOT) net> wrote:

I would get a second or third or fourth opinion. There is doctor inDenmark (do a search on this forum) who is willing to look at yourcase if you send him x-rays and such. He does mostly hips as I recall.Joint replacement is not an experiment and is done thousands of timeseach week across this county. Can't address the muscle issue butliked I said I would talk to a number of doctors in both orthopedicsand muscular dystrophy to see what options are out there.Hope this helped.Don>> Hello,> My name is Rick and I have been diagnosed with "advanced > avascular necrosis". The problem is I also have FSHD, which is a form > of Muscular Dystrophy. I saw the orthopedic doctor here in > Albuquerque,NM and he said I would not recover from a surgery like a > hip replacement surgery. Is there anyone in this group that had or has > a muscle disease that went through hip surgery? Any type of input on > this will be appreciated. Thanks, Rick>

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Hi, Fern! WElcome!

This group isn't necessarily for thise later on in their journey, as

we welcome newly-banded people too. But we do have a lot of very

experienced and successful people to help EVERYone.

So sorry you had a port infection and that it needed removing1 When

will it be replaced? Until then, the band really isn't working, and

it can be tough to lose. Still, with much better exercise and food

choices, we should still be able to lose a fair amount but it's all

from our own hard work. Check the files at the lefty for the Band

Guide called " Band Eating Rules... " - lots of good info that will

help you, i hope.

but, you know what? Even with your infection and the port removal,

you have lost 35# - and thay, since only Feb, is spectacular, and

well abovce average. WE can expect about a 1-2 # loss, and thuis

geberally doesn't start until after we geet to a good fill level.

you're doing better than this with NI fill level!! Way to go!!!

Glad you're here - we welcome any questions and there are a lot of

great people here to help you. sometimes, with the larger groups,

questions get overlooked or get poor responses. That will never

happen here. We're a bit slow dor now, since it is summer and we

encourage people to get OUT, be ACTIVE (and not sit at the computer

much at all) :-)

Sandy R

at goal x 3.5 yrs

>

> Hi - I have been a member of smartbandsters and wasn't aware of

this

> group for persons farther into this process. I am a 52 year old

woman

> who had her band put in on Feb 26. I had a complication with a

port

> infection and had to have it removed in April. I have lost 35 lbs

but

> since the port was removed it has been very difficult to lose. I

find

> that I can have bites of everything - I still eat less but am

worried

> about my choices.

> I have had a dissapointment in my business career this last few

weeks

> and found that I am looking to food again. I am afraid.

> I am scheduled to have surgery to re-insert the port on July 2. Do

you

> think this will bring me back to following the program? It was

very

> easy right after the surgery. I never had a fill. But I am

definitely

> hungier now. I want this to work and am so worried.

> I would appreciate hearing from you with any thoughts.

> Thanks - Rae Ann Bird

>

[Guest guest]

Dear Sandy - thanks for your response. I have my pre-op appointment

today and know that the scale will be up. I have had trouble with food

choices and hate that " bad girl " feeling I have when I go to the

doctor. I have been losing since the band so the doctor has only seen

me lose.

I know that when I get the port replaced and (a fill at the same time)

I will be able to succeed again.

I want to get back into losing and into eating better but I know I need

help.

I have lost but boy is it easy to gain a few pounds. I worry he won't

want to do surgery if he doesn't think I am committed to doing this.

I am scheduled for July 2.

Thanks for listening to my concerns. Best, Rae Ann

[Guest guest]

Rae Ann, your doc surely understands how easy it is to regain without

the band's help. He is not there to chastise you or make you feel bad

We do enough of that to ourselves, anyway, even if it is not " our

fault " if we regain!

That " bad girl " feeling is a self-imposed one that is VERY important

to reverese! We did not fail all those past diets - they failed us.

There are many articles about why diets simply do not work long

term.Tnat's why the Band works when doets fail. The b and is an

entirely new, healthy lifestyle to be maintained forever.

Here are 3 articles about WHY DIETS FAIL, from my website:

http://walking.about.com/cs/diet/a/dietsdontwork_2.htm

http://www.exrx.net/FatLoss/WhyDietsFail.html

http://www.globalhealthandfitness.com/whydietsfail.htm

IMO, it's crucial that we work hard to improve and regain a good self-

image. Most of us are badly beaten and battered by a world very cruel

to the obese, and we don't have a good feeling about ourselves. Part

of the band journey is regaining a very positive self-image, and many

of us work hard with a good therapist around these types of issues -

and I strongly encourage that.

Anyway, good luck with your repair on July 2! You'll soone be back

on track.

Sandy R

www.BandsterME.com

>

> Dear Sandy - thanks for your response. I have my pre-op

appointment

> today and know that the scale will be up. I have had trouble with

food

> choices and hate that " bad girl " feeling I have when I go to the

> doctor. I have been losing since the band so the doctor has only

seen

> me lose.

> I know that when I get the port replaced and (a fill at the same

time)

> I will be able to succeed again.

> I want to get back into losing and into eating better but I know I

need

> help.

> I have lost but boy is it easy to gain a few pounds. I worry he

won't

> want to do surgery if he doesn't think I am committed to doing this.

> I am scheduled for July 2.

> Thanks for listening to my concerns. Best, Rae Ann

>

[Guest guest]

Dear Sandy - thanks for your response. I went to the

doctor and he too was looking at the future and

getting the port put back in and moving forward. I

was successful when the band was tighter so I know

that this will work again.

I have thought about talking about the self-image with

a professional. I appreciate your suggestion. The

articles are also helpful.

Surgery is 7/2. I am definitely ready. Thank you for

your kindness and information. Best wishes, Rae Ann

________________________________________________________________________________\

____

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for

today's economy) at Games.

http://get.games./proddesc?gamekey=monopolyherenow

[Guest guest]

ive had neck pain.and right side issues since.but they say im fine,3rd ent today

says glands are normal and says jaw pain and neck is tmj.never had it before.

but ill live with it.i only did 4 months and cleared cause the sides got to bad.

sfohombre511 <gdl8506@...> wrote: Hi All,

I wasn't really looking for a HepC group, but now that I've found

one, I'm so happy. I would like to share my story with you guys, and

hope to hear from any/all in the same situation as I. I started my

tx (Pegasus & CoPegasys) in late 2005. I had every side effect

imaginable, and so finally after 6 months on tx, I decided that I

could no longer deal with the side effects, and stopped treatment. I

am still testing " cleared " , but knowing what I know now, I would

never have taken the treatment. Here it is almost 2 years after I

stopped Tx, and am still having side effects that are at least as

bad, or worse, than when I was on Tx. Every 7-10 days, on average, I

come down with flu-like symptoms, aches and pains, irritability, and

depression.

Until a few weeks ago, I just thought I was getting sick and no one

could find a diagnosis, then I found a web site that was full of

testimonials from people just like me. Certainly, I would never

advise anyone to not start treatment; only you and your Dr. can make

this decision. However, I only want to let you know that these

things can happen, and are very real.

Please let me hear from you, one and all.

CG

Tim Parsons

knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

__________________________________________________

[Guest guest]

ive had neck pain.and right side issues since.but they say im fine,3rd ent today

says glands are normal and says jaw pain and neck is tmj.never had it before.

but ill live with it.i only did 4 months and cleared cause the sides got to bad.

sfohombre511 <gdl8506@...> wrote: Hi All,

I wasn't really looking for a HepC group, but now that I've found

one, I'm so happy. I would like to share my story with you guys, and

hope to hear from any/all in the same situation as I. I started my

tx (Pegasus & CoPegasys) in late 2005. I had every side effect

imaginable, and so finally after 6 months on tx, I decided that I

could no longer deal with the side effects, and stopped treatment. I

am still testing " cleared " , but knowing what I know now, I would

never have taken the treatment. Here it is almost 2 years after I

stopped Tx, and am still having side effects that are at least as

bad, or worse, than when I was on Tx. Every 7-10 days, on average, I

come down with flu-like symptoms, aches and pains, irritability, and

depression.

Until a few weeks ago, I just thought I was getting sick and no one

could find a diagnosis, then I found a web site that was full of

testimonials from people just like me. Certainly, I would never

advise anyone to not start treatment; only you and your Dr. can make

this decision. However, I only want to let you know that these

things can happen, and are very real.

Please let me hear from you, one and all.

CG

Tim Parsons

knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

__________________________________________________

[Guest guest]

ive had neck pain.and right side issues since.but they say im fine,3rd ent today

says glands are normal and says jaw pain and neck is tmj.never had it before.

but ill live with it.i only did 4 months and cleared cause the sides got to bad.

sfohombre511 <gdl8506@...> wrote: Hi All,

I wasn't really looking for a HepC group, but now that I've found

one, I'm so happy. I would like to share my story with you guys, and

hope to hear from any/all in the same situation as I. I started my

tx (Pegasus & CoPegasys) in late 2005. I had every side effect

imaginable, and so finally after 6 months on tx, I decided that I

could no longer deal with the side effects, and stopped treatment. I

am still testing " cleared " , but knowing what I know now, I would

never have taken the treatment. Here it is almost 2 years after I

stopped Tx, and am still having side effects that are at least as

bad, or worse, than when I was on Tx. Every 7-10 days, on average, I

come down with flu-like symptoms, aches and pains, irritability, and

depression.

Until a few weeks ago, I just thought I was getting sick and no one

could find a diagnosis, then I found a web site that was full of

testimonials from people just like me. Certainly, I would never

advise anyone to not start treatment; only you and your Dr. can make

this decision. However, I only want to let you know that these

things can happen, and are very real.

Please let me hear from you, one and all.

CG

Tim Parsons

knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

__________________________________________________

[Guest guest]

ive had neck pain.and right side issues since.but they say im fine,3rd ent today

says glands are normal and says jaw pain and neck is tmj.never had it before.

but ill live with it.i only did 4 months and cleared cause the sides got to bad.

sfohombre511 <gdl8506@...> wrote: Hi All,

I wasn't really looking for a HepC group, but now that I've found

one, I'm so happy. I would like to share my story with you guys, and

hope to hear from any/all in the same situation as I. I started my

tx (Pegasus & CoPegasys) in late 2005. I had every side effect

imaginable, and so finally after 6 months on tx, I decided that I

could no longer deal with the side effects, and stopped treatment. I

am still testing " cleared " , but knowing what I know now, I would

never have taken the treatment. Here it is almost 2 years after I

stopped Tx, and am still having side effects that are at least as

bad, or worse, than when I was on Tx. Every 7-10 days, on average, I

come down with flu-like symptoms, aches and pains, irritability, and

depression.

Until a few weeks ago, I just thought I was getting sick and no one

could find a diagnosis, then I found a web site that was full of

testimonials from people just like me. Certainly, I would never

advise anyone to not start treatment; only you and your Dr. can make

this decision. However, I only want to let you know that these

things can happen, and are very real.

Please let me hear from you, one and all.

CG

Tim Parsons

knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

__________________________________________________

[Guest guest]

Where did you go for HBOT and where do you live in KY?

On 11/26/07, Childers <jsansbury@...> wrote:

> Hi, I am a Mother to a 16 month old who sustained an oxygen deprivated

> brain injury due to a tight double nuchal cord and other issues

> surrounding her birth. My husband I were finally able to start HBOT

> with her last month and have completed 20 sessions and are going back

> this week to complete another 20 sessions. She has made significant

> progress since her first 20 treatments. Our Pediatrician, Neurologist,

> and therapists are all amazed at what she has done since we have

> started HBOT and have noted all of her progress and things she has

> done. I am trying to find out or get some information about how we go

> about submitting info to the KY state medicaid to apply for

> reimbursement or coverage because I definitely think this is a therapy

> we will continue in the future. If anyone can guide me in the right

> direction or give me any info at all we would be so appreciative. We

> are so thankful we learned about this therapy and we are so excited

> about the progress she has already made from the first group of

> treatments. Thanks in advance for your help!

>

>

--

Freels

2948 Windfield Circle

Tucker, GA 30084-6714

404-725-4520 (cell)

770-491-6776 (phone)

815-366-7962 (fax)

mailto:DFwrites@...

http://www.freelanceforum.org/df

[Guest guest]

Dear -Welcome to the group. :-) I too am a newbie and glad I found the site. I'm sorry to hear you're having some additional problems and pray you and your doctors will find the route cause. I tried Lyrica and it didn't work for me, but hopefully it will be a source of great relief for you.I don't know what I'd do if my husband didn't understand and support me through this. Although, I am always terrified that one day he'll get sick of me being sick all the time. I pray that your husband will understand one day and be more compassionate.Again, welcome and God bless.Amitysabrina <sab_brinie2002@...> wrote: Hi,I'M GLAD TO HAVE FOUND THIS WEB SITE,, I HAVE LEARNED ALOT FROM IT..I HAVE HAD FM AND EM FOR SIX YEARS NOW.IT HAS BEEN A ROUGH SIX YEARS.AS OF 4 WEEKS AGO I HAVE HAD PROBLEMS WITH MY LEGS AND NOT BEING ABLE TO WALK. I SEEN A NEUROLOGISTS AND SHE SAYS ITS MY FIBRO AND I'M NOT SO SURE IT IS. SO IF ANYBODY CAN GIVE ME SOME INPUT ON IT AND IF IT COULD BE MY FIBRO I WOULD LOVE TO KNOW YOUR INSIGHT ON IT.I'M DOING BETTER WITH MY WALKING I HAVE BEEN ON LYRICA GOING ON 4 WEEKS NOW AND HOPEFULLY THAT IS WHAT IS HELPING.I ALSO HAVE STARTED SHAKING ALL OVER AND CAN'T STOP I JUST STOP SHAKING OFF AND ON FOR NO REASON.I SEE MY MEDICAL DOCTOR ON THE FOURTH OF JAN.I'M ASKING HER ABOUT MAYBE DOING A MRI OR CT SCAN ON ME. GOOD TO

KNOW I'M NOT ALONE ON THIS.MY HUSBAND DOES NOT UNDERSTAND WHAT I GO THROUGH.HE HAS BEEN TO THE DOCTOR WITH ME AND HAD DOCTORS EXPLAIN IT TO HIM AND HE STILL REFUSES OR DOESN'T UNDERSTAND ME.

Never miss a thing. Make your homepage.

[Guest guest]

Has anyone checked your vitamin D level or your vitamin B levels?

If not, I highly recommend it. Low vitamin D levels go hand in hand

with fibro, and my mom has a lot of the same symptoms as you, and

come to find out her vitamin B level was almost non-existant. Can't

hurt to check.

Nadine~

Hi,I'M GLAD TO HAVE FOUND THIS WEB SITE,, I HAVE LEARNED ALOT FROM

> IT..I HAVE HAD FM AND EM FOR SIX YEARS NOW.IT HAS BEEN A ROUGH

SIX

> YEARS.AS OF 4 WEEKS AGO I HAVE HAD PROBLEMS WITH MY LEGS AND NOT

BEING

> ABLE TO WALK. I SEEN A NEUROLOGISTS AND SHE SAYS ITS MY FIBRO AND

I'M

> NOT SO SURE IT IS. SO IF ANYBODY CAN GIVE ME SOME INPUT ON IT AND

IF IT

> COULD BE MY FIBRO I WOULD LOVE TO KNOW YOUR INSIGHT ON IT.I'M

DOING

> BETTER WITH MY WALKING I HAVE BEEN ON LYRICA GOING ON 4 WEEKS NOW

AND

> HOPEFULLY THAT IS WHAT IS HELPING.I ALSO HAVE STARTED SHAKING ALL

OVER

> AND CAN'T STOP I JUST STOP SHAKING OFF AND ON FOR NO REASON.I SEE

MY

> MEDICAL DOCTOR ON THE FOURTH OF JAN.I'M ASKING HER ABOUT MAYBE

DOING A

> MRI OR CT SCAN ON

>

ME.

> GOOD TO KNOW I'M NOT ALONE ON THIS.MY HUSBAND DOES NOT

UNDERSTAND WHAT

> I GO THROUGH.HE HAS BEEN TO THE DOCTOR WITH ME AND HAD DOCTORS

EXPLAIN

> IT TO HIM AND HE STILL REFUSES OR DOESN'T UNDERSTAND ME.

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

[Guest guest]

Your symptoms do not sound like any I have heard of going along with

fibro. I think you’re on the right track to get an MRI. My prayers are

with you.

Hall

[Guest guest]

You are having hypo symptoms and should be on more replacement hormones.

Have you ever heard of Armour? Most of us here like it more than synthetic

T4. You should do some research here... www.stopthethyroidmadness.com This

site will give you link to find a new doc in your area and tell you more

about Armour. PLease keep us posted!

CW

-- New to this Group

Hi, I was diagnosed last December(2005), had a TSH of 6.70. My Dr. said

lets do another test in a couple of weeks to see where you are at. It

had then dropped to 4.8 , which he informed me was well within the

normal limits. I was very tired at this time, and just not myslef. I

went to an Endo who agreed to put me on levothyroxine of .25. I had

labs done again this year and they were at 3.8. My current Dr.

increased the dose to .50 and then to .75 of Synthroid. I just had

labs drawn again and am waiting for the results I continue to be

extremely tired. Not sure if it is the weather or this thyroid thing.

I live in Minnesota and it has been extremely cold! I also cannot seem

to lose even one pound! Any tips would be great! We are going on a

trip to Mexico in March and it would be nice to loose a few. Thank

you!

[Guest guest]

The " normal " range is a controversial topic. There seems to be some

agreement among those on this list that there may be two ranges: One is

for " normal " people who have never had a thyroid problem; and another

for those who do have a thyroid problem. The reason for the latter is

that many people on this list find they do not feel well even though

their TSH is within the " normal " range for healthy people. Many insist

they do not feel well until the TSH numbers have been lowered below the

bottom of the normal range.

It is quite probably that this list self selects for those who do not do

well for conventional treatment, because those who do well with

conventional treatment would have less incentive to seek further help

from places like this list. I personally have no negative symptoms on

conventional treatment [synthroid]; and I believe it's probably among

the top three most prescribed medicines in the US.

Your best bet is probably to research here and elsewhere for your

options. But be aware that there is good, bad, and ugly info on the

net, and some you will find could be harmful or even fatal to you.

Luck,

>

> New to this Group

>

<hypothyroidism/message/36304;_ylc=X3oDMTJxcW5sdjV\

tBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzYzMDQEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwMTk0ODU4NQ-->

>

>

>

> Posted by: " kdgardener " JKdalt@...

> <mailto:JKdalt@...?Subject=%20Re%3ANew%20to%20this%20Group>

> kdgardener <kdgardener>

>

>

> Fri Feb 1, 2008 1:15 pm (PST)

>

> Hi, I was diagnosed last December(2005)

> , had a TSH of 6.70. My Dr. said

> lets do another test in a couple of weeks to see where you are at. It

> had then dropped to 4.8 , which he informed me was well within the

> normal limits. I was very tired at this time, and just not myslef. I

> went to an Endo who agreed to put me on levothyroxine of .25. I had

> labs done again this year and they were at 3.8. My current Dr.

> increased the dose to .50 and then to .75 of Synthroid. I just had

> labs drawn again and am waiting for the results I continue to be

> extremely tired. Not sure if it is the weather or this thyroid thing.

> I live in Minnesota and it has been extremely cold! I also cannot seem

> to lose even one pound! Any tips would be great! We are going on a

> trip to Mexico in March and it would be nice to loose a few. Thank

> you!

[Guest guest]

Hi , Thank you for your reply. I called the dr. this weekend as my tsh

level came back at .83, yet I could not sleep and was very tired!! I did I

research on side effects of Synthroid and found out if the level is too high it

can cause these problems! So, we lowered my dose to 50mcg and it has already

made a huge difference. I also started taking calcium & D with magnesium

supplements...fantastic! Also helped with the constipation issues. I had great

energy the past 2 days. So, perhaps this is all I needed?? I hope so. Thanks

to everyone for their feedback too.

Re: New to this Group

Hi ,

I am from MN too, but now live in CA. I don't know, but I read that MN has a

terrible problem with Thyroid problems. You really need to get your vitamin D

levels checked too. Synthroid is a bad choice for me, so I am now on Armour, and

feel 100 times better taking it. You defintately have something going on that

could be thyroid related. Get a good doc and check out the website:

www.stopthethyroidmadness.com

Blessings,

kdgardener <JKdalt@...<mailto:JKdalt%40msn.com>> wrote:

Hi, I was diagnosed last December(2005), had a TSH of 6.70. My Dr. said

lets do another test in a couple of weeks to see where you are at. It

had then dropped to 4.8 , which he informed me was well within the

normal limits. I was very tired at this time, and just not myslef. I

went to an Endo who agreed to put me on levothyroxine of .25. I had

labs done again this year and they were at 3.8. My current Dr.

increased the dose to .50 and then to .75 of Synthroid. I just had

labs drawn again and am waiting for the results I continue to be

extremely tired. Not sure if it is the weather or this thyroid thing.

I live in Minnesota and it has been extremely cold! I also cannot seem

to lose even one pound! Any tips would be great! We are going on a

trip to Mexico in March and it would be nice to loose a few. Thank

you!

[Guest guest]

Could you clarify what you take 7 of?

crystal.

-- New to this group

Hi. I am new the the hypothyroidism group. I was diagnosed with it

about 10 years ago when my body started going haywire. Has anyone ever

used supplemental treatments to hypothyroidism besides the prescribed

medications? It seems like the longer I have it, or should I say as

the years go by, the more I develop other symptoms such as: RLS, acid

reflux disease, high cholesterol, high blood pressure, chronic

sinusitus, frequent headaches, never feeling refreshed after sleep and

joint pain. I have been reading a lot about symptoms of hypothyroidism

and have had my levels checked and I am all good. My question is, why

do I need so much medication (I take a total of 7) and why do I always

feel so lousy? Any suggestions?

[Guest guest]

rbsb331 wrote:

> ... had my levels checked and I am all good....

Please define " good. " What are your exact test results and lab reference

ranges? There is some " controversy " about how to interpret those.

Chuck

[Guest guest]

I had to take a Down Syndrome man to the ER tonight---they have him on heavy

duty drugs for seizures and his small body can barely tolerate them--he is a

zombie. He has lost the ability to talk, walk and is incontinent. I pissed

the doc off when I said I thought he had congenital hypothyroidism--doc said

his #s were fine. I told him yeah mine were always " fine " too. doc said

has dementia and his brain is " melting " according to catscan. I couldn't

resist. I told Doc was iodine deficient LOL. He snorted and left the

room.

Gracia

rbsb331 wrote:

> ... had my levels checked and I am all good....

Please define " good. " What are your exact test results and lab reference

ranges? There is some " controversy " about how to interpret those.

Chuck

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