Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 > > Hi all. My name is Faye, I'm 27 years old with a severe case of > systemic candidiasis. I was treated with diflucan a month ago for > candida esophagitis. But it didn't work. None of my doctors will > listen or help me. My glands in my neck are super swollen and its hard > to swallow. Anyone else experiencing this? I've been following a > super strict anti-candida diet, with some slips (can't help it). I've > been taking lots of acidophilus, oregano oil etc. I just started > candigone a couple of days ago, don't know if this'll work. But I'm > quickly running out of money to spend on all these " supposed " miracle > cures, and not getting results. So if you guys can help me, let me > know. Thanks all. +++Hi Faye. Welcome to our group. Sorry you are having such a rough time of it. Unfortunately there are no miracles for curing candida, depite any claims otherwise. +++The reason diflucan didn't work is because candida cannot be cured by " killing it off. " It is most important to follow the diet and take the supplements, since the diet cuts off candida's food supply, eliminates toxins, and the combination of nutrients are required to build up the immune system. The only way candida is cured is by building up the immune system. Diflucan is toxic and very hard on the liver too. However, natural antifungals I recommend are not toxic. My program is step by step, for very good reasons, with diet plus supplements first (including unrefined coconut oil, which is antifungal). When you start on this program you shouldn't take acidophilus nor oil of oregano. Also Candigone is much too harsh and won't help you at all since you need to build up your immune system. Candigone will also dump too many toxins at one time into your system, which will be difficult to deal with. It is better to cleanse the body naturally with this program since the high " good " fats I recommend naturally cleanse, heal, and strengthen all of the body's cells the way nature intended. I suggest you read 2 articles first: How to Successfully Overcome Candida and Curing Candida, How to Get Started, which are in this Candida Section on my website: http://www.healingnaturallybybee.com/candida/index.php After that you can print out the Diet and Supplements Lists, and start one step at a time. After you've read please get back to us with any questions. We are here to help and support you so you too can get healthy. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi , Welcome to our group! Having been to an applied kinesiologist in the past, I believe that they aren't always accurate. Since they work on energy, you can control (to some degree) what their findings are with your thoughts. For example, the guy I went to was testing me fine and then he said something that really irritated me (he was really arrogant) and then suddenly all of the tests went flat. He retested me on the stuff that were okay just 2 minutes earlier and go no results from me. Suddenly everything was weak and I 'know' it was because of my reaction to what he said. I'm not saying that the same thing happened to you. Just be aware that your thoughts can have a strong effect on the muscle testing and it is not always accurate in the way we might think they are. You are right, Threelac isn't good for you to take. Here's an article about it: http://www.healingnaturallybybee.com/articles/mn22.php You mentioned another candida diet that allows fruit and grains. I would encourage you not to eat them. Those foods have way too much sugar and if you eat them, they will feed the candida, so even if you are restricting other foods, the candida will keep overgrowing. They will also cause you to crave more sugar and it will be even more difficult to adhere to the diet because you will crave so much. It really is better not to have any of those high carb foods because once you cut them out completely, you won't crave them anymore and it will be much easier to stick to the program. Besides, Bee's program is about building up the immune system so that the body can heal itself and 'make' the candida change back to healthy entity in the body and those foods don't support that endeavour. Your weight is not a measure of health. Weight will fluctuate on Bee's program and it will eventually stabilize at the right weight for you. Hope that helps! > > Hi everyone, my name is and I am new to your group although > I've been reading the digests for a few weeks and find that you guys are extremely helpful and supportive! <snip> > Through a series of muscle reflex tests (which really work!) I have > found that I am intolerant to oranges, potatoes, prawns, msg, > alcohol, coffee and formalin. Apparently I am fine with all nuts, > seeds and grains and am tolerant of gluten. I am confused because I > expected to be gluten intolerant and not intolerant to natural foods such as potatoes and oranges. <snip> > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 > > Hi everyone, my name is and I am new to your group although > I've been reading the digests for a few weeks and find that you guys > are extremely helpful and supportive! +++Hi . Welcome to our group. > I self diagnosed myself with Candida a couple of months ago and have been taking Threelac until now. I know that Bee does not recommend this and I agree that it is very expensive and definitely does not offer a miracle cure! +++That's good! <snip> > > Through a series of muscle reflex tests (which really work!) I have found that I am intolerant to oranges, potatoes, prawns, msg, > alcohol, coffee and formalin. Apparently I am fine with all nuts, > seeds and grains and am tolerant of gluten. I am confused because I > expected to be gluten intolerant and not intolerant to natural foods such as potatoes and oranges. +++Please do not rely on muscle testing, and also no one can rely on any allergy tests that are done, particularly when it comes to good foods from Mother nature. The medical community and naturopaths, etc. do not understand about natural healing reactions by the body, so they interpret such reactions as bad, or allergic-type reactions, so you must avoid the " supposed " allergen. +++But that is not the case. Healing reactions are exactly the same symptoms as " so-called " allergic reactions; afterall we only have 1 immune system and one set of reactions. +++There's so many things wrong with the allergy business too. Labs do not use good clean foods from Mother nature; instead they go to the grocery store for foods, and make their antigens from foods loaded with pesticides, etc. They don't use the right kind of eggs either, and so on and so on. +++In addition to that, the Antibody Theory is totally false. For more information see these articles: http://www.healingnaturallybybee.com/articles/heal11.php http://www.healingnaturallybybee.com/articles/menu4_1.php > I have been recommended to follow a candida diet plan that includes > both fruit and grains, but had been planning to make a start on Bee's diet. I am also concerned about losing too much weight as I have lost 5 kilos since cutting out sugar, yeast and alcohol 2 months ago. My friends and family are worried I am getting too thin. I would really appreciate your expert advice Bee and any comments from the group. +++Weight is not a measure of health, and it is the least of your concerns when you have candida. I lost a lot of weight too, but my weight normalized more and more as I was curing my candida. Some people lose weight because they are basically malnourished, and that too can only be corrected by " proper nutrients " (my diet plus supplements), by improving digestion, by helping the body detoxify, etc., which is what my program is all about. +++For encouragement please see these Success Stories: http://www.healingnaturallybybee.com/success/index.php After reading you may have a lot of questions, so we are here for you! You too can get healthy! The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Thanks for your advice Bee and . It is all still confusing but I do understand the link between healing/allergy reactions. What I don't understand is why I had no reaction at all to grains and gluten. Does this mean my body is able to cope with and digest these ok? I forgot to mention that I took along some Pau d'arco tea to test (I still haven't tried it yet), and tested very negatively to it. The kinesiologist agreed that it is very good stuff but that while some people test ok with it others do react. She said I may be able to drink it later but not straight away. Would you say that this is a healing reaction and that I should start taking it now? Another issue I have is that I work in the wine trade and eliminating alcohol is very difficult as tasting is often part of my job! Do you think it is ok as long as I spit and rinse my mouth well with water after? Or will it still affect my healing? Thank you once again for your invaluable advice, it is much appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 > > Thanks for your advice Bee and . > It is all still confusing but I do understand the link between > healing/allergy reactions. What I don't understand is why I had no > reaction at all to grains and gluten. Does this mean my body is able to cope with and digest these ok? +++Hi . I think you missed something from my reply, since I wrote how you cannot rely on food allergy tests; in fact they are totally false for so many reasons, so you need to dismiss any food allergy tests totally. Please read the articles I referred you to. +++All grains are not good for human consumption anyway, unless they are properly prepared, and most gluten grains aren't even good since they are all genetically modified since the early 1900s, and they are grown with mycotoxins (fungal-type toxins) inherent in them, which cannot be removed. Also all grains are not included on this program for other reasons, in addition to the mycotoxic issue, as explained in my article How to Successfully Overcome Candida - please re-read the section on grains so you understand better. >I forgot to mention that I took along some Pau d'arco tea to test (I still haven't tried it yet), and tested very negatively to it. The kinesiologist agreed that it is very good stuff but that while some people test ok with it others do react. She said I may be able to drink it later but not straight away. Would you say that this is a healing reaction and that I should start taking it now? +++Please do not rely on kenesiology or muscle testing since they can be very very inaccurate and misleading. > Another issue I have is that I work in the wine trade and eliminating alcohol is very difficult as tasting is often part of my job! Do you think it is ok as long as I spit and rinse my mouth well > with water after? Or will it still affect my healing? Thank you once again for your invaluable advice, it is much appreciated. +++You should do okay, if you follow the program carefully, since it's " proper nutrients " that heal your body and help it detoxify most. The best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 DMPS is not approved for children. I would ask for DMSA. On Thu, May 14, 2009 at 4:32 PM, andreacarrero777 <ajcarrero1@...>wrote: > > > Hello, > > I have a 5 year old daughter with ASD. She has been doing biomedical with a > wonderful DAN! doctor since October 2008. We recently ran a porphyrins test > and it showed she has heavy metal toxicity. Most likely Mercury because I > have 7 " silver " fillings and breastfed her for over a year. She is partially > vaccinated. She is doing wonderfully with the anti-viral protocol and > treating her crazy levels of yeast and bacteria. We recently completed a > round of vancomycin and fluconazole and she is doing much better. Her doctor > wants to do a DMPS IV push challenge with urine collection. I am very > hestitant to do this. Also she wants to do a glutathione IV based on recent > low test levels. We have an appointment tomorrow and I have a lot of > questions for her. Please let me know what I should be asking. I am very > confused but want to help my daughter! Thank you! > > ) > Mom to 5 wonderful kids! > > > -- Human beings are not born once and for all on the day their mothers give birth to them, but rather life obliges them over and over again to give birth to themselves. Marquez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 , Do the Andy Cutler chelation protocol. Don't do the DAN chelation protocol. Don't do the IV Challenge. If you are unsure, don't start chelation until you do more research and are sure. Maggied. > > > > > > > Hello, > > > > I have a 5 year old daughter with ASD. She has been doing biomedical with a > > wonderful DAN! doctor since October 2008. We recently ran a porphyrins test > > and it showed she has heavy metal toxicity. Most likely Mercury because I > > have 7 " silver " fillings and breastfed her for over a year. She is partially > > vaccinated. She is doing wonderfully with the anti-viral protocol and > > treating her crazy levels of yeast and bacteria. We recently completed a > > round of vancomycin and fluconazole and she is doing much better. Her doctor > > wants to do a DMPS IV push challenge with urine collection. I am very > > hestitant to do this. Also she wants to do a glutathione IV based on recent > > low test levels. We have an appointment tomorrow and I have a lot of > > questions for her. Please let me know what I should be asking. I am very > > confused but want to help my daughter! Thank you! > > > > ) > > Mom to 5 wonderful kids! > > > > > > > > > > -- > Human beings are not born once and for all on the day their mothers give > birth to them, but rather life obliges them over and over again to give > birth to themselves. > Marquez > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 Please don't do a challenge test, they can cause permanent damage. Why do you need another test, you already have the porphryns test. Start chelating using the AC protocol. Tell your DAN that you want to go with a low dose, frequent dose protocol, which is the Andy Cutler protocol. It is the safest way to get the toxic elements out of your child. TJ ________________________________ From: andreacarrero777 <ajcarrero1@...> Sent: Thursday, May 14, 2009 2:32:36 PM Subject: [ ] New to this group Hello, I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! ) Mom to 5 wonderful kids! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 I agree. I wish I wouldn't have gotten a challenge test done with my son, but I didn't know about Andy's protocol at the time. The problem is that it spikes the level of chelator in the blood and then the person experiences a huge redistribution (not to mention a huge yeast flare up). It is safer to get a constant level of chelator " flowing " over a few days, the body won't be as stressed, more metals will be removed and there will be a small redistribution at the end. > > Please don't do a challenge test, they can cause permanent damage. > Why do you need another test, you already have the porphryns test. > Start chelating using the AC protocol. > Tell your DAN that you want to go with a low dose, frequent dose protocol, which is the Andy Cutler protocol. It is the safest way to get the toxic elements out of your child. > TJ > > > > > ________________________________ > From: andreacarrero777 <ajcarrero1@...> > > Sent: Thursday, May 14, 2009 2:32:36 PM > Subject: [ ] New to this group > > > > > > Hello, > > I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! > > ) > Mom to 5 wonderful kids! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 Hi , Welcome to the list. You're in the right place. Don't allow any challenge. The high single dose is dangerous, likely to push mercury into the brain and the results of the urine collection do not provide particularly useful info. Listen to your gut, you're on target. Glutathione can cuase significant problems for some. Educate yourself about Andy Cutler's protocol. Many here chelate without a doc because so many of the docs don't understand safe, effective chelation and recommend dangerous doses, routes, etc. S S New to this group Posted by: " andreacarrero777 " ajcarrero1@... andreacarrero777 Thu May 14, 2009 2:33 pm (PDT) Hello, I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! ) Mom to 5 wonderful kids! ------------------------------------------------------------ Plumber Click now for prescreened plumbing contractors. http://tagline.excite.com/fc/FgElN1g7TBwhuInWW3QZxZyTA3rvImwYGHUtZ3DwDcIF93Zqzfn\ zejYaVu4/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 For all the new members who are not sure about chelation with AC protocol...it works. I documented my son's story of how he was, and how he is now on my webpage. We have done 64 rounds of dmsa/ala with AC protocol http://www.freewebs.com/mercurybabies/ I have seen it cure my son and help countless other children/adults. In the least it will improve kids, and then there are the other interventions to help repair the body that are a great part of this. > > Hi , > Welcome to the list. You're in the right place. Don't allow any challenge. The high single dose is dangerous, likely to push mercury into the brain and the results of the urine collection do not provide particularly useful info. Listen to your gut, you're on target. Glutathione can cuase significant problems for some. Educate yourself about Andy Cutler's protocol. Many here chelate without a doc because so many of the docs don't understand safe, effective chelation and recommend dangerous doses, routes, etc. > S S > > New to this group > Posted by: " andreacarrero777 " ajcarrero1@... andreacarrero777 > Thu May 14, 2009 2:33 pm (PDT) > > > > Hello, > > I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! > > ) > Mom to 5 wonderful kids! > > ------------------------------------------------------------ > Plumber > Click now for prescreened plumbing contractors. > http://tagline.excite.com/fc/FgElN1g7TBwhuInWW3QZxZyTA3rvImwYGHUtZ3DwDcIF93Zqzfn\ zejYaVu4/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 Jan, If you haven't already been told today.......... " YOU'RE WONDERFUL!!!!! " ________________________________ From: Jan <mercurybabies2@...> Sent: Friday, May 15, 2009 2:09:51 PM Subject: [ ] Re: New to this group For all the new members who are not sure about chelation with AC protocol...it works. I documented my son's story of how he was, and how he is now on my webpage. We have done 64 rounds of dmsa/ala with AC protocol http://www.freewebs.com/mercurybabies/ I have seen it cure my son and help countless other children/adults. In the least it will improve kids, and then there are the other interventions to help repair the body that are a great part of this. > > Hi , > Welcome to the list. You're in the right place. Don't allow any challenge. The high single dose is dangerous, likely to push mercury into the brain and the results of the urine collection do not provide particularly useful info. Listen to your gut, you're on target. Glutathione can cuase significant problems for some. Educate yourself about Andy Cutler's protocol. Many here chelate without a doc because so many of the docs don't understand safe, effective chelation and recommend dangerous doses, routes, etc. > S S > > New to this group > Posted by: " andreacarrero777 " ajcarrero1@. .. andreacarrero777 > Thu May 14, 2009 2:33 pm (PDT) > > > > Hello, > > I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! > > ) > Mom to 5 wonderful kids! > > ------------ --------- --------- --------- --------- --------- - > Plumber > Click now for prescreened plumbing contractors. > http://tagline. excite.com/ fc/FgElN1g7TBwhu InWW3QZxZyTA3rvI mwYGHUtZ3DwDcIF9 3ZqzfnzejYaVu4/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 Actually...I haven't..and thank you so much! It's nice to hear. > > > > Hi , > > Welcome to the list. You're in the right place. Don't allow any challenge. The high single dose is dangerous, likely to push mercury into the brain and the results of the urine collection do not provide particularly useful info. Listen to your gut, you're on target. Glutathione can cuase significant problems for some. Educate yourself about Andy Cutler's protocol. Many here chelate without a doc because so many of the docs don't understand safe, effective chelation and recommend dangerous doses, routes, etc. > > S S > > > > New to this group > > Posted by: " andreacarrero777 " ajcarrero1@ .. andreacarrero777 > > Thu May 14, 2009 2:33 pm (PDT) > > > > > > > > Hello, > > > > I have a 5 year old daughter with ASD. She has been doing biomedical with a wonderful DAN! doctor since October 2008. We recently ran a porphyrins test and it showed she has heavy metal toxicity. Most likely Mercury because I have 7 " silver " fillings and breastfed her for over a year. She is partially vaccinated. She is doing wonderfully with the anti-viral protocol and treating her crazy levels of yeast and bacteria. We recently completed a round of vancomycin and fluconazole and she is doing much better. Her doctor wants to do a DMPS IV push challenge with urine collection. I am very hestitant to do this. Also she wants to do a glutathione IV based on recent low test levels. We have an appointment tomorrow and I have a lot of questions for her. Please let me know what I should be asking. I am very confused but want to help my daughter! Thank you! > > > > ) > > Mom to 5 wonderful kids! > > > > ------------ --------- --------- --------- --------- --------- - > > Plumber > > Click now for prescreened plumbing contractors. > > http://tagline. excite.com/ fc/FgElN1g7TBwhu InWW3QZxZyTA3rvI mwYGHUtZ3DwDcIF9 3ZqzfnzejYaVu4/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Dear Kinga, firstly, the vitamin D. Low levels of vitamin D can cause joint ache, or worsen it. You cannot take safely 50K of vitamin D without regular blood tests, and it is one dose per week. Vitamin D can be toxic in high levels, but if you have low vitamin D (like me!) you can only go up by 10 increments per month (according to my rhuemy), so since my levels were very low (like under 20) I am safe to take it for awhile but they will check my levels every 6 weeks and stop the large doses when I reach a good level. 2000iu per day is the maximum safe dose without monitoring. can your regular doctor order blood work to check your levels? I don't know how it works in Canada. Fish oil is supposed to help with inflammation I was told to take 6000mg / day (1000/day week 1, 2000/day week 2.....6000/day week 6 and beyond), if you are going to take that much make sure it is a respected brand, also take it with lots of water, and don't take it with other medication (30 minutes after or 2 hours before) or it can affect absorption of other pills (no one told me that at first and I was taking it with all my vitamins and my birth control! thank goodness I did my homework!) Also, I must caution you to pick either Advil or naproxen and stick with it. when you take both regularly or in large doses they increase your chance of GI side effects (such as intestinal bleeding). whichever one works better for you just stick with it. because of taking these drugs too much my stomach will never be the same. I never used to get heartburn, now it happens regularly and I no longer take either regularly or in high doses. As I lurk on here I notice that most people are given methotrexate as a first course of action, but my rhuemy wants to start me on sulfasalazine which they claim is more benign of a drug. now most of my joints are affected, some for 15 years or so now, but I was only recently diagnosed (2 months ago). the downside to sulfasalazine is that it can take up to 3 months to work and for some people it doesn't work at all. that's a long time to take a drug to find out it doesn't help. I am one of the oddballs for whom the joint pain was first. the skin symptoms are new to me and mainly just scalp issues. aquatic therapy (water above 85 degrees) is supposed to be helpful. I love to sit in my hot-tub, but I don't exactly exercise in it! I hope this information helps you! -shel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 ---Hello, First of all, don't worry too much about me mixing my NSAIDs, I always make sure one is out of my system before I switch. I have naproxen 125 mg, which is about 1/2 of an Aleve. Celebrex lasts me 36 hours, so if I take that I wait 48 hours until I take something else. I really don't even take them often. About 2 Advil per week and 2 naproxen. I have never had stomach upset from NSAIDs before, and have really kept them down to a minimum. Once I see my rheumy in Dec, we'll see what he says, or maybe I can just get a low dose of Celebrex. They all work, but I was thinking that if I am having a good day, but not good enough to take nothing, I can just use Advil. But my drug plan pays for the stronger meds, but not ones you can get over the counter. Here, they just recently approved Aleve as an over the counter med, but my dose is lower. Does anyone know if Celebrex is really easier on the stomach and has less risk for ulcers, or is the jury still out? Here in Canada, you can buy 1000IU of vitamin D, and now 5000IU are becoming available, at least on the internet. NOW brand makes a 5000 in D3. My oldest son is actually deficient, he is 8.5, I can probably be tested for it, but everything I have been reading says that even 10K IU per day is safe, and I am just going up to 4000 iu to see if it does anything. Thanks for info on fish oil, I usually take wit other stuff too. I have been taking with vitamin D, so I won't do that anymore. I guess you don't have to worry about me having done too much D then, eh? I'll just take my fish oil with meals? that seems to make sense. Actually my kids chew fish and flax oil capsules, my 5 year old usually 2000 mg per day of each, and he's been doing it for years. He's healthy and bright. My older one only likes the fish oil, not the flax. Go figure. He's had it since he was a baby. Have a good one, Kinga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Hi, that's totally different with the NSAIDs, I assumed higher doses because doctors kept telling me 800mg Ibuprofen 3x a day, because any lower wouldn't stop inflammation. Mostly I did 600 twice but that is still way more than you! (that was pre-diagnosis when they thought I had bursitis, or tendinitis, or thoracic outlet syndrome....or...or... ) the fish / flax seed oil should really put that info on the bottle, don't you think?! with meals (and water!) is definitely a good idea! if you don't want to be tested for your D levels you can watch for these signs of vitamin D Toxicity: Anorexia (loss of appetite), nausea, vomiting, and weakness (more info: http://www.merck.com/mmpe/sec01/ch004/ch004k.html ) personally, I was nursing when they gave me the 50Kiu, and that's unsafe for baby (good thing I investigated...) so instead of taking the supplements I have been using a tanning bed (only once a week) to see how high I can get my levels " naturally " plus your body wont make toxic levels, I just had my blood taken yesterday so we will see how that goes, if it hasn't improved significantly I will take the supplements. Also, I really enjoy tanning and this gives me an excuse to go even though my husband lectures me! (therefore) I must say that tanning beds are dangerous if abused (especially under age 30) and I am not promoting it! as for Celebrex I have heard good things about it, although I know one person for whom it didn't do anything. some information I looked up for you (I always link my sources): http://www.rxlist.com/celebrex-drug.htm http://www.drugs.com/sfx/celebrex-side-effects.html Some studies have shown a decrease in gastroduodenal endoscopic ulcers with celecoxib in comparison to a traditional NSAID. Cardiovascular Risk a.. Celebrex may cause an increased risk of serious cardiovascular thrombotic events, myocardial infarction, and stroke, which can be fatal. All non-steroidal anti-inflammatory drugs (NSAIDs) may have a similar risk. This risk may increase with duration of use. Patients with cardiovascular disease or risk factors for cardiovascular disease may be at greater risk. Gastrointestinal Risk a.. NSAIDs, including Celebrex, cause an increased risk of serious gastrointestinal adverse events including bleeding, ulceration, and perforation of the stomach or intestines, which can be fatal. These events can occur at any time during use and without warning symptoms. Elderly patients are at greater risk for serious gastrointestinal events. Good luck to you! " safyre " <safyreshel@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Thanks for the info on Celebrex, maybe a lower dose of that is the way to go. I just hate that I take the 200mg, get real used to feeling better, then it feels as if I am worse than before when it wears off. I have been reading online, that for rheumatoid arthritis, they did studies on NSAIDs, and after a 2 week course, once stops, TNF alpha was measured higher than before the NSAIDs, and it took 5 weeks of taking none, to get back to the pre-NSAID level. So I am leery of NSAIDs, but as I just use a few , I hope it won't be too bad. I'll have to look for the link and post For everyone though, my opinion is, if you need NSAIDs, then maybe its better to do a higher dose of DMARDs instead. Re: fish oil, in a way I agree about putting the info on the bottle, but with Natural remedies , they are actually food, so a lot depends on the dose. I try to take only 2 capsules at a time. I think its pretty intuitive that you should take with water, as it sits in your stomach for a long time after you take it. My main issue these days about remedies is that the Canadian government is trying to put regulation in place for vitamins, which means they would have to go through clinical trials in order to be allowed to put any info on the bottle. This would mean a big increase in cost, and even if eventually drug plans may cover supplements, it would probably only be for serious medical reasons, and maybe in cases when the Rx drug is not being used , so overall therapy is cheaper, or Who knows? Anything that would raise the cost of supplements is bad, and my naturopath charges $33.80 Canadian a visit, and for smaller things I can get a quickie visit for $18. A few times a year, its worth it for the good info , and I can find out the rest online. " kbarwig " <kbarwig@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Hi Safyr, My question has nothing to do with NSAIDs. I'm interested in how you were finally properly diagnosed. I have a family member in a similar situation. Anything you would be willing to share would be appreciated. Thanks, Pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2009 Report Share Posted August 27, 2009 Hi Pattie, Symptoms: I had hip pain since about age 13 and I am 28 now, finger pain and swelling started about 6 years ago, bad shoulder pain started 4 years ago, then this overall swelling and not being able to move without pain thing started happening once in a while in 2007 (affecting also knees, ankles, small joints of the feet). it is increasing in frequency and severity quickly. As for skin symptoms I had none until 3 years ago and I have some very minor scalp flaking that started in the last year. I have had this rash on my shin that has reappeared 3 times, first time I thought it was poison ivy, the second time I thought maybe I had a reaction to a lotion, the third time I thought ok maybe this is related and brought it up to my doc. I didn't have medical insurance so I paid out of pocket to see a few doctors when the shoulder pain got really bad, but they thought it was injury related because mostly I just discussed my shoulders. they kept telling my to take piles of Ibuprofen, but that started to mess up my stomach. I tried stopping it, but when I did it felt like every joint in my body swelled, it was so bad that I could not walk more than a few feet. When I told the doc I was seeing then about it he dropped his jaw and said " that sounds like an allergic reaction, but you cant be allergic to NOT taking something " he looked baffled but he didn't look into it or revisit it so once I got medical insurance I got a new doctor! .... I went to my (NEW!) primary care doctor and first she sent me to Physical therapy and an orthopedist to rule out bone abnormalities or injuries. then she sent me to a rheumatologist once the ortho concurred. the Rheumy ran a bone density scan and A LOT of blood tests, they took 23 tubes of blood, and the lab actually couldn't complete all the tests and I had to go back and give one more! among other things they tested me for Lyme disease, Lupus, and Rheumatoid Factor. and she ran some genetic tests, that's how they found HLA-B27 present (I read that 50% of people with PsA and 90% of people with Ankylosing Spondylitis carry this gene) I have had x-rays of my neck, shoulder, wrists, fingers, SI joint area, knees, ankles, and feet. the SI joint one was " abnormal " so they ran an MRI and saw " inflammation " between the SI Joint MRI results, the HLA-B27, and the minor skin symptoms I was diagnosed with PsA (which I couldn't even say right for a month!) I got my diagnosis in June I think, at my next appointment she wants to start me on sulfasalazine as a first course of treatment, if that doesn't work MTX is Plan B I hope that answers your questions! but if you have more I would be happy to answer them! -Sheli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2009 Report Share Posted August 28, 2009 Sheli: I hope you can get in before December - sounds like you need help big time! But I would really like to hear of your progress on sulfasalazine. I asked my rheumy about it this week and she said it was 1) hard on the stomach but even more important, 2) would not help my back where I have sacroilitis - which is also what you likely have since they found " inflammation " in the sacrum. I was on Enbrel for a year and a half - stopped for six months because I'd gotten an upper respiratory infection and had to go off it but stayed off since I had not had any real symptoms for over a year. Went in to see the rheumy just to check on how I was doing and since I'd experienced some new " arthritic " symptoms in my fingers she really wanted me to go back on Enbrel but I told her it was too cost prohibitive . . .. .especially given that my symptoms are relatively minor and - I believe - more related to structural anomalies in my body than PA, though at the time I went on Enbrel, there was clearly something going on because my sed rate and CRP were both high and I hurt all over . . .. .. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Hi Sheli, I'm sorry you have endured so much suffering - you are a strong woman. Thank you for sharing you history with me. My 17yr old daughter was diagnosed with PsA when she was 11; however, we haven't found anyone else with it on either side of the family. I was hoping to learn more about your symptoms because they were so similar to my husband's grandmother. I've been wondering/guessing if the PsA had been overlooked. It sounds like you are getting excellent care now. I hope you are able to continue with your treatment. Sometimes it takes a few tries to get it right, but you'll find what's right for you. This is a great site for support and information. Again, thank your response - it was enlightening. Let me know if I can ever return the favor. Pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Welcome We have some very good Helath professionals in the group including our moderator Babbit, whom will likely send you an email. I am a Nurse myself but it through years of my own personal back issues that I have researched and know what I know now, and from what I have read is that your Ortho is right about the Spondylothesis being corrected by surgery. If you read online on many of the spine websites that have articles by Physicians this condition is often only corrected by surgery..also you have the disk fragment that is noted to be impinging on your L5 nerve. Its not going to go anywhere...Im not a big advocate for surgery but given your age and MRI report as well as feedback from your Orthopedic Surgeon I would recommend surgery for relief of your pain. will likely have more detail information for you but you are too young to just go on with these conditions. Me on the other hand I have Degenerative Disc Disease, arthritis in the spine...nothing that really stands out on the MRI but can still cause miserable pain none the less. In my circumstance I am choosing to follow a Physical Medicine approach..ie...treating the pain with radiofrequency and injections which for now seems to be really helping. Now that said, this is a crappy economy, if you cant take the time of for surgery and recovery time because you are worried about your job, your finances, your husband is worried, etc...that is very understandable...than do what you have to do. RN in DC > > Hi All, > > My name is and I'm 29 years old. I've been living with pain from my back and my nerve pain down my right leg for about 3 years now. The nerve pain has actually gotten a lot better since I've > lost about 61 lbs now since March of this year and in late May I started seeing a Chiropractor so that helped my nerve pain. > > Jan. 08 I had x-ray done due to the pain in my back and nerve > pain in my leg. Once the x-ray was done it showed that I had > spondlolisthesis so they sent me for MRI of my back. > > Here are the results from my MRI in Jan. 08: > > Grade 2 spondylolisthesis of L5 on S1 associated with a posterior > spondylosis. > > There is estimated 7 mm anterolisthesis with significant to severe > right and to a lesser extent left foraminal stenosis at L5-S1. > > Mild right central disc herniation of L4-L5 with a small, extruded > fragment creating a moderate localized impact upon the right L5 nerve > root. > > Minimal broad-based disc bulge at L3-L4 of doubtful clinical > significance. > > I had a CT Scan done on 2/6/09 and this is what they said: There is a mild change of Degenerative Disc Disease with small vertebral body osteophytes. There is disc space narrowing at L4-L5. There is evidence of bilateral spondylolsis of L5 with Grade 1 to 2 Spondylolisthesis of L5 on S1. No vertebral compression deformities are identified. The sacrobiliac joints appear intact. Slight spurring is seen along the supermedial margins of both iliac > bones. > > I've seen a pain management doctor and he did three steriod injections and the third one didn't take so they told me they could no longer help me with the back pain and I needed to set up an appt. to see the surgeon. > > I set up an appt. for May 15, 2009 to see the surgeon and my husband and I went to the appt. and he told us everything that he would do and the recovery time was about 2-3 months. Right away after being off for surgery in March I couldn't take off that much time from work and I was still able to stand and do things so we decided it would be best to wait until after I've lost all the weight I want to and see where we are at then. > > The surgeon said he had no problem doing the surgery on me because my back can only be fixed with surgery but I may want to hold off as long as I can because my L2 and L3 are already showing signs of Degenerative Disc Disease and he said that when I fix my L4 and L5 that will put pressure on my upper spine and in about 10 years or so I'd need another back surgery to replace that. > > The chiropractor guy I've been seeing has been helping with my nerve pain but just 2 weekends ago I must of done too much lifting and now I'm still paying for it. On Saturday, Sept. 5th I was lifting probably 4 - 5 gallon buckets of water and putting them in the fish tanks and I was also doing some other lifting as well. Then on Monday, since I was off from work my mom and I went back to visit > my Grandfather, he lives about 1 hr. and 45 mins. away and on Monday evening, my back felt sore but it wasn't too bad. On Tuesday, Sept. 8th I woke up and I had the worst back pain, I've ever had. I could barely walk and sitting at work hurt so badly. > > I ended up leaving work at 2 p.m. on Tuesday because I couldn't take the pain anymore and I called my chiropractor to see if I needed to see the pain management doctor or who I should go and see and they told me to keep my appt. with the chiropractor and when I went in on Wed. Sept. 9th and the started me off with the Tens unit and I had to sit up for it because I couldn't lie down. > > When the chiropractor came in he told me I had a lot of inflammation and my back felt really warm. > > He told me to keep ice on my back and he wanted to see me on Friday. He did a few adjustments on Wed. Then Friday came and I was walking better but the pain was still there and he told me to rest over the weekend and that he wanted to see me back on Mon., Tues., or Wed. so I have a follow-up appt. on Wed. with him and I think this time I'm going to talk with him about what I can do or who I should see or what not. > > Last night I was running the vacuum cleaner and I got this pinching and pain in my back and this morning I'm super sore again and I don't know if a back brace would help with certain things or what but sometimes just sitting here at work and trying to move my spine really hurts. > > I'm sorry this is super long I'm just having so much pain lately and I don't know what else to do for it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 - You should go and read the new member file in the FILES section of the group. That has a lot of commonly asked questions there. Owner New to this Group Hi AllI'm new to your group and very interested in redressing some of the damage done over the past 57 years or so, through plain ignorance.I look forward to any help anyone can give me. Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Hi Thanks for your advice. I will go looking in the Files section, as soon as I have finished with my email inbox. Many thanks. From: ladybugsandbees <ladybugsandbees@...>iodine Sent: Tue, 8 June, 2010 23:23:38Subject: Re: New to this Group - You should go and read the new member file in the FILES section of the group. That has a lot of commonly asked questions there. Owner New to this Group Hi AllI'm new to your group and very interested in redressing some of the damage done over the past 57 years or so, through plain ignorance.I look forward to any help anyone can give me. Thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Hi Helen, Relax! It is early days yet. Yeah, it hurts. Yeah, it doesn't work so " good " . But it will improve, promise! The flex is not bad, but In would concentrate on the extensiona exercises at this point. With heavy meds! Do not be afraid to take them. You are in pain. The exercises exacerbate the pain. Take as many meds as you can! I hope that there is someone at home to help you out. this is not the time for dusting. This is the time for concentrating on getting your knee back to usable proportions. I was out for the count for three months. It will get better. All the best, Joan TKR 12/09 NYC and freezing!!!! ________________________________ From: helenguyette <helenguyette@...> Joint Replacement Sent: Fri, January 14, 2011 6:03:41 AM Subject: New to this group I had a Total Knee Replacement Dec 15th, and I must admit its been a tough and painfull road so far. I spent 5 days in the hospital and then transfered to a private rehab hospital for a further 18 days of intensive hydro and phyio. On discharge I was on the CPm at 108 degrees and 95% flexion and 5% extention. After waiting 3 days before being able to start out patients hydo and physio I went backwards to 90% flexsion and 10% extension, which was rather disappointing. I am still on heavy pain meds when needed, but changed from diagesic to panadol during the day as didnt like too much of the dizzy feeling. On oxycontin 20 mgs twice a day and endone as needed, but trying to use them only at night which seems to be the worst time foe me, its like the witching hour. This is when I get down, teary and think what have I done having such major surgery and I am only 46. Just wanted to share my story and happy to hear from anyone. I am concerned that my knee clicks when bending during expercises, and inside medial aspect is rather sore and tender expecially during excerise with pain at times radiating down the tibia, is this normal. Still swollen and hot to touch after 4 weeks is this normal too. regards, Helen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.