supplements

[Guest guest]

what are your stealth viruses? JL

liveitup wrote:

>

> From: liveitup <liveitup@...>

>

> Hi All,

> The # to call tollfree is1-800-487-1500 for any supplements Dr.B

> recommends and the ID # is---US0424816. That is the tollfree # I was

> told to use. Hope everbody gets a little break tomarrow for Memorial

> Day. For me, I'll be happy to just eat anything cooked on the grill.

> Seems like summer when I smell that smell. Then, I'll lay on a lounge

> chair outside and take a little snooze. I will not be going near the

> woods (right behind us) Love to all of you. By the way, I worked for a

> LLMD for 2 years and always took blood and did all kinds of handling of

> body fluids (gloves of course) but God knows. Maybe I got something else

> from strictly working with Lyme patients. Tears? Urine? Who knows. I did

> have Lyme when I started there but even using universal precautions, it

> kind of gives me a chill once and awhile since I have 3 tickborne

> diseases and stealth viruses. Before that I worked in the OR. Hands in

> blood all the time, again gloves but creepy.

> Love to all,

> Helen

>

> ------------------------------------------------------------------------

> It's finally here! What's your opinion?

>

> Create a Star Wars discussion group at ONElist.

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[Guest guest]

Hi Kay,

I was shocked when I saw the long list of meds you are giving your

daughter, that is until I realized I am taking about the same if not more.

I just hate to think of a poor little kid taking all these pills, I do hope

she gets better on the regimen, it must be so hard for you to get her to

take all the different forms of the meds, glad the amoxicillin is chewable,

Hugs,

Marta

>From: " Kay " <b10g7@...>

>

>our list of keepers,

>

>CoQ10 60 mg. X 2

>MSM 1000 mg. X 2

>vit.c 750 mg.

>vit. e 400 iu

>all b vit in complex pill

>l-carnitine 500 mg.

>olive leaf extract 500 mg. X 2 (or diflucan prescription)

>flax oil capsules 2 X 2

>primadopholis (sp) X 2

>chromium picolinate 200 mcg. X 3

>magnesium 250 mg. X 3

>calcium 300 mg X 3

>

>she also has armour thyroid and psychiatric meds (tegretol, klonipin,

>risperdal, lithium)

>

>AND

>claritin and benadryl!

>

>poor baby, she hates the pills, but now that she has the chewable amox to

>look forward to she takes them right down.

>

>peace,

>kay

>

>

>

>

>>>>i was doing all the recommended stuff, antioxidant multivit, bcomplex,

>borage oil, pychgenol, E, think that is all??? i have a cabinet full of

> " flunkies " .

>

>>From: LymeDizzez@...

>>

>>In a message dated 6/14/99 11:21:04 PM Eastern Daylight Time,

>>mimianne@... writes:

>>

>><< I can only say that I was popping all sorts of supplements, for say 6

>> months. I finally just got tired of popping them and not feeling better.

>> Like magic >>

>>Sorry to be so green about all this. Is everyone referring to vitamins?

>Which

>>supplements?

>>, New Bedford, MA.

>

>

>

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[Guest guest]

In a message dated 7/24/99 2:57:51 PM Eastern Daylight Time, Dabret22@...

writes:<< can you recommend a beginners book/guide to

vitamins and suppliments???

Thank you, Dabs in conn >>

if you have a local vitamin shoppe store by you...they offer loaners of 2

books for a 2 weeks period...

the book Byron mentioned...Prescrption for Natural Healing is a GREAT GREAT

book.

I have not found a better one ..my local library carries it...and Costco

sells it discounted....Bernadette

[Guest guest]

Vicki NJ,

When I went off antibiotics, I continued with lots of vitamins and other

herbal supplements, and they didn't seem to affect my tests. I know for sure

they didn't affect my LUAT, it was highly positive even though I was off

antibiotics for a few months. What tests are you waiting to do? Remember all

of them at this stage are highly unreliable, you still need to go by how you

feel, not the tests. I wish I did not wait so long to start back on my

antibiotics, I went three months, and it was the worse three months of my

life and now I've been back on for one month, and still not feeling better

and getting to where I was before, having cycles, so at least I had some

consecutive days of feeling okay (not normal, but not as bad). Anyway, good

luck and hurry up and get those tests done if you really need them.

Vicki, Md

-

>From: " Vicki Sapudar " <v.sapudar@...>

>

>Hi

>

>I'm wondering if anyone knows whether taking the various supplements known

>to help in lymes, would scew any of the tests. I';m currenly waiting to

see

>a new LLMD (I'm in relapse) and I'm holding off on the abx because of the

>tests,

[Guest guest]

In a message dated 12/6/99 8:39:08 AM Eastern Standard Time, tlizzy@...

writes:

<< Now I'm running low on

OPCs & so am taking less, still taking the 2000 mg/day of MSM, but the

back pain's increased again. >>

hey vitamins.com is offering a 25$ off and free shipping off first

purchase...if anyone is looking to try a supplement for free, this could be

the time....

My local newspaper had an article about this is the season to take advantage

of e-tailers starting up web sites with special promos, they predict this

season will be the last to offer big discounts.....

I only offer this because I have taken advantage of a few web sites to order

holiday stuff....

i ordered a 100$ bike on sale at toys r us for 50$.....but i did it thru a

link called brandsforless.com they were offering a 25$ rebate on a purchase

of 50$ or over...so the 100$ bike costs 25$, and gets delivered today to my

door...FREE shipping....so since Lyme medical bills are something you cannot

necessarily negotiate...(the offer was for the frits 50 thousand customers,

so I think it is over now....but checking out some web deals can save you

money to use on other things....Bernadette

[Guest guest]

Sue,

I know lots of us have the muscle twitch problem. I still get them, but

mainly when I over do it, or during herx. Maybe I need to increase it. I

also get IV vitamin drips on occasion, and they help a lot. Maybe your son

can go that route if he needs it again instead of the shot. The nurse put

the needle for the IV in my arm where you would normally have blood drawn,

so it didn't hurt like the IV's put in your hand, the only caveat is that

you have to hold real still for about 30 minutes. But this way I got Vit C,

magnesium and vitamin B all at one time. Made me feel great for an entire

day! And I didn't feel crippled from the shots in the rump I previously had.

Good luck to you and your son. Thanks for the dosage info. Vicki, Md

>From: Sue <tlizzy@...>

>

>Believe me, you're not alone! It's all very confusing - trying to keep

>it all straight, on time, right time, etc. I know my son needed the

>mag. for his muscle twitches - fortunately (depending on how you look at

>it, I guess) for him, while the LLMD was examining him for the first time,

>he had such a severe muscle spasm in the throat/neck area that it locked

>up his jaw. Doc was watching it happen - it managed to happen once more,

>so he could get it unlocked, and he was given a mag shot right then &

>there. He complained about the rump pain for ~3 days - so I try to put

>up w/the confusion of med/vitamin scheduling so he now can get supplement

>capsules;-) I also told my LLMD last time I saw him that the severe muscle

> " fluttering " I'd been having all over my body had nearly stopped. He felt

>that was due to the extra mag. I was taking (had been on 800 mg/day, and

>was still having lots of that, until I increased to 1000 mg). Generally,

>I keep the calcium down to ~500 mg/day - no use having them compete for

>each other when it seems to be the mag I need more of!?:-)

[Guest guest]

Hi All,

Just got this site from a friend.

They have a product called Spiro Kete - which has helped a friend's formerly

bedridden lymie daughter tremendously. Have not tried it yet myself.

Blessings & velcros,

Chris

<A HREF= " http://www.kroegerherb.com/products.htm " >Kroeger Herb product

lines</A>

[Guest guest]

Hi Eamonn

My name is Terry. My & wife & I live in southern AZ just outside of Phoenix and have been on treatment seance January. I guess I was lucky. I git signed up for teatment before there was a waiting list.

Wellcome to the group. Most of the group are not on, on the weekends. They are a very supportive group. We will be keeping you in our prayers.

Terry

EamonnNiDoire@... wrote: Hello all, My name is Eamonn, I moved to america from ireland a decade ago, I have hepC genotype 3, and am on the waiting list for interferon...whoever knows how long that will be, eh?..all I can say is after schering-plough's uncivilised behaviour on peg-intron, I hope hoffmann-laRoche's Pegasys takes the market by storm.... I don't know if it's because genotype 3 is the best responder to conventional therapy(85% sustained viral clearance), but since i wasn't sure when I was first Dx'ed with HepC about interferon,etc, from the day after Dx to the present, I tried daily milk thistle, alpha lipoic acid, selenium, high dose vitamin C and B-12, and my liver enzymes have gone down from waaay over 100 on both, to normal on one and 48 on the other(40 is the cutoff for normal, making the total elevation only 20% here) my ESR(sed rate) is 3--it's usually much higher in active liver disease--i have intermittent, extreme fatigue, and difficullty concentrating but the vitamins have helped that, but only somewhat...in retrospect, I'm glad I'm taking the supplements, because of this bleeding waiting list(3-6 mos., i'm told)...had I done absolutely nothing because of my uncertainties about interferon and rivavirin,and then, after msutering the requisite courage to put up with the side effects, and THEN found out about the waiting list, I'd be preety discouraged....I'm not happy about the list, but at least I know I did all I could..it costs me a few hundred bucks for these meds, but if they can just hold the disease at bay until the interferon-ribaviran duet does its thing, it's money well spent, IMHO.... Hello to all of you, and let us not falter on our way towards victory. as we say in Ireland: Go Bforidh Diann reinn.="Until God bars the way." See you all at the Victory party, Eamonn

[Guest guest]

Hi Eamonn,

I too was on the treatment before the waiting list.

I live in Houston, Texas. If you have any questions

someone here may be able to help. If nothing else it

is a great group to whine to or to laugh with.

Everyone here is very supportive.

I want to welcome you to the group. I have been on

treatment since November and will be until October. I

recently had my viral load checked and it is

undetectable. It is a good feeling and I now consider

myself a dragonslayer. I plan on having a sustained

response. I am genotype 2B, and it too responds well.

Good luck and welcome.

Sharon

__________________________________________________

[Guest guest]

Welcome aboard Eamonn. Sounds like you're well prepared for the fight. I, too, took milk thistle and a couple of other supplements prior to going on tx and lowered my ALT's to the normal range as well. I have finished the schuering-plough combo and am currently in remission, though I return in a month to see if I have remained so. Good luck to you and again, Welcome.. -dz-

EamonnNiDoire@... wrote: Hello all, My name is Eamonn, I moved to america from ireland a decade ago, I have hepC genotype 3, and am on the waiting list for interferon...whoever knows how long that will be, eh?..all I can say is after schering-plough's uncivilised behaviour on peg-intron, I hope hoffmann-laRoche's Pegasys takes the market by storm.... I don't know if it's because genotype 3 is the best responder to conventional therapy(85% sustained viral clearance), but since i wasn't sure when I was first Dx'ed with HepC about interferon,etc, from the day after Dx to the present, I tried daily milk thistle, alpha lipoic acid, selenium, high dose vitamin C and B-12, and my liver enzymes have gone down from waaay over 100 on both, to normal on one and 48 on the other(40 is the cutoff for normal, making the total elevation only 20% here) my ESR(sed rate) is 3--it's usually much higher in active liver disease--i have intermittent, extreme fatigue, and difficullty concentrating but the vitamins have helped that, but only somewhat...in retrospect, I'm glad I'm taking the supplements, because of this bleeding waiting list(3-6 mos., i'm told)...had I done absolutely nothing because of my uncertainties about interferon and rivavirin,and then, after msutering the requisite courage to put up with the side effects, and THEN found out about the waiting list, I'd be preety discouraged....I'm not happy about the list, but at least I know I did all I could..it costs me a few hundred bucks for these meds, but if they can just hold the disease at bay until the interferon-ribaviran duet does its thing, it's money well spent, IMHO.... Hello to all of you, and let us not falter on our way towards victory. as we say in Ireland: Go Bforidh Diann reinn.="Until God bars the way." See you all at the Victory party, Eamonn

[Guest guest]

Hi Eamonn

Welcome to the group.

[ ] supplements

Hello all, My name is Eamonn, I moved to america from ireland a decade ago, I have hepC genotype 3, and am on the waiting list for interferon...whoever knows how long that will be, eh?..all I can say is after schering-plough's uncivilised behaviour on peg-intron, I hope hoffmann-laRoche's Pegasys takes the market by storm.... I don't know if it's because genotype 3 is the best responder to conventional therapy(85% sustained viral clearance), but since i wasn't sure when I was first Dx'ed with HepC about interferon,etc, from the day after Dx to the present, I tried daily milk thistle, alpha lipoic acid, selenium, high dose vitamin C and B-12, and my liver enzymes have gone down from waaay over 100 on both, to normal on one and 48 on the other(40 is the cutoff for normal, making the total elevation only 20% here) my ESR(sed rate) is 3--it's usually much higher in active liver disease--i have intermittent, extreme fatigue, and difficullty concentrating but the vitamins have helped that, but only somewhat...in retrospect, I'm glad I'm taking the supplements, because of this bleeding waiting list(3-6 mos., i'm told)...had I done absolutely nothing because of my uncertainties about interferon and rivavirin,and then, after msutering the requisite courage to put up with the side effects, and THEN found out about the waiting list, I'd be preety discouraged....I'm not happy about the list, but at least I know I did all I could..it costs me a few hundred bucks for these meds, but if they can just hold the disease at bay until the interferon-ribaviran duet does its thing, it's money well spent, IMHO.... Hello to all of you, and let us not falter on our way towards victory. as we say in Ireland: Go Bforidh Diann reinn.="Until God bars the way." See you all at the Victory party, Eamonn

[Guest guest]

Hi Eamon..I am Jan from Louisiana and will start TX soon again..Welcome to the group and hope you stay with us and that we can help you with any questions you may have or just to vent off some steam..Hey we are great for that in here too..

[Guest guest]

Welcome, Eamonn,

My name is , age 57, living in VT, in my 6th week now on Peg-Intron. I have Type 1 (hard-responding). I hope you are able to get the drugs without too much of a wait.

I have to say, in fairness, my experience with The Schering-Plough Peg-intron folks has been nothing but positive, but as with any bureaucracy, I'm sure not everyone gets good treatment.

And if you have to be on a waiting list here, just imagine if you were in England, and had to go through their National Health. You'd probably have to wait years before they got to you! (I could be wrong about this, but this is what I've heard).

Anyway, welcome to the group; hope you find it as helpful as I have.

Kind regards,

[ ] supplements

Hello all, My name is Eamonn, I moved to america from ireland a decade ago, I have hepC genotype 3, and am on the waiting list for interferon...whoever knows how long that will be, eh?..all I can say is after schering-plough's uncivilised behaviour on peg-intron, I hope hoffmann-laRoche's Pegasys takes the market by storm.... I don't know if it's because genotype 3 is the best responder to conventional therapy(85% sustained viral clearance), but since i wasn't sure when I was first Dx'ed with HepC about interferon,etc, from the day after Dx to the present, I tried daily milk thistle, alpha lipoic acid, selenium, high dose vitamin C and B-12, and my liver enzymes have gone down from waaay over 100 on both, to normal on one and 48 on the other(40 is the cutoff for normal, making the total elevation only 20% here) my ESR(sed rate) is 3--it's usually much higher in active liver disease--i have intermittent, extreme fatigue, and difficullty concentrating but the vitamins have helped that, but only somewhat...in retrospect, I'm glad I'm taking the supplements, because of this bleeding waiting list(3-6 mos., i'm told)...had I done absolutely nothing because of my uncertainties about interferon and rivavirin,and then, after msutering the requisite courage to put up with the side effects, and THEN found out about the waiting list, I'd be preety discouraged....I'm not happy about the list, but at least I know I did all I could..it costs me a few hundred bucks for these meds, but if they can just hold the disease at bay until the interferon-ribaviran duet does its thing, it's money well spent, IMHO.... Hello to all of you, and let us not falter on our way towards victory. as we say in Ireland: Go Bforidh Diann reinn.="Until God bars the way." See you all at the Victory party, Eamonn

[Guest guest]

Hi Eamonn welcome to the group and please keep us posted Gigglebutt

EamonnNiDoire@... wrote: Hello all, My name is Eamonn, I moved to america from ireland a decade ago, I have hepC genotype 3, and am on the waiting list for interferon...whoever knows how long that will be, eh?..all I can say is after schering-plough's uncivilised behaviour on peg-intron, I hope hoffmann-laRoche's Pegasys takes the market by storm.... I don't know if it's because genotype 3 is the best responder to conventional therapy(85% sustained viral clearance), but since i wasn't sure when I was first Dx'ed with HepC about interferon,etc, from the day after Dx to the present, I tried daily milk thistle, alpha lipoic acid, selenium, high dose vitamin C and B-12, and my liver enzymes have gone down from waaay over 100 on both, to normal on one and 48 on the other(40 is the cutoff for normal, making the total elevation only 20% here) my ESR(sed rate) is 3--it's usually much higher in active liver disease--i have intermittent, extreme fatigue, and difficullty concentrating but the vitamins have helped that, but only somewhat...in retrospect, I'm glad I'm taking the supplements, because of this bleeding waiting list(3-6 mos., i'm told)...had I done absolutely nothing because of my uncertainties about interferon and rivavirin,and then, after msutering the requisite courage to put up with the side effects, and THEN found out about the waiting list, I'd be preety discouraged....I'm not happy about the list, but at least I know I did all I could..it costs me a few hundred bucks for these meds, but if they can just hold the disease at bay until the interferon-ribaviran duet does its thing, it's money well spent, IMHO.... Hello to all of you, and let us not falter on our way towards victory. as we say in Ireland: Go Bforidh Diann reinn.="Until God bars the way." See you all at the Victory party, Eamonn

[Guest guest]

I was reading The Spotlight on Lyme that I got in the mail a while back.

1. It feels great to be able to read again. This skill seems to come and go

with this disease for me.

2. I was reading the supplements that were suggested as required with

treatment for lyme.

3. They are as follows:

Acidopolus (frozen or refrigerated)

COQ10 (If you are taken Mepron do not take)

B Complex (this is to help with neuro problems)

Magnesium

Plant or Fish Oils (Primrose, and others..no flaxseed oil)

[Guest guest]

> 1. It feels great to be able to read again. This skill seems to come and

go

> with this disease for me.

I used to read 3-4 novels a week, now I havent read one in 3 years. I cannot

follow them, if I put it down I will lose all track of the story.

Do be careful of supplements since they are not regulated and can adversely

affect meds. Also if you have any hidden blood problems such as Factor V

etc, some supplements can be harmful. Do tell your Dr of all your

supplements and any meds another Dr may have you on, another great idea is

to take this list to your pharmacist. They may know of reactions the Drs may

not. Best of luck!

[Guest guest]

I signed up with TriVita when I had the funds to purchase supplements.

They may also be a good source to ask as their sublingual B12 was created by

a 3 time Pulitizer Prize Winner MD.

If you do purchase your supplements through them, will you please let them

know I referred you.

Thanks,

on

PS I signed up to be a business associate with the company in hopes of being

able to at least pay for my own supplements.

But, I wasn't able to spend any time on the business. I ended up charging

$1,000 worth of supplements last year on my credit card and only earning $300.

So, don't think I am making big bucks by promoting this company. HA!

[Guest guest]

Hello uses Alternative,

In reference to your comment:

è I'd like to know what herbal or natural supplements

è people here take, how much and what it is good for.... I

è currently take a few but am interested in possibly

è eplaning if some others may help.

*****You might want to check out www.liverfriend.com.....the owner is Jay Emmons.....he has some GREAT "liver blends" that work IMHO.....I don't have HepC but I have a impaired/disease liver and after 12 months on his SuperBlend51, then I switched to Liverfriend Plus, I have normal liver enzymes and bilirubin....

*****You may also talk to many heppers on the alternative/complimentary hepatitis lists called JOVO , who have taken his products for years. Jay has worked in the herbal/vitamin for over 30 years and knows most everything you need to know about hepatitis and herbal/supplement products. He himself is a recovering alcoholic/drug addict of 30 years....who has been clean for over 15 years. I would trust his opinion with my children. He formed the Hepatitis Buyers Club over 5 years ago, to provide quality products at a reduced cost. He has developed about 7 items that are good for the liver, but the most important thing to me is the products he stocks are QUALITY products.

I have no vested interest in liverfriend.com, except as a user, and I'm extremely pleased.....just a thought.......

Keep a smile on your face, love in your heart and walk with the angels, holding hand in the "chain of love"......

Angel Huggzz

or Angel

http://www.dream-tool.net/tools/messages.mv?index+hepheimers (Msg Board)

www.hepheimers.com (website)

[Guest guest]

Dear Jo,

As I have posted before, my family and I have had tremendous success with

Sunrider Herbal Food. I have been eating these products for nine years and have

been able to put Lyme disease on the back burner. We suffered with neuro Lyme

from 1989-1995 and were on multiple courses of oral and intravenous

antibiotics. My family and I haven't been on an antibiotic for Lyme since we

are

eating Sunrider herbs, which we seriously started in 1995. I have worked with

many who have Lyme, EBV, MS and even Cancer and have had tremendous success.

All my best,

Rauch

Herbal Food Advisor

Sunrider International

(732) 946-2216

[Guest guest]

> Just wondering what vitamin/mineral or herbal supplements anyone

> takes that have noticed a difference in your recovery or the way

you

> feel.

> Thanks,

> Jo

The two things I would recommend most are magnesium and undenatured

whey. Most people with Lyme are deficient in magnesium, and this

deficiency produces muscle problems and fatigue. Most people with

Lyme are full of toxins and have a weakened immune system, and

undenatured whey increases the glutathione in the liver to clean out

toxins and also boosts the immune system. I take the kind made by

ImmunPlex, available through www.immunesupport.com. Antioxidants

such as alpha-lipoic acid and coenzyme Q10 have also helped me.

Adding these supplements gave me a 50% improvement in my condition in

three months.

Best wishes,

Freebird

[Guest guest]

Wow! I was under the impression that Milk of Magnesia would interfere

with the absorbtion of abx!

Also, I understood that regular use of ANY laxative could cause dependence!

Do you mind if I ask where you are located and what LLMD you are seeing??

Concerned,

Carol aka dizz

[Guest guest]

Many people with CFS take very large doses of magnesium by injection and I have

never heard of a problem. (People generally take the same amount, it is not

" calculated'.) In fact it cannot really be calculated because there is not a

good way to measure the amount of magnesium in your cells, and it is believed

there is a defect in some people with CFS that keeps magnesium out of the cells

even when it is in high concentration in the blood.

I'm not saying side effects can't happen, but nothing is risk free. What would

be important about your statement is how common side effects are.

Doris

----- Original Message -----

However, one cannot make up for lack of magnesium in our systems without

accurate calculated amounts and not rely on an OTC product that claims magnesium

content. Intake of magnesium should be carefully monitored... However, all

patients should realize that their own body reacts differently to each product

(OTC or prescription) and should never take any medication for any extended

length of time without consulting their own physician.

[Guest guest]

again, interesting how they mention CFIDS with Lyme in this article.

[Guest guest]

I'm not exactly sure what companies are more trustworthy than others for

these and other product--I'm trying to learn as I go. )

,

There's a website called consumerlab.com that tests and rates nutritional

supplements. Basically, since it's not regulated they are a consumer watch

group that checks to see if they have what they say they have and make sure

they don't have anything they don't list. Some is free, some deeper reports

you subscribe to. I found a lot of information when I was beginning my

adventure with natural supplements. Everything from vitamins to garlic,

etc....

Hope this is helpful.

Beth

[Guest guest]

In a message dated 11/16/2004 2:51:21 PM Eastern Standard Time,

jdeamohr@... writes:

,

There's a website called consumerlab.com that tests and rates nutritional

supplements. Basically, since it's not regulated they are a consumer watch

group that checks to see if they have what they say they have and make sure

they don't have anything they don't list. Some is free, some deeper reports

you subscribe to. I found a lot of information when I was beginning my

adventure with natural supplements. Everything from vitamins to garlic,

etc....

Hope this is helpful.

Beth

] Yes, very helpful indeed ! I'll be sure to check out the site asap.

Thanks !