Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 In a message dated 3/21/02 10:46:16 PM Pacific Daylight Time, writes: > We have cut Elie's > meds almost in half this year (Seroquel, 25 mg morning and 50 mg at night) > but his weight is still an issue as you have heard me say recently. Now I > am beginning that part of this is his ritual eating. And the rituals are > becoming overwhelming in type and order of foods. The sandwiching is > awful. > And he will keep asking for more food if we try to substitute something > else in place of what he wants. > > Sara, as Leah has said about Ashton, her weight and appetite's becoming an issue too on Seroquel......maybe you should talk to your doc about changing med's? Maybe these behaviors are because of the med's side effects....I know they definitely are in 's case with the Zyprexa. JMHO, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 In a message dated 3/21/02 10:46:16 PM Pacific Daylight Time, writes: > I happened to be looking through some old pictures of Zeb and he was tiny > too. You are right about that but it is out of our control if you need to > put > him on meds. Zeb was always a big eater but didn't start to get heavy until > > he was about 6. We know this is a problem so we just have to be aggressive > with the low fat foods and do the exercise thing as much as possible That's true, Char.....seems most of our kids had serious medical issues at birth and thereafter, and it seems hard to believe now, that back then, it was such a struggle for them to eat! It is rare indeed, to see a slim child w/DS.......sorry to stereotype, but they DO share a lot of common issues because of the chromosomal anomaly. Can you imagine how much weight would gain were he NOT ADHD? But then again, if he wasn't hyper, he wouldn't be on the med in the first place, right?! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 In a message dated 3/22/2002 8:57:57 AM Eastern Standard Time, Ltb3105@... writes: > DO share a lot of common issues > because of the chromosomal anomaly. Hi , I know it's a catch 22. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 nathan is very ritualistic too, often requesting a grilled cheese sandwich or pizza, or yogurt or ice cream. i offer didfferent less calorie things and healthy things too, but he often refuses them occasionally still having fits etc etc, lately he has been vory into his diet 7-up he thinks its sprite, but insisting on some several times a day. Ive been terrilbe lately and giving in to the pop but it keeps him from wantig food sooooo much, and there is no calories, sugar or caffeine to the diet 7-up, so whats worse the food or pop requests? he goes through up to 6 cans a day somedays, the weekends are worse with no school, but he gets a pop at school too when he loads the pop machine as a reward. shawna. ===== shawna __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 8:50:49 AM Eastern Standard Time, mashawnag@... writes: > calories, sugar or caffeine to the diet 7-up, so whats > worse the food or pop requests? he goes through up to > 6 cans a day somedays, the weekends are worse with no > school, but he gets a pop at school too when he loads > the pop machine as a reward. shawna a, Just watch out for that aspertame though. Too much is not good for anyone. I drink Diet Coke, but usually just one or two a day. My SIL gets severe headaches any time she takes in any aspertame. I used to give Maddie that diet yogurt thinking I was being careful about sugar and fat intake, but then my other SIL (all my SIL's are nurses) told me to take her off it because of aspertame. Even regular sodas and juices are loaded with sugar, which as we all know, converts to fat. It's SO hard to find something *TASTY* but healthy. I am VERY lucky that Maddie does not drink soda (Pop as many of you call it...LOL) and my 4 other kids drink very very little of it. I just dont' buy it (I buy diet for myself, but no one else likes it). We have a spring water cooler and go through at least three or four 5 gallon jugs a month (more in summer). Maddie drinks it when thirsty, but still loves her juice. Also, my kids love milk.....always a surprise to me, since when I grew up, we NEVER drank it---Milk was for cereal....LOL Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 3:39:54 PM Central Standard Time, duffey48@... writes: > . Even regular sodas and juices are loaded with > sugar, which as we all know, converts to fat. It's SO hard to find > something *TASTY* but healthy. I am VERY lucky that Maddie does not > drink > soda (Pop as many of you call it...LOL) and my 4 other kids drink very very > > little of it. I just dont' buy it (I buy diet for myself, but no one else > > likes it). We have a spring water cooler and go through at least three or > > four 5 gallon jugs a month (more in summer). Maddie drinks it when > thirsty, > but still loves her juice. Also, my kids love milk.....always a surprise > to > me, since when I grew up, we NEVER drank it---Milk was for cereal....LOL > Donna > > > My husband is type 2 diabetic at the young age of 35 so there is no reg. soda (pop) in our house. just doesn't digest any sugar (nat. or artificial) or art. dyes well. They all give him loose stools so in our house it is skim milk or water. Of course I have my stash of diet soda, shhhh, don't tell. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 thanks, i will, i usually only have one diet pop a day to, i just love a diet pepsi with my lunch, dont know why just do. we all drink lots of milk and juice around here too. If i buy th ebottled water the boys drink it all up, and then i refull them with tap water, lol, they dont know any different, idrink lots of water every day too, i love ice water, i drink lots of it especially when i work. shawan. ===== shawna __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Members, Recently, my wife had a bout with Cachexia. We have manage to get a handle on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. The weight has remained the same the pass three weeks. Only changing up or down a half pound or so. Her diet is vegan and about 70% raw. We try to balance a cancer diet and the need for weight gain. Her doctor suggest she increase her caloric intake. There within lies our problem. The doctor wants her to drink two or three cans (Boost or Ensure) of sugar a day. Any suggestions how we can increase the caloric intake without drinking sugar from a can? Chas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 A good whey protein perhaps? I had a scuffle w/cachexia myself and lost a lot of muscle. I'm gonna go out on a limb here and tell you that took me from a primarily vegetarian diet to using animal protein a couple of times a day. Those of us who have lost that kind of muscle need the protein badly. I also use 2000mg fish oil and 2000mg hemp seed oil each day. That has stabilized me. But, I have not gained the weight back. I think it would help me to start some weightlifting to build muscle. Might do the same for her if she has the energy to do so. xxoo > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a handle on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. The weight has remained the same the pass three weeks. Only changing up or down a half pound or so. Her diet is vegan and about 70% raw. We try to balance a cancer diet and the need for weight gain. Her doctor suggest she increase her caloric intake. There within lies our problem. The doctor wants her to drink two or three cans (Boost or Ensure) of sugar a day. Any suggestions how we can increase the caloric intake without drinking sugar from a can? > > Chas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 there are some protein drinks sweetened with stevia that might be a better alternative.They are all pretty processed, but my fave is Source Naturals. Undenatured whey. They may have a weighgainer one as well.....I belive it is sweetened with Stevia. On Sat, Jan 2, 2010 at 6:50 PM, Chase <ino_uno@...> wrote: > > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a handle > on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. > The weight has remained the same the pass three weeks. Only changing up or > down a half pound or so. Her diet is vegan and about 70% raw. We try to > balance a cancer diet and the need for weight gain. Her doctor suggest she > increase her caloric intake. There within lies our problem. The doctor wants > her to drink two or three cans (Boost or Ensure) of sugar a day. Any > suggestions how we can increase the caloric intake without drinking sugar > from a can? > > Chas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 My neighbors advice for 'nutrition' was to drink milk-shakes so don't expect conventional doctors to be recommending good nutrition. If the cancer is checked and things are under control with good nutrition being provided, is it really necessary to fret too much over weight gain? Good eating should provide whatever is needed and when eating well, fast weight gain is usually not experienced. Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Ice cream LOL that is what my mom's onco advised The above sentence was pure sarcasm. I am fighting a losing battle on the sugar intake cause the white coats said herbs are bad and ensure and carnations instant breakfast was good for her. Cheri > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a handle on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. The weight has remained the same the pass three weeks. Only changing up or down a half pound or so. Her diet is vegan and about 70% raw. We try to balance a cancer diet and the need for weight gain. Her doctor suggest she increase her caloric intake. There within lies our problem. The doctor wants her to drink two or three cans (Boost or Ensure) of sugar a day. Any suggestions how we can increase the caloric intake without drinking sugar from a can? > > Chas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Hi Chase, She needs protein and fats. Sugar in any form is not a good proposition, but are not entirely avoidable. She needs to gain good weight. Budwig protocol has it fairly well imbedded within itself. Cottage cheese or yogurt for protein, preferably with some butter fat in it [2-4%], preferably organic if possible. Linseed oil [flax] going with it. Milk protein and egg protein are probably the most readily digestible. Both are high sulfur and tie the linseed oil as per Johanna Budwig. When it comes to fats, get your wife [and yourself] off the commercial " vegetable " oils. They are junk. Commercial olive oil is somewhat reasonable, but if you can get hold of raw [not filtered] olive oil, so much the better. If interested, I can send you files on fats to give you an idea where the wind blows from when it comes to what kinds of fats are reasonable and which are no good. With kind regards, Slavek. Chase wrote: > > > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a > handle on the weight slide with Hydrazine Sulfate. Now, weight gain is > a problem. The weight has remained the same the pass three weeks. Only > changing up or down a half pound or so. Her diet is vegan and about > 70% raw. We try to balance a cancer diet and the need for weight gain. > Her doctor suggest she increase her caloric intake. There within lies > our problem. The doctor wants her to drink two or three cans (Boost or > Ensure) of sugar a day. Any suggestions how we can increase the > caloric intake without drinking sugar from a can? > > Chas > > > Reply to sender | Reply to group > Messages in this topic (1) > Recent Activity: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Thanks Slavek, We are walking that fine line of healthy calories and fats without going off the farm. Organic raw almond and cashew butters have been added to her diet. She spreads them on sliced fruits. Also, we sue flaxseed and coconut oils. Chas > > > > > > > > Members, > > Recently, my wife had a bout with Cachexia. We have manage to get a > > handle on the weight slide with Hydrazine Sulfate. Now, weight gain is > > a problem. The weight has remained the same the pass three weeks. Only > > changing up or down a half pound or so. Her diet is vegan and about > > 70% raw. We try to balance a cancer diet and the need for weight gain. > > Her doctor suggest she increase her caloric intake. There within lies > > our problem. The doctor wants her to drink two or three cans (Boost or > > Ensure) of sugar a day. Any suggestions how we can increase the > > caloric intake without drinking sugar from a can? > > > > Chas > > > > > > Reply to sender | Reply to group > > Messages in this topic (1) > > Recent Activity: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 where do you get hydrazine sulfate? thx > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a handle on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. The weight has remained the same the pass three weeks. Only changing up or down a half pound or so. Her diet is vegan and about 70% raw. We try to balance a cancer diet and the need for weight gain. Her doctor suggest she increase her caloric intake. There within lies our problem. The doctor wants her to drink two or three cans (Boost or Ensure) of sugar a day. Any suggestions how we can increase the caloric intake without drinking sugar from a can? > > Chas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 Chas be carful of the sugar, in 2008 I seen a dietitian after paying out $150.00, the diet she put me on made my cancer worst, only after I went back to the duet my naturopath put me on in 2007 that I began to improve I know in the past fighting my cancer it got real bad every time I went near any sugary foods expressly with my bone mets I only got a handle on my cancer when I went off the sugary foods, fruit, and bread, and stuck with the vegetable like your wife on asparagus, cabbage, green beans, collie, and limited the meat etc Ray From: dwntwngrl2 Sent: Saturday, January 09, 2010 9:19 AM Subject: [ ] Re: Weight Gains where do you get hydrazine sulfate? thx > > Members, > Recently, my wife had a bout with Cachexia. We have manage to get a handle on the weight slide with Hydrazine Sulfate. Now, weight gain is a problem. The weight has remained the same the pass three weeks. Only changing up or down a half pound or so. Her diet is vegan and about 70% raw. We try to balance a cancer diet and the need for weight gain. Her doctor suggest she increase her caloric intake. There within lies our problem. The doctor wants her to drink two or three cans (Boost or Ensure) of sugar a day. Any suggestions how we can increase the caloric intake without drinking sugar from a can? > > Chas > -------------------------------------------------------------------------------- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.131/2608 - Release Date: 01/09/10 05:35:00 Quote Link to comment Share on other sites More sharing options...
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