Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hello , Welcome to the group. Your vitamin D levels are too low. Though they are within the normal range, it's the bottom of the range. You want to be at least above 40. Above 60 would be better. http://www.breastcancerchoices.org has lots of information on iodine. I did the iodine loading test and was stunned to learn I'm low on iodine. Check out Melatonin, as well. Since you are on Tamoxifen, I am not sure if Calcium D-Glucarate is a good idea. I'm still trying to get information on that. Calcium D-Glucarate helps to eliminate excess estrogen from the body. And it is also a liver detoxifyer. But since Tamoxifen is processed in the liver, should you also detox your liver? I'm never too sure. There is a book out there called " The Anti-Estrogenic Diet. " I think that's the name. It talks about what foods to eat and what not to eat. As to rebuilding your body after cancer treatment, you know diet is very important. Lots of raw veggies and fruits. Since you are stage 3, take a look at Modified Citrus Pectin. It supposedly helps disuade distant metastasis. Lots of people will toss out suggestions. But, unfortunately, the " kitchen sink " approach doesn't always work because lots of compounds will counteract each other. Your cancer center may have a Naturopath on staff who can help you wade through all the information. ar > > Hi- > I joined this group a little while back ( heard about it on a forum) but this is my first post. I have stage 3a IDC breast cancer. I had surgery last May, 4 months chemo and 6 weeks radiation that I completed in January. I just started Tamoxifen 7 weeks ago and well, I'm trying to pick up the pieces and build my body back stronger than ever. I am in overall good health considering. I'm an athlete and have been back training for the past two months. > My questions are what should I be doing besides the conventional medicines and regular exercise to help make sure my cancer stays away for good? I am Estrogon + so concerned about that. I have been reading about Vit D levels. Mine is currently 31 ng. Is that good or does it seem low? Hard to find a straight answer on what is " normal " or what is ideal. Nutrition for estrogen + patients? Iodine levels? I have looked through this group a bit but there is so much information to weed through and I have so much to learn! > > Anyway, wanted to introduce myself. > > Thanks for reading and any suggestions welcome. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 When I got back from Mexico after a stage iv rectal cancer diagnosis and having the tumors gone, I needed to start on a program to keep the cancer away. I read Knockout by Suzanne Somers and found a dr in her book who was curing cancer. I go to Dr. in NY and have been doing the program a year, I feel better than I have my whole life, and just had a ct scan and no sign of cancer tumors. Of course, I know I still have cancer in my body as they have done testing to show that and it will probably take another year of doing the supplements, detox and enzymes. Let me know if this is of interest to you. I would have liked this info before I went to Mexico as they would have been able to cure me. Lois From: reba17@... Date: Wed, 23 Mar 2011 16:17:50 +0000 Subject: [ ] New Member- Estrogen + breast cancer, Looking at alternatives. Hi- I joined this group a little while back ( heard about it on a forum) but this is my first post. I have stage 3a IDC breast cancer. I had surgery last May, 4 months chemo and 6 weeks radiation that I completed in January. I just started Tamoxifen 7 weeks ago and well, I'm trying to pick up the pieces and build my body back stronger than ever. I am in overall good health considering. I'm an athlete and have been back training for the past two months. My questions are what should I be doing besides the conventional medicines and regular exercise to help make sure my cancer stays away for good? I am Estrogon + so concerned about that. I have been reading about Vit D levels. Mine is currently 31 ng. Is that good or does it seem low? Hard to find a straight answer on what is " normal " or what is ideal. Nutrition for estrogen + patients? Iodine levels? I have looked through this group a bit but there is so much information to weed through and I have so much to learn! Anyway, wanted to introduce myself. Thanks for reading and any suggestions welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 ________________________________ From: gary williams <willjo52@...> Sent: Wed, March 23, 2011 12:31:07 PM Subject: Re: [ ] Re: New Member- Estrogen + breast cancer, Looking at alternatives. : Many of the best doctors , consultants , healers strongly believe that at least 80% of diseases are caused by STRESS. I suggest , meditation , TFT, EFT emotional freedom technique , taking herbs like Holy Basil. , Your Health Crusader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi AR, Thank you for the welcome and for the great suggestions. I thought that seemed low. I will work on getting that up. My dr checks it now every 3 months she said. I will check out that website and just ordered that book ( yes that is the name)- thanks for the tip! Good points made about liver detoxing and tamoxifen- hmmm. Do you know if Melatonin has any drug interactions? I am also intrigued with this iodine level. When I asked my onc about it, she looked at me like - why would I check that? So, yours were low...what do you do then? There is so much information and I'm sure I will get a whole lot of different ideas. Now that most of my conventional treatments are over, I just want to make sure I am staying more proactive. I am going to look into all of your suggestions, thank you so much. > > Hello , > > Welcome to the group. > > Your vitamin D levels are too low. Though they are within the normal range, it's the bottom of the range. You want to be at least above 40. Above 60 would be better. > > http://www.breastcancerchoices.org has lots of information on iodine. I did the iodine loading test and was stunned to learn I'm low on iodine. > > Check out Melatonin, as well. > > Since you are on Tamoxifen, I am not sure if Calcium D-Glucarate is a good idea. I'm still trying to get information on that. Calcium D-Glucarate helps to eliminate excess estrogen from the body. And it is also a liver detoxifyer. But since Tamoxifen is processed in the liver, should you also detox your liver? I'm never too sure. > > There is a book out there called " The Anti-Estrogenic Diet. " I think that's the name. It talks about what foods to eat and what not to eat. > > As to rebuilding your body after cancer treatment, you know diet is very important. Lots of raw veggies and fruits. > > Since you are stage 3, take a look at Modified Citrus Pectin. It supposedly helps disuade distant metastasis. > > Lots of people will toss out suggestions. But, unfortunately, the " kitchen sink " approach doesn't always work because lots of compounds will counteract each other. Your cancer center may have a Naturopath on staff who can help you wade through all the information. > > ar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi , I suggest doing some googling on Melatonin. Some say it isn't good if you have certain autoimmune diseases. But Melatonin is the hormone your body makes when it's time to get sleepy. Low levels of Melatonin have been linked to breast cancer. As to iodine, I supplemented with Iodoral. I understand they are sold out right now on the website due to people trying to protect themselves from the radiation in Japan. Actually, it's become rather difficult to get any iodine. I stopped supplementing years ago when I started having trouble with my eyesight - which is a sign that I might have too much iodine. I've been meaning to retest, but since I've been unemployed, I haven't been able to afford it. I do suggest finding a Naturopath. Your oncologist won't know about any of this stuff except vitamin D. ar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Lois- thank you for your suggestion. I actually just connected with an integrative medicine dr through my cancer center and will see how it goes. I have limited financial resources so private dr's are sort of out. - I would agree, stress is probably a huge factor for many- including myself. My exercise is a big stress reliever for me. AR- I am sorry to hear of your unemployment. Finances are a huge part for me as well especially when trying to eat healthy and take the right supplements. I have limited health insurance and limited financial resources so...I do what I can. I want to use what resources I have wisely so as not to waste them on the wrong things. I will check with Melatonin but I have taken it before for sleeping issues. I have not found a naturopath especially one that takes my insurance. I live in the NYC area so I need to ask around a bit more. As I posted above to Lois- I have an appointment with the integrative medicine dr next month. ________________________________ > From: gary williams <willjo52@...> > Sent: Wed, March 23, 2011 > > > : > Many of the best doctors , consultants , healers strongly > believe that at least 80% of diseases are caused by > STRESS. I suggest , meditation , TFT, EFT emotional > freedom technique , taking herbs like Holy Basil. > , Your Health Crusader > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 , The integrative medicine doc might be able to take care of what you need. An ND won't be covered by your insurance. However, if he is associated with a cancer center, then visits are a lot cheaper. I would say that funds, or lack of them, plays more of a part in dealing with my cancer after-care than I would like. But there's only so much we can do. I'm sans insurance now, too. So, just trying to stay out of health trouble! ar > AR- I am sorry to hear of your unemployment. Finances are a huge part for me as well especially when trying to eat healthy and take the right supplements. I have limited health insurance and limited > financial resources so...I do what I can. I want to use what resources I have wisely so as not to waste them on the wrong things. > I will check with Melatonin but I have taken it before for sleeping issues. I have not found a naturopath especially one that takes my insurance. I live in the NYC area so I need to ask around a bit more. As I posted above to Lois- I have an appointment with the integrative medicine dr next month. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Hi , Welcome to the group. You've already been given some good advice here. Last May I underwent lumpectomy and partial lymph node dissection for my IDC stage 3a ER+ breast cancer - same as you. I'm also otherwise healthy and very athletic, so we seem to have a couple of things in common. I chose not to undergo radiation, chemo or further lymph node surgery. I also researched carefully and chose other methods of estrogen blocking instead of Tamoxifen. There is now much research that shows while tamoxifen may protect against a reoccurrence of ER+ breast cancer, it can also cause a worse form of breast cancer. For example, according to a 2009 study by Li, M.D., Ph.D., and colleagues at Fred Hutchinson Cancer Research Center, ER positive breast cancer is very common, tends not to be aggressive and is responsive to estrogen-blocking therapy. This research study revealed that Tamoxifen use increases the risk of women developing a second and far more dangerous type of breast cancer by a stunning 440 percent. A secondary type of ER negative cancer can develop as a malignant tumor in the breast opposite, or contralateral, to the initial tumor. If so, it is an aggressive, difficult-to-treat type of cancer with a poor prognosis. In other words, it is far more likely to spread and potentially kill. Long term tamoxifen use has also been linked to uterine cancer. I recommend you do some reading of your own in this regard, and/or email me off-list and I can send you some documents I've collected. If you are pre-menopausal, then there are some very good natural supplements you can take that don't have side effects and are much safer to take. Both my ND and my integrative doctor recommend these to block and balance estrogens. I-3-C blocks estrogens I-3-C not only weakens estrogen and keeps chemicals out of cells, it also goes after cancer in ways similar to tamoxifen. It, like tamoxifen, interrupts the cell cycle. In studies from the University of California mentioned above, I3C inhibited the growth of estrogen receptor-positive breast cancer cells by 90% compared to tamoxifen's 60% by stopping the cell cycle. (Adding tamoxifen to I3C gave only a 5% boost.) Warning: Do not take more than 400mg per day or the effects can reverse. DIM - blocks estrogens DIM and calcium d-glucarate have two distinct and complementary effects. DIM metabolizes 16-OHE (dangerous form of estriol metabolite) to a more benign 2-OHE. Important: one should be aware and adherent to the correct dosis. Calcium D-Glucarate A healthy liver is responsible for processing and removing excess estrogen. CD-G assists in the binding of toxins in the liver for eventual removal by the bile and urine. The enzyme beta-glucuronidase tends to " unbind " these complexes and thus returns the toxins to the system. Glucarate inhibits the activity of that enzyme and reinforces the bonds, helping in the detoxification of excessive estrogen and other elements we need to eliminate. To detoxify or to prevent the unwanted accumulation of " bad " estrogen and xeno-estrogens, take both DIM and Calcium D-Glucarate. Note: Glucarate can interfere with the absorption of some pharmaceutical drugs so if on medication, consult your physician. Diet is very important. Here is a good on-line list of foods containing estrogen (foods to be avoided) and foods that block estrogen (to be eaten daily). I adhere to this list faithfully and don't consume dairy, gluten, alcohol, caffeine or ingest sugar or sweetener of any kind. And yes. there is still lots to eat! http://dogtorj.tripod.com/id45.html There are many foods and natural supplements that will help you to fight cancer and to boost your immune system. Boosting your immune system long term should be highest priority for any cancer patient, but especially for you, after chemo. Some of the brassia family that do help to fight cancer also tend to lower your thyroid, which may be low already. As I understand it, many breast cancer patients have low thyroid to begin with. Supplementation with iodine and potassium iodide like Lugol's solution or in tablet form " Idoral " is likely going to be important for you - under a doctor's supervision of course. I think the vit D question has been answered adequately for you already. Even with limited funds, a good ND or integrative doctor is really important. Have the extensive bloodwork, hair sampling and urinalysis tests done to get baselines for all your values, potential toxicities and deficiencies. Get your thyroid levels checked and get a full hormone panel done. Ask for a live cell microscopy to check for blood values, yeast/fungus and parasites. You'd be amazed at what even us very healthy, athletic gals can have going on - I was. All the best, Barbara ------------------------------------------------- wrote: My questions are what should I be doing besides the conventional medicines and regular exercise to help make sure my cancer stays away for good? I am Estrogon + so concerned about that. I have been reading about Vit D levels. Mine is currently 31 ng. Is that good or does it seem low? Hard to find a straight answer on what is " normal " or what is ideal. Nutrition for estrogen + patients? Iodine levels? I have looked through this group a bit but there is so much information to weed through and I have so much to learn! Anyway, wanted to introduce myself. Thanks for reading and any suggestions welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2011 Report Share Posted March 24, 2011 Hi, I am new to the group and had a liver biopsy today. I had my every 5 year colonoscopy that found pre cancer polyps. Then on a liver ultrasound to keep track of of my fatty liver they saw what may be cystitis or tumors. They are tiny and have not found cancer anywhere else yet. What is written below is so very true. I have lived a life filled with anger, sadness, rejection. In chinese medicine you keep your anger in your liver and I wonder that I have problems. I am in counseling and she does body work on me using these techniques. If I hate myself my body cannot heal as all my energy is going to the anger. I also grow holy basil in pots on my deck. My primary care doctor is a naturopath and I want her to be in charge of this whole thing, she is doing an outstanding job. If I have cancer that will be hard but stopping the stress, thats really hard. Take care all Donna On Mar 23, 2011, at 3:32 PM, gary williams wrote: > > : > Many of the best doctors , consultants , healers strongly > believe that at least 80% of diseases are caused by > STRESS. I suggest , meditation , TFT, EFT emotional > freedom technique , taking herbs like Holy Basil. > , Your Health Crusader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 Hi ,  I'm glad you're with us and survived treatments. there are several things I would suggest .First, I must say I'm NOT a Doctor and this is just my opinions. Vitamin D can prevent 77% 0f all cancers and 55% of breast cancers. 30ng is the very low standard for normal and anyone dealing with cancer should strive for 70ng to 90ng this is theraputical level. You may want to think about using natural progesterone cream. Progesterone will help block estrogen receptors. The breast uses the second largest amount of iodine in the body. You can use iodine supplements but I believe the best route is 1/2 tsp or more of powder kelp a day. Kelp will provide iodine and other trace minerals. Take selenium also. Anyone with cancer should eat a cup of raspberies a day, eat an apple a day with the peel and eat the seeds. You should be getting plenty of omega 3 oil, Fish, walnut and flaxseeds are a good source. Avoid vegtable oils, they are high in omega 6 and cause inflammation. Drink plenty of green tea . Avoid sugar and processed food. If you eat red meat, keep the amount down and only eat grass fed beef. If I were you I would make sure to get a good water filter chlorine is posion. Eat plenty of fresh veggies. Onions are very good and high in Qurcetin. Dr. Rath and Dr. ing state that we need at least 4gm of vitamin C a day with Lysine and green tea for cancer. Exercise is good but don't push to exhustion ,your body needs energy to recoup ..Try a Rebounder or a mini trampoline to move and stimulate the lymph system and do breast massages. I hope this was helpful . Let me know if you need futher information Hi- I joined this group a little while back ( heard about it on a forum) but this is my first post. I have stage 3a IDC breast cancer. I had surgery last May, 4 months chemo and 6 weeks radiation that I completed in January. I just started Tamoxifen 7 weeks ago and well, I'm trying to pick up the pieces and build my body back stronger than ever. I am in overall good health considering. I'm an athlete and have been back training for the past two months. My questions are what should I be doing besides the conventional medicines and regular exercise to help make sure my cancer stays away for good? I am Estrogon + so concerned about that. I have been reading about Vit D levels. Mine is currently 31 ng. Is that good or does it seem low? Hard to find a straight answer on what is " normal " or what is ideal. Nutrition for estrogen + patients? Iodine levels? I have looked through this group a bit but there is so much information to weed through and I have so much to learn! Anyway, wanted to introduce myself. Thanks for reading and any suggestions welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2011 Report Share Posted March 25, 2011 Hi Barbara, Ok, wow...that was a lot of information...thank you for all of it! Between all the other great suggestions and these, I have to make a list of all of it, do some research and like you mentioned, discuss it with my integrative medicine dr. I have an appointment next month. I do hope he will be able to run all these tests you speak of? It sounds like I would be well served to find a good Naturopath. So yes we have a lot in common and basically we were diagnosed around the same time but I just took a different path. From the sounds of it, you are doing really well. Hi Joe, Thank you as well. Great suggestions- some of which I already do which makes me feel a little better. Especially since I'm pretty shocked how low my vitamin D is. I am outside a lot too. Flaxseed is listed on the natural estrogen list and that is the second suggestion I have received on this..tricky. It does seem like I have to organize all this a bit to see what will work for me and what won't. Lots to think about and consider. Overwhelmed a bit. Thank you all again for being so helpful! Quote Link to comment Share on other sites More sharing options...
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