Re: tagamet

[Guest guest]

Hi Sherra, Tagamet contains cimetidine as the active ingredient and belongs

to a class of medicines called H2 antagonists or H2 blockers. Cimetidine was

the prototypical histamine to suppress stomach acid secretion, but this study

showed it near useless on breast cancer.

http://www.ncbi.nlm.nih.gov/pubmed/11341606

Most breast cancers are the same type of gland cancer as prostrate cancer

Adenocarinoma but the cancer acts in different ways in the prostate tissue and

the breast tissue.

Adenocarinoma is a sex hormone dependent cancer. I use a product called Trinovin

to fight my cancer. it has red clover in it and the red clover has four

isoflavones in it. one isoflavones called However, isoflavones can act as weak

estrogens.

http://breast-cancer-research.com/content/6/3/R170

Diet has been shown to influence breast density, potentially through effects on

endogenous hormone levels. For example, a low-fat, high-carbohydrate

intervention significantly reduced breast density; however, an inverse

association has also been reported between breast density and saturated fat

intake. I don't know if you saw my post on how the Budwig diet helps the cells

get rid of saturated fats, trans fats, I'm on a no sugary foods, no bread diet,

that seem to help. cheers Ray

From: Sherra Hedrick

Sent: Tuesday, February 02, 2010

I just read about the Tagamet. I have a breast cancer and my doctor just gave me

Tagamet but I have not yet taken it. He said it was supposed to be good for

breast cancer. I am not sure he's right. Can you folks tell me more about what

you think. And should I exercise to get my heart rate up several times a week.

Several of my friends think I should not. Thanks Sherra

[Guest guest]

Not much in articles DEDICATED to the use of Cimetidine.

It is mentioned as a treatment method in the original study and is

documented there. That is at the website under the file section. If you read

it you will find it there.

If your doctor is unsure have her/him call Dr Feder, or Dr Lawton or Dr

... they are the doctors who initiated and did the research from

87-97... They have helped doctors who are not familiar with dose etc for

. Their numbers/emails are in the file section under gurus!

No research has been done to date and Cimetidine is not FDA approved for

kids under 16... but it is given often.... for and for other

problems...

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Not much in articles DEDICATED to the use of Cimetidine.

It is mentioned as a treatment method in the original study and is

documented there. That is at the website under the file section. If you read

it you will find it there.

If your doctor is unsure have her/him call Dr Feder, or Dr Lawton or Dr

... they are the doctors who initiated and did the research from

87-97... They have helped doctors who are not familiar with dose etc for

. Their numbers/emails are in the file section under gurus!

No research has been done to date and Cimetidine is not FDA approved for

kids under 16... but it is given often.... for and for other

problems...

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Macey has a b-cell dysfunction. Her t-cells function is fine . She had one

time when she didn't respond to the Hib, MMR or tetanus but they said that

didn't make a tcell dysfunction and on re-immunization of the MMR and Hib

she responded. She still doesn't have adequate tetanus response so we're

just extra careful in that area. Macey was off IVIG from 2000 to 2001

(about 16 months). She was doing well clinically except fatigue. She went

to have surgery and her surgeon ran her numbers preop and found that her IgG

was low 200's. He refused to do the surgery unless she was infused. He

said it wasn't a matter of when she would catch something but if she could

overcome it. Since the surgery was very invasive he thought it was too much

a liabilty not to infuse. So immunology was consulted and they agreed that

she had gotten too low and decided her deficiency over-ruled her dysfunction

or clinical status. The whole time she was off IVIG she was on antibiotics

and only had 2 breakthrough infections. The problem with getting infused

only when sick is whether you're getting sick due to low levels and you just

want to replace those or if you're using the infusion to get over the

sickness. Basically if you infuse during an illness then the illness will

eat up the " supplement dose " and then there is none left over to keep the

system " up " and warding off any recurring infection. Macey's lung damage

we believe came from frequent pneumonias and bronchitis before and in early

diagnosis. Her dad also has it but there's no telling how sick he was as a

child. Both have evidence of previous fungal infections in their lungs.

Ursula - mom to Macey (10,CVID) and (13)

http://members.cox.net/maceyh

Immune Deficiency Foundation http://www.primaryimmune.org

Pediatric PID email list

Modell Foundation http://jmfworld.org

[Guest guest]

Ursula,

Is it as late where you live as it is here? I was shocked to see your reply!

I drank one medium hot chocolate from Starbucks at about 9:30 p.m.and now am

completely wired! It's 1:00 a.m. here and I have the energy to clean my whole

house from top to bottom if I wouldn't wake everyone up. Maybe I should start

drinking these in the morning, so I could actually be useful during the day.

ha/ha I guess I'm getting old...caffine used to never bother me before.

When they have infused Reagon during illness in the past, her levels actually

have maintained for quite awhile after getting over the illness and she has

never had a problem with anything reoccuring. She has always taken several

months after an IVIG to drop to " low levels " . She can always maintain a good

level for about 3 months and then she begins to nose dive. She has only been on

antibiotics 3 times in the last year or so and each time she has responded

within the normal time (5-10 days). My original intent when taking her off IVIG

was to look for an alternative method (sub q) because of the reactions she was

having to IVIG, but she everyone has been shocked at how well she has done off

of it. I have always questioned how healthy she was, but her dr. has always

said it was due to IVIG. When she was infused last July and we spent 9-10 hours

at the doctors office doing premeds, prefluids, IVIG, then post meds, post

fluids and she still had severe vomiting, severe migraine and was completely

lethargic for 24 hours, I just blew and said no more! I think her dr. thought

" okay, I'll take her off for awhile and then she will start getting sick all the

time and everyone will see why she needs IVIG. " Now I think he's as confused as

I am. In 4 1/2 years she has been sick maybe 6-7 times. Never had a bladder

infection, yeast infection, skin infection, pink eye, stomache bug and has had

one sinus infection & 2 ear infections even though her IgA shows so low it

normally won't even register. I've read where in transiet hypo. that they can

actually be making the antibodies but the bloodwork won't show it. I often

wonder if this is the case with Reagon. But I also know with THI that they have

normal IgA & IgM, and Reagon does not. All her Ig levels have always come back

low. Sometimes I think I shouldn't question...and just be thankful she's

healthy. But on the other hand, I don't want to be doing something stupid by

keeping her off IVIG if she really need it.

Thanks for listening!

Becki

---- Original Message -----

From: Ursula

Sent: Sunday, January 08, 2006 12:35 AM

Subject: Re: Tagamet

Macey has a b-cell dysfunction. Her t-cells function is fine . She had one

time when she didn't respond to the Hib, MMR or tetanus but they said that

didn't make a tcell dysfunction and on re-immunization of the MMR and Hib

she responded. She still doesn't have adequate tetanus response so we're

just extra careful in that area. Macey was off IVIG from 2000 to 2001

(about 16 months). She was doing well clinically except fatigue. She went

to have surgery and her surgeon ran her numbers preop and found that her IgG

was low 200's. He refused to do the surgery unless she was infused. He

said it wasn't a matter of when she would catch something but if she could

overcome it. Since the surgery was very invasive he thought it was too much

a liabilty not to infuse. So immunology was consulted and they agreed that

she had gotten too low and decided her deficiency over-ruled her dysfunction

or clinical status. The whole time she was off IVIG she was on antibiotics

and only had 2 breakthrough infections. The problem with getting infused

only when sick is whether you're getting sick due to low levels and you just

want to replace those or if you're using the infusion to get over the

sickness. Basically if you infuse during an illness then the illness will

eat up the " supplement dose " and then there is none left over to keep the

system " up " and warding off any recurring infection. Macey's lung damage

we believe came from frequent pneumonias and bronchitis before and in early

diagnosis. Her dad also has it but there's no telling how sick he was as a

child. Both have evidence of previous fungal infections in their lungs.

Ursula - mom to Macey (10,CVID) and (13)

http://members.cox.net/maceyh

Immune Deficiency Foundation http://www.primaryimmune.org

Pediatric PID email list

Modell Foundation http://jmfworld.org

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

In a message dated 1/8/2006 1:43:09 AM Central Standard Time,

rionfam@... writes:

> All her Ig levels have always come back low. Sometimes I think I

> shouldn't question...and just be thankful she's healthy. But on the other

hand, I

> don't want to be doing something stupid

Becki:

That's sort of where I find myself this year, thankfully! We got some

disappointing test results this summer (got the new conjugated meningococcal

vaccine

and all 's post-vaccine results were at pre-vaccine levels), and that

with her pathetic responses to prevnar had me worried about the full-day of 1st

grade. But she has only been on abx ONCE since school started! She had had a

wet cough that lasted for 24 days, they decided to try abx to see if it was

drainage from a silent sinus infection. Guess they were right, because the abx

cleared it up right away. She's had numerous colds but I didn't count and all

were mild, some residual coughing from those. But I'm sitting here wondering

whether I am waiting for the other shoe to drop or if I should just consider

this

our new normal! She missed something like 28 days of school last year, she's

missed less than 5 this year so far!!!! If we hadn't done the meningococcal

titers this summer, I'd be sitting here wondering if her ab problem had

resolved!

I think having her own desk (as opposed to the community tables in

Kindergarten) and her own art supplies, etc. has helped?

The one thing we've had this year that is new though is the famous fatigue...

she also has multiple nodes in places I've never felt them before, but the

ped tested her for everything under the sun and her CBC looked good. Over the

winter break the fatigue was mostly gone, so I'm thinking it's the longggg

school day that's making her tired, or maybe that plus some little things she's

maybe fighting under the surface.

So my conclusion has been that there is " something else " in her immune system

that is compensating for her ab deficiency right now? But I don't want to

jinx it!!!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

,

So is currently not on IVIG? Has she ever been? Your comment about

" something else " in her immune system is exactly what I have thought a million

and one times. How can a child with an IgG of 61 ( Reagon's last level) only be

sick a handful of times? Did you know that she has had 2 stomach bugs in 4 1/2

years and with one she threw up once and then was fine! Reagon doesn't even

suffer from fatigue. She is our night owl that begs to stay up and watch " 10

more minutes " of TV after our older children have all fallen asleep. She very

rarely naps... even at school during " quiet time " . I could definitely see where

going from kinder to 1st grade would be more tiring for them though. Just more

sit at your desk and work time instead of being able to relax & play..I think

the sitting for a long time is more tiring for them at this age than playing is.

I need to check Reagon's nodes. I haven't noticed any being swollen...but they

sure used to be when she was a baby! Especially the ones on the back of her

neck..they were huge!

At this point I just say my prayers every night and thank the good Lord for

another healthy day!!

Becki

Re: Tagamet

In a message dated 1/8/2006 1:43:09 AM Central Standard Time,

rionfam@... writes:

> All her Ig levels have always come back low. Sometimes I think I

> shouldn't question...and just be thankful she's healthy. But on the other

hand, I

> don't want to be doing something stupid

Becki:

That's sort of where I find myself this year, thankfully! We got some

disappointing test results this summer (got the new conjugated meningococcal

vaccine

and all 's post-vaccine results were at pre-vaccine levels), and that

with her pathetic responses to prevnar had me worried about the full-day of

1st

grade. But she has only been on abx ONCE since school started! She had had a

wet cough that lasted for 24 days, they decided to try abx to see if it was

drainage from a silent sinus infection. Guess they were right, because the abx

cleared it up right away. She's had numerous colds but I didn't count and all

were mild, some residual coughing from those. But I'm sitting here wondering

whether I am waiting for the other shoe to drop or if I should just consider

this

our new normal! She missed something like 28 days of school last year, she's

missed less than 5 this year so far!!!! If we hadn't done the meningococcal

titers this summer, I'd be sitting here wondering if her ab problem had

resolved!

I think having her own desk (as opposed to the community tables in

Kindergarten) and her own art supplies, etc. has helped?

The one thing we've had this year that is new though is the famous fatigue...

she also has multiple nodes in places I've never felt them before, but the

ped tested her for everything under the sun and her CBC looked good. Over the

winter break the fatigue was mostly gone, so I'm thinking it's the longggg

school day that's making her tired, or maybe that plus some little things

she's

maybe fighting under the surface.

So my conclusion has been that there is " something else " in her immune system

that is compensating for her ab deficiency right now? But I don't want to

jinx it!!!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very

healthy!)

[Guest guest]

,

So is currently not on IVIG? Has she ever been? Your comment about

" something else " in her immune system is exactly what I have thought a million

and one times. How can a child with an IgG of 61 ( Reagon's last level) only be

sick a handful of times? Did you know that she has had 2 stomach bugs in 4 1/2

years and with one she threw up once and then was fine! Reagon doesn't even

suffer from fatigue. She is our night owl that begs to stay up and watch " 10

more minutes " of TV after our older children have all fallen asleep. She very

rarely naps... even at school during " quiet time " . I could definitely see where

going from kinder to 1st grade would be more tiring for them though. Just more

sit at your desk and work time instead of being able to relax & play..I think

the sitting for a long time is more tiring for them at this age than playing is.

I need to check Reagon's nodes. I haven't noticed any being swollen...but they

sure used to be when she was a baby! Especially the ones on the back of her

neck..they were huge!

At this point I just say my prayers every night and thank the good Lord for

another healthy day!!

Becki

Re: Tagamet

In a message dated 1/8/2006 1:43:09 AM Central Standard Time,

rionfam@... writes:

> All her Ig levels have always come back low. Sometimes I think I

> shouldn't question...and just be thankful she's healthy. But on the other

hand, I

> don't want to be doing something stupid

Becki:

That's sort of where I find myself this year, thankfully! We got some

disappointing test results this summer (got the new conjugated meningococcal

vaccine

and all 's post-vaccine results were at pre-vaccine levels), and that

with her pathetic responses to prevnar had me worried about the full-day of

1st

grade. But she has only been on abx ONCE since school started! She had had a

wet cough that lasted for 24 days, they decided to try abx to see if it was

drainage from a silent sinus infection. Guess they were right, because the abx

cleared it up right away. She's had numerous colds but I didn't count and all

were mild, some residual coughing from those. But I'm sitting here wondering

whether I am waiting for the other shoe to drop or if I should just consider

this

our new normal! She missed something like 28 days of school last year, she's

missed less than 5 this year so far!!!! If we hadn't done the meningococcal

titers this summer, I'd be sitting here wondering if her ab problem had

resolved!

I think having her own desk (as opposed to the community tables in

Kindergarten) and her own art supplies, etc. has helped?

The one thing we've had this year that is new though is the famous fatigue...

she also has multiple nodes in places I've never felt them before, but the

ped tested her for everything under the sun and her CBC looked good. Over the

winter break the fatigue was mostly gone, so I'm thinking it's the longggg

school day that's making her tired, or maybe that plus some little things

she's

maybe fighting under the surface.

So my conclusion has been that there is " something else " in her immune system

that is compensating for her ab deficiency right now? But I don't want to

jinx it!!!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very

healthy!)

[Guest guest]

In a message dated 1/9/2006 6:48:05 PM Central Standard Time,

rionfam@... writes:

> ,

> So is currently not on IVIG? Has she ever been? Your comment about

> "

Becki:

Nope, she's never had any sort of treatment. Her previous ID/Immuno doc

wanted her to start IVIG at 18 months old, when she had low IgG (200s), other

deficits, plus the antibody problem. I wanted to do some research first (I was

scared), plus see if anything improved by age two. We kept her pretty isolated

in

the meantime. I joined this group, did a lot of research, a lot of

soul-searching, decided IVIG was her best shot at a normal life. Went back to ID

at age

two and her IgG was up to 500! ID/Immuno said she could not start IVIG unless

she got another deadly infection. I was stunned. I was happy the # came up, but

worried it hadn't come up " enough " , wondered about that ab def.

She had a steady level of infection from then on... bad enough for us all to

suffer and wonder if we were doing the right thing, but not " bad enough " for

the ID/Immuno to care. Then all of a sudden this Fall, she seems to be catching

fewer things. We'll see what the Spring brings, that's always her worst time.

Don't worry, in the future if we feel we need to see an Immuno again, it will

be a new one!! But for now, I'm cautiously optimistic!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

,

That is wonderful that is doing so much better! We went to Reagon's

immuno. on Wed. and he was completely baffled at her numbers versus her health.

I had sent him the labs & a letter explaining where we were at health wise the

week before we went in so he could review it. When we got there and he saw

Reagon he was amazed. He said although I had stated that she was doing well..he

had fully expected her to look " sickly " & tired. He said he had no explanation

for me as to how she was staying so healthy. Even though her labs don't reflect

it..he said it's obvious to him she doesnt' need IVIG anymore. You don't know

how happy I was to hear that! She has been having horrible reactions to the

IVIG for some time now. I guess at this point there is no telling what the

future holds, but for now..we are very happy she is doing so well! I have a

friend who's son did the same thing. Was horribly sick as an infant/toddler

then progressivly got better & better. She said by the time he was 7-8 he

hardly ever got sick. He is now 17 and other than mild asthma...is perfectly

healthy!

Becki

Re: Tagamet

In a message dated 1/9/2006 6:48:05 PM Central Standard Time,

rionfam@... writes:

> ,

> So is currently not on IVIG? Has she ever been? Your comment about

> "

Becki:

Nope, she's never had any sort of treatment. Her previous ID/Immuno doc

wanted her to start IVIG at 18 months old, when she had low IgG (200s), other

deficits, plus the antibody problem. I wanted to do some research first (I was

scared), plus see if anything improved by age two. We kept her pretty isolated

in

the meantime. I joined this group, did a lot of research, a lot of

soul-searching, decided IVIG was her best shot at a normal life. Went back to

ID at age

two and her IgG was up to 500! ID/Immuno said she could not start IVIG unless

she got another deadly infection. I was stunned. I was happy the # came up,

but

worried it hadn't come up " enough " , wondered about that ab def.

She had a steady level of infection from then on... bad enough for us all to

suffer and wonder if we were doing the right thing, but not " bad enough " for

the ID/Immuno to care. Then all of a sudden this Fall, she seems to be

catching

fewer things. We'll see what the Spring brings, that's always her worst time.

Don't worry, in the future if we feel we need to see an Immuno again, it will

be a new one!! But for now, I'm cautiously optimistic!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very

healthy!)

[Guest guest]

Becki:

That's great! The only problem has had this year has been general

fatigue, but not debilitating or anything, just not her norm at all. She goes

through these odd swings where she'll lose her appetite, look sick, but not BE

sick. ???????

all of a sudden popped out with big dark circles yesterday after

school, pale, and I asked her if she was okay. She said fine. She looked awful!

Her

appetite is noticeably off. This continued, then later in the evening she said

she had a headache, but it went away within an hour with no meds. ?????????

Today she has a little sniffle but feels fine! Still no appetite. She looked so

horrible last night! They gotta keep you guessing!

Last time this " cycle " happened, we did bloodwork and it was all perfect. So

I dunno. Maybe her body is really fighting something and it's showing in her

look and energy and appetite, but she's fighting it well enough that she's not

really feeling or seeming sick. ???? Anyway, I'm just glad she's not sick!

I just know I'm gonna have my biggest fight yet come 504 Plan time. She's

only missed like 5 days of school!! I'm over the moon about our turn of luck.

But

I have no intention of dropping the 504 -- if it's working, let's not mess

with it!

I'm in the mood to fight anyway -- just got back from Target where I bought

glasses that cost $385 (!!!!!) and within 3 months I noticed cracks in the

lenses (rimless). Notice I said " notice " because they were probably there

sooner,

I just wasn't looking for them. Target says I have a " warranty " and my

" deductible " is $35. I was MAAAAD. They want me to pay MORE for their defective

glasses? They were the most expensive glasses I've ever owned already, and I

really

couldn't afford them in the first place!! I take really good care of them,

too -- I've been wearing glasses since the age of 8 and have NEVER cracked a

lens or broken a frame. AAAARRRRRRGHHHHHH!!!!!!!!!

NEVER BUY GLASSES FROM TARGET!!!! I was happy there was another customer in

the optical dept when I was discussing this... she came over to see my glasses

and agreed with me that this wasn't right, then she promptly fled. So at least

they lost a customer, the jerks! That's why I'm telling everybody I know --

at least I can save somebody else from buying their horrible product that they

don't stand behind.

Okay, done ranting. Sorry OT!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

Is your son diagnosed with or another recurring fever syndrome? What are

his usual symptons? We just got back from our pediatrician and were discussing

tagamet. I believe after some blood work after she spikes again this evening we

may try it.

father to kylie 3

tagamet

was starting an episode Sunday afternoon. I gave him the tagamet that

our pediatrician perscribed after I told her about some of the kids on it

however, it took his fever away and today he is up and about. He said he isn't

100% but, this is the best he has ever been on day 2. Could it be this simple

for ? The prednisone didn't work but this tagamet so far I would say it

Great! I'll keep you posted. Gretchen

---------------------------------

How low will we go? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Hi , was diagnosed with about 4 years ago at our ID. Recently

he has had many more blood test and scans form head to toe. He had a rough

couple of months so the ID wanted to make sure the wasn't morphing into

something else. We found out that is a very healthy boy with !! His

symptoms are generally headache, sore throat, stomache pain (sometime) fever and

sometimes mouth sores however, back several years he had them every time not so

much now. He can feel the bad feeling coming a day before the fever hits and he

usually doesn't look so good. He has a hard time even lifting his head from his

pillow for 2 days. We started tagamet on sunday with the onset of fever and he

felt better towards the evening. The next day he even showered (never on the

second day could he) however, he is not feeling so good right now. I think we

maybe got a little too exited too soon??He might be car sick we took his sister

to ballet in renton (a 20 min. drive)

we'll see after he rests for awhile. Hang in there, talk to you soon, Gretchen

ERIC STEIGHNER <steighner_41@...> wrote: Is your son diagnosed with

or another recurring fever syndrome? What are his usual symptons? We just got

back from our pediatrician and were discussing tagamet. I believe after some

blood work after she spikes again this evening we may try it.

father to kylie 3

tagamet

was starting an episode Sunday afternoon. I gave him the tagamet that

our pediatrician perscribed after I told her about some of the kids on it

however, it took his fever away and today he is up and about. He said he isn't

100% but, this is the best he has ever been on day 2. Could it be this simple

for ? The prednisone didn't work but this tagamet so far I would say it

Great! I'll keep you posted. Gretchen

---------------------------------

How low will we go? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

My daughter is on Tagament.... her fevers are A LOT fewer...from every 21

days...to every 50-80 days and fevers lower. But, recently they have been

higher..but, that is because she has gained almost 5lbs this year (great for

us).....so, we are increasing her medication...we are hopeful that will work.

Hope this helps you....we think it is a great drug for our child.

Good Luck

Fern (mom to --, age 8)

[Guest guest]

My daughter is on Tagament.... her fevers are A LOT fewer...from every 21

days...to every 50-80 days and fevers lower. But, recently they have been

higher..but, that is because she has gained almost 5lbs this year (great for

us).....so, we are increasing her medication...we are hopeful that will work.

Hope this helps you....we think it is a great drug for our child.

Good Luck

Fern (mom to --, age 8)

[Guest guest]

dear jeanette, although I dont wish to be the 'bad news reporter' we also tried

the tagament (cimitdine) after 4 weeks on 1tsp daily, we went 49 days woohooo

longest ever. Then they crept back to 28 days, we upped it to 2tsp 2x day and

no change. So we are scheduled for preop and labs tomorrow and T & A on Friday!

Wish us luck and I PRAY THAT TAGMANET is the answer for you as we prayed it was

the answer for us!

(mum of fever since 2 years old now nearly 5)

[Guest guest]

dear jeanette, although I dont wish to be the 'bad news reporter' we also tried

the tagament (cimitdine) after 4 weeks on 1tsp daily, we went 49 days woohooo

longest ever. Then they crept back to 28 days, we upped it to 2tsp 2x day and

no change. So we are scheduled for preop and labs tomorrow and T & A on Friday!

Wish us luck and I PRAY THAT TAGMANET is the answer for you as we prayed it was

the answer for us!

(mum of fever since 2 years old now nearly 5)

[Guest guest]

Jace has been on tagamet since January 1st, although his fevers seem to be much

mellower he now picks up every cold, flu, virus that he comes in contact with.

It is strange. The last 2 years that he has been fevering, he has not even had

a sniffle or cough, just the horrible fever, mouth sore, swollen glands,

headache and occasional stomach ache and joint pain that comes along with the

.

Did your daughter just start having fevers at 9?

Since joining this post, I have come to realize that my doctor is wrong in that

will be gone by the time my son is 5.

Angie, Mom to Jace, 4

[Guest guest]

Jace has been on tagamet since January 1st, although his fevers seem to be much

mellower he now picks up every cold, flu, virus that he comes in contact with.

It is strange. The last 2 years that he has been fevering, he has not even had

a sniffle or cough, just the horrible fever, mouth sore, swollen glands,

headache and occasional stomach ache and joint pain that comes along with the

.

Did your daughter just start having fevers at 9?

Since joining this post, I have come to realize that my doctor is wrong in that

will be gone by the time my son is 5.

Angie, Mom to Jace, 4

[Guest guest]

My daughter has had from the age of 2 1/2. My doctor said that my daughter

will outgrow by the time she is 12 to 13. My daughter does pick up every cold,

also. But, she used to pick them up...anyway. Each child is different. Some grow

out of it quicker than others...we did have a long break from the time she was 5

to 5/12 and then again at 7 to 7/1/2...but, last year we went back to fevering

every 21 days. So, cimeditine has been our g-dsend...

Hope tha thelps. (mom to julia...diagnosed at 3 with and now going to

be 9 in June).

[Guest guest]

My daughter has had from the age of 2 1/2. My doctor said that my daughter

will outgrow by the time she is 12 to 13. My daughter does pick up every cold,

also. But, she used to pick them up...anyway. Each child is different. Some grow

out of it quicker than others...we did have a long break from the time she was 5

to 5/12 and then again at 7 to 7/1/2...but, last year we went back to fevering

every 21 days. So, cimeditine has been our g-dsend...

Hope tha thelps. (mom to julia...diagnosed at 3 with and now going to

be 9 in June).

[Guest guest]

My son, 4, has been taking cimetidine for about 8 weeks. Four weeks

ago, his fever lasted only 3 days instead of 5-7 and we have not had

another episode in 4 weeks, 4 days. The longest ever since he started

having fevers over a year ago. I am keeping my fingers crossed the

medicine is helping-everyday when he wakes up I ask him how he feels-

just waiting for the fever, leg pain and stomach pain to start again.

Has anyone's child been on the tagamet for a longer time and have you

noticed long term improvement?

[Guest guest]

Hi. My son is 4 also. He has been on the cimetidine since Jan 1, this year.

His episodes did mellow out. He went a little longer without them and they do

not last as long and his fevers do not go as high. I was really excited until

he started picking up every virus in between his episodes. He now is sick more

often than he is well. We went back to the Doc on Tues and he is referring Jace

for a T & A. I hope it works out great for you and your son, I have heard that it

does indeed work great for some.

[Guest guest]

My son was started Tagament a year ago. His fevers were less severe. A normal

episode before Tagament was 5-7 days of high fever, nasty throat and no eating.

On Tagamet, his fevers could be anywhere from 12 hours to 36 hours, ranging from

99.9 to102, sometimes a nasty throat and he almost always ate!!! We stopped

Tagamet in October and jumped on the Singulair bandwagon b/c his fevers were

every 19 to 20 days. Our doctor wasn't pleased with the Tagament results.

Well, 4 months on Singulair was hell. High fevers, sleepless nights, no eating.

So back on Tagamet in February and we are pretty pleased with the results so

far. I don't remember the last episode (maybe 30 days ago). I decided not to

count the days and just go with it. The last one wasn't that bad! We have an

appointment with a ped. ENT on the 22nd for the T and A discussion! Just taking

it one day at a time!

Mom to Conyers 3 yrs

B'ham Alabama

[Guest guest]

my daughter has been on the meds for a little over a year. She has done soooo

much better than where we were. She used to fever every 21 days (to the day) and

they were AWFUL. She only had 4-5 episodes during the year. Which is a miracle

for us. And, she only missed 8 days of school..another miracle!! Last year she

missed over 40. She had 2 fevers in the last 70 days. But, she is heavier than

she was..... so, we are waiting to see if she gets another..if she does..than we

are going to increase the meds. to see if that helps. But, her episodes...are

better than they were...Hope that helps.

Fern (mom to , age 8--almost 9, fevering since age 2--)