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Their is a group of veterans that have already started picketing recruiting

stations it is the Firebase network....they have an email system and webpage

set up. And yes they are handing out material when they do this not only on

anthrax but on the loss of retirement benefits and all other items that

veterans are being betrayed on! Believe me this is a bigger issue than just

anthrax!

So that means discontent in the veterans population is building. Each stone

they refuse to turn over is a veteran. I have decided DOD just doesnt get

it. That american veterans are educated and are not going to continue to

take this betrayal.

The recruiting issue has been having a down turn since the Gulf War. They

are running long info commercials at late night hours on many tv and cable tv

channels.

They are trying to recruit movie stars to use the razzle dazzle. They are

throwing big bonus to sign up to new recruits. Yet they refuse to see that

the system is broken. When you have young people in the military having to

use food stamps. When you have veterans that cannt get their claims through

the system. When they have denied the after effects of the atomic testing,

agent orange, experimentation, gulf war syndrome, vaccine

reactions.......their nose keeps growing like PINOCCHIOS or however you spell

the Disney character name. They supply chemical protective gear that if you

have seen the documentation that Jim Brown has is little more than psychops.

They have spent millions with OSAWGI to implement a high level policy

decision. When will the elected leaders of our country realize that truth

and morals and ethics have to be counted into the final equation.

Those that get their benefits or find away out of the vaccine mess drift off

to the vapors and fog tired and broke. But how many of us look at our

teenagers and know we can not turn our backs? The future must be guarded as

vigilantly as possible.

The Senators and congressmen that have been contacted to help gulf war

veterans and those currently fighting the anthrax situation that have not

made the effort to support their veterans should be voted out of office.

But how many veterans stand up and unite?

How many veterans are serving now on the hill in DC? How many of those have

supported the veterans?

Sad to say but I see alot of petty bickering and splintering. Where are the

Major VSOs? Those people in their headquarters that take a huge salary, that

get paid trips, that never ask for open dialogue with the veterans they

serve.

Sorry all I am very upset with what I see and it just came out.

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Guest guest

This is exactly the idea behind and why I helped set up the web site at

http://www.aboutanthrax.org. Though this web site was only born at the

beginning of February, the main idea of the site is to provide a forum

where people can submit comments about this issue and if enough people do

and then spread the word, perhaps some of the " other side " will access

the site and just maybe be persuaded to change their mind.

Though I am personally not a parent of kids old enough to serve, someday

my 8 year old son could be in the same predicament. It is one thing for

myself as a member of the armed forces to have to decide if I should

refuse this shot, it is quite another to feel the helplessness of

watching a loved one go through the same process.

The main focus of the web site at About Anthrax is to tell the true story

straight from the people experiencing it. We welcome comments and

personal experience stories to post on the " Comments " page. Probably the

best example is when Austin's mom contacted us and passed on

's letter to Congress and all of the links to stories about 's

plight in the news, we ended up devoting a separate page with this

information.

The other great idea behind our comments page is the fact someone can

tell their story on the web site but elect to remain as anonymous as they

want, without fear of retaliation from their branch of service or the

DoD.

If you or someone you know wants to make a comment or tell their story in

a public forum to spread the word and in the hope that the big guys might

see it and come to their senses, then please drop a line and we will make

every effort to put the information on the web site after verifying the

facts.

Hope all is well with you and the people you love and care about,

Pete (alias: DadFlys)

dadflys@...

http://www.aboutanthrax.org

On Fri, 24 Mar 2000 17:31:34 -0000 " tawny fern " <tawnyfern@...>

writes:

> From: " tawny fern " <tawnyfern@...>

>

> Hello Group,

>

> It seems one of biggest problems other than the needless

> destruction of our military men and women is an unimformed public.

> Adding to this difficulty is the fact that our military men and women

> have so much at risk if they come forward to complain, report, or

> draw attention to this issue...

> As a mom, there are few risks of reprisals. Would a nationwide

> imformation rally, at every recruiting office in the U.S.A.,on a set

> date, be too big of a dream? Would it hurt our cause? This mom is

> very willing to gather those in her area. Let me know what you

> think.

> There is much to say for the power of womens groups in the U.S.A.

>

>

> A Friend in the Fight

>

>

> P.S. If this is a silly idea I apolojize, I just have difficulties

> sitting still while my son is a captive of the military and for the

> most part, being used as a human guinea pig for their

> experimentations. What grips me is he, like many went to the

> military because he is proud to be an American, and wanted to serve

> our counties causes. He like many has been an obediant, and

> upstanding soldier, taking the vaccines willingly up to his fourth

> shot. Well, now as a young man, planning his future and his wedding,

> he is expierencing pain so severe in his testicals and scrotum (for

> an undifined reason. He has been twice to the Dr. and there is no

> infection and no explanation) that he suffers the great fear it may

> be permanant, and/or cause sexual dysfunction, or sterility. All

> because he is a good soldier and followed orders. I wake up crying

> some nights thinking about the fact that my son has always wanted to

> be a soldier, that was his biggest dream. At five he had a full

> dress camoflauge outfit, weapons vest and all, and dressed his

> stuffed animals in military get-ups, his uncle even made him a

> proto-type campflague teddy bed(a net for holding a childs stuffed

> animals)for his stuffed animals. This is all he ever wanted, to be a

> good soldier.

>

>

>

>

>

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> Our Anthrax information web site:

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> To visit Dr. Meryl Nass's web site, go to:

> http://www.anthraxvaccine.org

> Also visit: http://www.MajorBates.com/ and

> http://www.enter.net/~jfsorg/

> http://www.jamesmadisonproject.org/importantlinks.html

> Contact list owner: Gretchen Whitney at: anna_nim@...

>

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Guest guest

I too agree. Visability and being heard are critical, to

begin to stop the madness. My wife & I have 13

grandchildren, who will never serve willingly, that

is, not if we have anything to say about it.

Rick

Viet Nam Era Vet

Father of 3 Gulf War Era Vets

Hope.........rgs

On Fri, 24 Mar 2000 19:21:33 -0000 " Craig Uhl " <SeaDoc@...> writes:

> From: " Craig Uhl " <SeaDoc@...>

>

> I think it is a wonderful idea. Parents have a lot of power in

> determining whether their children should or will serve in this

> military.

>

>

> > Hello Group,

> >

> > It seems one of biggest problems other than the needless

> > destruction of our military men and women is an unimformed public.

> > Adding to this difficulty is the fact that our military men and

> women

> > have so much at risk if they come forward to complain, report, or

> > draw attention to this issue...

> > As a mom, there are few risks of reprisals. Would a nationwide

> > imformation rally, at every recruiting office in the U.S.A.,on a

> set

> > date, be too big of a dream? Would it hurt our cause? This mom is

> > very willing to gather those in her area. Let me know what you

> think.

> > There is much to say for the power of womens groups in the

> U.S.A.

> >

> >

> > A Friend in the Fight

> >

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Guest guest

Charlotte,

Thank you so much...Memorial Day or the Monday before would be ideal days

to realize a dream for a nation wide march at all recruiting stations, for

past, present, and future Military issues, there seem to be many fights going

on...if the different groups could get together on this one day I think we

could get some media attention. If it is not in the news it doesn't exist,

or so I have been advised by those who know much more than I. But this is

just a dream at this point, feedback, input and resources are much needed. I

am also writing to some of the Veteran's groups to see what they may think.

Some of the Gulf War issues transcend the normal boundaries you see with

separate protests..one is the Anthrax Vaccine, and there are more.

I appreciate your response Charlotte, and your support.

Friend in the Fight

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Guest guest

please write to the Firebase network......they will be more than glad to join

you on the recruiting protest but remember memorial day is a long

holiday.....I would do before and after!

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  • 4 years later...

This theory of Simon Baron-Cohen's has been around for a couple of years

now. From a psychology point of view it is very good and explains a lot

about ASD (although not everything). It also explains why, when I talk about

my husband or son, people say to me " all men/boys do that " - my normal

response is to say that not all men/boys do all of these things all of the

time.

One thing I would also like to investigate (not autism related) is whether

people who feel the need to undergo surgery to change sex have the 'wrong'

brain type for their sex (ie a 'male' brain in a female body or vice versa).

I have heard Simon speak a couple of times and he emphasises the positive

about autism. He is very approachable too, and I have exchanged e-mails with

him. My son has been registered with the autism research unit at Cambridge

for some years and has done some questionnaires on-line. He has also

participated in research at Uta Frith's unit at University College, London.

in England

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  • 2 years later...
Guest guest

Hi Lorri-

my daughter is almost 16 and is planning on starting subq- she had a regular

infusion today thru her vein but may start as early as next week with subq if

all goes well with the insurance. She has never needed a port a cath- luckily

she does have good vein access and is fine with needles. We went to the IDF

conference in St Louis and was able to talk with several people on

Subq-she is convinced that it will help her to feel better on a more consistent

basis and she is hoping that it will help with her headaches (so are her dad and

I). We will let you know how it goes- all our best to you and your daughter,

Sue Petrelli

mom to 16 year old w Cvid and migraines

Bartlett, Illinois

Lorri <llkraft@...> wrote:

Hi all, I haven't posted much but trust you more then the doctors I see. I

went to children's

Today and saw a really good doctor I believe but he wanted me to so

something I haven't decided

How I feel about it and wanted your thoughts on the matter.

My daughter is 17 years old and has had a port-a-cath for 14 years(she is on

her second one) and

The doctor feels really strong about taking it out due to the possibly of

infection. He suggested

Sub Q but her port works great we have no problems going to have her

treatments done, she is

Healthy on the most part except fatigue. We are used to it and not really

thinking about

Making changes. My questions is it really all that urgent to remove her

port. Her veins are

Really bad, he said we could try sub Q and if we didn't like it go back to

IVIG but would have

To start an IV each time. What are your thoughts?

Lorri Kraft

17 years old CVID

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Guest guest

--- You cant leave the port in, and try subq? that way, if it doesnt

work, you can go back to that, not regular IVs? so long as it stays

flushed, why would it hurt to do that?

valarie

In , " Lorri " <llkraft@...> wrote:

>

>

>

> Hi all, I haven't posted much but trust you more then the doctors I

see. I

> went to children's

>

> Today and saw a really good doctor I believe but he wanted me to so

> something I haven't decided

>

> How I feel about it and wanted your thoughts on the matter.

>

> My daughter is 17 years old and has had a port-a-cath for 14

years(she is on

> her second one) and

>

> The doctor feels really strong about taking it out due to the

possibly of

> infection. He suggested

>

> Sub Q but her port works great we have no problems going to have her

> treatments done, she is

>

> Healthy on the most part except fatigue. We are used to it and not

really

> thinking about

>

> Making changes. My questions is it really all that urgent to remove her

> port. Her veins are

>

> Really bad, he said we could try sub Q and if we didn't like it go

back to

> IVIG but would have

>

> To start an IV each time. What are your thoughts?

>

>

>

> Lorri Kraft

>

> 17 years old CVID

>

>

>

>

>

>

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Guest guest

--- You cant leave the port in, and try subq? that way, if it doesnt

work, you can go back to that, not regular IVs? so long as it stays

flushed, why would it hurt to do that?

valarie

In , " Lorri " <llkraft@...> wrote:

>

>

>

> Hi all, I haven't posted much but trust you more then the doctors I

see. I

> went to children's

>

> Today and saw a really good doctor I believe but he wanted me to so

> something I haven't decided

>

> How I feel about it and wanted your thoughts on the matter.

>

> My daughter is 17 years old and has had a port-a-cath for 14

years(she is on

> her second one) and

>

> The doctor feels really strong about taking it out due to the

possibly of

> infection. He suggested

>

> Sub Q but her port works great we have no problems going to have her

> treatments done, she is

>

> Healthy on the most part except fatigue. We are used to it and not

really

> thinking about

>

> Making changes. My questions is it really all that urgent to remove her

> port. Her veins are

>

> Really bad, he said we could try sub Q and if we didn't like it go

back to

> IVIG but would have

>

> To start an IV each time. What are your thoughts?

>

>

>

> Lorri Kraft

>

> 17 years old CVID

>

>

>

>

>

>

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Guest guest

Sue,

Thanks for your information, what makes you think sub Q would help with

headaches? gets them all the time and the doctor wanted her to see a

neurologist for them. Also the doctor seems to think she is going

to get an infection due to the foreign body in her system and is very

fearful if we choose to leave it in.

Lorri

CVID 17 years of age

From: [mailto: ] On Behalf Of

Sue Petrelli

Sent: Tuesday, July 17, 2007 6:59 PM

Subject: Re: what do you think

Lorri <llkraft@... <mailto:llkraft%40comcast.net> > wrote:

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Guest guest

Lorri-

does see a neurologist as well and has taken all sorts of migraine

meds-

her headaches are always worse after an infusion so hopefully on subq she

won't get the after infusion headaches- she also heard from others at the

conference that they too suffer from headaches on a regular basis and subq has

helped with their daily headache patterns-not sure if there is any research on

this- simply word of mouth from others who have said their headache pattern got

better on subq- maybe something to do with antiinflammatory effect in IVIG???

not sure but hoping it will make a difference for ---

Sue Petrelli

Bartlett IL mom to CVID 16 yr old

Lorri <llkraft@...> wrote:

Sue,

Thanks for your information, what makes you think sub Q would help with

headaches? gets them all the time and the doctor wanted her to see a

neurologist for them. Also the doctor seems to think she is going

to get an infection due to the foreign body in her system and is very

fearful if we choose to leave it in.

Lorri

CVID 17 years of age

From: [mailto: ] On Behalf Of

Sue Petrelli

Sent: Tuesday, July 17, 2007 6:59 PM

Subject: Re: what do you think

Lorri <llkraft@... <mailto:llkraft%40comcast.net> > wrote:

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  • 5 months later...

Beth,

I can't remember where you live, but Cincinnati Children's does say that

they specialize in hypermobility disorders. That's one of the reasons

we've considered going there for a second opinion for Chris.

Jinny (pauci 11)

http://www.cincinnatichildrens.org/svc/alpha/r/rheumatology/default.htm

The Rheumatology Clinic

Our inter-disciplinary team is involved in the diagnosis, treatment and

follow-up of children with rheumatic diseases, including:

Juvenile rheumatoid arthritis (also termed juvenile idiopathic arthritis)

Pain in Rheumatic Conditions

Systemic Lupus Erythematosus

Mixed Connective Tissue Disease and other connective tissue diseases

Hypermobility Disorders

Reactive arthritis

Polymyositis

Juvenile Dermatomyositis

Juvenile Primary Fibromyalgia Syndrome

Scleroderma and Morphea

Periodic Fever Syndromes

Limb Pain

Regional Musculoskeletal Pain Syndromes

Reflex Sympathetic Dystrophy

Spondyloarthropathy

Uveitis

Vasculitis

The Cincinnati Children's Division of Rheumatology sees patients on

referral from throughout the United States.

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Thanks Jinny, we are in Wisconsin and I have considered that too.

Sending prayers & happy thoughts,

Beth :-)

re: what do you think

Beth,

I can't remember where you live, but Cincinnati Children's does say that

they specialize in hypermobility disorders. That's one of the reasons

we've considered going there for a second opinion for Chris.

Jinny (pauci 11)

http://www.cincinna tichildrens. org/svc/alpha/ r/rheumatology/ default.htm

The Rheumatology Clinic

Our inter-disciplinary team is involved in the diagnosis, treatment and

follow-up of children with rheumatic diseases, including:

Juvenile rheumatoid arthritis (also termed juvenile idiopathic arthritis)

Pain in Rheumatic Conditions

Systemic Lupus Erythematosus

Mixed Connective Tissue Disease and other connective tissue diseases

Hypermobility Disorders

Reactive arthritis

Polymyositis

Juvenile Dermatomyositis

Juvenile Primary Fibromyalgia Syndrome

Scleroderma and Morphea

Periodic Fever Syndromes

Limb Pain

Regional Musculoskeletal Pain Syndromes

Reflex Sympathetic Dystrophy

Spondyloarthropathy

Uveitis

Vasculitis

The Cincinnati Children's Division of Rheumatology sees patients on

referral from throughout the United States.

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  • 1 year later...
Guest guest

I know that a vitamin D deficiancy can make you feel really sick but I dont know

about the info in the article.

My husband who has MS works outside all year round and gets way more sun than he

should - we live in California so our winters are really mild. Obviously it did

nothing to stop him getting MS but who knows if it keeps him healthier than

others who dont get enough.

Bev

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  • 7 months later...

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