Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Here's to all of our children hoping 2002 will bring them some pain relief and head them to more normal lives!! Happy New Year to all and thanks to all for your help and support. 2001 started out bad and is ending pretty good and I hope it continues into 2002. Pat & (1 year Systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 I'm glad you're in my dash--- I read of a man who stood to speak At the funeral of a friend He referred to the dates on her tombstone From the beginning...to the end. He noted that first came her date of birth And spoke the following date with tears, But he said what mattered most of all Was the dash between those years. (1934-1998) For that dash represents all the time That she spent alive on earth... And now only those who loved her Know what that little line is worth. For it matters not, how much we own; The cars...the house...the cash, What matters is how we live and love And how we spend our dash. So think about this long and hard... Are there things you'd like to change? For you never know how much time is left, That can still be rearranged. If we could just slow down enough To consider what's true and real, And always try to understand The way other people feel. And be less quick to anger, And show appreciation more And love the people in our lives Like we've never loved before. If we treat each other with respect, And more often wear a smile.. Remembering that this special dash Might only last a little while. So, when your eulogy's being read With your life's actions to rehash... Would you be proud of the things they say About how you spent your dash? If you have received this, it means that you are truly special to the one that sent this to you. Send this on to the ones you care about... * *.(\***/)*.* *.*(\ (_) /)*.* ..*.(_/ || \_).*. *..*/____\*..* May your guardian angel watch over you faithfully Happy New Year! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 I'll second that!! HAPPY NEW YEAR! Happy New Year EveryOne!!!! I am ready for the next round of new study group students! Jeanetta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Well I got the Ribavirin today in the mail from the VA. It won't be long now until the Interfuron comes. I'm very nervous. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Thanx you all for the support. I'll keep ya posted. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Dear Mic, I understand the being nervous. I am in my ninth week of treatment and I have to say that everything is beginning to level out just like they said it would after a couple of months. I have medications in the house for most every side effect and I find that I am not using them nearly as much. I had almost no nausea this week. I agree with everyone who said to get on an anti-depressant before you start (they take several weeks to become effective). For me, the depression was the worst side effect because I felt so powerless. In addition, I keep something to help me sleep, a very mild dose of valium (2 mg) for anxiety, some darvoset for the shot headache, and a few antinausua medications depending on the severity (I have an irrational fear of nausea - always have, even as a baby). So, hang in there if you can and keep your eye on the prize. For me it was also an emotional lift to get below my 40th shot remaining. It just felt good to be in the 30's. One thing my doctor said to me that really helped is "You are not sick. These are side effects from potent medications. They will go away." Good luck! Andi in Louisiana -----Original Message-----From: phoenixmic@... [mailto:phoenixmic@...]Sent: Thursday, January 02, 2003 4:53 PM Subject: Re: [ ] Happy New Year!Well I got the Ribavirin today in the mail from the VA. It won't belong now until the Interfuron comes. I'm very nervous. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Thanx Andi for your reply and support. I'll keep you all posted. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi Robin. Sorry to see you go. Hope there is good reason and wishing you the best of health. Hugs, Carol B __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Beth, glad that you can be with us more, now that you have internet access at home. I was wondering about you, Tawny > > It has been a while since I have posted. As everyone else I was busy > getting ready for Christmas. We finally got the internet at home so > maybe now I can keep up better with everyone. Welcome to all the new > people here. I had an appointment with my rheumy last week. I still > have the frozen shoulder, but I am still doing my exercises. Since > we have got my medications under control now, he says that I only > have to come see him three times a year and get my blood work done > every twelve weeks. I did get him to change my medication from > bextra to mobic of course he said that none of it is good for you. I > hope everyone has a pain free new year. Thank you all for the > support that you have given me. > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 Can't argue with that, Sue! I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Happy New Year! > > Happy New Year to everyone. I wish for all of us for the new year some > chronic pleasure to take the place of chronic pain, LOL. > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Titch! Your pictures are great! What a beautiful couple! How did your husband come by the name "2C"? And, I can't get over how much you are a blend of both your mother and father. Beautiful photography. My very best to both of you. May you have a happy, healthy, loving, wealthy life! Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Titch, Well a very Happy New Year to you (and yours!). Ummm, I admit I feel like a bit of a dolt....did I miss the announcement of this impending event....why I completely am embarrasseed if I did .... I am sure I was wrapped up in the usual preparations for all the festivities at this time of year ...sorry to be late to congratulate! You make a spectacular bride and I admire your choice in color for the dress..it suits your coloring beautifully. Your pictures will be a wonderful memory for many years to come! I am sorry you are ill now...hopefully those antibiotics will kick in and give you a lift before New Years. I hope your back stays out of the way for awhile and you get to just enjoy your newlywed bliss! Very best wishes to you both, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Dear Titch, What beautiful photo's! You and your groom look so happy! I admire your choice in color, and style, my wedding photos are so generic, would have loved to go more bold. I hope you'll be on the mend soon, not fair to be sick during all of this. I send you many happy wishes for your new life together! Colorado Springs [ ] Happy New Year! Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding:http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ):http://www.puddleduck.info/weddingphotos/official/015.jpg The signing:http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me:http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c:http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism:http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ):http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 It was only briefly mentioned - it's weird, we were going to do it last year, but had such an absolutely awful year that we just couldn't face it and put it all back another year (we still wanted to have it on longest night). It seemed kind of unreal - after all, we've been together ten and a half years, it's a daft thing to go making such a fuss about after all this time, although of course we're glad we did! Still, it sort of meant that outside those who were invited, we really didn't make much mention of it this time before the whole event, so quite a few people have been taken by surprise by it. I suppose we almost felt we'd jinx it somehow. 2c comes from his initials, being Cottell. As my surname is Chester, I get to keep my initials even if I change my name ) Colour wise - when I went shopping for the material, I was really looking for blue, or perhaps even the right shade of red, then I was introduced to this fantastic silver-grey silk velvet and that was it! I'm glad it came off ok as I made the whole of my outfit including the corset underneath it, and made 2c's jacket, shirt and waistcoat. Also on colour, would you believe I am actually blonde?? ) The reason for the tiger is we encouraged people to dress up in whatever they wanted, and so his dad and stepmum decided to come as his favourite cartoon - Calvin and Hobbes ) The poor registrar had real difficulty keeping a straight face when faced with such a bunch of lunatics! Still and all, it was a fun night and I think everyone enjoyed it ) titch-- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Oh, my goodness, Titch! What a marvelously medieval couple! Did he leave his sword and scabbard in the carriage?! How lovely to see what you look like after all these years, and how radiant (not to mention straight and tall!) you look! Thanks so much for sharing your pics, and may you have many years of happiness together. Sharon [ ] Happy New Year! Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding:http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ):http://www.puddleduck.info/weddingphotos/official/015.jpg The signing:http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me:http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c:http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism:http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ):http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 --Titch, I loved the wedding photos....kind of nice to see something else on the board other than a bunch of spines!! Only kidding guys, I love your spine pictures!! If you could only how many times I have studied your spines...loooking at every detail and counting all the pieces of bling!!! Oh now for the preop update....oh my goodnes...I was sooo grouchy at the end I thought my sisters were going to leave me there and go home without me..I got to the NEBH at 8:00 and left slightly after 4:00, I even bumped into Priscilla in the lobby and she said " ,you are still here? " It just was a very long, long day ending with a blood donation at the blood band. Cam, you were correct the spine class was well worth the time, I would recommend it to Vonnie and Sharon. They also provide you with a nice lunch etc. I got to ask many questions..like how will I get my daily newspaper ???, The NY POST....only kidding...THey told me they do deliver a paper to you everyday if you would like. Basically it was nursing looking you over, social worker,asking about your home care when you leave,ansthesia(spelling), that was very important to me..I wanted to know I would be sedated before I get into the operating room, I don't want to see any of that..I was assured I would be. I did not meet with PT due to time constraints with a CAT scan and new xrays.... GOod news is I got 3 units of blood banked, one from me and one from each of my sisters. They also informed me that I can donate blood every seven days until my surgery from Philadelphia..I was not aware of that..SO I can bank one more unit from home to be sent up here to MASS> I will try my best to do that... I also met with a person in Rand;s office to fill out papers for a " study " that they are doing, it was optional, I did it becasue if I can in any way help future folks with any info they can get from me , that is all good stuff in my world!! I also joked with Priscilla about the web and how we talk about Rand..she laughed... SHe said, " you really can't be in better hands " , I said, " so I have heard on the web!! " All in all it was a productive day but I was in so much pain from sitting, walking, and hanging around I just wanted a bed and a nap!! Next big day is coming soon!! Friday the 13th..that is my first stage!! I hope it is a lucky day for me!!!! HOpe you all don't find this too boring but it helped me to recap in my mind what I had just done..whew....., PA - In , oojackapivvy <oojackapivvy@g...> wrote: > > Thought I'd drop you all a line to say happy new year, and hope that it is a > good one for all of us. I'm not making the best start on it mind you, as I > currently have an evil chest infection and have literally not been so ill > for years, but at least I now have antibiotics so should start picking up > quite rapidly. > > It's been great to read how good Kam's recovery is (despite the setback), > and the idea of Spinal Bling has had 2c and I roaring with laughter ) If > nothing else, if we can all face the new year with such humour, it has to be > a good one no matter what life throws at us! > > On a different subject, here's some wedding photos on the one well day we > had between 2c being ill until the wedding day and myself being increasingly > ill since: > Dad, mum and me in the bedroom just before the wedding: > http://www.puddleduck.info/weddingphotos/official/012.jpg > During the ceremony (2c's dad as best man, the disreputable looking one in > the red tshirt and messy hair ): > http://www.puddleduck.info/weddingphotos/official/015.jpg > The signing: > http://www.puddleduck.info/weddingphotos/official/024.jpg > When have you ever seen witnesses who look like these? (to the left, Bob, > 's step dad, a well known local author, to the right Kathy, his step > mum, a prominent local artist who very kindly printed the invitations for > us): > http://www.puddleduck.info/weddingphotos/official/025.jpg > Just me: > http://www.puddleduck.info/weddingphotos/official/033.jpg > Just 2c: > http://www.puddleduck.info/weddingphotos/official/035.jpg > More narcicism: > http://www.puddleduck.info/weddingphotos/official/042.jpg > Finally, the cake (oh, and us again, in case you'd forgotten what we look > like! ): > http://www.puddleduck.info/weddingphotos/official/066.jpg > > > Here's to good health and good luck for us all ) > > titch > > -- > Something unknown is doing we don't know what > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Oh Titch your photos are beautiful!!!! Congratulations! Lorrie Snyder From: [mailto: ] On Behalf Of oojackapivvy Sent: Tuesday, December 27, 2005 3:27 PM To: Subject: [ ] Happy New Year! Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding: http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ): http://www.puddleduck.info/weddingphotos/official/015.jpg The signing: http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me: http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c: http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism: http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ): http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 [ ] Happy New Year! Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding:http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ):http://www.puddleduck.info/weddingphotos/official/015.jpg The signing:http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me:http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c:http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism:http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ):http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Titch, Congratulations! (You are so pretty!) Bonnie [ ] Happy New Year! Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding:http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ):http://www.puddleduck.info/weddingphotos/official/015.jpg The signing:http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me:http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c:http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism:http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ):http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Hi Titch - what amazing photos!! Thanks for sharing these!! Ken.oojackapivvy <oojackapivvy@...> wrote: Thought I'd drop you all a line to say happy new year, and hope that it is a good one for all of us. I'm not making the best start on it mind you, as I currently have an evil chest infection and have literally not been so ill for years, but at least I now have antibiotics so should start picking up quite rapidly. It's been great to read how good Kam's recovery is (despite the setback), and the idea of Spinal Bling has had 2c and I roaring with laughter ) If nothing else, if we can all face the new year with such humour, it has to be a good one no matter what life throws at us! On a different subject, here's some wedding photos on the one well day we had between 2c being ill until the wedding day and myself being increasingly ill since: Dad, mum and me in the bedroom just before the wedding:http://www.puddleduck.info/weddingphotos/official/012.jpg During the ceremony (2c's dad as best man, the disreputable looking one in the red tshirt and messy hair ):http://www.puddleduck.info/weddingphotos/official/015.jpg The signing:http://www.puddleduck.info/weddingphotos/official/024.jpg When have you ever seen witnesses who look like these? (to the left, Bob, 's step dad, a well known local author, to the right Kathy, his step mum, a prominent local artist who very kindly printed the invitations for us): http://www.puddleduck.info/weddingphotos/official/025.jpg Just me:http://www.puddleduck.info/weddingphotos/official/033.jpg Just 2c:http://www.puddleduck.info/weddingphotos/official/035.jpg More narcicism:http://www.puddleduck.info/weddingphotos/official/042.jpg Finally, the cake (oh, and us again, in case you'd forgotten what we look like! ):http://www.puddleduck.info/weddingphotos/official/066.jpg Here's to good health and good luck for us all ) titch -- Something unknown is doing we don't know what Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Right now it is 8 min to midnight. Happy New Year Happy New Year! I would just like to wish everyone a happy, healthy, and prosperous New Year. Let us hope we all find the answers we are looking for! Sally Doug Murray What time is it in Hong Kong? Is it nearly midnight there? We still have over 8 hours to go here in the uk. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 A very happy and healthy New Year to you all Many thanks for your tremendous efforts in promoting coconut oil. I know that I have learned a tremendous amount from this group, (and not only about coconut oil). Please keep up your fantastic work in educating those who are lucky enough to find this wonderful group. Have a great 2007. Mel and all at Cocovida > > Right now it is 8 min to midnight. Happy New Year > Happy New Year! > > > > > I would just like to wish everyone a happy, healthy, and prosperous New > Year. > Let us hope we all find the answers we are looking for! > Sally > > Doug Murray > What time is it in Hong Kong? Is it nearly midnight there? > We still have over 8 hours to go here in the uk. > Sally > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Happy New Year! Hope everyone has a great 2008! Louise **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I really should have given you all of 's message. ========== Hey everyone, I promised I would introduce us but we have really not been able to come up for air.Desire' seemed better for a few days and now is vomiting again. We're getting her med levels checked But I had a question for you guys. Let me tell you a little bit about Desire' first,though. Desire' is 13 (14 next month!) and has Rett Syndrome. Rett is a neurological disorder that affects mostly females because it is carried on the X Chromosome. Girls with Rett develop normally for the fist 6-18 months of their lives and then start to regress and lose skills. They typically have stereotypical hand movements (clapping, tapping ( that's Desire'), wringing, etc), small head and feet sizes, grind their teeth and are non verbal. About 50 percent can walk and out of those 50 % about 30% will lose the ability (Desire' can walk but it is diminishing and now she needs full assist) and about 50% have seizures. Out of those about 25% will have uncontrolled seizures (that's Desire'). Scoliosis is also prominent,which is why we're here. Desire' is non-verbal but uses a communication device to communicate. She is notoriously happy and easy going but she has a stubborn streak a country mile wide. She loves movies (Spiderman is her all time fav right now), music and watching her fish. School is her favorite pastime and she can't stand to miss it because of her many doctor appointments. Desire' has a 45% positional idiopathic curve (mostly lumbar). The neurosurgeon used the term " Neurogenic " if that helps. Even though hers is not fixed,yet, we are going to do do surgery because it is so aggressive. She has gone from 12 deg to 45 deg is 18 months. Her walking has diminished in direct correlation to the increase in her curve So, my question is this....could an increased curve cause vomiting? She is sick AGAIN and it could just be a virus, we're just trying to rule things out. Like I said, we're going to get her AEDs checked, because one of the could be the culprit. And she could have just been lucky enough to get a virus two times in a row. Thanks for any help you can give me ========== > > Hey folks, > > Hope you've had a wonderful set of holidays. > > If you're a member of ScoliosisNutty, would you please look at Message > 6998 and reply to ? Thanks. > > If you're not a member of that group, the question is, " So, my question > is this....could an increased curve cause vomiting? " > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Dear , Any info I could find on this comes from Chiropractors after I googled it, and I found lists of how they say scoliosis can affect the body, mostly patient questioneers, so I'd take it with a grain of salt, but they do say digestive problems, meaning reflux and the like. I think this would be best adressed by their ortho, as I don't know anything about her other medical problems. These lists though were interesting to me, as I had or have had many of the items listed, but I bet many would even if they didn't have scoliosis. [ ] Happy New Year! Hey folks,Hope you've had a wonderful set of holidays.If you're a member of ScoliosisNutty, would you please look at Message 6998 and reply to ? Thanks.If you're not a member of that group, the question is, "So, my question is this....could an increased curve cause vomiting?"Thanks, Quote Link to comment Share on other sites More sharing options...
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