Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Can you see a new doctor? Seems like usually after a myotomy and there is narrowing they do a dialation. Seems like the endoscopy is used only to see if there are growths or other things going on. They can easily force the les open from inside, I think. Most of us were not diagnosed from an endoscopy, but were diagnosed from the barium. I think the barium much more shows the problem. The endoscopy rules out other problems and indicates if there are ulcers. Almost always it is a dialation or 2nd myotomy for others here with similar symptoms. You need better doctors. Sandy > > I just had a bunch of test done. Endoscopy, barium swallow, gastric emptying and pH probe. > > My barium swallow was HORRIBLE and the results were grossly abnormal. I had 5 ounces of fluid in my esophagus after 15 minutes. Classic picture of the bird's beak. Tons of narrowing at the LES. I've already had the myotomy! > > Fast forward to the endoscopy 2 weeks later and my LES was perfectly open. How, how, how? > > To add to my frustrations, my stomach is delayed in emptying but not bad enough for them to do anything about. In 48 hours of the pH probe, I had 24 incidences of acid reflux but they won't do anything about it unless you have 55 incidences or more?!?! > > I was basically told unless I start losing a bunch of weight or am avoiding foods or can't eat anymore, there's really not anything they can do for me. And if the physician's assistant I was talking to said once more, " You know you have achalasia. You will never be normal. It never goes away. " I was going to reach through the phone and smack her. > > Really? I thought no cure, degenerative and chronic were all synonyms for normal? Really? > > , FL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 This info was coming from my surgeon's office. I am in FL and went to Dr. Rosemurgy in Tampa. Can someone else recommend a different doctor in Central Florida? Please tell me I am not crazy because I am really calling BS with this " classic birds beak, horrible barium swallow but oh you look perfect on the endoscopy crap. " Thanks, > > > > I just had a bunch of test done. Endoscopy, barium swallow, gastric emptying and pH probe. > > > > My barium swallow was HORRIBLE and the results were grossly abnormal. I had 5 ounces of fluid in my esophagus after 15 minutes. Classic picture of the bird's beak. Tons of narrowing at the LES. I've already had the myotomy! > > > > Fast forward to the endoscopy 2 weeks later and my LES was perfectly open. How, how, how? > > > > To add to my frustrations, my stomach is delayed in emptying but not bad enough for them to do anything about. In 48 hours of the pH probe, I had 24 incidences of acid reflux but they won't do anything about it unless you have 55 incidences or more?!?! > > > > I was basically told unless I start losing a bunch of weight or am avoiding foods or can't eat anymore, there's really not anything they can do for me. And if the physician's assistant I was talking to said once more, " You know you have achalasia. You will never be normal. It never goes away. " I was going to reach through the phone and smack her. > > > > Really? I thought no cure, degenerative and chronic were all synonyms for normal? Really? > > > > , FL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Dear , I'd email your results to the major doctors here. I don't really remember Dr. Rosemurgy that much from the past. But seems like there were some good experiences and some bad experiences. You can search deeper now, on this site to see old postings. Just seems to me that the bird's beak is the best indication of trouble for us and if a doctor doesn't know that, then they don't know enough about achalasia. Perhaps, a trip further is worth it???? I know it is expensive, going out of network is difficult, but it is your health for the rest of your life. There are often houses or places for family to stay out of town. But I'm in CA, so don't know places half way close. I do have to add... we live close to the Long Beach airport. A few days ago, AiR Force One flew right by, just above the tree tops, exactly over the school my daughter goes to. She happened to be away for the 5th grade outdoor camp. Fascinating, really, no matter what your political views. A few mintues later 5-6 helicopters went past again, instead of a motorcade, to go to Orange County. I didn't realize they used that many helicopters. All big and scary looking. So , I don't know where you should go, but look further, remember we are prize winning patients, and many places bend over backwards to accomodate us. Sandy > > > > > > I just had a bunch of test done. Endoscopy, barium swallow, gastric emptying and pH probe. > > > > > > My barium swallow was HORRIBLE and the results were grossly abnormal. I had 5 ounces of fluid in my esophagus after 15 minutes. Classic picture of the bird's beak. Tons of narrowing at the LES. I've already had the myotomy! > > > > > > Fast forward to the endoscopy 2 weeks later and my LES was perfectly open. How, how, how? > > > > > > To add to my frustrations, my stomach is delayed in emptying but not bad enough for them to do anything about. In 48 hours of the pH probe, I had 24 incidences of acid reflux but they won't do anything about it unless you have 55 incidences or more?!?! > > > > > > I was basically told unless I start losing a bunch of weight or am avoiding foods or can't eat anymore, there's really not anything they can do for me. And if the physician's assistant I was talking to said once more, " You know you have achalasia. You will never be normal. It never goes away. " I was going to reach through the phone and smack her. > > > > > > Really? I thought no cure, degenerative and chronic were all synonyms for normal? Really? > > > > > > , FL > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hey Everyone, Well, for the first time in a year-and-a-half, three of my four monthly tumor markers came DOWN!!!!! I was ECSTATIC! That was last week. In the past week, I have developed a pretty decent bloat right between the two sides of my rib cage. My oncologist percussed me yesterday and said he didn't think it was ascites. My PCM percussed me today and swears it's ascites. What the heck? How on earth could I have good test results and have significant disease progression at the same time??? All the while when my tumor markers were marching upward, I had no sign of disease at all ... So now I have an ultrasound on order to see what's what but now I'm freaked out! :( Has anyone ever heard of something like this? xoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 There are other causes of ascites than disease progression. You could have cirrhosis. An inflamed liver can cause portal hypertension and this could cause ascites. Ascites is a massive problem in the chicken industry. Causes have been linked to ammonia concentration from unclean floors and air, and to stress from overcrowding. I do think you have been under a lot of stress. Your chief problem had been abdominal pain and cramping. You are far more likely to see this with gas than with ascites. The gut has stretch receptors that cause pain when bloated. You can cut into the gut and cause no pain at all. Your cramping seemed to subside when you stepped back from your meds and diet. You could simply have an inflammation of your gut. There are many possible causes. One of the less often scrutinized causes is fluoride in the water. It usually takes about two weeks before abstaining from fluoride resolves abdominal pain. If you have ascites then the amount you have is not significant. I would treat the problem as a digestive problem until you get the results from the ultrasound. At 06:24 PM 4/2/2009, you wrote: >Hey Everyone, > >Well, for the first time in a year-and-a-half, three of my four >monthly tumor markers came DOWN!!!!! I was ECSTATIC! That was last >week. In the past week, I have developed a pretty decent bloat right >between the two sides of my rib cage. My oncologist percussed me >yesterday and said he didn't think it was ascites. My PCM percussed >me today and swears it's ascites. What the heck? > >How on earth could I have good test results and have significant >disease progression at the same time??? All the while when my tumor >markers were marching upward, I had no sign of disease at all ... > >So now I have an ultrasound on order to see what's what but now I'm >freaked out! :( Has anyone ever heard of something like this? > >xoo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 > > There are other causes of ascites than disease progression. You > could have cirrhosis. An inflamed liver can cause portal > hypertension and this could cause ascites. Ascites is a massive > problem in the chicken industry. Causes have been linked to ammonia > concentration from unclean floors and air, and to stress from > overcrowding. I do think you have been under a lot of stress. > Your chief problem had been abdominal pain and cramping. You are far > more likely to see this with gas than with ascites. The gut has > stretch receptors that cause pain when bloated. You can cut into the > gut and cause no pain at all. Actually, the bloated area isn't painful ... I only have pain when I have spasms which are sometimes in the bloated area and sometimes in lower abdomen. And, I guess, as ascites goes, this might not be much, but I'm embarrassed to wear my form-fitting stretchy tops now since it's so visible. xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 In Dr Hamer " new german medicine " theory : you have a phase of exacerbation before cure. DURING THE HEALING PHASE Low energy, fatigue, headaches, swelling, pain, inflammation, fever, night sweats, pus, discharge (potentially mixed with blood), so-called " infections " and certain types of cancer are typical symptoms indicating that the related conflict has been resolved and that the correlating organ or tissue is now undergoing a natural healing process. Thus, most " diseases " , including intra-ductal breast cancer, cervical cancer, bronchial cancer, or Non-Hodgkin's lymphoma, are treated - both by allopathic and naturopathic medicine - when they are already in the process of healing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 , There's a good chance you have intestinal inflammation and not ascites. Perhaps you are sensitive to something you are taking. I'm glad about the marker numbers. Please write me and let me know what you are doing currently. Mike wrote: > > Hey Everyone, > > Well, for the first time in a year-and-a-half, three of my four > monthly tumor markers came DOWN!!!!! I was ECSTATIC! That was last > week. In the past week, I have developed a pretty decent bloat right > between the two sides of my rib cage. My oncologist percussed me > yesterday and said he didn't think it was ascites. My PCM percussed me > today and swears it's ascites. What the heck? > > How on earth could I have good test results and have significant > disease progression at the same time??? All the while when my tumor > markers were marching upward, I had no sign of disease at all ... > > So now I have an ultrasound on order to see what's what but now I'm > freaked out! :( Has anyone ever heard of something like this? > > xoo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 " shaman_urban " wrote: In Dr Hamer " new german medicine " theory : you have a phase of exacerbation before cure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Okay, question for you - my itching has intensified inthe last few weeks, as I explained. I had thought it would decrease becasue the LDN appears to be working as evidenced by my ultrasound a few weeks ago showing no further growth and even slight shrinking. Do you think the itching is exacerbation before cure/healing in my case? " shaman_urban " wrote: In Dr Hamer " new german medicine " theory : you have a phase of exacerbation before cure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 The Process of Cure Swelling usually occurs, either in various sites around the body due to toxins being released into the Lymph system, or the tumours themselves can swell as part of a resolution phase e.g. swelling of tumour then becoming softer. In some cases, tumours remain for many years but are no longer active; they stop growing and change from a malignant to a benign status. Cancer is a systemic disease, and especially in cases where there has been tumours in various locations, as the body begins to win the battle, the immune system is improving, and cellular oxygenation and pH is improving, the body will then start to detoxify. These toxins come out into the Lymph system, the blood, etc. The body uses various methods to eliminate them. This can be a difficult process and with some individuals, particularly those. who have a long history of poor diet, stress, and possibly toxic recreational or pharmaceutical drugs, can be particularly difficult. It is important at these times to have some understanding of the healing phase, as it may appear that one is losing the battle. It is important at these times to have some support from persons who are experienced with this process, or at least understand the process of detoxification. This highlights the difference between conventional treatment and `natural' treatment. Conventional treatment is aimed at reducing or eliminating (i.e. through surgery) actual tumors, but pays no regard to the overall process of the efficiency of the immune system or cell-respiration for example. It must be seen that they are doing something to destroy the tumours. Natural treatment is almost diametrically opposite, as it works to improve the overall status of the persons self curative systems, during this process increased symptoms and swellings do often occur > > In Dr Hamer " new german medicine " theory : you have a phase of exacerbation before cure. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Exactly.. This is the perfect explanation of this phase. Also, are you doing organic coffee enema ? See : http://www.sawilsons.com/liver.htm " A coffee enema, when done properly, causes the liver to produce more bile, opens the bile ducts and causes the bile to flow. In this process, a toxic liver can dump many of its toxins into the bile and get rid of them in just a few minutes. This often gives great relief to all parts of the body, and often makes the difference between lying down feeling miserable and feeling good and being active. Coffee enemas are also effective in relieving pain. Patients with cancer, for example, may achieve relief from pain even when drugs failed. " http://www.antibiotic-alternatives.com/coffee_enema.htm Anyone familiar with coffee enema results ? " shipshape45 " wrote: > > The Process of Cure > Swelling usually occurs, either in various sites around the body due to toxins being released into the Lymph system, or the tumours themselves can swell as part of a resolution phase e.g. swelling of tumour then becoming softer. In some cases, tumours remain for many years but are no longer active; they stop growing and change from a malignant to a benign status. Cancer is a systemic disease, and especially in cases where there has been tumours in various locations, as the body begins to win the battle, the immune system is improving, and cellular oxygenation and pH is improving, the body will then start to detoxify. These toxins come out into the Lymph system, the blood, etc. > > The body uses various methods to eliminate them. This can be a difficult process and with some individuals, particularly those. who have a long history of poor diet, stress, and possibly toxic recreational or pharmaceutical drugs, can be particularly difficult. It is important at these times to have some understanding of the healing phase, as it may appear that one is losing the battle. It is important at these times to have some support from persons who are experienced with this process, or at least understand the process of detoxification. This highlights the difference between conventional treatment and `natural' treatment. Conventional treatment is aimed at reducing or eliminating (i.e. through surgery) actual tumors, but pays no regard to the overall process of the efficiency of the immune system or cell-respiration for example. It must be seen that they are doing something to destroy the tumours. Natural treatment is almost diametrically opposite, as it works to improve the overall status of the persons self curative systems, during this process increased symptoms and swellings do often occur Quote Link to comment Share on other sites More sharing options...
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