Caffeine

[Guest guest]

I know that everyone's body is different, but before becoming hyper, I could

drink caffeine before going to bed and sleep like a baby. When I was

hyperthyroid my acupuncturist took me off coffee (both decaf and caffeinated).

Even though I'm now in remission, my body is very sensitive to caffeine. I

tend to break out (acne), even if I drink decaf. And I feel hyper very soon

after drinking caffinated coffee. Coffee is a stimulant, so it doesn't seem

like a good idea for anyone who is hyper to drink it.

Esther

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[Guest guest]

Hi all,

On the topic of herbal/natural routes, I've read that caffeine is good to

stay away from. I know this is extreme, but with green tea do any of you

drink the decaf kind, or is the caffeinated green tea a better antioxidant?

Just curious...

>From: PatJ@...

>Reply- onelist

> onelist

>Subject: Re: [ ] wow!!!

>Date: Sat, 19 Jun 1999 20:03:34 EDT

>

>From: PatJ@...

>

>This is a prolific group! It just took me the better part of the day to

>read

>this weeks posts. I have been getting them in digest format which means I

>download and read offline, it makes it harder to remember specific comments

>I

>want to make but here is a try;

>

> & Geri,

>, I'm glad your wife is in good hands. Geri is correct, waiting times

>are

>tied to health status. If your wife is stable and at home she will be a

>Status 3 which means she will have the mean waiting time. If she gets

>sicker, depending on the number of 'points' she has (as calculated by

>clinical findings and lab tests) she will move up to B2 and B1. ICU places

>someone in Status 1 and at the top of the list. The waiting times DO vary

>by

>region. Also by blood type. O/A types are the longest waits, B shorter, and

>AB the shortest. Florida where I am is considered to be a short wait. I am

>B+

>blood type and I was on the list at status 3 for 2 1/2 months then a liver

>became available.

>

>I have heard differing views on AIH after transplant. I was told the AIH is

>inscripted in my DNA and therefore will attack my new liver BUT, prograf,

>the

>antirejection meds are immunosuppressants, anf therefore MOST persons with

>AIH do not have problems post-transplant. Organ rejection, the way I

>understand it, is clinically the same process as inflamation

>pre-transplant.

>The good news is that prograf, for me, has no side effects at correct dose

>(blood levels have to be monitored and it can be nasty at toxic blood

>levels). Most people don't have trouble getting stabilized.

>

>As to age and transplant, it used to be that 70 was a cut off age but that

>is

>no longer true. As was mentioned general health is more important to make

>sure the person will survive the surgery and recover their health.

>

>Daisy, & others on herbals

> I love your spirit and energy with growing your own herbals. I think we

>just

>need to be VERY careful given that we have autoimmune conditions. We have

>to

>avoid any immune system enhancers or boosters. I think Dr. Weil, who has

>been

>mentioned before makes some wonderful recommendations in his work. I

>especially like Spontanious Healing He urges people to recognize the

>appropriate balance between traditional medicine, like prednisone for

>reduction of inflamation, and green tea and walking for overall health. I

>am

>of course oversimplifying, but it is a good book.

>

>Take care, Patty

>

>------------------------------------------------------------------------

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[Guest guest]

,

I've never been told to avoid caffeine though I rarely drink coffee anyhow.

Actually, a cup of tea is a good sleep aid for people with chronic

insomnia. My doctors, on the other hand, we're very vocal about warning me

against taking any herbal remedies and in fact, when I was first diagnosed,

they wanted to know if I'd been taking herbals. I got the distinct

impression they thought herbal remedies could have brought on the AIH.

Many herbals are not just harmless but actually beneficial. My husband is

taking a couple of them (so far after 2 months he sees no differences at

all). My father-in-law has always been a big advocate of herbal remedies

and vitamins and he's 88 years old and extremely youthful and healthy for

his age, though he's finally showing a few signs of aging. He's only been

hospitalized once in his life and that was after an auto accident. I've

only tried Melatonin and it didn't do anything for me at all.

I'd suggest that you keep an open mind and if you're convinced that one of

the herbals will help you, ask your doctor if it will do you any harm, just

like you would any other medication. If my doctor says something is

harmful, I don't take it and I never take anything without checking with

him first. Self medicating can be very dangerous, but you already know

that so I'm just meandering.

Take care,

Geri

[Guest guest]

[ ] caffeine

>From: barbara ann <barbara99ann@...>

>

>My three cents worth (inflation)

>

>For whatever it's worth.......

>Before I was hospitalized for my transplant I had many

>stomach upsets. My friend who is Chinese gave me some

>of his 'private stock' of green tea from China. I had

>a cup about 1/2 hour before eating and it worked

>wonders for me. I was able to eat meals without

>getting sick. He also said that if I didn't want a

>lot of caffeine that I should let it steep only 2 to 3

>minutes.

>I still have a cup every so often but I don't need it

>for medicinal purposes (my docs said it was ok) I find

>it to be very soothing and calming.

>If I have to buy it, my friend said to go to the Asian

>market and look for the tea with the very dark leaves.

>He said that the tea from the mountains of China is

>the best, but any mountain grown tea from Asia will

>do.

>

>My mom has Crohn's and whenever it acts up she will

>have a cup before meals. It works very well for her

>too. If her Crohn's attack is a bad one she'll also

>take prednisone, but the tea does seem to soothe her

>stomach.

>I usually don't buy decaf products because of the

>methods used to take the caffeine out.....

>I'm sure there are people who know a lot more about

>this and I'd be interested to hear their opinions.

>===

>Barbara Ann

>Transplant Recipient

Dear Barbara Ann

Am interested in the tea you describe. However, your reference to how they

take out the caffeine???? How do they???

Elaine

Baltimore

>_________________________________________________________

>

[Guest guest]

Dear Geri:

Although I'm not certain whether or not caffeine is bad for the liver, I do

know that caffeine facilitates dehydration. Since so many of us are on

diuretics, it's probably better to avoid excessive amounts of it.

Kathy (AIH)

Seattle area

[Guest guest]

Dear Geri:

From what I understand about it, caffeine in moderation is not a problem, but

for people who take diuretics, it can cause a real problem. When I had my

episode of serious dehydration (I spoke of it the other day when we were

discussing potassium loss), coffee had been the last straw in a series of

events which had caused the problem. During my first year of AIH, I had to

go to the ER 4 times for fluids because of dehydration. It depends on the

circumstances. I didn't drink caffeine at that time, but was instructed not

to by my doctor. I don't drink caffeine now at all. The only time I get any

is when I have my 'decaf' mocha latte. There is caffeine in chocolate and

some caffeine in decaf products, too. I don't allow my daughter to drink

anything with caffeine in it because I figure she's hyper enough!

The bottom line is moderation. Those taking diuretics should be very careful

about how much caffeine they consume. Hope this was helpful.

Kathy (AIH)

Seattle area

[Guest guest]

I have to have my morning coffee. Not only do I feel like a zombie without

it, people actually tell me I look like one.

J

>From: KATBERCOO@...

>Reply- onelist

> onelist

>Subject: Re: [ ]Caffeine

>Date: Fri, 23 Jul 1999 17:41:48 EDT

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>From: KATBERCOO@...

>

>Dear Geri:

>

>From what I understand about it, caffeine in moderation is not a problem,

>but

>for people who take diuretics, it can cause a real problem. When I had my

>episode of serious dehydration (I spoke of it the other day when we were

>discussing potassium loss), coffee had been the last straw in a series of

>events which had caused the problem. During my first year of AIH, I had to

>go to the ER 4 times for fluids because of dehydration. It depends on the

>circumstances. I didn't drink caffeine at that time, but was instructed

>not

>to by my doctor. I don't drink caffeine now at all. The only time I get

>any

>is when I have my 'decaf' mocha latte. There is caffeine in chocolate and

>some caffeine in decaf products, too. I don't allow my daughter to drink

>anything with caffeine in it because I figure she's hyper enough!

>

>The bottom line is moderation. Those taking diuretics should be very

>careful

>about how much caffeine they consume. Hope this was helpful.

>

>Kathy (AIH)

>Seattle area

>

>---------------------------

[Guest guest]

Kathy,

I hadn't heard that but since I don't drink much with caffeine in it, it's

not something I worry about, except for Bob who drinks tons of coffee.

But, isn't it only a problem in excessive amounts? Do you mean clinical

dehydration (so your doctor is concerned and needs to treat it) or just a

general feeling of being dehydrated? I've never been dehydrated except in

the hospital and a doctor told me how to check my skin to see if that was

happening. I know you've had some unusual problems, so I wonder if it

affects everyone or just people who have a combination of problems?

Take care,

Geri

[Guest guest]

Dear J:

I know what you mean! I worked the midnight shift off and on for 13 years.

I would sometimes drink as many as 10 (yes, count 'em, 10) cups of coffee a

night. When I finally did give it up after my bout with shock from

dehydration, I went through real withdrawal. Lots of headaches and

grouchies! Now I get a little bit of a pick me up from the decaf (most of

them are 97% or so decaf) and from the chocolate that I put in it. It's not

that major kick, but it does help clear out the fog. I do have those

mornings where I wish that I had a stiff shot of espresso (leaded)! Here in

'latte land,' my standard drink (decaf, nonfat) is referred to as a 'why

bother?'

Kathy (AIH)

Seattle area

[Guest guest]

I quit coffee a year ago when a naturalist type doctor told me it

messes with autoimmune diseases. it was a bummer to quit cuz I really

enjoyed the flavor. but I really wasnt getting the pick me up I thought

I was getting with it. Brain fog was there regardless..

Jody

--- KATBERCOO@... wrote:

> From: KATBERCOO@...

>

> Dear J:

>

> I know what you mean! I worked the midnight shift

> off and on for 13 years.

> I would sometimes drink as many as 10 (yes, count

> 'em, 10) cups of coffee a

> night. When I finally did give it up after my bout

> with shock from

> dehydration, I went through real withdrawal. Lots

> of headaches and

> grouchies! Now I get a little bit of a pick me up

> from the decaf (most of

> them are 97% or so decaf) and from the chocolate

> that I put in it. It's not

> that major kick, but it does help clear out the fog.

> I do have those

> mornings where I wish that I had a stiff shot of

> espresso (leaded)! Here in

> 'latte land,' my standard drink (decaf, nonfat) is

> referred to as a 'why

> bother?'

>

> Kathy (AIH)

> Seattle area

>

> ---------------------------

[Guest guest]

Wow, Terry!! That's a bunch of water...I think I would feel like I was floating or something and definitely need a lot of bathroom breaks. Guess it would beat the alterative of being dehydrated though. Thanks for the info and the particulars about the caffeine. Since you can't drink Pepsi right now I'll drink one in your honor tomorrow.

Regards,

Terry Long <pawpawto3@...> wrote:

, caffeine dehydrate's you. The peg combo all so dehydate's you. While on the treatment you need to drink a gallon of water a day. If you drink caffeine, you have to drink more water to make up for it.

The only time that I enjoy a cup of coffie is when the temp, drops below 0, I don't see that here in Phoenix. But I sure enjoy my Pepsi, a little to much. I was drinking at least a 6 pack a day. Terry M B <bestofmarys57@...> wrote:

I go in and out of the addiction of Wild Cherry Pepsi and Dr. Pepper. I'm in an active addiction phase at this time. Aside from the general health factors can anyone tell me why it is hard on the liver or is it only when liver disease is present that caffeine is bad? I'm really curious. Sharon Zeis <szeis_1@...> wrote: I used to drink diet, caffeine-free coke. I drinkalmost nothing but water now. Who knows what theartificial sweeteners will do. I make herbal iced teaand drink that once in a while. Sharon--- Sizer <ssizer@...> wrote:> Hi, Terry,> > Before all I drank was my pop. So maybe having to go> through this, was a good thing. > I had been drinking far too much coffee for a long> time (it started when I quit drinking and started> hanging out in coffee shops) and made periodic,> unsuccessful attempts to quit. Well, now I've done> it! As my wife reminds me, 'be careful what you ask> for; you might get it.' Having hep C certainly> wasn't my chosen method of quitting--- but I'll take> it! > > About soda pop: there's other stuff besides> caffeine in it that isn't good for you, especially> cola beverages. Sugar, of course, unless you're> into diet drinks. But they all contain an acid> which promotes tooth decay. > > Regards, > __________________________________________________

[Guest guest]

Dear Annette,

My doctor has never mentioned any problem whatsoever with drinking coffee or having caffeine. Have you been advised to stay away from it? I hope not because I am a coffee feind myself! And as tired as AIH can make me, I don't know what I would do without my coffee! I haven't heard of pain in the spleen, but I do know that when the liver is inflamed you can have "referred" pain due to the swelling. I even have pain in my side when my liver levels are completely normal. I also have slumps when I am completely exhausted and I feel certain my AIH is flaring up, get bloodwork done, and find (fortunately) that my levels are normal. Does that ever happen to you....being tired even when the levels are normal? Oh well, lots of questions, not many answers! Take care!

Holly

>From: "amarilla33"

>Reply- > >Subject: [ ] Caffeine >Date: Mon, 05 Aug 2002 21:55:45 -0000 > >Another question: Is there any reason why we should avoid caffeine >(particularly coffee) as a result of our AIH? I used to be a latte >fiend, but since I became ill two months ago, I haven't touched the >stuff. My numbers are very close to normal now, and I'm getting >tempted to drink coffee again. Yay? Nay? > >Annette > MSN Photos is the easiest way to share and print your photos: Click Here

[Guest guest]

This is my personal opinion : caffeine, as with any other drug, drains the

adrenal glands, and also raises the blood pressure, both conditions already

adversely affected by the use of prednisone; and I think in the long term,

having no nutritional value at all, is just one more item the liver needs to

dump from the body. For some people, it causes constipation, which is a

further strain on the liver. If you really like coffee but believe it to be

harmful, try mixing regular with decaf, increasing the decaf portion over a

period of time, until it is completely decaf, then try herbal tea which

tastes good, to wean yourself off coffee. That is, if you wish to.

aisha

>From: " amarilla33 " <joelanet@...>

>Reply-

>

>Subject: [ ] Caffeine

>Date: Mon, 05 Aug 2002 21:55:45 -0000

>

>Another question: Is there any reason why we should avoid caffeine

>(particularly coffee) as a result of our AIH? I used to be a latte

>fiend, but since I became ill two months ago, I haven't touched the

>stuff. My numbers are very close to normal now, and I'm getting

>tempted to drink coffee again. Yay? Nay?

>

>Annette

>

>

>

>

[Guest guest]

Holly,

Hopefully it's true that caffeine is OK for people with AIH. I think

I got the impression it wasn't from a book on natural healing. It

generally recommends that anyone with any disease cut out caffeine

(along with dairy, red meat, fried, fatty & processed foods, etc.).

As for the being tired when levels are normal, I think that's common.

I was thinking my labs from last week might come back worse since

I've had general abdominal discomfort lately, but they came the same

as always - gradually improving and almost normal! So that's good.

Annette

>

Dear Annette,

My doctor has never mentioned any problem whatsoever with

drinking coffee or having caffeine. Have you been advised to stay

away from it? I hope not because I am a coffee feind myself! And as

tired as AIH can make me, I don't know what I would do without my

coffee! I haven't heard of pain in the spleen, but I do know that

when the liver is inflamed you can have " referred " pain due to the

swelling. I even have pain in my side when my liver levels are

completely normal. I also have slumps when I am completely exhausted

and I feel certain my AIH is flaring up, get bloodwork done, and find

(fortunately) that my levels are normal. Does that ever happen to

you....being tired even when the levels are normal? Oh well, lots of

questions, not many answers! Take care!

Holly

[Guest guest]

:

Do you live in Wisconsin? I live in Superior, WI

Sue/WI

aih97

[Guest guest]

Dear Annette,

I adore coffee and my hep

says “It’s OK”!

But don’t drink too much. Green tea

is fine too if your AIH is not severe.

[ ] Caffeine

Another question: Is there any reason why we should

avoid caffeine

(particularly coffee) as a result of our AIH? I

used to be a latte

fiend, but since I became ill two months ago, I

haven't touched the

stuff. My numbers are very close to normal now,

and I'm getting

tempted to drink coffee again. Yay? Nay?

Annette

[Guest guest]

Hi Everyone,

Guess what? I was out cutting down

junipers yesterday and a wasp stung me!

I was so scared as

I had never been stung before, but made it to Door County Memorial Hospital in Wisconsin within one hour. They said I was only having a local reaction. My

brother once had a very severe reaction and had to be rushed to the hospital so

I thought it might happen to me too.

The doctors said that my taking prednisone

and Imuran kept the histamine levels down so my wrist

wouldn’t swell up. Well, it did get better but my forearm is all red and

painful now. My fingers are tingling too. I think the little guy nicked my

radial nerve in the process. So there is one more benefit to taking all these

meds?

Hmmm… I wonder if I should stay home from work?

I would really rather be home!

AIH 2002

[ ] Caffeine

Another question: Is there any reason why we should

avoid caffeine

(particularly coffee) as a result of our AIH? I

used to be a latte

fiend, but since I became ill two months ago, I

haven't touched the

stuff. My numbers are very close to normal now,

and I'm getting

tempted to drink coffee again. Yay? Nay?

Annette

[Guest guest]

, I am / was severely allergic to stinging insects. One of the last times I was stung, it was about 5 minutes before it was difficult for me to breathe. I went through a lot of bee venom injections to prevent me from having more problems. However, it has been close to around 20 years since the last sting. Some pretty close calls have occurred. Yet, I just use precaution in the spring. Perhaps some day I will be stung, but I am near medical facilities so I don't even worry about carrying an anaphylactic kit.

Glad you are OK!!!

debby

RE: [ ] Caffeine

Hi Everyone,

Guess what? I was out cutting down junipers yesterday and a wasp stung me!

I was so scared as I had never been stung before, but made it to Door County Memorial Hospital in Wisconsin within one hour. They said I was only having a local reaction. My brother once had a very severe reaction and had to be rushed to the hospital so I thought it might happen to me too.

The doctors said that my taking prednisone and Imuran kept the histamine levels down so my wrist wouldn’t swell up. Well, it did get better but my forearm is all red and painful now. My fingers are tingling too. I think the little guy nicked my radial nerve in the process. So there is one more benefit to taking all these meds?

Hmmm… I wonder if I should stay home from work? I would really rather be home!

AIH 2002

-----Original Message-----From: amarilla33 [mailto:joelanet@...] Sent: Monday, August 05, 2002 4:56 PM Subject: [ ] Caffeine

Another question: Is there any reason why we should avoid caffeine (particularly coffee) as a result of our AIH? I used to be a latte fiend, but since I became ill two months ago, I haven't touched the stuff. My numbers are very close to normal now, and I'm getting tempted to drink coffee again. Yay? Nay?Annette

[Guest guest]

HI Sue!

I live in Lake Zurich, Il but went up there for a little vacation and to clean up the

undesirable junipers on some land I have up there.

My arm seems to be much better today. I

was lucky!

Re: [ ]

Caffeine

:

Do you live in Wisconsin? I live in Superior, WI

Sue/WI

aih97

Group

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[Guest guest]

Thanks Debbie!

I was really scared Sat. But I do not

react to poison ivy either, I am just strange!

I will ask my doctor about bee venom

injections.

Re: [ ]

Caffeine

, I am / was severely allergic

to stinging insects. One of the last times I was stung, it was about 5

minutes before it was difficult for me to breathe. I went through a lot

of bee venom injections to prevent me from having more problems. However,

it has been close to around 20 years since the last sting. Some pretty

close calls have occurred. Yet, I just use precaution in the

spring. Perhaps some day I will be stung, but I am near medical

facilities so I don't even worry about carrying an anaphylactic kit.

Glad you are OK!!!

debby

[ ] Caffeine

Another question: Is there any reason why we should

avoid caffeine

(particularly coffee) as a result of our AIH? I

used to be a latte

fiend, but since I became ill two months ago, I

haven't touched the

stuff. My numbers are very close to normal now,

and I'm getting

tempted to drink coffee again. Yay? Nay?

Annette

[Guest guest]

lisa, honey, stay home!!!!!!!!!!!!!!!!!!!!!!hahahaha, enjoy your day

hope you feel better

jennifer

[Guest guest]

Dear Sue,

It is so relaxing there. I love to go

shopping at the galleries and then to ’s for an ice cream cone!

Wish I lived up there so I could take art and

nature classes full time.

Re: [ ]

Caffeine

Good

for you. I was in Door County last summer with just my husband and we had

a great time. Beautiful country.

Sue/WI

Group

Rules

1. Please no religious, political, race or sexual

preference discussions.

2. NO slamming of other members, advertising or

vulgarity. Thank you!

To UNsubscribe send a blank e-mail to

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Your

use of is subject to the Terms of Service.

[Guest guest]

Ha Ha! OK!

Re: [ ]

Caffeine

lisa, honey, stay home!!!!!!!!!!!!!!!!!!!!!!hahahaha,

enjoy your day

hope you feel better

jennifer

[Guest guest]

Annette,

Well, as much as I hate to hear that other people are going through the same things I am going through, it is also a relief to know that they are! At least I know that I am not a slacker.That has been the hardest part of this disease for me. I was always very active in my teens until I was dx with AIH and when I see other people so full of energy it makes me feel lazy. And even though I have a strong support system with my hubby and family, I don't think they realize how hard it is for me to get motivated to do even the smallest things sometimes. Other times I can get up and go with no problem so I think it seems contradictory to them. There are many ups and downs that I go through and when I have my ups, I take advantage of them! By the way...I am sitting here right now having my second cup of coffee for the morning! Gotta run...I have two toddlers demanding some attention! Take care!

Holly

Chat with friends online, try MSN Messenger: Click Here

[Guest guest]

In a message dated 8/5/2002 5:04:49 PM Central Daylight Time, hollydollyramnes@... writes:

any problem whatsoever with drinking coffee

IF IT WERE SO MY NUMBERS WOULD BE SKY HIGH. I HAD ALREADY ASKED MY DOCTOR AND HE RESPONDED WHY NOT.

DAVID