Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Sandy and Cheryl, I don't think it is a good idea to discuss this product or any product on this list. Sandy had written me about the product and I told her to handle it via private email. Maybe it is just my opinion, but this list should be used for support and information and not financial gain. I know we all have to make a living, and I am not against free enterprise at all, but to me this kind of post is as annoying as the SPAM I get when I sign on to my AOL account. Hopefully you two can take this discussion to private email, if anyone else is interested in the product and the discussion, I am sure they will email you privately. Hope you understand. Hugs, Marta >From: cheryl@... > >Hi Sandy! > >It seems to me you didn't adress my concerns, but rather avoided them to promote the product. The hyperbaric oxygen chamber facilities recommend against hbot for those with co-infections. You should be doing the same. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 1999 Report Share Posted May 4, 1999 Hi Cheryl, Me again..What is htop? And did I understand that if you have a co-infection, that the chamber is not a good thing? [Lyme-aid] oxygen >From: cheryl@... > >Hi Sandy! > >It seems to me you didn't adress my concerns, but rather avoided them to promote the product. The hyperbaric oxygen chamber facilities recommend against hbot for those with co-infections. You should be doing the same. > >Let's say someone is infected with an obligate aerobe. Then they go and feed it with oxygen. How messed up is that? > > " Again let me reiterate: > Bacteria, viruses, funguses, parasites and other pathogens that contribute >to disease are anaerobic and CANNOT live in high level of oxygen! " > >Sandy, this is absolutely not true for all disease causing organisms. There are many aerobic organisms. My point was that someone with an aerobic organism can be harmed by this treatment. AEROBIC organisms have been isolated from the same ticks that transmit Lyme. > >You didn't address my comment about oxygen being an oxidant. > > " So it is highly unlikely what you were experiencing was a detoxifying >cleanse. " > >Not so. I assume you meant likely, but I know for a fact that in my case I was not detoxifiying. I know my body, and it's an insult to claim that I don't. I got ill, but the symptoms were not detox symptoms. > > " If us fellow lymies do not cleanse and create an atmosphere where our bodies >can rid itself of this bacteria we will never get better. " > >Yes, and therefore this means, do not take an oxygen supplement. > >God bless, >Cheryl > > > >------------------------------------------------------------------------ >Did you know that we add over 1,000 new e-mail communities every day? >http://www.ONElist.com >Explore a new hobby, discover a new friend, laugh at a new joke! >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 I was diagnosed with fibrosis and emphysema a couple of months ago. I do notice I get out of breath, but what scared me the most is when I was underwater trying to lift someone---I ran out of oxygen fast.....scary to say the least. Anybody had this experience that has breathing problems? Also, I heard someone mention breathing exercises such as bodyflex. I have the tapes and am able to actually do forty breaths easy enough. Will these breathing exercises help me and in what way? I would appreciate any response. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 In a message dated 7/27/99 2:11:16 PM Pacific Daylight Time, jlambert@... writes: << f I had emphysema, I would immediately start on something like piracetam to protect my brain from hypoxia. I would also take vinpocetine, >> Jim, Is piracetam or hypoxia prescription medicine? I have never heard of either of them. How expensive if not prescription? Thank you for the info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 > Also, I heard someone mention breathing exercises such as bodyflex. Funny, but I just saw an infomercial on Bodyflex yesterday. I hadn't heard of it before. My library has a book by the creator Greer Childers, so I put a hold on it. The fact that people in wheelchairs can do it is cool if it works. I wonder what happens when normal weight people use it? It's supposed to be for weight loss at least. J. P.S. I forgot to mention that I was impressed with Burton Goldberg's endorsement. He's the publisher of Alternative Medicine Digest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 , If I had emphysema, I would immediately start on something like piracetam to protect my brain from hypoxia. I would also take vinpocetine, as it does the same and alsewhere in the body too. Until I could get them, I would take lots of ginko biloba and CoQ10. jim lambert SanteeNo1@... wrote: > From: SanteeNo1@... > > I was diagnosed with fibrosis and emphysema a couple of months ago. I do > notice I get out of breath, but what scared me the most is when I was > underwater trying to lift someone---I ran out of oxygen fast.....scary to say > the least. Anybody had this experience that has breathing problems? > > Also, I heard someone mention breathing exercises such as bodyflex. I have > the tapes and am able to actually do forty breaths easy enough. Will these > breathing exercises help me and in what way? > > I would appreciate any response. Thanks, > ------------------------------------------------------------------------ > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self- help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can subscribe/unsubscribe via e-mail by sending AN e-mail to the following address > DO NOT PUT THIS IN THE SUBJECT LINE > oxyplus-subscribeonelist - subscribe to a list. > oxyplus-unsubscribeonelist - unsubscribe from a list. > oxyplus-digestonelist - switch your subscription to digest mode. > oxyplus-normalonelist - switch your subscription to normal mode. -- jim@... http://www.entrance.to/madscience http://www.entrance.to/poetry The biggest difference between genius & stupidity is that genius has its limits. -- anony amicus certus in re incerta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Jim, Thank you very much for your response. I meant to say vinpocetine not hypoxia. You see, I know I am not thinking clearly most of the time and get confused easily. I am not on oxygen or anything at this time and can only hope something else gets me before having to struggle for air. I assume these products will not help my lungs --just designed to help my brain function normally? I know my brain is being affected because I have numbness on the side of my face near my eye and my periphial vision is not to wonderful. I am just now going back to a new homeopathic doctor, whom I have much respect for. I'm really hoping she can help my lungs. The last homeopathic may have been able to help me, but I was being exposed to low levels of carbon monoxide for a period of over 2 years. I don't think this has anything to do with my emphysema or fibrosis, but it sure didn't help. My exposure stopped the middle of February and I have improved greatly, but I hope I can improve even more the longer I am away from CO. Also, I am on the ER4YT diet so I eat a lot of raw veggies, almost raw organic meat, and hardly any grains--- maybe, just maybe I am doing something right. Can I ask, how did you know about these products? Do you have medical problems yourself and have to take them? Also, do you know how many to take? Lots of questions, I know and I hope I am not making a pest of myself. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Jim, The link http://www.qhi.co.uk it says the connection is timed out. I hope this means it is just busy. Have been looking at studies of piracetam and it sounds promising for what is ailing me. They suggest taking 1600mg a day. Does this sound right to you? I can get it at Smart Drugs 180, 1200 mg. for $75 does this also sound good just in case I cannot reach other site? I can see just how valuable the Internet is and appreciate all the help I have received people using it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Jim, Your going to hate me, but I have hung around these boards and usually don't ask any questions and all of the sudden I have so much to ask. To me this question is very dear to my heart and anyone that has info please write me. Cannot getting enough CO2 to the brain make a person hard to get along with? I must say I have been down right mean to people, not in a PMS way, just down right angry and vindictive, not at all like my normal personality. It's is driving me mad not being able to collect my thoughts long enough to figure this whole thing out. Is this part of dementia and is dementia caused by lack of CO2? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Dear , You can clear any remaining carbon monoxide from your system by taking methylene blue. Here is the info: METHYLENE BLUE Methylene blue is a blue aniline dye made from methanol, used in the laboratory for staining tissue samples on slides for viewing under a microscope. It is a methyl donor with the ability to cleave carbon monoxide off hemoglobin by transforming it into harmless carbon dioxide, which is then exhaled. When the body is poorly oxygenated, the sugar that is burned in oxygen by the cell for energy burns poorly, producing carbon monoxide, instead of carbon dioxide. Monoxide has a great affinity for the iron in hemoglobin, and the hemoglobin is unable to shed it in the lungs, and so must leave without a fresh supply of oxygen. This buildup of carbon monoxide can produce the condition known as methemoglobin anemia. People over the age of fifty almost always have some methemoglobin in their blood. Driving in heavy traffic with the vents open can also cause a buildup of carbon monoxide in the blood. In addition, a faulty gas furnace or a smoky fireplace can also cause the ingestion of carbon monoxide. Carbon monoxide in the system acidifies the blood, irritates the organs and causes a lowering of body temperature, which encourages the proliferation of microbes of all types. The body's way of dealing with bacteria and viruses is to shut off the intake of food and raise the body temperature, which we call a fever, in order to ‘burn out the bugs.’ For many years, methylene blue has been used to treat carbon monoxide poisoning and cyanosis, a bluish discoloration of the skin caused by a lack of oxygen in the body, associated with heart failure, lung diseases, asphyxia and hypoxia. In severe cases, methylene blue is is injected intravenously. It has also been used for bladder and kidney infections. Dr. Wilner recommended it for treating cancer. Recently, it has been shown to eliminate HIV in the blood. Most people find that they have a boost of energy after taking methylene blue, some in as little as a week. The recommended dosage is five drops in half a glass of water at bedtime. If cancer or HIV is involved, the recommendation is 15 drops in water twice a day. Transfer the drops to the glass over a stainless steel sink, as porcelain will stain. Methylene blue is non-toxic and safe to use on a daily basis. It will not interfere with any other treatment program. Its only side effects are to temporarily turn the tongue blue for about an hour, and to sometimes cause the urine to be green. Treatment can be repeated twice a year. Best of Health! Saul Pressman URL: http://www.plasmafire.com email: saul@... Join our mailing list and learn about ozone therapy at: /subscribe/ozonetherapy ---------------------------------------------------------------------------- -------------------------------------------------------- Re: oxygen >From: SanteeNo1@... > >Jim, > >Thank you very much for your response. I meant to say vinpocetine not >hypoxia. You see, I know I am not thinking clearly most of the time and get >confused easily. I am not on oxygen or anything at this time and can only >hope something else gets me before having to struggle for air. I assume these >products will not help my lungs --just designed to help my brain function >normally? I know my brain is being affected because I have numbness on the >side of my face near my eye and my periphial vision is not to wonderful. > >I am just now going back to a new homeopathic doctor, whom I have much >respect for. I'm really hoping she can help my lungs. The last homeopathic >may have been able to help me, but I was being exposed to low levels of >carbon monoxide for a period of over 2 years. I don't think this has >anything to do with my emphysema or fibrosis, but it sure didn't help. My >exposure stopped the middle of February and I have improved greatly, but I >hope I can improve even more the longer I am away from CO. Also, I am on the >ER4YT diet so I eat a lot of raw veggies, almost raw organic meat, and >hardly any grains--- maybe, just maybe I am doing something right. > >Can I ask, how did you know about these products? Do you have medical >problems yourself and have to take them? Also, do you know how many to take? > Lots of questions, I know and I hope I am not making a pest of myself. > >Thanks again, > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 , I haven't even gotten thru your email and I have to say something. You might also want to try something called Homozon, which will hyperoxygenate your bloodstream in minutes. It will give you an immediate response. If you send me your snail address privately, I will send you one to try. I happen to have a couple on hand. The only downside, is that it will loosen your bowels to some degree, but this is dose dependent, so you can control it. Also, get some vinpocetine immediately. If your brain can function normally, that has to help lungs somehow, because the brain is involved in all bodily fuctions. Also, if you are hypoxic, your vision will be harmed to some degree. There are many cells in the eye virtually identical to brain cells. Vinpocetine is the only nootropic of which I know that has been shown in research to protect both the brain & eyes. Since you already are developing visual deficiency, ask your health food store to get you Solaray brand " Vizion " . It has everything except vinpocetine for your eyes. take both.My mother was half-blind with macular degeneration, and since she started listening to me her vision is coming back! If you are hypoxic, which can be assumed from the emphysema, then it can also be assumed you are manufacturing your own CO. What you need, IMO, is some exercise too. I guess this could be difficult with your condition, but I just got this Chi Machine a few weeks ago. It is a passive exerciser. You lie on the carpet, put your feet up on it for 20 minutes, and it swings back & forth. This may sound simle, but it is accomplishing important things in the body. YOU WILL FEEL THE EXERCISE LATER just as though you did it in a gym! For one, it pumps the sacral pump for the spinal cord, raising its pressure, which wakes you up and keeps you alert. It moves the larges muscle groups in your body, the legs, and even tho you aren't moving them, the heart has to pump blood for the action taking place. What goes around, comes around, so this blood circulates to the lungs & brain, too. And, in like manner, your muscles exercise beneath your consciousness in compensation for the wiggling this machine puts your body thru. I heard 3 oxyplus members have purchased these gizmos on my recommendation, so I expect we will see some more testimonials in the near future. I am confident of that, because I haven't heard from anyone yet who has one and doesn't love it. The friend who has had one the longest (his manual is printed in chinese) says it's the best investment he has ever made. And, he payed almost twice as much for his. How do I learn about these things? I'm like Arthur Godfrey used to be on T. I won't promote anything I don't personally believe in. It has to do with looking at myself in the mirror.... how I was raised. But, if I believe something is truly beneficial, then I am by God gonna tell people about it. There are only so many physical problems and there are billions of people. So, we are just allowing others to re-invent the wheel if we find something good from personal experience and don't share that knowledge with others. That's why I put up with the occasionally onerous, and always annoying job of moderating this list. And, it sounds like you are doing lots of things right. Keep up the good work! jim SanteeNo1@... wrote: > From: SanteeNo1@... > > Jim, > > Thank you very much for your response. I meant to say vinpocetine not > hypoxia. You see, I know I am not thinking clearly most of the time and get > confused easily. I am not on oxygen or anything at this time and can only > hope something else gets me before having to struggle for air. I assume these > products will not help my lungs --just designed to help my brain function > normally? I know my brain is being affected because I have numbness on the > side of my face near my eye and my periphial vision is not to wonderful. > > I am just now going back to a new homeopathic doctor, whom I have much > respect for. I'm really hoping she can help my lungs. The last homeopathic > may have been able to help me, but I was being exposed to low levels of > carbon monoxide for a period of over 2 years. I don't think this has > anything to do with my emphysema or fibrosis, but it sure didn't help. My > exposure stopped the middle of February and I have improved greatly, but I > hope I can improve even more the longer I am away from CO. Also, I am on the > ER4YT diet so I eat a lot of raw veggies, almost raw organic meat, and > hardly any grains--- maybe, just maybe I am doing something right. > > Can I ask, how did you know about these products? Do you have medical > problems yourself and have to take them? Also, do you know how many to take? > Lots of questions, I know and I hope I am not making a pest of myself. > > Thanks again, > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 QHI is the best I have found. Theirs is $14.50 for 60-800 mg tabs. You figure it. I don't know how many pills in the price you are quoting below. Recommended doses are between 2400-4800mg a day. Less if you are taking other nootropics. I take 1-800mg tab 2-3 times a day. I take an extra if I feel like it. But, I much prefer pramiracetam, but it costs almost $60 a month maintenance as opposed to piracetam's $18.50 ( with shipping). jim SanteeNo1@... wrote: > From: SanteeNo1@... > > Jim, > > The link http://www.qhi.co.uk it says the connection is timed out. I hope > this means it is just busy. Have been looking at studies of piracetam and it > sounds promising for what is ailing me. They suggest taking 1600mg a day. > Does this sound right to you? > I can get it at Smart Drugs 180, 1200 mg. for $75 does this also sound good > just in case I cannot reach other site? > > I can see just how valuable the Internet is and appreciate all the help I > have received people using it. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Quality health's server seems to be down, but they were there yesterday, jim SanteeNo1@... wrote: > From: SanteeNo1@... > > Jim, > > The link http://www.qhi.co.uk it says the connection is timed out. I hope > this means it is just busy. Have been looking at studies of piracetam and it > sounds promising for what is ailing me. They suggest taking 1600mg a day. > Does this sound right to you? > I can get it at Smart Drugs 180, 1200 mg. for $75 does this also sound good > just in case I cannot reach other site? > > I can see just how valuable the Internet is and appreciate all the help I > have received people using it. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 I have worked in an environment with high CO2 and it makes you lethargic, can trigger a migraine, make you irritable, etc. jim SanteeNo1@... wrote: > From: SanteeNo1@... > > Jim, > > Your going to hate me, but I have hung around these boards and usually don't > ask any questions and all of the sudden I have so much to ask. To me this > question is very dear to my heart and anyone that has info please write me. > Cannot getting enough CO2 to the brain make a person hard to get along with? > I must say I have been down right mean to people, not in a PMS way, just down > right angry and vindictive, not at all like my normal personality. It's is > driving me mad not being able to collect my thoughts long enough to figure > this whole thing out. Is this part of dementia and is dementia caused by > lack of CO2? > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 , Yes, Saul Pressman should be able to answer that. You might also like to join the list at http://www.oxytherapy.com where they discuss only oxidative therapies. You can find out about what you requested, as well as other oxygen therapies successful with cancers. I would also check Dr. Budwig's diet. I believe she had amazing success with ground Flax seed and cottage cheese. The essential fatty acids in flax seed, omega 3 & 6 oils, apparently do something to interrupt the cancer cell metabolism. Now, there is a low-tech cancer cure! Homozon is also good for oxygenating your body. Doctor Freibott had colon cancer years ago and declined surgery. He went on a diet with Homozon and his cancer went into remission, and is gone now. He heads up a oxidative therapy foundation that disseminates free information. I found him on the oxylist. Hyperbaric oxygen is good for cancers, but not certain stages of some types. Ozone therapies are particularly good. Saul is a manufacturer of medical grade ozone generators & ozone saunas. http://www.plasmafire.com If I had cancer, Saul is the first person I would want to talk to, since he is familiar with just about everything used anywhere for cancer. So, there are quite a few oxidative therapies that are successful with cancers, and the list at oxytherapy.com would be the best for that, IMO. jim " G. Alt " wrote: > From: " G. Alt " <salt@...> > > I have been diagnosed with cancer. As one component of my therapy I would > like to breath 100% oxygen while riding a stationary bike. Does any one > have specifics to this therapy? Liter flow? mask or canula? how long to > exercise -- how often? any help would be appreciated > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 Dear , Be aware that breathing oxygen will do little to help the prognosis. Oxygen is used as a control in experiments testing medical ozone, and uniformly produces negligible result. The exercise is good, but you need a stronger therapy. Get some IP6 at the health food store. It is a proven cancer inhibitor and will reverse cancer cells back into oxidative action. Best of Health! Saul Pressman URL: http://www.plasmafire.com email: saul@... Join our mailing list and learn about ozone therapy at: /subscribe/ozonetherapy oxygen >From: " G. Alt " <salt@...> > >I have been diagnosed with cancer. As one component of my therapy I would >like to breath 100% oxygen while riding a stationary bike. Does any one >have specifics to this therapy? Liter flow? mask or canula? how long to >exercise -- how often? any help would be appreciated > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 1999 Report Share Posted December 14, 1999 This year will be the First Full Moon to occur on the winter solstice, the first day of winter, since 1866. On Wednesday, December 22, 1999, the full moon also will occur in conjunction with the lunar perigee (that point in the moon's orbit that is closest to the earth). As a result, the moon will appear about 14% larger than it does at apogee (the point in its elliptical orbit that is farthest from the earth). Since the earth is also several million miles closer to the sun at this time of the year, sunlight striking the moon is about 7% stronger, thus making it brighter. If the weather is clear it may be unnecessary to use car headlights while driving at night. In laymen's terms it will be a " super bright " full moon, much more than usual. And it this hasn't happened for 133 years! Our ancestors 133 years ago saw this and our descendants 100 or so years from now will see it too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 The MD route is always prefered... but the reality is that the 'backdoor' is often needed... Non-MD route to 'rebreathers': * Hales breathing (http://www.folkarts.com/idef/breathing.htm - was mentioned by Cheney along with the O2) * Using a 'painter's mask' (they come in different thicknesses -- you may need to experiment to find what works with you comfortably) Treatment specific Tests: * the full range of PCRs from Nicolsons, * full range of Lyme tests * Hemex ISAC Panel (http://www.hemex.com/cfs/ ) -- alas there is no chronic Rickettsia testing available in the US :-( (Nicolson is looking at that too!) The first two are needed if the MD is not willing to prescribe the appropriate antibiotics 'blind' for 30 days (some are... our family MD was "after all, some MDs prescribe the same antibiotics for acne and CFIDS is far more destructive than acne") -- it gives an excuse. HOWEVER, even with positive results some MDs will not prescribe antibiotics (for example Cheney). Classic Tests: * blood pH (in the >>>high<<< "normal" range, or higher ) * red blood cell count (likely low) and review of shape * SED (very low reliability indicates hypercoagulation [but hypercoagulation can happen with a normal SED]) Ken Lassesen 2 @ 2 ft PWC, 2 @ 4ft PWC2 ft PWC: http://www.folkarts.com/idef/4 ft PWC: http://corgi.folkarts.com/Fax: (520) 832-6836 ICQ #: 2122097 (Netmeeting too) ----- Original Message ----- From: helenw8262@... have asked for tests before that I have seen mentioned here and they don't know what I am talking about.Thanks in Advance, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 From: helenw8262@... Feel like I am desperate. Have read so much about the O2 and the partial rebreather mask and wanted to try it for my constant headaches and fatigue so faxed my Dr. and the answer came back that it was dangerous unless I had my blood tested for oxygen content. [Patti: ] I have heard the same " but it can be dangerous " answer so often I want to puke. I've looked, and looked, and asked, but nobody can seem to come up with any hard evidence that it is dangerous with the types of applications we're talking about. A friend of mine who uses " aviator's " oxygen said the store she bought it from said there could be some danger if someone breathed it for 24 hours!!! I personally think the doctors don't really understand oxygen very much. My friend has been breathing oxygen for an hour a day for a month (no rebreather). She has noticed fewer migraines, better sleep. She breathes it for an hour every evening before she goes to sleep. (also she's changed nothing about her diet etc, but she is loosing weight as well) . She will start using the partial rebreather mask when it comes in the mail. Another thing the docs are stupid about is the amount of oxygen carried in your BLOOD (the oxygen content test your doc mentioned) can be VERY DIFFERENT from the amount of oxygen reaching your TISSUES (can have well-saturated blood, but severely lacking in tissues). I can give you my experience as well. Currently I use oxygen for headaches. It really helps unless the headache is well progressed and really bad, but oxygen helps avoid them. I find that oxygen helps a bit with sleeping also. I've rarely used more that 15 minutes at a time and only 3-5 L/min. The reason I haven't tried more oxygen is that the tanks I get are too small for an hour a day. I intend to buy " aviator's " oxygen soon. You can buy aviator's oxygen without a prescription or " permission " from anyone. Its not very expensive either. I'll post about it when I finally get around to buying the aviator's oxygen Has anyone ever hear of doing this, it would probably come back normal. [Patti: ] Mine turned out " normal " (but we all know there's normal, and then there's normal). Yet I still benefit from oxygen for headaches and other pain issues. Have an appointment with him tomorrow and am taking some more info on this. If I could just get the O2, think it was Patti that mentioned the Aviator O2 but haven't found anyone to sell it to me here. [Patti: ] Look in the yellow pages and call places that sell welding oxygen. If you call around enough you will find it. I haven't seen it yet, but my friend says her oxygen tank is about 5 feet tall. She's been using it for about a month (1 hour/day) and says its about half empty. Refills cost $35, so looks like aviator's oxygen will cost about $17/month using 1hour/day. I forgot what the tank rental is, but its really cheap, something like 20cents a month. Can get the partial rebreather mask from the place in Texas that she mentioned. [Patti: ] I believe you can get the mask without a prescription. I ordered one (from Texas) but haven't actually received it yet. what other blood work should I have done, is the test for HHV-6 a very well known blood test? [Patti: ] Personally, I'd ask for the hypercoag test from HEMEX (www.hemex.com) and carnitine levels. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 In a message dated 3/15/2000 3:51:06 AM Pacific Standard Time, onelist writes: Ken recommended these test << Classic Tests: * blood pH (in the >>>high<<< " normal " range, or higher ) * red blood cell count (likely low) and review of shape * SED (very low reliability indicates hypercoagulation [but hypercoagulation can happen with a normal SED]) >> Ken, the blood pH above you mentioned would that be listed as Alkaline Phosphatase on a blood profile. Have record of my profiles over the years and in 1990 it was low with a 47 normal being 55-165 and also WBC was low with a 4.4, RBC was low at 4.54. Since then I take close to $300 of supplements at reduced prices. Am on my 6th bottle of MGN-3 and give myself B-12 injections. On recent profiles my RBC's and WBC are in the normal range. Have gone the Armour Thyroid and Cortef routes recommended by CFS book. Have stopped taking the Cortef, my ENT Dr. thinks it has too many side effects but really need help in that area, usually he gives me 40 mg injection of Medrol ever 3 months which helps with my being able to function but these constant headaches and lethargy are about to get the best of me. In May of 99' my wbc was 5.6 normal being 5-10, rbc 4.72 normal being 4.20-5.40. My HGB was 14.7 which was high 12 -14 being normal figured that was because of the B-12 shots but don't know for sure. Will let you know if I get my 02. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 , I live in Alabama also and might have some information for you. There are many states where we cannot get appropriate tests and treatments for CFIDS, and I find it very discouraging. Will write you backchannel and hopefully we can find some answers and help exchanging information. I am to go in next week to get my " blood ox " tested to see if I can qualify to get the oxygen therapy. Have to show an 89 in order to get approved; doubt that I will but it is worth a try. Has anyone else had this test? How are others in the group doing on the oxygen therapy? Thanks for info anyone might give us. Beth Oxygen From: helenw8262@... Hi Ken, Patti, are anyone else who would like to jump in here. Feel like I am desperate. Have read so much about the O2 and the partial rebreather mask and wanted to try it for my constant headaches and fatigue so faxed my Dr. and the answer came back that it was dangerous unless I had my blood tested for oxygen content. Has anyone ever hear of doing this, it would probably come back normal. Have an appointment with him tomorrow and am taking some more info on this. If I could just get the O2, think it was Patti that mentioned the Aviator O2 but haven't found anyone to sell it to me here. Can get the partial rebreather mask from the place in Texas that she mentioned. Had an MRI done recently and the Radiologist said I have vasculitis and the Neuro just acted like it was nothing and I know differently. Am taking 200 mgCoQ10, large doses of bromelain and tons of other supplements, also asprin. Sent my MRI to Dr. Weingart from Hopkins in December just after the first dateline story about Chiari with Laurie Hogle, (http://www.msnbc.com/news/345977.asp) took me a month to get it back and Dr. Weingart said no Chiari which I knew but was wondering about the Cervical Stenosis, Made the mistake when asking for the MRI I didn't mention doing the cervical spine also which was a big mistake. When I go to the Dr. tomorrow and he orders blood work, what other blood work should I have done, is the test for HHV-6 a very well known blood test? I live in Mobile, Al and have asked for tests before that I have seen mentioned here and they don't know what I am talking about. Thanks in Advance, ------------------------------------------------------------------------ PERFORM CPR ON YOUR APR! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! 1/2121/2/_/531724/_/953086362/ ------------------------------------------------------------------------ This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 Hi , On HHV-6A it should be done by Wisconsin viral Research labs, www.hhv6.com they do the only Rapid culture test for it . It's the lab Dr. Cheney uses for this test. Carol-S had it done. Al Oxygen > From: helenw8262@... > > should I have done, is the test for HHV-6 a very well known blood test? I > live in Mobile, Al and have asked for tests before that I have seen mentioned > here and they don't know what I am talking about. > > Thanks in Advance, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 --- Al Melillo <melillo3@...> wrote: > Hi , > On HHV-6A it should be done by Wisconsin viral > Research labs, > www.hhv6.com they do the only Rapid culture test > for it . It's the lab Dr. > Cheney uses for this test. Carol-S had it done. > Al I believe this is the test that Dr. Berg at Hemex recommends also. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2000 Report Share Posted June 5, 2000 From: radha21@... [mailto:radha21@...] hi, i've always gotten out of breath easily and am now considering taking oxygen, i wanted to know if any of u do and how often [Patti:] I really like using oxygen. Its no silver bullet for me, but I notice much less fibro pain, better quality sleep, and a bit more energy, clearer thinking. Can also stop a migraine. I get these benefits if I breathe it an hour/day on about 2-3 l/min. I'm using non-prescription oxygen. Using aviator's oxygen (from indrustrial gas store) now. I just bought a rebuilt O2 concentrator from Sievetek which should arrive next week (don't need a script for that either). Aviator's oxygen is much cheaper than medical oxygen (even tho its the same thing), but cost effectiveness of concentrator even better. When I get the concentrator will probably try using it at 1l/min all night since I already know my saturation levels drop to 80% at night. Another PWC I know also uses 1 hour/day and notices same benefits. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Al, I haven't tried that particular type, but do occassionally use a similar product called OxyMoxy. I bring it with me on long plane flights where the oxygen levels are below normal. It has helped but the product you mentioned might be better. Where do you get it? Steve B. Oxygen > Hi Everyone, > Has anyone used this stabilized oxygen product called " VitaminO " for CFS ? > Thanks, > Al > > I extracted the report below from www.aabhealth.com/stabilized_oxygen.htm > > > STABILIZED OXYGEN > > Here are the observations by Researchers and reports from Doctors who are prescribing Stabilized Oxygen for their patients: > > 1.. It removed chlorine from drinking water and killed infectious bacteria. > > 2.. Stopped epileptic attacks and assisted patients with Alzheimer's disease. > > 3.. Cancer cells will not grow in the presence of oxygen. > > 4.. Twenty drops of Stabilized Oxygen in a glass of water three times daily reversed patients emphysema. After about three days of treatment the bronchial infection (which accompanies emphysema) begins breaking up. Then, the Stabilized Oxygen was continued until the infection cleared. > > 5.. Beneficial to patients with respiratory problems. Even when the patient was using an oxygen mask, after several days on Stabilized Oxygen, the patient was able to discontinue using the mask. > > 6.. Puts oxygen into the blood so fast it can prevent heart damage due to lack of oxygen. > > 7.. If red cells clump, 20 to 30 drops of Stabilized Oxygen in water will separate them after one hour. > > 8.. Candidas - 20 drops of Stabilized Oxygen in Aloe Vera three times a day will clear it up. Iowa University calls Candidiasis a lesser form of AIDS. > > 9.. Helps digestion. Most food rots before digestion is complete causing the spread of infectious bacteria. > > 10.. Sore throats, ulcers and kidney infections all benefited by the use of 20 drops of Stabilized Oxygen, in water three times per day. > > 11.. Some dentists inject a 30% Stabilized oxygen 70% saline solution into infected gums in place of surgery. They also use it full strength after drilling, and before fillings are put in, to prevent infection. Other clinics are using 30% Stabilized Oxygen, 70% saline solution intravenous for cancer, leukaemia and other chronic infections. > Stabilized Oxygen acted the same as antibiotics > but with no side effects > > > 12.. Viral or bacterial infections anywhere in the body, and common colds, were reversed by the use of Stabilized Oxygen. Twenty drops of Stabilized Oxygen, mixed in a teaspoon of honey and warm water, were administered three times daily until the infections cleared. Stabilized Oxygen acted the same as antibiotics but without any side effects. > > 13.. Asthma, breathing and heart attacks, were also relieved by Stabilized Oxygen. Forty drops of Stabilized Oxygen mixed in an ounce of brandy (or pure apple juice), quickly puts vital oxygen into the bloodstream. This helped prevent heart muscle damage due to a shortage of oxygen. > > > > Quote Link to comment Share on other sites More sharing options...
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